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#1
Xiaflex Injections / Re: Unsuccessful
Last post by Sebtp1973 - Today at 03:20:45 PM
Doctor Trost will tell you he is getting his best results from patients who went through a few rounds from a different doctor, then are treated by him and his protocols. He'll make you wait a year from your last injection though. He thinks the softening from the initial rounds, then the year of healing, sets the patient up for exceptional improvements using his protocols.

That's how I was treated. I had over a 100 degree composite curve, and after one round of treatment with Trost, my penis is straighter than it was pre-peyronies.
#2
I walk as well but I will take nitric oxide before I get started and that really moves the oxygen in the bloodstream and I will feel it in my penis as it plumps up some. 
#3
Taking a wide array of supplements and medications can indeed feel overwhelming, both in terms of the number of pills and the frequency of dosing. It's wise to periodically reassess your regimen with the guidance of a healthcare professional. They can help you prioritize and streamline your list, ensuring you're getting the most benefit with the fewest possible risks.

Consider focusing on the essentials and eliminating anything that may be redundant or unnecessary. Quality over quantity is key.
#4
It's concerning to hear about the side effects you experienced, particularly the extreme orthostatic hypotension and bleeding issues.

It's crucial for anyone considering or currently using pentoxifylline to be aware of its potential side effects and interactions, especially if they're taking supplements like vitamin E and curcumin that can further thin the blood. Your experience with verapamil injection underscores the importance of cautious medical management and monitoring when combining treatments.

Thanks for sharing your story and the reminder to stay informed and safe when managing health conditions. Wishing you all the best on your journey towards better health and well-being!  ::)
#5
These symptoms could potentially indicate issues with circulation or nerve sensitivity, but only a thorough examination by a healthcare provider can provide a proper diagnosis and treatment plan.

In the meantime, continuing to avoid activities that exacerbate your symptoms, such as movements that strain your penis, and practicing self-care measures like rest and gentle exercises may help alleviate discomfort. Keep track of any changes or new symptoms you experience and communicate them to your healthcare provider during your appointment for a more comprehensive evaluation.

Take care, and I hope you find relief soon  ;)
#6
It's understandable that you're concerned about the recurrence of symptoms despite your efforts with medication and VED.

VED therapy can indeed be beneficial in managing symptoms of Peyronie's disease by promoting blood flow and potentially reducing curvature over time. Nonetheless, it's essential to ensure you're following a comprehensive treatment plan that addresses all aspects of your condition.

Remember, open communication with your healthcare team is key to managing any medical condition effectively.  :)
#7
Xiaflex Injections / Unsuccessful
Last post by SquareEfficient7618 - Today at 11:17:49 AM
I recently completed my 3rd round if Xiaflex injections.  It was unsuccessful at improving my bend at all.

Pros
The plaque has been reduced a good amount and is softer and more pliable, according to my doctor.
The hourglass shaping is practically nonexistent now.
I do not think I have lost any length.  It's hard to tell when you are bent.  When I stretch flaccid, it still looks like the same length.  If I lost anything at all, it would be 1cm.  Like I said, its hard to tell when you can't measure yourself straight.

Cons
I still have a 90 degree straight up bend.  It's not a curve.  I am bent in half.  Absolutely no improvement.
I now have a slight S-curve going on, likely from the stretching and RestoreX usage.

I do have a consultation with Dr Trost in a few weeks to get a 2nd opinion.
#8
Progression of Peyronies Disease / Re: Plaque Position
Last post by McQueen - Today at 07:14:30 AM
Thanks for the replies.

That's what I thought, to be honest.

Went to the doctors, told him I was suffering symptons of Peyronies, and he said it was something "in the skin", and not attached to the penis, and it was nothing to worry about.

Hope he is right !
#9
Introduce Yourself / Re: New here would like to pos...
Last post by Mikel7 - Today at 05:54:37 AM
Welcome Jubilee to the forum and thank you for filling out your signature line. I also say hats off to you for the courage to beat an addiction!! You now have the knowledge and hope to give out to encourage others in need!.

You need to read the forum and hopefully other members can chime in on grafting surgery. I do know that it is more challenging to perform a graft. This is probably due to the location of the plaque and size and surrounding structures. Also the surgeon should be a high volume one who specializes in the procedure. My physician is Dr Levine in Chicago and he is qualified for this procedure if you are close to Illinois.

I would say that you could give traction and VED a try to see if you have any improvements. It is noninvasive and you may have some success with it. You should also educate yourself on grafting surgeries and make a list of questions for your new Dr to answer. Again welcome to the forum !   :)

Mikel7
#10
If you continue with traction and are patiently dedicated you could see even more improvement.