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Author Topic: Which of you has thought to suicide?  (Read 60485 times)

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dioporcolorisolvo

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Which of you has thought to suicide?
« on: June 18, 2011, 10:55:10 PM »

How do you face the moments of deep anguish?
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Worried Guy

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Re: Which of you has thought to suicide?
« Reply #1 on: June 18, 2011, 11:29:23 PM »

Life still goes on.  Don't think think that.
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fubar

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Re: Which of you has thought to suicide?
« Reply #2 on: June 19, 2011, 12:09:44 AM »

You just face it and knock it out of the park you have no other choice.Take time to relize life is not over and you have choices and Peyronie's is not the end all.You have balls and you are man!

Fubar
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Skjaldborg

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Re: Which of you has thought to suicide?
« Reply #3 on: June 19, 2011, 12:22:26 AM »

This disease affects everyone differently. I certainly remember feeling as if life had been very unfair to me and I felt a dark cloud of hopelessness when I first came down with Peyronie's. I can't say I thought about killing myself, but I was certainly less concerned about my safety. I remember thinking: "If I die in a car wreck or get hit by a bus, oh well. At least I won't have Peyronie's anymore." Part of my profound unhappiness stemmed from getting this at age 29 instead of 59, like a "normal" Peyronie's sufferer.

After a time my little pity party turned to anger and anger begat motivation. I started exercising more and focusing on getting whatever treatments were available. I also went to see a therapist just to talk about my frustrations with this disease. My wife is of course very supportive but I needed to speak with someone who I wasn't in a relationship with so I could vent freely. This was hugely helpful for me.

There's no way to sugar coat it: this disease is tremendously stupid and unfair but it's not worth killing yourself over. If you think about it, only a tiny portion of our body mass is inflicted with the disease ( ;D yeah, I know we men like to brag, but it's still a tiny fraction of our bodies). We have the power to make ourselves stronger and better men and to become better lovers despite any problems below the belt. It means we have to think in new ways and view the disease as a challenge to overcome. For some of us it is the greatest challenge of our lives.

Of course, depression isn't always something that can be overcome with exercise and positive thinking. Sometimes professional help and medication are needed. If you are feeling suicidal, get help. Call someone. There are suicide hotlines around the US where you can get help:
- http://suicidehotlines.com/
-http://www.suicidepreventionlifeline.org/

Hang in there.

-Skjald
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rd

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Re: Which of you has thought to suicide?
« Reply #4 on: June 19, 2011, 11:00:40 AM »

I have to admit I think about it regularly. I've always been a healthy person. I work out and try to eat right to the best of my abilities. For me or anyone else to come down with this is completely unfair. I got this at 30 and I am trying everything that has any evidence of working. I sometimes wish I had a terminal illness instead of this because then I would know there was a end coming. I like the previous poster am not as concerned with my safety and wish something would just take me out sometimes. I even wish I had it in myself to commit suicide. To me this disease means that at 31 now I can never date, have a relationship, or a family. I'm also tired of the doctors dismissing me like its absolutely nothing telling me oh it shouldn't hurt its all in my head. I have a high pain tolerance and know my body well if it hurts it hurts. This is why I can't ever date, have a relationship or a family. I don't want to have sex because its not enjoyable anymore and I was always a very sexual person. If it is effecting me this strongly it is also unfair to ask someone to be in a relationship with me and have to deal with all the mental agony this brings with it. I don't have a bad curve or any shortness with this disease, what I have is a dent and constant annoying pain and discomfort. I've only had this approx 9 months but I can tell you I am not going to live the rest of my life this way. No one should have to experience this disease. I wouldn't even wish it on my worst enemies.
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Skjaldborg

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Re: Which of you has thought to suicide?
« Reply #5 on: June 19, 2011, 02:38:14 PM »

I'm also tired of the doctors dismissing me like its absolutely nothing telling me oh it shouldn't hurt its all in my head. I have a high pain tolerance and know my body well if it hurts it hurts.

RD,

Go to a different urologist and get a referral to a male sexual health specialist, like Dr. Lue or Dr. Levine. Are you on pentox? If not, get on it right away. It helped get rid of my pain in a matter of weeks. By all means go to another urologist who will listen and prescribe pentox. Frankly, your current doctors are idiots if they are not listening to you. You have the right to find better treatment.

On the sex and relationship thing, this is not the end of the world. You mentioned that you have a mild case of the disease with only an indentation: that's good news. Most women won't notice and bumps or divots down there because, let's face it, the human penis isn't winning any beauty contests in even the best of circumstances. If you get your pain under control with pentox, you will be back in the sack in no time. Furthermore, the mental baggage that this disease brings is no worse than the baggage from any other problem. I bet the vast majority of women when told about this disease would say, "That's it? That's not a deal breaker!" Trust me on this one.

-Skjald

Sorry about the threadjack
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dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #6 on: June 19, 2011, 03:45:21 PM »

I'm 27 years too....i have also bipolar depression since 8 years....
I'm assuming everything but disease goes on.....i have also other physical problems....you arrive at one point where mind surrenders.
Also i wish to have a tumour than peyronie because peyronie hasn't a expiry.
I've ordered VED from America...i wait it and then i start VED therapy.
I'm very tired of doctors and hospitals...
It's very difficult to study finance with this disease...everything becomes without importance. Who knows what will happen..
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newguy

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Re: Which of you has thought to suicide?
« Reply #7 on: June 19, 2011, 06:32:18 PM »

I think almost without exception, peyronie's disease is something that is or has been a major struggle for those burdened with it. It's important to channel your mental resources into being proactive, while at the same time not being unrealistic. Issues of this nature can become all consuming, but it can also be an opportunity to re-evaluate how you view problems.
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BentYoung

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Re: Which of you has thought to suicide?
« Reply #8 on: June 19, 2011, 10:50:37 PM »

I think all of us go through the really desperate times early in the condition. I must say that Peyronies Disease has really changed my mental outlook on everything around me in a positive way. Being in my mid 20's myself, it would be easy to just give up and become a hopeless victim, but Peyronies Disease has forced me to really evaluate my life and whats important to me. If you stop and take a look at everything that you do have in spite of Peyronies Disease, you almost feel guilty for letting it get you down. Appreciation and gratitude are key to happiness. I am at a point now where feeling sorry for myself is almost comical to me. I think that everyone eventually gets to that point with this condition and a whole new world of happiness presents itself. I have Peyronies Disease and it sucks, but I also have infinitely more gifts to be happy about.   
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rd

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Re: Which of you has thought to suicide?
« Reply #9 on: June 20, 2011, 08:40:16 AM »

I'm also tired of the doctors dismissing me like its absolutely nothing telling me oh it shouldn't hurt its all in my head. I have a high pain tolerance and know my body well if it hurts it hurts.

RD,

Go to a different urologist and get a referral to a male sexual health specialist, like Dr. Lue or Dr. Levine. Are you on pentox? If not, get on it right away. It helped get rid of my pain in a matter of weeks. By all means go to another urologist who will listen and prescribe pentox. Frankly, your current doctors are idiots if they are not listening to you. You have the right to find better treatment.

On the sex and relationship thing, this is not the end of the world. You mentioned that you have a mild case of the disease with only an indentation: that's good news. Most women won't notice and bumps or divots down there because, let's face it, the human penis isn't winning any beauty contests in even the best of circumstances. If you get your pain under control with pentox, you will be back in the sack in no time. Furthermore, the mental baggage that this disease brings is no worse than the baggage from any other problem. I bet the vast majority of women when told about this disease would say, "That's it? That's not a deal breaker!" Trust me on this one.

-Skjald

Sorry about the threadjack

I've already been to 4 doctors 3 of them uro's one at hopkins and said to be a specialist in peyronies. The other doctor I have been to was my gp and he was the best of all of them. He admits he isn't familiar with the condition, but asks questions and seems to actually listen where as the others don't seem to listen to a word I say. I am on pentox, I do the double dose and started that a month or so ago before that I was on the one pill 3 times a day. I also have been taking coq10 but nothing seems to help. There is constant annoying sensations pain burning stinging tingling that come from the scar area all day every day. I keep getting told the pain will go away but it's been there for 9 almost 10 months already. If the pain doesn't go away it won't be worth having a life to me. I haven't given up just yet but this is my how I think. I don't want to live my life in pain and growing old alone it just amazes me that this simple scaring can't be fixed by doctors.
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MikeSmith0

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Re: Which of you has thought to suicide?
« Reply #10 on: June 20, 2011, 06:49:55 PM »

I have to admit I think about it regularly. I've always been a healthy person. I work out and try to eat right to the best of my abilities. For me or anyone else to come down with this is completely unfair. I got this at 30 and I am trying everything that has any evidence of working. I sometimes wish I had a terminal illness instead of this because then I would know there was a end coming. I like the previous poster am not as concerned with my safety and wish something would just take me out sometimes. I even wish I had it in myself to commit suicide. To me this disease means that at 31 now I can never date, have a relationship, or a family. I'm also tired of the doctors dismissing me like its absolutely nothing telling me oh it shouldn't hurt its all in my head. I have a high pain tolerance and know my body well if it hurts it hurts. This is why I can't ever date, have a relationship or a family. I don't want to have sex because its not enjoyable anymore and I was always a very sexual person. If it is effecting me this strongly it is also unfair to ask someone to be in a relationship with me and have to deal with all the mental agony this brings with it. I don't have a bad curve or any shortness with this disease, what I have is a dent and constant annoying pain and discomfort. I've only had this approx 9 months but I can tell you I am not going to live the rest of my life this way. No one should have to experience this disease. I wouldn't even wish it on my worst enemies.

I feel the same way...that was very well-written.   The only difference is I lost more size than you - which can't really come back.  I can hardly look at it anymore.  Do people w/o Peyronies Disease really have no clue about the emotional toll it takes?  I would do anything to be normal again...and if I can't - there's going to be a limit to how long I can put up with it.
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sgtnick

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Re: Which of you has thought to suicide?
« Reply #11 on: June 20, 2011, 09:03:34 PM »

DAMN!!!!!!!!!!!!!!!!!!!!!!   -  I won't have to commit suicide, YOU GUYS are killing me.  I was having a horrible day already, then I come here and read all this SUICIDE stuff - what A trip.  I personally believe in an after-life and "kicking your own bucket" ain't the way to get there.  If you don't believe what I believe, that's O.K.  However, it seems to me that suicide hurts other people more than Peyronies Disease hurts us.

Just get off your ass and do something.  You can always get an implant.  Some of the people on this forum claim that implants are better than the "real McCoy."  Three weeks ago I was in a hospital with IV Dilaudid going into my body.  The pain was insidious, at one point every nerve in my body was screaming for some kind of relief.  Eventually relief came, yet, during post-op recovery and the painful days that followed I never considered suicide.  That does not make me a stronger person than you.  I say all this to say that my Peyronies Disease on the worse days, never hurt as bad as my suffering on 6-1-2011.

I will share one other thing with you.  When I got discharged from the Marine Corps, during the Vietnam war, I had to go to a Naval hospital for a discharge physical.  There were wounded Marines there with all there limbs blown off, blind and deaf.  My perspective of suffering changed drastically then and there and had a lasting effect.  Count your blessings, there is help available FOR YOU!
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Old Man

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Re: Which of you has thought to suicide?
« Reply #12 on: June 20, 2011, 11:15:37 PM »

sgtnick:


AMEN, ONE THOUSAND TIMES FOR YOUR POST!!!

Old Man.
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Age 91. Peyronies Disease at age 24, Peyronies Disease after radical prostatectomy in 1995. Heart surgery 2004 with three bypasses/three stents. Three stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries in the last 10 years.

fubar

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Re: Which of you has thought to suicide?
« Reply #13 on: June 21, 2011, 12:02:48 AM »

Sgtnick

I will back that up! Thanks for the post and standing upright.
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fubar

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Re: Which of you has thought to suicide?
« Reply #14 on: June 21, 2011, 12:56:28 AM »

I would like to say something.Being a heart attack victim and loosing my life on different ocasions and then having the blessing of being returned to life.I most definately will take life over the loss , I have received from Peyronie's.

Yes we treasure life as we know it.But life is much more than what we feel or consider. Much more than we think we give or we can comprehend. A better world of strength that lives in us all.A world of understanding and common belief. It will happen for us all. Keep your eyes open for new discovery.

Fubar
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MikeSmith0

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Re: Which of you has thought to suicide?
« Reply #15 on: June 24, 2011, 03:11:52 AM »

People with severe depression, particularly bipolar, have a 30% risk of suicide.  I believe Peyronies Disease triggers underlying / predisposed depressive conditions in susceptible people - not everyone.  There is no easy way to talk someone out of severe depression... either the meds work, or ECT is next - very few psychotherapists can get through because the reality is Peyronies Disease is not going away, ever.  Most people who are single will not feel comfortable with a 4" penis that can't get fully hard for intercourse, not to mention the aesthetic problem.   If you are young and single,  the depression will be worse since there is no social support (other than this group, truly).  Nobody kills themselves over Peyronies Disease.  It's the trigger for depression that probably coincides with other triggers and underlying depressive predisposition, genetically.  It's a powerful trigger...some people can overcome, some cannot. 

Men have committed suicide in Iraq and Afghanistan.  The Army hit a grim milestone last year when the suicide rate exceeded that of the general population for the first time: 20.2 per 100,000 people in the military, compared with the civilian rate of 19.5 per 100,000. The Army's suicide rate was 12.7 per 100,000 in 2005, 15.3 in 2006 and 16.8 in 2007. 
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sgtnick

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Re: Which of you has thought to suicide?
« Reply #16 on: June 24, 2011, 06:06:05 AM »

Several years ago I was treated for depression; meds, therapy, the whole routine.  The hardest part for me to comprehend at the time, because of the way I FELT, was that depression is a physical problem, not a mental problem.  Impending doom and not being able to put one foot in front of the other resulted in "loss of hope."  I was dead in the water. As a result and because of my helpless state I actually had a supernatural experience, some may call an epiphany.  However, because of the rules of this forum I can only share that experience through PMs or email.  If any one is interested I will share the entire experience off-forum.

For me Peyronies Disease came later and I certainly did not swing back into depression.  Depression can be  successfully treated today.  I personally believe that Peyronies Disease creates situational depressive feelings and that Peyronies Disease does not cause permanent, clinical depression.  Had I experienced Peyronies Disease when I was depressed, it would have only been, merely, a crooked dick which I had no interest in using at that time.

Because I am recovered from depression, Peyronies Disease is not a problem for me, however, it is an "unsolved opportunity"  I am well on the way to recovery from Peyronies Disease which is the subject for another topic elsewhere on this forum.  I suggest that depression be treated by a specialist not a General Practitioner.  I have no argument with anyone about the dynamics of depression and/or Peyronies Disease, my story is here for anyone who may find my experiences helpful.
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fubar

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Re: Which of you has thought to suicide?
« Reply #17 on: July 02, 2011, 08:09:28 PM »

Yes, this disease is certainly tough.You have to be strong you are the one going through this nasty disease.No one else will stand beside you and hold your hand as your tears drop about your struggle.

Any enemy will see you as you are MAN, so you won't make anyone run from your dick I promise.Women will move accordingly to your manner .The man before them is just that .Your dick does not make friends or lovers you do!Take that to heart and do not forget you are in controll of your outcome not your penis.Peace my brothers and take care.I must retire my mind from this.Time to move on good luck!

Fubar
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torn

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Re: Which of you has thought to suicide?
« Reply #18 on: July 04, 2011, 01:16:08 AM »

I think about it all the time. I've almost completely lost hope. My curve isn't bad as its only slight, what is bad is the shrinkage, loss of sensation, severe Erectile Dysfunction, and lack of libido. I've been dealing with this for 2 years now and I'm about to give up. The recommended pills by users of this forum are having little effect. Im becoming less and less scared to go through with it. I just don't want to hurt people who care about me.
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fubar

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Re: Which of you has thought to suicide?
« Reply #19 on: July 04, 2011, 03:05:26 AM »

Torn

Life has handed us a pile of dump.There is no arguing about this.How we deal with it and resolve this is more important.In the end this will define you as a man.Scarry Hugh? Fight for my man hood, what else's do you have to live for.Trust me people this stuff recommended by suffers on the forum works
Maybe not as fast or enabling as you want it.Yet if you try and stick with a remedy you may find yourself in a better position.

Fubar

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Tim468

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Re: Which of you has thought to suicide?
« Reply #20 on: July 04, 2011, 07:41:32 AM »

Dear Torn,

Some of your symptoms might be BECAUSE of depression, not the cause of depression. Our minds can indeed cause severe Erectile Dysfunction and loss of libido.

Numbness even can have a strong psychological component.

I have sadness that I am unlikely to hear a girl say "God - I love you [email protected]^k!". I miss that penis a lot. But *I* am OK, and I have love in my life and I do hear my wife say that to me sometimes (we are married after all and the 'sometimes' may have more to do with that than my inherent lovability!).

You may be a young man who ends up with testosterone supplements and a penile implant - or something else that you did not sign up for when you enlisted in the human race. But you have to stick around to find out what the rest of the story will be. Maybe it will include a partner, children, a happy life. Why not?

Tim
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52, Peyronies Disease for 30 years, upward curve and some new lesions.

YMENOW

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Re: Which of you has thought to suicide?
« Reply #21 on: July 04, 2011, 04:52:28 PM »

Torn

Stick it out!!!!!   I'm 67, and  I think at times that I should give up on "life" or "sex".  I am the one thinking about my dick but my wife doesn't think that about what it looks like.  Your partner will look at you and only you.  Your personality and the way you treat her should be the key to a wonderful life. 

I think too much about the changes in my life.  I am at a crossroads at this time but from experience my wife wouldn't change me for the world.  She doesn't care about the dents or the waisting or the shortness as long as I can get it up, but with the help of modern medicine.

I try everything to improve our sex life and at times I am going overboard.  I am thinking too much of myself and that is the bottom line.   I still have trouble with the effin peyronies and I am coping with it and doing the best I can with the VED and whatever comes to mind. 

I am certain that you will overcome all with time....

ymn



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MikeSmith0

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Re: Which of you has thought to suicide?
« Reply #22 on: July 22, 2011, 04:48:50 PM »

I think about it all the time. I've almost completely lost hope. My curve isn't bad as its only slight, what is bad is the shrinkage, loss of sensation, severe Erectile Dysfunction, and lack of libido. I've been dealing with this for 2 years now and I'm about to give up. The recommended pills by users of this forum are having little effect. Im becoming less and less scared to go through with it. I just don't want to hurt people who care about me.

Wow i could have written this myself.. let me know if you want to talk sometime.  

I think it's very different for unmarried people (I am guessing Torn is single) who have not been in a relationship for a very long time.  Dating someone 1-2 yrs when Peyronies Disease begins will likely make the relationship very difficult.  And - it might have nothing to do w/ the female... many are understanding (or say they are - on the surface - it varies).   The loss of self esteem is very powerful...especially if nobody is around to be accepting of you in this state (intimately).
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fubar

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Re: Which of you has thought to suicide?
« Reply #23 on: July 24, 2011, 08:39:14 PM »

Living with Peyronie's is tough but things do get better.Keep pushing on I'm improving.No Erectile Dysfunction drugs or pentox for the last month.Had a good erectionlooked great although deformity.

The deformity is less but it is still a stigma, then again nothing is exceptional anymore.You live life once do yo want to be remembered wording about you penis.

Just saying yes it hurts but we are men before any experience.We have the strength to conquer this no matter how mangled we are.

As my friend luka use to say have many strength!
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crashbandit

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Re: Which of you has thought to suicide?
« Reply #24 on: July 24, 2011, 11:20:46 PM »

Living with Peyronie's is tough but things do get better.Keep pushing on I'm improving.No Erectile Dysfunction drugs or pentox for the last month.Had a good erectionlooked great although deformity.

The deformity is less but it is still a stigma, then again nothing is exceptional anymore.You live life once do yo want to be remembered wording about you penis.

Just saying yes it hurts but we are men before any experience.We have the strength to conquer this no matter how mangled we are.

As my friend luka use to say have many strength!

Yea! Fubar is our leader!

Instead of what the guy in "Braveheart" said, "You can take our land, but you can never take our freedom!!!!" We should say, "Peyronies, you can take our penis, but you can never take our manhood!!!!!!"

 ;D ;)

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Cheers

chris26

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Re: Which of you has thought to suicide?
« Reply #25 on: July 28, 2011, 01:12:22 PM »

Suicide would never cross my mind personally, even with my useless penis theres still plenty i enjoy in life.

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Squonk

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Re: Which of you has thought to suicide?
« Reply #26 on: September 05, 2011, 08:57:06 PM »

I think about suicide every day of my life.  As a person who has fought depression most of my life, it seems so unfair to be thrown this curveball.  A life without human touch is my sentence for a crime I did not commit.  Now I can only wait for the sweet release that only death can bring.  I will someday muster the courage to expedite that release you can be sure.
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Close to the Edge.....

newguy

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Re: Which of you has thought to suicide?
« Reply #27 on: September 05, 2011, 10:31:08 PM »

Squonk- Once upon a time for men with peyronie's disease options such as pentox, cialis, ved, traction, xiaflex, surgery and implants etc didn't even exist. Slowly but surely lots of men are finding ways to improve their condition. If something doesn't work, there is always a different approach to take, all of which are better than dwelling on how unfair the condition is. Some of the 'worse case scenario' options such an implants might not sound appealing, but I'm sure many men with implants are more than happy with them, so it's all a matter of perspective. We live in a society obsessed with penis size and so on, so even many men without peyronie's often find something penis related to torment themselves about. We need to stop comparing ourselves to others or our previous selves, and work on how best to proceed from where we find ourselves now.
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dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #28 on: September 05, 2011, 11:23:41 PM »

When will Xiaflex be approved?
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fubar

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Re: Which of you has thought to suicide?
« Reply #29 on: September 05, 2011, 11:35:56 PM »

Newguy
Awesome words let us hope they do not fall on deaf ears!

Fubar
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newguy

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Re: Which of you has thought to suicide?
« Reply #30 on: September 06, 2011, 10:17:08 AM »

Many thanks fubar! They can be tough words for us all to truly take on board, but it's certainly an attitude that has helped me. It's easy to get trapped in a mindset that's as damaging as peyronie's itself.
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fubar

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Re: Which of you has thought to suicide?
« Reply #31 on: September 07, 2011, 12:59:41 AM »

When i was in the army I had a roommate that just stunk all the time.I had to bring up to higher ups this Guy would not bathe.Anyway not long after that he did shower.This Guy has a beautiful wife at the time And had just had a baby boy that looked exactly like him.I personally know this Guy ran around with other women.

One day walking into the showers I noticed him looking at my package. I said what the F are you looking at he turned away and that was the end of it.Weeks later walking into the showers I discovered why he did not want to bathe And why he took notice of me. By accident I saw what he was sporting,  there was nothing there.

So I imagine this Guy was born with what is known as micro penis.He never mentioned his defect and I never
Thought of it again as it was not my ailment.Kind of like the common urologist.That gives you Vit e and sends you away.

This Guy was maybe 23 at the time yes he was troubled buy it. But it did not stop him.Believe me if a Guy can go to basic training survive the showers and make a baby.we can make it too.

Fubar



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fubar

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Re: Which of you has thought to suicide?
« Reply #32 on: September 07, 2011, 01:37:53 AM »

Newguy

All this is tough and to take acceptance of what has been dealt to us.But I believe acceptance is the reality of this disease.If you can not accept  what has happened then you can not move on.The efforts of many on this forum past and present. Have given there knowledge,  there experience a good part of there time to help others.So we can move on and make progress in fighting this disease

I surely would be suffering more if it were not  for men like you to keep me rational and not loosing my mind to this.That is probably the single most important service of this forum helping your brothers keep their minds together.Newguy you truly have a gift in raising someones morale.


You are absolutely correct to look into our past and dwell on it will definitely leave us in a worse state than our disease.

Fubar
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Squonk

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Re: Which of you has thought to suicide?
« Reply #33 on: September 14, 2011, 03:47:33 PM »

When will Xiaflex be approved?

I was in the Xiaflex experiment.  It made my conditon way worse.  Be careful!!!
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Close to the Edge.....

crashbandit

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Re: Which of you has thought to suicide?
« Reply #34 on: September 15, 2011, 12:07:30 AM »

When will Xiaflex be approved?

I was in the Xiaflex experiment.  It made my conditon way worse.  Be careful!!!


Sorry to hear that Squonk. That's harsh to go through all that work and only to get worse. Huge upset I'm sure.

there's another huge thread in another section of the board about Xiaflex. If you could post your experiences in that thread about Xiaflex then you might be able to get more help about it and help others:

http://www.peyroniesforum.net/index.php/topic,903.0.html
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Cheers

dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #35 on: September 15, 2011, 03:58:36 AM »

When will Xiaflex be approved?

I was in the Xiaflex experiment.  It made my conditon way worse.  Be careful!!!


What did it happen?
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MikeSmith0

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Re: Which of you has thought to suicide?
« Reply #36 on: September 18, 2011, 01:52:42 AM »


I was in the Xiaflex experiment.  It made my conditon way worse.  Be careful!!!
[/quote]

Can you elaborate on this? Were you in the open-label trial or the placebo-controlled trial?  Are you sure you got the real drug?  What exactly happened?
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Noway

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Re: Which of you has thought to suicide?
« Reply #37 on: December 18, 2011, 02:02:35 AM »

Its pretty embarassing when your in your 20's and cant get a decent erection and cant hold a erection. Then when you go to the doctors there all in there 50's plus. When you I think about how crappy  my penis is every day or my life and get bad hurting erections. When you cant have a girlfriend or live a normal life. When you know your penis is way smaller and will never be the same.
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PD_SUCKS

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Re: Which of you has thought to suicide?
« Reply #38 on: December 22, 2011, 11:50:14 AM »

Its pretty embarassing when your in your 20's and cant get a decent erection and cant hold a erection. Then when you go to the doctors there all in there 50's plus. When you I think about how crappy  my penis is every day or my life and get bad hurting erections. When you cant have a girlfriend or live a normal life. When you know your penis is way smaller and will never be the same.

Noway, I'm in the same situation as you. I'm 34 and the quality of my erections have slowly been getting worse since my Peyronies Disease symptoms
became apparent. Plus my affected side (left side) is thinning out slowly as well. Pain is sporadic, but I am trying so many different
oral medications/supplements that it has subsided some.

Since my Peyronies Disease was established, I have avoided dating and most intimate contact with the ladies. It sucks, because I am an affectionate
person and really need that intimacy and closeness of another. I wonder if there are dating services for people with sexual dysfunctions.
I mean, if there was a girl out there with female sexual issues, obviously I would be understanding and sympathetic, and hope that
she would be too.

I wish I had words of hope and encouragement -- unfortunately my physicians don't even have any, well, none aside from the "keep
at it" BS. My main physician often says "It is what it is," and basically tells me there's not much we can do. I understand the condition
is limited with treatment (better than 10-20 yrs ago no doubt), but it is discouraging when a physician talks like that. I know the doctors
are not therapists, and they aren't supposed to be cheerleaders, but they can also be more human.

My advice - VED/pump therapy: use as directed (once a day or every other day). Pentoxifyliine: I can not say that it has helped my condition
get better, but it may have helped slow the Peyronies Disease symptoms down. Traction Device: Be careful, as I was aggressive with mine, and it has changed the
elasticity/texture of my penile muscles. I wouldn't use more than 3-5 hrs a day. And be sure to take a break every 2 hrs or so to massage
and circulate the blood for a few minutes. Other supplements which can help, but not guaranteed are L-Carnitine, L-Arginine, Ubiquinol or
CoQ10, and Repair Enzymes (by Enzymedica - this has helped reduced some of my pain). Vitamin E as well, but it seems like its effectiveness
is still unsure. Since all of these are trial and error and in theory "should" help, it isn't always apparent and it can get costly. Then again,
I'm still in a zone where I'm willing to try anything...

Speaking of trying anything, I recall someone mentioning stem cell therapy. Here's what the article on Wikipedia says about stem cell therapy
for wound treatments:

Wound healing
Stem cells can also be used to stimulate the growth of human tissues. In an adult, wounded tissue is most often replaced by scar tissue, which is characterized in the skin by disorganized collagen structure, loss of hair follicles and irregular vascular structure. In the case of wounded fetal tissue, however, wounded tissue is replaced with normal tissue through the activity of stem cells.[32] A possible method for tissue regeneration in adults is to place adult stem cell "seeds" inside a tissue bed "soil" in a wound bed and allow the stem cells to stimulate differentiation in the tissue bed cells. This method elicits a regenerative response more similar to fetal wound-healing than adult scar tissue formation.[32] Researchers are still investigating different aspects of the "soil" tissue that are conducive to regeneration.[32]

http://en.wikipedia.org/wiki/Stem_cell_therapy#Wound_healing

So, there may be hope in the near future, but we'd have to travel to Mexico or what not. Semi-realistic?

As far as suicide, yes, I think about it on a daily basis. I have been humble and busy with work and family, so my mind has
been free from thinking of my Peyronies Disease and relationships. However, some old female friends have come back into my life and
intimacy is closely approaching. Do I try with them and fail in the bedroom and explain myself, or talk with them beforehand
and see if we can get things working ok? Or, do I avoid seeing them altogether and just stay lonely and miserable with
a semi-functioning unit that is degrading... with little much help from physicians, medicines, treatments, etc... Oh, and
in all honesty, if other aspects of my life were doing well, I may have more confidence and ability to handle life, but
the Peyronies Disease/Erectile Dysfunction are just a huge punch to the gut which seems to make all of life unbearable.
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chris26

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Re: Which of you has thought to suicide?
« Reply #39 on: December 22, 2011, 07:30:34 PM »

I dont know whether im just mentally strong but how can peyronies make you feel suicidal? Only situation I can see that happening is if you were in a relationship with someone you loved and they left you because of your peyronies.

I know especially us young guys have been dealt a rough hand, but theres plenty of non penis related activities that make life enjoyable/worth living.

Ive found it helps to let your closest friends and family know about your condition if you havent already.

Im also reassured by the fact that the implant option is there, Ive had problems for so long now (5yrs+) that a permanent solution however unideal provides me with some optimism.  I for one would much rather explain to a woman that I have a penile implant rather than having a penis that is unfunctional.

Just my 2ps worths

 
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0x5555

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Re: Which of you has thought to suicide?
« Reply #40 on: December 23, 2011, 01:29:24 AM »

I actually understand it in some people.  When I was having my pain and couldn't sleep it felt like I was trapped in a prison of my own body.  I am slowly coming back to normal but I can say that suicide seemed like a relief.

I can also sort of understand thoughts of depression if you are not able to get it up.  It's a big part of life and it's very distressing.  I'd hope noone actually goes through with it - there are all sorts of medical advances being made and you never know what 5 years may bring.  I still understand just how tough any serious medical issue can be having lived through it for the last 2 1/2 months.
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sgtnick

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Re: Which of you has thought to suicide?
« Reply #41 on: December 23, 2011, 02:47:53 PM »

Suicide?  Seems like a permanent, fatal solution to a temporary inconvenience.  I tried all the BS treatment remedies  -  pentox, VED, vitamins & supplements, etc, etc, etc.  Nothing worked for me so I got implanted.  In many ways a prosthesis is better than pre-Peyronies Disease.  I am pleased with the results and my wife is extremely excited. End of story! 
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fubar

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Re: Which of you has thought to suicide?
« Reply #42 on: December 23, 2011, 09:43:06 PM »

Yes you have positive results.Most of us bsingng about this are not 68 years old!we are still sowing our oats!

Fubar
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dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #43 on: December 24, 2011, 10:51:31 AM »

Suicide?  Seems like a permanent, fatal solution to a temporary inconvenience.  I tried all the BS treatment remedies  -  pentox, VED, vitamins & supplements, etc, etc, etc.  Nothing worked for me so I got implanted.  In many ways a prosthesis is better than pre-Peyronies Disease.  I am pleased with the results and my wife is extremely excited. End of story! 

Have you lost dimensions with the prosthesis?
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sgtnick

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Re: Which of you has thought to suicide?
« Reply #44 on: December 24, 2011, 08:16:38 PM »

diopor  -  I did not lose length and I gained girth, especially in glans  -   really large glans now!
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dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #45 on: December 25, 2011, 10:49:18 AM »

diopor  -  I did not lose length and I gained girth, especially in glans  -   really large glans now!

Is erection strong with prothesis?
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jackp

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Re: Which of you has thought to suicide?
« Reply #46 on: December 25, 2011, 11:41:59 AM »

Is an erection strong with an implant?

The best way I know to describe it is remember when you were about 18. You thought you could drive a nail with your penis. Well the implant makes you stronger than that. Stronger than your wildest dreams.

Jackp
http://jackp-penileimplant.blogspot.com/
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dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #47 on: December 25, 2011, 12:29:31 PM »

Is an erection strong with an implant?

The best way I know to describe it is remember when you were about 18. You thought you could drive a nail with your penis. Well the implant makes you stronger than that. Stronger than your wildest dreams.

Jackp
http://jackp-penileimplant.blogspot.com/

From your words it seems that for you having penis PRE-peyronie and having an implant is the same thing...no negative aspects....is it right?
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sgtnick

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Re: Which of you has thought to suicide?
« Reply #48 on: December 25, 2011, 02:57:49 PM »

diopro  -  The implant is too rigid if you inflate to the max.  To make it more like my real penis, I only inflate to maybe 75%  The only negative aspect to implantation was the arrogant surgeon who performed the surgery.  The only aftercare that I received was from another doctor who treated complications and pain.  If you are considering surgery, do not believe every thing you read on this website(including what I post).  I recommend that you get at least 3 opinions from 3 different  surgeons.  Even if I had not developed Peyronies Disease, I would have an implant performed.  Erection on demand and multiple orgasm is very pleasureable.
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dioporcolorisolvo

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Re: Which of you has thought to suicide?
« Reply #49 on: December 25, 2011, 03:03:42 PM »

diopro  -  The implant is too rigid if you inflate to the max.  To make it more like my real penis, I only inflate to maybe 75%  The only negative aspect to implantation was the arrogant surgeon who performed the surgery.  The only aftercare that I received was from another doctor who treated complications and pain.  If you are considering surgery, do not believe every thing you read on this website(including what I post).  I recommend that you get at least 3 opinions from 3 different  surgeons.  Even if I had not developed Peyronies Disease, I would have an implant performed.  Erection on demand and multiple orgasm is very pleasureable.

Excuse me....maybe i haven't undestund well......do you prefer implant at your PRE-peyronie penis??
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