Compared to the prices I see at Vitacost, I don't see any bargains being offered by either Puritan or iHerb.

http://www.vitacost.com/productResults.aspx?ntk=products&ss=1&Ntt=ubiquinol%20100mg

Puritan's Pride, iHerb, and Swanson all have good deals on CoQ10 products.  VitaCost also has good prices, but I am not sure I trust their products.  There are some chancy CoQ10 products out there with ingredients sourced out of China and India that I would avoid.  You want your CoQ10/Ubiquinol ingredients to come either from Kaneka in Japan or Quten in Texas.  If you can get stuff from VitaCost containing Japan or USA sourced ingredients, go for it.  The other stuff is garbage.  Avoid!  - George

Hello
As I live in Austria, buying ubiquinol is quite expensive ...
I tried the one available in pharmacies and its like 50mg x 60 for 52,- euros (~$70.-)
(its by "pure encapsulations" and says its "active CoQ10")

so after my 2nd bottle I have decided to buy online.
I looked at the different stores, but I found that there at least 10 or more brands out there with different pricing.

My question:
if for example I look at : http://www.iherb.com/Ubiquinol-CoQ10-100-mg

is there one brand there that is better than the others?
or is there one brand that I absolutely should not order?

(iherb is an example store as they show all the brands they have on one page, I do not meen the store, but the brand of ubiquinol)
And I do not meen the pricing, (anything i get online will be cheaper than in a pharmacy here..) as I am willing to pay a bit more to get better quality product (without being ripped off)

Thanks for any advice

Luc

PS: I read George's post on better buying japanese or us ubiquinol than others... but still there might be some brands better than others.

Luciano,  The Japanese manufacturer, Kaneka, is currently the leading CoQ10 manufacturer in the world.  They have a product page which lists the supplement manufacturers licensed to use their Ubiquinol product.  That page is here -> http://www.kanekaqh.com/kanekaqh-products.html  The only difference between these products will be the additional additives they contain.  Their Ubiquinol content will all be the same Kaneka product.  That is the important part.  Any quality variations between these products will be marginal.  In other words, you may pay a considerable premium just to get a small increase in overall effectiveness.  How to measure those quality differences is difficult if not impossible.  Personally I use the Life Extension brand mainly because I am a member of Life Extension.  It is probably one of the better formulations out there, but also is one of the most expensive.  On the other hand, the least expensive brands out there containing the Kaneka product will probably be at least 90% as effective as the most expensive brands.  Others here have had good results from less expensive brands and they can add their comments.  But if I were you, I would just choose one of the Kaneka licensed brands and get started as soon as possible.  - George

well what I had a look, and those labeled with CF have somewhere the mention of CoQSol-CF (TM)
It seems that CoQSol-CF is a trademark of an american LA based company called Soft-Gel
Their capsules contain additionally some form of vitamin E and d-Limonene

http://www.soft-gel.com/coqsolcfbanner.htm

There is an interesting page (sponsored by Soft Gel) that explains how different companies (Kaneka, Ashahi etc..) manufacture Q10 and how the absorbtion works. (Of course they say their method is the best..) but it was some interesting reading.
Commercial Production of CoQ10 Supplements

QuoteThere are currently two different manufacturing techniques being used to commercially produce coenzyme Q10. Soft Gel Technologies, Inc.® has access to material from three different Japanese manufacturers. One manufacturer, Nisshin Pharma, uses the solanesol method and the other two manufacturers, Kaneka and Asahi, use the microbiological fermentation method. The following is a brief summary of the two manufacturing methods:

http://www.nutrilearn.com/softgel/coqsol.html

I dont know:
- If the mention of CF is really in relation with CoQsol-CF
- If their Capsules are better than others

but the reading was interesting.

Luc
PS: just found s a customers review on iherb

QuoteNote: iHerb does not imply any medical claims from this review.Disclaimer
Best value for moderate dosing September 07, 2009
From California
If you're taking 100 mg or less, a CF formulation of CoQ10 is just as good as ubiquinol. Ubiquinol, however, is much better absorbed if you're taking 200 mg or more.

http://www.iherb.com/Doctor-s-Best-CoQsol-CF-100-mg-120-Softgels-Discontinued-Item/15480?at=0
dunno if its true or not.

The most trusted process at this point is the fermentation method and the manufacturers to be avoided are the non-Japanese Asian ones mainly Chinese and Indian.  But thanks Luciano for all that good information.  It certainly includes information that I was unaware of.  - George

Yes - thanks Luciano.
George 999 has long advocated using Ubiquinol. I am presently buying it from Puritan's Pride , a brand called Reserveage @ $39.99 100 mg / 60 soft gels caps. Ingredient is Kaneka plus some other grape ingredients. Cost is high.
They also have their in house Puritan's Pride Ubiquinol soft gel ( Kaneka) for 2/$46.99 & 5/93.98
Do you think , George , that I am paying too much for the Reserveage and would get the same results from the House Brand? It is hard to judge results as they are at best too subtle to notice at this stage.
Mike67

The reality is that the study was done with plain jane CoQ10, so that IS the proven active ingredient.  Many of the supplement vendors do tweak it here and there and, of course, Ubiquinol IS known to be a step up from CoQ10.  But vendor tweaks in form and formulation are unproven.  They may be helpful, but who really knows?  I use LEF's formulation because I trust LEF to get these things right, but, in the end, who can really know?  So the main point is to get the CoQ10/Ubiquinol part down with confidence that it is very likely to work since the research is the evidence.  Its benefits are slow and subtle, but they are real.  If you can afford the additives, go for it.  If not, just make sure you get the main course because that is where the real action is.  Thats how I feel about it.  - George

Trader Joe's has started carrying Ubquinol 100mg 60 count from Keneka corporation for $19.99.  Haven't tried it yet but will when my current supply runs out.  Just wanted to pass it on for anyone who has access to a Trader Joe's.  Don't know if all the stores throughout the U.S. will carry it as stores have somewhat different items from region to region.  I can only account for the Southern California region at this time.  

Trader Joes has some great deals.  I only wish we had one here where I live!  I'm envious!  - George

I started ordering online at Puritan's Pride after paying through the nose here in Ontario.
I recently stocked up on their house brand 100 mg Ubiquinol. Cost is $25.45 tax in per 60 caps.

I buy the Spring Valley Brand CoQ10 from Walmart 100mg 120 count. Its $ 25.47. I think there is a difference between the CoQ10 and Ubquinol but thought I would mention it for people who us it.

I ordered online from Swanson which would be cheap for you guys in the USA but cost me as I got stung with import tax.

Been thinking about grabbing some of this, which would be the best stuff to get from Iherb, has anyone checked there?

Is ubiquinol useful only to decrease pain?

Quote from: dioporcolorisolvo on May 13, 2011, 11:50:08 PM
Is ubiquinol useful only to decrease pain?

In the study it also reduced curvature. There has only been one study so far though, further studies should help to further clarify the role ubiquinol holds in peyronie's disease treatment.

Can one take a higher dosage of CQ10 such as 150, 200, or 400 mg and does it interact with Pentox?  How long should it be taken for?  Does it have any major side effects?

I'm taking 400g per day with 3 x pentox.  It's not doing me any harm.  I've had no side effects from anything i've taken so far.

If i'm young, can i assume Ubiquinone and not Ubiquinol? I read that Ubiquinone is less expensive than Ubiquinol. Is it true?
Which is it the dose daily of Ubiquinone?
Now i'm assuming L-arginina, Propionil Carnitina and VitE.
Can i add also Ubiquinone?

My Urologist prescribed Pentox, L-Arginine and Vitamin E and told me that he has seen improvement in patients with Peyronie's but that it was incurable and would never go away completely. He stated that the goal was to minimize the disease as much as possible. I've read about spontaneous and gradual resolution, but he insists that it is incurable. After a follow-up exam after 6 weeks, he made my next appointment in 6 MONTHS! I did not have any ill effects with the products he prescribed exept when taking Pentox before bedtime or with spicy foods. I decided to add Acetyl L-Carnitine and Ubiquinol after reading so many favorable reviews. On the very first day of taking them, I experienced some lightheadedness by midday and then extreme sleepiness hours before my normal bedtime and woke up at 4:30AM experiencing a repeated sense of spinning in my head. With my eyes open, the ceiling seemed to move from right to left repeatedly and these symptoms continued on and off for awhile. Since I've taken Co-Q-10 before with no ill effects, I have to think that the Acetyl L-Carnitine 500MG taken twice yesterday on an empty stomach with L-Arginine was responsible. I take the NSAID Relafen as well, but never had any side effects. I must discontinue the L-Carnitine to see if that was the cause. I have never had any problems with seizures and I do not drink alcohol. My Peyronie's after nine weeks continues to change from signs of improvement to signs of worsening. I discovered that the lump in my hand (palm) that I was told was a ganglion cyst by a PA and my uro is actually Dupuytren's Disease, although there is yet no sign of contracture. Has anyone else experienced any side effects from taking Acetyl L-Carnitine? The combination of Pentox and Relafen has stopped most of the burning sensation over the plaque scar area on my flaccid penis. I have occasional slight waisting, an indentation that relocates and a slight upward bend during full erections. My uro told me to have all the sex possible and that it would not hurt a thing, but I think it would be difficult without a strong erection and possibly cause more damage during the inflammatory stage. I have limited self induced erections to twice weekly and I don't know if having more or less would be better. Any thoughts?

My Urologist prescribed Pentox, L-Arginine and Vitamin E and told me that he has seen improvement in patients with Peyronie's but that it was incurable and would never go away completely. He stated that the goal was to minimize the disease as much as possible. I've read about spontaneous and gradual resolution, but he insists that it is incurable. After a follow-up exam after 6 weeks, he made my next appointment in 6 MONTHS! I did not have any ill effects with the products he prescribed exept when taking Pentox before bedtime or with spicy foods. I decided to add Acetyl L-Carnitine and Ubiquinol after reading so many favorable reviews. On the very first day of taking them, I experienced some lightheadedness by midday and then extreme sleepiness hours before my normal bedtime and woke up at 4:30AM experiencing a repeated sense of spinning in my head. With my eyes open, the ceiling seemed to move from right to left repeatedly and these symptoms continued on and off for awhile. Since I've taken Co-Q-10 before with no ill effects, I have to think that the Acetyl L-Carnitine 500MG taken twice yesterday on an empty stomach with L-Arginine was responsible. I take the NSAID Relafen as well, but never had any side effects. I must discontinue the L-Carnitine to see if that was the cause. I have never had any problems with seizures and I do not drink alcohol. My Peyronie's after nine weeks continues to change from signs of improvement to signs of worsening. I discovered that the lump in my hand (palm) that I was told was a ganglion cyst by a PA and my uro is actually Dupuytren's Disease, although there is yet no sign of contracture. Has anyone else experienced any side effects from taking Acetyl L-Carnitine? The combination of Pentox and Relafen has stopped most of the burning sensation over the plaque scar area on my flaccid penis. I have occasional slight waisting, an indentation that relocates and a slight upward bend during full erections. My uro told me to have all the sex possible and that it would not hurt a thing, but I think it would be difficult without a strong erection and possibly cause more damage during the inflammatory stage. I have limited self induced erections to twice weekly and I don't know if having more or less would be better. Any thoughts?

I really get annoyed when physicians use the term "incurable".  I really don't think there is anything out there that is really incurable.  There are things, of course, that medical science doesn't know how to cure, Peyronie's being one of them, but that does not mean that it is impossible to cure.  Medical science DOES know how to make it "better" and making it "better" is a major step on the way to a cure.

The first part of the process involves treatments KNOWN to work.  These include oral treatments like Pentox, Ubiquinol and ALC along with physical therapies like VED.  Vitamin E is pretty useless from the experience of most of us around here.  L-Arginine is more useful for ED than for Peyronie's.  While NSAID's can be helpful with pain, they can also result in some pretty nasty long term side effects (read the labels).

The second part in dealing with a problem like Peyronie's involves mitigating the root causes.  Root causes include issues like sub-optimal vitamin D levels (below 50ng/ml).  Vitamin D is a major genetic regulator and anti-inflammatory factor.  Serum glucose levels along with serum insulin levels also drive inflammation and degenerative disease.  Peyronie's is common among diabetics, but its all relative.  You don't have to have diabetes, elevated blood sugar can cause the same problems.  Viseral fat is inflammatory.  The more of it you get rid of, the easier it will be to deal with your Peyronie's.  Omega 6 fats are inflammatory as opposed to Omega 3's which are anti-inflammatory, especially the EPA/DHA type.  I could go on and on.  Once you start attacking the root, it gets easier to put out the fire.

Is end stage kidney disease curable?  Any doctor would tell you no.  But a recent rodent study succeeded for the first time in actually curing kidney failure in rodents simply be dramatically lowering their blood sugar levels, and suddenly their kidneys proceeded to heal normally.  Can diseased hearts heal?  Just a few years ago the unanimous answer from the medical community was no.  Now we know that is not the case at all because some heart patients with implanted heart assist devices have experienced recovery with their own organ.  Doctors should know better than to use arbitrary terms like "incurable".

I appreciate your input. The Doctor and head of the Peyronie's Institute wrote me and stated that Peyronie's is curable because 50% of the time the body's immune system heals it, but he is selling books, telephone consultations and supplements. He is a chiropractor by trade. He answered a few e-mails and then wouldn't. My Urologist that told me that Peyronie's was incurable also told me that the lump in my palm wasn't Dupuytren's Disease even though it appeared suddenly a few weeks before the sudden appearance of fibrous plaque in my penis. My Ortho physician and his PA confirmed that it is indeed Dupuytrens and that I probably have a genetic predisposition to both of these connective tissue disorders. I am otherwise a very healthy 52 year old man and only take Lipitor 20MG for borderline hyperlipidemia. I just got complete lab work done and all my numbers were within normal range. I didn't get much information from the Urologist in the few minutes he saw me and he did not even mention the name of this condition. I found it on the Internet when I searched Fibrous Plaque. I am not married and not in a relationship, so it is not a major problem for me compared to some who are and those who are much younger than me, but I was not ready to deal with this condition for the rest of my life. I appreciate having a forum of others who actually can share their experiences good or bad to help others.

I ordered some bottles of CoQ10 capsules which were delivered to my porch yesterday but accidentally left outside overnight. I'm worried that this will have lessened their effectiveness. Is there any way to check for that? Or do I have nothing to worry about?

Quote from: retiredinGA on May 20, 2011, 11:30:30 AM
I appreciate your input. The Doctor and head of the Peyronie's Institute wrote me and stated that Peyronie's is curable because 50% of the time the body's immune system heals it, but he is selling books, telephone consultations and supplements. He is a chiropractor by trade. He answered a few e-mails and then wouldn't.

I don't have a whole lot of confidence in Dr Herazy.  He is a chiropractor who is pushing Peyronie's treatments that are really pretty useless (ie Neprinol etc) while ignoring treatments that really work (ie Pentoxifylline).  He is a waste of time in my opinion.

Quote from: retiredinGA on May 20, 2011, 11:30:30 AM
My Urologist that told me that Peyronie's was incurable also told me that the lump in my palm wasn't Dupuytren's Disease even though it appeared suddenly a few weeks before the sudden appearance of fibrous plaque in my penis.

Like Herazy the chiropractor, your urologist is making the mistake of trying to diagnose a disease that is outside of the scope of his training.  I have seen this over and over and patients are often not careful to consider whether their doctor really has the training to make the assertion that he or she is trying to make.  Your urologist is also NOT a Peyronie's specialist, thus he is suggesting to you vitamin E which true Peyronie's experts KNOW is useless in treating Peyronie's.  A really good doctor is one who will tell you point blank, "This is what it is, it is not my specialty, but I will be glad to refer you to someone who is an expert."  But most doctors just try to pacify you and impress you with there "knowledge" and get you out of the office *feeling* more informed if not better.

Quote from: retiredinGA on May 20, 2011, 11:30:30 AM
My Ortho physician and his PA confirmed that it is indeed Dupuytrens and that I probably have a genetic predisposition to both of these connective tissue disorders.

Your orthopedist knows what he is talking about.  Genetic predisposition means that you have some bad genes that can assert themselves without proper regulation.  Vitamin D is essential in healthy gene expression.  That is why getting vitamin D levels right is essential to halting these sorts of issues.

Quote from: retiredinGA on May 20, 2011, 11:30:30 AM
I am otherwise a very healthy 52 year old man and only take Lipitor 20MG for borderline hyperlipidemia. I just got complete lab work done and all my numbers were within normal range.

"Normal" when it comes to lab work is very subjective.  What are normal fasting blood sugar levels?  A recent lab report I have in my possession indicates that "normal" is 70-126mg/dL.  Dr. Oz and other cardiac experts say that anything above 100mg/dL is dangerous.  Life Extension says that anything above 86mg/dL is a problem.  It is truly amazing how sick people are these days and how many prescription meds they are taking, but most of them have "normal" lab reports.  That tells me that docs love to tell people that they are "normal" even though those "normal" levels are wreaking havoc with their bodies.  So everyone has to make a decision as to whether to let the doctor stick a pacifier in their mouth or whether to be proactive and get their numbers to as healthy a level as possible so as not to face crushing medical bills in the future along with devastating health consequences.  Right now many people are being kept alive by billions of dollars of high tech medicine, but the money is rapidly running out and I, personally, do not want to be left high and dry when that happens.  These are the sort of issues that everyone should be thinking about, but few are, since most believe that unlimited expensive medical care is an entitlement that is going to be around for eternity.  (end of rant   )

Quote from: retiredinGA on May 20, 2011, 11:30:30 AM
I didn't get much information from the Urologist in the few minutes he saw me and he did not even mention the name of this condition. I found it on the Internet when I searched Fibrous Plaque. I am not married and not in a relationship, so it is not a major problem for me compared to some who are and those who are much younger than me, but I was not ready to deal with this condition for the rest of my life. I appreciate having a forum of others who actually can share their experiences good or bad to help others.

He *should* have offered to refer you to a Peyronie's specialist, but he probably doesn't even know they exist.  Oh well ...

- George

How cold or hot was it? They must be sealed?  I'm sure they are fine.  They have probably been on a cargo ship for weeks or even on a plane.

I don't understand one thing:
in the published study on the Co10 the daily dose is 300mg.
But this dose is related to Ubiquinol or to Ubiquinone??

It depends what you mean by incurable!?  Peyronies is a pretty simple disease.  It is just scar tissue.  If you had scar tissue on your arm or leg it may not bother you. Peyronies is scar tissue in the worst place possible.  When he says it is incurable he is right to a certain extent.  If you had a scar on your leg from a cut and went to the doctor and asked for an oral treatment to help he would be stuck to find something.  It may fade in time and you may not notice it but there will always be a scar. Some people's scars fade more quickly than others.  Pentox and supplements are not cures for peyronie's but they can help.  For most people they will help a little and they may stop it getting worse.  VED can stretch a scar but the scar is still there.  Xiaflex can dissolve a scar but the tissue will not be exactly the same as it once was.  We have to face facts that things will never be the same but they can be better.

I have lost faith in most doctors because they don't spend enough time with a paient to determine their problem. I knew a man who went to an emergency room here and told the physcians that he thought that he had tentanus (lockjaw). The physican argued with him that he only had a sinus infection and sent him home. The next day he was rushed to a hospital 100 miles away after a foreign doctor finally diagnosed that he indeed did have tentanus. They did a tracheotomy before transporting him and he spent a few months in a coma. He survived after a terrible ordeal and eventually returned to a somewhat normal life before dying two years later of Encephalitis, which it took days to diagnose. They first thought he had Meningitis.

My family doctor did not even know what Peyronie's Disease was and he is over 50 years old. He thought that I had a blood clot in my penis. The Uro's PA told me that it was fibrous plague that causes some curvation in advanced cases but he added that I caught mine early and he expected a good outcome with the oral medications (Pentox, L-Arginine and Vitamin E). The Urologist just spent two minutes verifying the PA's conclusion and he looked at me and smiled and said that it's not curable. He charged $375 and wanted to see me in 6 weeks. When I returned, this 50 + year old Chinese doctor walked into the room and he told me that I was taking meds that I don't take and I had to tell him what I was taking and I think that he realized that he was looking at someone else's file. He had 30 patients waiting in his waiting room and they were bringing them back two at a time. He told me on that follow-up visit that I will improve taking what he prescribed and that he has had other patients that have improved but he repeated that it would never go away completely. He set up my next appointement for 6 months away and that surprised me. I guess that he has done all he can do.

As far as the Dupuytren's, I asked him about it and told him that another PA told me it was a ganglion cyst. I had one before on my wrist and I know it is possible to get one on the palm below a knuckle joint, but I read that 30% of men with Peyronie's also have Dupuytren's. He felt of it and agreed that he thought it was a ganglion and that he had never seen any of his Peyronie's patients with Dupuytren's Disease or contracture. I still had my doubts and the orthopedic doctor and his PA knew it was a knot nodule from Dupuytren's as soon as they felt it and there are two tiny cords in that hand that aren't even attached to that lump. He stated that it was usually slow to develop and that I may or may not live long enough to need hand surgery from contracture. He said that it can come back again even after surgery. The Ortho thought it was weird that the Uro has never had a Peyronie's patient with Dupuytren's but had I not shown him my hand, that Uro still wouldn't know that there was a lump there. There are only 3 Urologists in my area and this area includes most of South Georgia and North Florida. I would probably have to travel to Atlanta or Jacksonville to find someone more qualified to treat Peyronie's. My Urologist mentioned that oral treaments could be followed by injections if necessary, but I may just give up having erections while I am awake before having injections or surgery. I guess I've used it enough to retire it if necessary. I don't have a problem yet with achieving an erection, but I am early in the inflammatory stage and worry about the indention which seems to change positions and sometimes it seems like my erections are not affected at all. I get encouraged that it is improving only to be disappointed later when it seems worse.

I appreciate your input because there are not many people to confide in about these delicate issues.

I believe that the study was in fact done with Ubiquinone, since Ubiquinol was not yet widely available at the time the study was done and the study does not specify Ubiquinol which would likely be the case if that is what they used.  I believe that it is better to be on the safe side though and use Ubiquinol at 300mg per day as the study did with Ubiquinone.  - George

Similar stories have been posted here many times. And it is unfortunate that many doctors don't seem to stay up on new techniques. They continue to give the old response that "this is not treatable" or that "there is nothing you can do"... or to me the worst of all I was told "you'll learn to live with it".

You need to find a male sexual specialist that also specializes in the treatment of Peyronies. We have several forum members who have been happy with a doctor in Atlanta. I can't recall his name off the top of head.

Les

Well, I'm new to this forum as my Peyronie's Disease only began two months ago. It came on seemily overnight when I felt an unusual firmness near the base. I have no memory of any trauma that preceeded this because I have not been in a sexual relationship in a long while. Actually, I was sick with a cold virus for weeks prior to finding this, so I actually had not even had any self induced erections in a couple weeks before suddenly finding this (fibrous plaque) nodule. My ortho told me that I did not do anything to cause it since I also have Dupuytren's Disease of the hand and that it was genetic. Why both diseases manifested themselves within a month of one another is odd unless it is an auto immune issue when I got my resistence low from being sick. I am not qualified to answer that with any certainty.

My family doctor told me to discontinue taking the Aceytl L-Carnitine since I experienced the lightheadedness and nighttime sense of the room spinning. The bottle states that it should be taken on an empty stomach, so I took one capsule twice on an empty stomach along with my L-Arginine. I had been taking L-Arginine on an empty stomach already with no adverse effects. I've read on numerous websites though that L-Carnitine should be taken with food. I was hoping to get the benefits some claim from L-Carnitine for Peyronie's and lowering triglycerides but I am fearful of these side effects returning. Perhaps taking both L-Arginine and Aceytl L-Carnitine on an empty stomach along with coffee with caffeine and then later adding the Pentox with food caused the problem. I have so many things to take now, there are not enough hours in the day to spread them all out. I started Ubiquinol the same day as the L-Carnitine but since I have tolerated Co-Q-10 with no adverse side affects, I wouldn't suppose it played any role in this problem. I laid off all my meds and supplements yesterday to try and clear my system from whatever caused it.

I have not had time to read many of the statements on this forum, but from what I have read, I don't seem to find anyone who has had any total resolution or remission from Peyronie's Disease. Are the some/many? Are the vacuum devices only needed by those who are unable to achieve a full erection otherwise? How do traction devices work unless you are able to use them for an extended period while erect? Why would a Urologist suggest to have all the sex you can and that it would not hurt anything when I've also read that additional trauma can make the scarring worse? I have not read much as to whether it would be best to stretch the penis daily with self induced erections or to leave it alone completely while it is trying to heal the scar tissue. There is an abundance of information online about Peyronie's but most of it doesn't answer these questions. My Uro asked me if I needed anything (drugs) to achieve an erection and I told him that I didn't. While he was telling me that it would improve using the Pentox, I was delighted because it isn't anywhere near that stage where there is permanent curvation, but the reality is that he doesn't really know for sure how it will progress. With the few minutes that doctors spend with patients, you really don't have time to ask all the questions that are on your mind. One thing the Urologist's assistant told me was that I should stay off the Internet (referring to searching for additional information about this condition). Like so many others with Peyronie's, I never heard of it and certainly never expected to get it, so certainly I want as much information I can gather to combat it.

lwillisjr:

I just noticed your profile shows that you are 2 years Peyronie's free. That is encouraging. I am in the early stages of the disease and only experienced minor difficulties so far like burning sensation that has diminshed lately, indentation (weak spot) where the plaque scar ends, slight waisting at times that can be corrected and sometimes minor upward curving with full erections. I have not had total ED yet, although it seems like my libido is not what it was prior to Peyronie's, perhaps because it is not as pleasureable anymore, it is worrisome to see things worsen and the meds I am taking now. I've been on Pentox, L-Arginine and Vitamin E within the first week of discovering the fibrous plaque.

My questions to you would be how long did you have it, how bad did it get, what oral treatments did you take, did you have injections, surgery or any other course of treatment?

Thank you for taking the time to help others.

I'm happy to share my story. Instead of me taking up space here you can either:
1. Click on the link below in my signature block that says "My History"
or
2. Click on the globe symbol to the left under my sign on ID and that will take you to my own web site where I have posted my information.

My pain was greatly reduced after I'd been on the ubiquinol for a couple of months and I was virtually pain free until recently.  I've started to get painful AM erections again.  Today It's now 1:17 and I'm still in pain.  I've also added ALCAR to the mix (2G per day for about 2 weeks now).  I'm still taking 300 mg. ubiquinol daily.  Now I'm wondering if the pain relief was just a fluke or maybe the Peyronie's is progressing to a point where the ubiquinol is no longer effective.  This is very disappointing as I've had pain for over 5 years now.  Granted it's not as bad as it was at its peak, but still pretty significant pain....Fred

My pain was greatly reduced after I'd been on the ubiquinol for a couple of months and I was virtually pain free until recently.  I've started to get painful AM erections again.  Today It's now 1:17 and I'm still in pain.  I've also added ALCAR to the mix (2G per day for about 2 weeks now).  I'm still taking 300 mg. ubiquinol daily.  Now I'm wondering if the pain relief was just a fluke or maybe the Peyronie's is progressing to a point where the ubiquinol is no longer effective.  This is very disappointing as I've had pain for over 5 years now.  Granted it's not as bad as it was at its peak, but still pretty significant pain....Fred

Hey Fred,

Have you tried astaxanthin? I'm beginning to think that astaxanthin has been much more effective for myself then ubiquinol. I was taking 300mg ubiquinol. I suggest taking 12mg of astaxanthin daily, 3x4mg with fatty food.

Fred - Maybe this is a flare up that will be short lived? When there is pain for such a long time, maybe there are occasional bumps in the road and in sticking with the treatment it might minimise the lnegth of time this lasts for. Please keep us informed. I really hope the pain starts to reduce soon!

Quote from: crashbandit on June 16, 2011, 09:52:37 PM
Hey Fred,

Have you tried astaxanthin? I'm beginning to think that astaxanthin has been much more effective for myself then ubiquinol. I was taking 300mg ubiquinol. I suggest taking 12mg of astaxanthin daily, 3x4mg with fatty food.

What is astaxanthin and are there any studies supporting it's use for Peyronies?  Thanks for the suggestion....Fred

Quote from: newguy on June 17, 2011, 11:02:36 AM

Fred - Maybe this is a flare up that will be short lived? When there is pain for such a long time, maybe there are occasional bumps in the road and in sticking with the treatment it might minimise the lnegth of time this lasts for. Please keep us informed. I really hope the pain starts to reduce soon!

Thanks.  I was diagnosed with prostate cancer in April and some of my symptoms could be due to this condition.  Today I'm feling some irritation in the prostate area....different from the pain I was expweriencing yesterday.  I'm planning on contacting a surgeon who specializes in robotic radical prostatectomy next week and if we have a "meeting of the minds" I'll schedule the surgery.  Maybe after that I can sort out whats what.  

Didn't know about your diagnosis Fred - I am so sorry to hear that. Best of luck in dealing with this new challenge.

Tim

I didn't know either, so orry to hear about that Fred. Here's wishing you all the best in dealing with this challenge.

Hello all,

I was wondering if any of you have heard of Coq-10 cream and if it would be helpful treating Peyronies Disease ??  My situation isnt that horrible compared to some, had the Peyronies Disease for almost 6 months seen it progress from slight curvature to slight curvature w/2 indentations and a bump in-between (the plaque?) I take ALC, Coq10, L- Argnine, Vit E.
Another question.. Is it possible to get the insurance company to pay for a VED or traction device??
How do you know if you have the "end stage Peyronies Disease"??

Thanks for the support guys.  I've pretty much decided on the radical robotic prostatectomy.  I'm currently searching for the most experienced team to do the job. I've found one doctor who does about 5 a week and has done over 700 (he's also a graduate of Emory University Med School), and another who's done about 800 and instructs other physicians in the procedure.  I'll go with one of these doctors and hopefully be able to make a decision in the next week or so....Fred

Quote from: Woodman on May 12, 2011, 02:35:27 PM
I buy the Spring Valley Brand CoQ10 from Walmart 100mg 120 count. Its $ 25.47. I think there is a difference between the CoQ10 and Ubquinol but thought I would mention it for people who us it.

I'd be worried about quality with anything herbal from Walley world (Walmart)

I buy Swanson ubiquinol from Amazon, good quality and good price.

Right now I'm buying Ubiquinol from Swanson.
$18.79 100mg 60 softgels.
Free shipping and 10% off if you buy $49 or more.
I don't know if I can post the promo code here.

I've bought ubiquinol Swanson (Kaneka) but i've some gastrointestinal problem after i swallow it.
In your opinion it can result from brand?
Should i try to buy another brand of ubiquinol?

Quote from: dioporcolorisolvo on June 29, 2011, 12:08:01 PM
I've bought ubiquinol Swanson (Kaneka) but i've some gastrointestinal problem after i swallow it.

You might want to try taking it with a meal if you are currently taking it on an empty stomach.

I've peyronie since 7 months.
In these weeks pain is increasing and girth is worsening.
I'm assuming Ubiquinol since 2 weeks but i haven't noticing any improvment.
How much time is necessary to have benefits with Ubiquinol?