Welcome to the Peyronies Forum

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I agree that your deformity is not bad, and should not cause any problems. I have to ask how long as your erection been this way? I mean how much of this could be congenital?
Quote from: unsureincognito on March 27, 2023, 03:24:07 PMInstead I wanted to try ventripamil or something else but my gp doesn't prescribe that and I don't think the uro I have been sent to does either, it's like they aren't willing to consider other options or they simply just don't have it or aren't trained.

If you originally had a penile fracture, I am not sure what to recommend as we don't have much experience with that on this forum. A deformity from penile fracture is definitely different the a curve caused by Peyronies Disease.

If you have Peyronies Disease (this needs to be confirmed) then generally a urologist will do injections to soften the plaque. Verapamil is an older drug I don't think is used any longer. It essentially was replaced by Xiaflex. Search for "Xiaflex injections" on this site for more information. These injections do not have the thigh rate of success originally hoped for but is a first step prior to surgery. And these injections are not know to correct extreme curves. For example, if you have a 7 degree curve you might only see a 30 degree improvement from Xiaflex injections which still leaves you with a 40 degree curve.

This may be why your doctor is suggesting surgery right out of the gate. If you have an extreme curve, or truly a penile fracture then surgery might be you only option.
Introduce Yourself / Introduction
Last post by Jamesevan - Today at 08:21:40 AM
Hi, this is James. 29 years old.

I am new here as I'm recently been diagnosed with peyronies disease. I'm 29 years old and my symptoms started 2 years back with a constant urethral Bruning. I have been to different uros then and every single one of them diagnosed as chronic prostatitis. They might have been right too since the symptoms pointed to prostatitis/cpps, reduced urine flow, constant pain in urethra, burning after urination.

Fast forward 1 year I felt my erections were hard to get and felt like a stone. I have been prone Masturbating since early teens and this might have caused microtrauma over the years. I have been noticing my penis feeling disconnected, pointing to one side on flaccid, but then oneday I noticed a bent to the left. I freaked out as it was there when I was erect too. Combined with Erectile Dysfunction, bent and Erection, I visited a uro. He did tissue sonography and found calcified plaques on the tunica and cc. I was shocked as I heard it, was this end of everything?

Forward to two months, I have come to terms with this, I still have anxiety as I might never have a functional penis again. My curve hasnt got worse but the Erectile Dysfunction is still bad. It works on cialis but I don't know for how long. I'm still young, so worried about my future relationships and can't think of Implants at such a young age. I really hope there were more treatment options in this disease. My doc said there is nothing much that can be done other than surgery. I am currently on vitamin e and colchicine. Xialfex won't probably work as plaque is calcified. I hope oneday I will get this diseases behind me, for now it's difficult to live with it messing you. I am still hopefull, and trying to have a positive outlook towards life, and hopefully we have some effective treatments in the future.
Quote from: brdman13 on March 30, 2023, 07:48:26 PMAnyone know if there are any Doctors in America that will do Pentox injections.

Did you mean Xiaflex injections? The protocol is generally to do Xiaflex injections first to see if they work before surgery. Unless you have an extreme curve. You might want to share some additional symptoms you are experiencing as it will aid members here to offer any advice.
Introduce Yourself / Re: Introduction
Last post by Mikel7 - Today at 05:39:55 AM
Welcome Nironus to the forum. First line of busines is would you please fill out your signature line --> Signature Line . This will give other members a quick snapshot all about your condition. Then you need to download and study our survival guide --> Survival Guide . This will educate you more regarding peyronies and it's different treatments.

The first thing you should do is to be careful with masturbation. I know you are young and your T levels are probably pretty high but you need to keep it at a minimum now and use a lot of lube and be gentle. Pain is an indicator that something is not right. You said that Cialis gives you headaches, maybe you should try the 2.5 mg dose. Some side effects of it lessen after about 2 to 3 weeks of taking it for some men. This medication is beneficial and can reduce your inflammation and promote healing along with improving erections.

If I were you I would try to find one more Dr, preferably a peyronies specialist if it is all possible. If you are close to Chicago I highly recommend Dr Levine at Rush medical center , or even Dr Trost in Utah.

Study up on traction therapy as I also believe this could be of some benefit for you. Then there is VED therapy which also helps a lot of guys. Read the forum and you will learn more and more which will help you in the long run of things.

I would also ask you if your are health conscious? Do you exercise? Weight train? Eat healthy? This will help your body out with inflammation and also help you in your lifetime with laying down some good habit patterns.

You do need to keep your mind in order and not obsess over this. Yes it is not easy at times but you must adopt a mindset that this is a marathon and not a sprint. You will not conquer this in a month as it takes time and patience and dedication. Distract your mind with video games, walking, doing things you enjoy. Read a good book, do some push ups, etc...

The one thing that you do have in your favor is that you are young and can heal faster than us older gents here. Don't despair and feel like this is going to get worse. You may be through with the worst part already and are on the road to healing. Our minds can play tricks on us at times.

      Mikel7  :)

Traction should be gentle. Reduce traction untill it's just a comftable pull. Say around 200g or less. When I first began traction. I instinctively pulled penis up. For 1-2 minutes. Every night before sleeping. The next morning. There was improvement. Had I not got sepsysy. Am sure I would be cured by now. Traction should be very gentle. There should not be pain. Either during or after a session.
Penile Implants / Re: How reliable is getting re...
Last post by TheBoykinLady - Yesterday at 11:21:48 PM
I am not sure where you are located but I wouldn't hesitate to recommend Dr. Tariq Hakky in Atlanta GA. He did my husbands revision and is an extremely skilled surgeon. He is also younger, so the chances of him being available for a revision in 10-15 years is good.

My husband is Waveboy if you want to read his journal.
Introduce Yourself / Re: Introduction
Last post by FrankPD - Yesterday at 11:09:33 PM
Hi Nironus,

Welcome to the forum.  Use the search tab, you'll learn a lot here from personal experiences than you will Googling, I did.

Seems like you're masturbating too much?  Penises take a long time to heal, weeks sometimes months.  Give it a rest for a month or two and see if you feel better.  I'm a man, I know it's not easy but you have to try.  If you're going to, use lube extra if you have too.

Keep yourself busy, play video games, go for a walk, hang with friends.  Chat with the men here, it helps.
Penile Implants / Re: Waveboy's journey in getti...
Last post by Waveboy - Yesterday at 10:56:54 PM
Hello everyone and hello Hawk!

Sorry it has been 5 months since I have been on the forum. Life got in the way at the 3 month mark post 2nd IPP surgery. Between my wife going through menapause and then having surgery then I started man-a-pause! testosterone dropped, energy dropped, drive dropped, depression started. So not much trial with the IPP.
 Hawk you ask a couple questions one was about PE after IPP but I cant answer that one just yet until life settles down at my house.

Next question you ask about size. Peyronies took 1.5  inches away from me. Then 1st IPP surgeon messed me up bad in tampa florida Dr. Carrion which didn't do the surgery himself but let the residents do it and I lost another 1/2 inch by sizing wrong with wrong placement of pump and reservoir tacked onto my mesh for hernia which was pulling mesh down. Then I went to 2nd surgeon in atlanta GA Dr. Tariq Hakky which was amazing with his surgery of fixing placements and sizing correctly! He was great with bedside manner and very educational before and after surgery of what to expect. So now at 8 months post surgery I am back to my full girth before peyronies and I am 3/4 inch from my original length before peyronies. No curve, straight and hard when I need to be!

first question what is my overall opinion to implants. So I started with peyronies and told if I fixed peyronies with shots in my penis that curve would come back just give it time. Plus I am a hemophiliac so shots options was out. I had to much of a curve to have sex without it hurting me and hurting my wife, so my only option was either no sex or go with IPP. Very stressed in the begining and thought I was loosing my manhood to be honest. Then first surgeon screwed me up which made things worse about opinions. Then Dr. Hakky came along and fixed it right making things MUCH better to where sex was back on the table and no curve with a hard on the was controlled by a pump! My opinion gets better and better by each month then better by each week. I will not lie it is an adjustment of placement of your penis when deflated and then the pump. My wife and I nicknamed it my key fob. Originally I told my wife it was a roommate that my testicles were like 3 is a crowd. So I changed it to key fob. Everything was and adjustment but things getting better faster than I thought. So my opinion is a very high one to IPP and its a great opinion.

If I can help even one person out with concerns towards and IPP with my story that means a lot. This forum has been a great help to my wife and I with education.

I will try to be better at getting back on the forum more often. My life is starting to straighten out again.

Happy Friday everyone.

Waveboy out!
Penile Implants / Re: How reliable is getting re...
Last post by ohnoohno - Yesterday at 10:06:54 PM
Right lol! Well there's that I guess.

So mainly the other ones in the list are:

Edward Karpman,  MD.

United Kingdom
Dr. David Ralph

Canada Ontario
Dr. Gerald Brock

North Carolina
Dr Aaron Lentz

Or is there more and I'm looking in wrong place?

[Added by Admin Lwillisjr - I took the liberty to add here to keep the post updated]
Chicago, Il
Lawrence Levine

Is there a rough estimate price for these lots say 10,000-15,000USD?