@bummedout:

I know what you're going through and so do many of us here (I'm 30). Remember that every success we achieve in life is because we overcome an obstacle of some kind and Peyronie's is just another one of those. When I get angry and pissed off at this stupid disease I focus on my running and physical training. The feelings of inadequacy I feel because of changes to my penis are changed to feelings of power and accomplishment when I run that extra mile or hammer out those last few pull ups. I can't control what's happening down there, but I can control what's happening to the rest of my body. The best way to make this disease an insignificant part of your life is to focus on whatever makes you feel powerful and in control (within the bounds of the law, of course). It's been mentioned before that the tough thing about Peyronie's is that in most cases you don't want to share with people why you're down in the dumps. The great thing about bettering yourself in other ways is that the confidence you gain can be viewed by others. Best of luck and hang in there.

-Skjald

its becoming frustating day by day..even being on all the possible supps I am having another bout I thnk which has left me completely shattered.. I have been batteling this since 23 and about to turn 26. Living your prime life without sex is one thing nobody wants & I thnk thrs very little "other interests" at this age... I am not down yet but I have started to feel I cant continue like this for long... :-(

Its tough I know but now its becoming unbearable.

This can be accepted and applied or shrugged off.  Unlike some aspects of physical illness that are beyond our control, we can (and we alone are responsible to) control our attitude.  Attitude is a choice.  That does not mean it is easy but we can determine our attitude rather than simply being affected by our attitude.

Viktore E. Frankl was a medical doctor.  He was also a professor of neurology and psychiatry.  In addition he also held a doctorate in philosophy.  In the book Man's Search for Meaning he shares the great truths he learned under the adversity of being a prisoner in Auschwitz, and Dachau. His wife parents and entire family were all killed in these heinous camps.  Only his sister survived by escaping.  Through more agony than the average mind can comprehend, Viktor Frankl fought to survive and help others survive, not just physically but mentally and spiritually.  He soon learned that their brutal adversaries could do anything to them anytime they wanted, except for one thing.  Even in the most absurd, painful and dehumanized situation, we saw those that tried to comfort others, those that would give their last morsel.  They were few but they were sufficient to prove that we alone can dictate our attitude.  We cannot be stripped of that.  It is our gift alone to exercise control over.

It is essential we learn to apply these principals because it is the nature of adversity that each person's success and happiness in life depend largely on how we respond to adversity.  This we can master.

I'd like to mention that it is important to do something the psychological aspects of the disease, not only because it will make you live a happier life (which is in my opinion the most important part), but chronic stress can have very bad effects on the body. One of which being lowered Testosterone, which has been linked to a cause of Peyronies Disease and a whole slew of other things. So, find a doctor, get some exercise, talk to somebody, do something to get this burden off of your chest. Write, paint, start a hobby, anything. Learn an instrument (my personal favorite). Also, remember you have brothers here to help you along in your journey to recovery, and even though recovery might not be 100% in some cases, ANY and ALL help is GOOD.

hey, im not sure where to write all this, i just joined.
im 18
penis curves to left
soft errection/trouble getting one at all
never experienced pain
i have a ton of questions, is there any chance because im younger it will get better,is there any way its something else, is it really worth spending time and money to try and fix it even though theres not a known cure,tips on coping with this would be good to...not gonna lie this sucks
thanks

Quote from: k278913 on July 03, 2009, 04:42:31 PM
is it really worth spending time and money to try and fix it . . .

k2,

Why do you believe you have Peyronie's Disease? Have you been diagnosed by a physician?  If not, I think you should see a reputable urologist before you jump to some conclusions.

What part of the country are you located in?

CF

I agree with cowboyfood. Until you get a diagnosis it's difficult to know for sure whether you're in the right place or not.

I'll just mention quickly that if this curve has always been there, then you do not have peyronie's. You instead have a congenital curve. If the curve appeared suddenly (or over a period of months) along with the erectile dysfunction, you should get checked out as soon as possible as it could be peyronie's. This may be a bit embarrassing for you, but it's best to know where you stand in relation to health problems.

Peyronies sufferer prognosis differs from person to person, but there are oral treatments and devices such as the VED, which may have been somewhat successful for some. The earlier you start on a treatment plan the better, but again the key first step is to actually find out if you are suffering from peyronie's.

well considering ive spent every night the past 6 months researching it, im pretty sure i know whats going on. my penis curves left and seems to hang..some days i have trouble getting an erection at all. i definately wasnt born like this. and at 18  the last thing i want to do is ask my parents for a vacume for stronger erections, lets be honest there is no real cure right now, what would be the point of embarissing my self and asking to hear that from a doctor. its hard for me to stay positive. i cant even imagine going to college and trying to explain to ever girl i get close to i have disease in my penis.

Most girls don't know about Peyronies Disease. Most girls don't care. About the erections, it's an especially sad thing for a young man to have this (I'm only 25, and there are plenty of people here of all ages, young and old) but we're lucky that medications exist to help you have sex. You have to be proactive, though, and not give up!

Everyone has or will have great trials in their life with disease. This is yours, and ours. Perseverance against the odds is what living is about, at its basic function. We have to stay strong and do everything we can to help ourselves until that cure or effective treatment comes around. Being young gives you a lot of time, and that is always something to be grateful for. There will be a cure within your lifetime, and hopefully sooner rather than later.

Peyronie's can indeed be a very upsetting condition to have, as is something that without a doubt tests a persons character. If your curve is significant, you may eventually be able to consider surgery, though likely first the VED (and as you state that may mean that you'll need to tell others about your condition, either that or save up and buy a VED yourself?). If it is minor, and achieving an erection is your primary concern, then there are certainly options out there that will likely allow you to achieve an erection via viagra etc. I'm sorry that this has happened to you.

Dear K2etc,

I know it sucks, but much of what you just posted does not make sense. Let's break it down, sentence by sentence.

>>well considering ive spent every night the past 6 months researching it<<

You've spent a lot of time looking into what is wrong and you have self-diagnosed. No data, no ultrasound, no nothing. Seems like a good starting point - NOT. If my doc said I had Peyronie's without gathering any data, I'd fire him. So - fire yourself and get a real doctor.

>> i definately wasnt born like this.<<

See above.

>>... at 18  the last thing i want to do is ask my parents for a vacume for stronger erections<<

It's embarrassing. So, the one thing that those here say has helped many the most, the vacuum (true, not all of us) you are going to go without because - it's embarrassing. See anything wrong with that logic?

>>, lets be honest there is no real cure right now<<

um, except maybe it is not Peyronie's and maybe a vacuum would help, or pentox.

>>what would be the point of embarissing my self and asking to hear that from a doctor.<<

A) you might hear something different,
B) you might get a vacuum and Pentox and vitamin E and get better.

>> its hard for me to stay positive.<<

Finally, you make sense. This is your problem - at least you have said one thing that makes sense. You are paralyzed into inaction by embarrassment, fear and worries about what a girl might think later in life.

Take real stock of your situation. Stop pissing around and get busy getting better. It is time to ask others for help where you are - not just here. You can practice being honest here, ask for tips on how to talk to your parents here (BTW, I had to tell my Dad when I was 20 - and it was embarrassing. I got over it. He got me into a doctor a day later).

Please hear these words the way I intend them to be heard - I want to get your attention and see if you can see a way to deal with this more fruitfully and with more hope than despair.

Tim

Hi guys,

I'm 19 years old, and about 6 months ago I noticed my Penis looking a little odd.  It had a slight bottle neck look to it in the middle, but i thought nothing of and figured it was just how my wang looked on whatever particular day it was.  Months pass, and i notice it again, this time a little more pronounced, and when I get an errection, the section below the bottleneck fills up first, then the top, then the bottleneck.  I got really concerned, hit the internet, and found peyronies disease, which usually causes a curve, but in other cases causes an indent or waist in the penis.  I went to the Local urologist, was rushed out of the office with "it looks like peyronies, take some vitamin e for 6 months then talk to us."  I was dissatisfied with this, and sought out a specialist in NJ,  I had a sonagram and everything done, but he said to "leave it alone, because I can still get a normal erection, albeit looking very awkward in between, and awkward when flaccid, but he would try verapamil injections on me if I so wished.  He's advising against it, but it seems to be getting worse with time, and I'm growing more concerned ever day.

I dont know why this happened to me, I'm only 19, currently single, and now further away from mental stability than ever before.  I've talked about it with my best friend and he gives it the ol "Well, dont worry about it if it still works." but no one really seems to understand. Its horrible, because whenever I'm not occupied with something filling my head, my mind drifts to thoughts of this terrible condition, and how much its consuming my life. I'm afraid to even try to get close to any girls now, I dont want to really go out and do much with my friends anymore because that could lead to girls....

I'm being honest when I say I dont know what to do right now.... My dr told me the verapamil had as much a chance to help me, do nothing, or hurt me, and the decision was up to me.
I honestly dont see myself being able to sleep soundly until I can put this behind me, although I know almost no one ever sees a 100% recovery if ever, and im afraid of it getting worse...

MasterShake - It appears that you've done exactly the right thing: recognised a problem, shared your concerns with others, gone to multiple urologists etc. It's disheartening then that you've been let down by professionals, with the usual "wait and see" nonsense. Peyronie's is by no means a situation where anything you do is guarenteed to help, but it doesn't make much sense to do nothing.

There are a few options available to you such as oral treatments (trental, l-arginine, viagra combo and so on..), mechanical therapies like the VED or traction, and for some once the condition has become stable, surgery has proved to be a viable solution to their problems. There are other options but I consider these to be the primary ones. Out of the non surgical treatments there is data out there to show that trental does work in some individuals, many members here have certainly make good progress with the VED. Tractions works too, but if you dont have a curve I think it'd be of limited use to you.

Xiaflex is a current currently being tested too, and could feasably be useful, but that's an unknown right now. Maybe in combination with other methods it will be most effective. Time will tell.

What I want you to take from this, is that there are treatment avenues to explore, their success varies from person to person, but combined they are certainly preferable to doing nothing. Being proactive in this area will hopefully help you feel better too, as you will know that you're doing all that you can to help your situation. Members here may be able to suggest urologists in your area.. If not, it will probably be worth going further afield.

The specialist I saw in jersey was at the hackensack medical center or something, and as far as i could tell, he had a very deep and well based knowledge and practice in peyronie's disease.  In his words "I've the most peyronie's patients in New jersey."  I trust in his advice that it could hurt me just as much as it could help, or it could do nothing, but I feel as if I dont try its as bad as trying and having it do noting (but not as bad as it making it worse )  It will also be difficult for me to get the series of injections, which he said takes 6 injections, every 2 weeks, because I am going back to college in upstate NY mid to end of august...
I'm going to see if I can get in touch with him tomorrow on my day off of work and see if

Its a really disheartening Situation, but what were the other oral treatments you mentioned outside of vitamin e?  And do you think the vacuum type chambers could be effective in the "hourglass" type situation that continues to develop?

thank you for the feedback

Mastershaker - The PAV cocktail is prescribed by certain urologists (Pentox, L-Arginine, Viagra). The combination should help with erection quality, relax blood vessels, reduce inflammation and so on. It's a treatment that worked well in rats, and although I see little evidence that it's as effective in people, it likely helps to spme extent. Pentox alone has been shown to be of use to some men in reducing plaque size, so it can't hurt to add other elements into the mix too (https://www.peyroniesforum.net/index.php/topic,772.0.html).  

There are various other oral treatments that people sometimes bolt onto this combination. Many supplements are talked about in the oral treatments section and a few kind members are always on the look out for treatments that might be of help to us.

I think there is potential for the use of oral treatments and the VED to help your hourglass deformity. It's impossible to say to what extent it will help, but as your condition appears to be active at this time, it makes sense to take positive steps to maximise your chances of a better outcome.

mastershake 89 - get on pentox asap - it will help - its helped me - at 19 you cant let this mess with your head - keep doing what you do and enjoy life - the pentox will reduce inflammation etc - you nedd to however stick to it for say 6-12 months - its NOT instant! - but at least its something

I have been overworrying about the possibility of anyone in my family has this too. Since I developed it, it makes it possible that maybe my father might eventually get it too. He is in his 50s. This worries me so much. But then again nobody is really sure, right? I would never want any of them to go through the hell that I went through..

Rich - It's great that you hold such concern for others, but please try not to worry. It's surely quite likely that he won't develop peyronie's. However, if such an occurence does come about, he'll have a helpful son able to get him started immediately on treatments that may benefit him!

thank you for the responses guys.  In response to the pentox, what exactly does it do?  Also how do I get ahold of pentox, im guessing its via prescription only from a urologist?
My condition still isnt able to effect a complete erection, and my urologist seemed very wary of doing anything beyond vitamin e, even advising against the injections (and after a member here gave me his account of the injections, I'm going to try to leave those as a more radical treatment when im completely at the end of my rope).  Do you think he would raise objections to the pentox, or is it like the vitamin e and cant harm you even if it doesnt help.
once again thanks guys.

Quote from: MasterShake89 on July 12, 2009, 02:09:59 AM

My condition still isnt able to effect a complete erection . . .

MasterShake89,


Will you explain this statement?  Do you mean you cannot get an full erection?

And, to get Pentox from a pharmacy, you need a prescription.  Also, you can order it online at some sites without a prescription.  It's very inexpensive.  Read the child boards on this forum and also search the site with the term Pentox.

Many on this forum endorse the use of the following supplements which do not need a prescription: Acetyl L-Carnitine (ALC) and L-Arginine.  These are available at GNC puritanspride.com, and many other places.

Also, I would STRONGLY advice you to read up about the VED device. I also have an indentation and I believe the combination of Pentox, ALC, L-Arginine, Viagra and VED use has improved my condition (I'm also taking E, K, and D3).  I am able to get great, strong erections.

A urologist in Ohio is one of many that endorses the use of Pentox, ALC, L-Arginine and either Cialis or Viagra as an "optimal" treatment plan.  We just found his website recently, but many on this forum have been using this regiment for a while.  His website has a nice description of most treatments available: (and, Trental is the same thing as Pentox).
http://www.drleslie.org/peyronies.html

CF

what i mean by it doesnt effect my full erection is that once the blood pressure/circulation reaches a certain point, it is able to overpower, if you will, the abnormal tissue that usually looks deformed while flaccid.  So when im flacid, up until about 3/5 -3/4 erect, you can see the deformity, but after that it looks like a normal erection.

MS,

Your condition somewhat resembles mine.  However, my indentation is somewhat noticeable when I'm fully erect.  At first it was not.  That being said, I believe it is less noticeable now in both the partially erect and fully erect stages since I've been on the VED, Pentox, supplement treatment; although arguably slightly.

If you've actually been diagnosed with peyronie's disease (I don't think you've actually stated it, but it's implied), then many on this forum will encourage you to use the VED, pentox, and other supplements.  Since it's relatively early since you've first noticed it, the VED and Pentox could make an important difference to you.

Although your urologist claims to treat the most patients with this affliction in New Jersey, that is not necessarily determinative that his advice is wise (I believe you said he suggested only Vitamin E/wait and see, right?).  Also, the other specialist you saw suggested verapamil injections.  You can read about that treatment here also; it sounds like this treatment may help, but others disagree.

In any event, I encourage you to read up on the above-mentioned treatments using this forum.  You should be encouraged.  The "veteran" members have been a super source of encouragement for me, and have given me much of their time in assisting me with the VED protocol

CF

I'm going to make an effort to get in touch with my urologist tomorrow or the day after and see if i can get a prescription for this pentox stuff....
Also, i wont lie, I would be embarassed about using one of those VED things you guys have mentioned earlier.  I dont know if this matters, but the strength and blood flow of my full erection is still very good according to my urologist, so would the ved do anything for me, or would it only help if my condition slid into harsher territory like the plaque completely hardening and causing an hourglass during a full erection.
My urologist that did the ultrasound on me said it was a "Slight peyronie's"

also, I've heard the negatives of the verapamil, but someone mentioned an injection called 'xiaflex' earlier, and i looked into it and it seemed like a promising alternative to the verapamil, but has yet to be adjudicated by the fda.  Do you guys think itll be approved soon, and go into practical and common use for peyronies, or do you think its too far off to bank on against the verapamil?

Guys,

Pentox, and all other treatments have their own topic.  Please reserve this very important topic for psychological aspects of Peyronies Disease.

It helps if you keep posts on one main topic.  Often one post should in fact be broken into two shorter and more specific comments or questions with each in its own topic.

I will likely move these posts.

The term "slight peyronies" is like telling a woman she is slightly pregnant. Is it peyronies or not!!!
IMHO this only confuses the subject. Dealing with peyronies is difficult enough on us without the questionable remarks of some doctors.
My $0.02 worth.
Jackp

Quote from: jackp on July 13, 2009, 07:36:59 AM
The term "slight peyronies" is like telling a woman she is slightly pregnant...

jackp, I think you make a good point.  If someone is diagnosed with Peyornie's, maybe the more appropriate description is "slight deformity."

Therefore, in the case of a peyronie's disease patient, the "wait and see" part refers to waiting to see if the deformity progresses.  From a psychological standpoint, I agree with the above post about being proactive.  Begin a substantive treatment plan with the intent of halting future progression and ultimately reversing any deformity.  IMO based on recent personal experiences, this helps to improve any psychological depression.  Again, my current treatment plan is: support system (this forum, others), VED, Pentox, Viagra, L-Arginine, ALC, Vitamin E (natural), Vitamin D3, Vitamin K, exercising daily, and eating/drinking healthy.

In regards to MasterShake's "embarrassment" of the VED, I believe this is a legitimate concern.  However, I also believe the VED's benefits significantly outweigh any "pain" caused by short term feelings of embarrassment (also based on personal experience).  Or, in a term a 19-year old may understand (don't take offense), "whatever!"

But, from what I've read here (and someone PLEASE correct me if I'm wrong), a guy can have scar tissue in their penis as a result of something and it is not peyronie's disease; instead, it's just a wound that is healing.  Also, this may be related to the question of why surgery and other procedures may not induce peyronie's disease type scarring.

Is this true?  And if it is true, I'm wondering if some urologists misdiagnose by assuming it is peyronie's disease.

thanks for any additional comments.

CF

Quote from: MasterShake89 on July 12, 2009, 11:49:11 PM
I'm going to make an effort to get in touch with my urologist tomorrow or the day after and see if i can get a prescription for this pentox stuff....

I erased my last post because it was too far off topic.

MasterShake:

Getting on Pentox will help psychologically even if the effects of the medication take awhile to become apparent. Educating yourself about available medications and treatments, even VED, go a long way in giving you some control (at least mentally) over a disease that we have little control over. Take charge, do what's best for you and best of luck.

-Skjald

MasterShake89 - In addition to taking specific steps to gain access to treatments, I find that exercise, having a healthy diet, and getting out in the sun seems to help elevate my mood and make me more hopeful. There's also some crossover, for instance the supplement curcumin may help to reduce stress and anxiety:

QuoteNumerous studies have demonstrated that curcumin, amongst only a few other things such as high impact exercise, learning, bright light, and antidepressant usage, has a positive effect on neurogenesis in the hippocampus and concentrations of brain-derived neurotrophic factor (BDNF), reductions in both of which are associated with stress, depression, and anxiety

I'm sorry for posting off topic, i completely forgot this was about the psychological component.  I'll go to the appropriate threads now, but thank you for all the suggestions guys just knowing that other people are out there and dealing with similar issues helps, especially when my friends and family who i've talked to say "well its not THAT bad, a lot of people have cancer and stuff."  Thank you for understanding.

MasterShake89:

I have had prostate cancer with a radical prostatectomy and had Peyronies Disease for over 55 years. Both are devastating diseases and takes a great toll on ones psyche.

Believe me, there is little difference between what each disease or disorder takes on ones personal feelings and life. Just remember that they have not been in your shoes, so they probably do not know the effects. Keep the faith.

Old Man

I don't mean to be a attention 'getter', since this isn't the first time i've posted in this thread...  however.

Peyronies Disease is driving me, nearly insane.  Been having it for well over 10 years, at the age of 25 currently (funny, how nearly anyone will say it only affects people over 18).  

I've always just put it in the back of my head, "i'll deal with it after my vacation, after the next football game, after my birthday, etc etc etc".  I was honestly a KID when I hurt myself there, and that's the LAST thing you want to bring up at that age.

After I eventually got the courage to visit a physician over the past 8 years (3 times before he thought its just all in my head) about it, and ACTUALLY being diagnosed (a few months ago), I'm nearly losing my mind over it.  I can't get it out of my head, whether sleeping or conscious.  My family doctor also thinks I have anxiety, and I couldn't agree more, there's a REASON (a very valid reason) i fear getting intimate with someone of the opposite sex.

I live in Canada, so a simple "go see a psychologist" is going to cost me a arm and a leg which I can't afford -- nor need, I know what the problem is.  I know what my problem is, my 'unit' is 'fractured' near the base, which doesn't cause it to grow as it use to, very loose after that point, and is very 'bendable'.  I get to wait 3 more months, to go see a specialist on the situation (dr. Brock) who I know is just going to recommend surgery.

PMs from a couple members are saying to avoid surgery.

I feel like I am honestly losing my mind over how to confront this in the first place -- I've been browsing around these forums for a few months before my first post, before I came here I thought surgery would be the best thing.  However...

It seems like the way it goes is to be prescribed something, give it 6 months, wait and see if it has that low chance of actually working ---   is this my fate, followed by a 'necessary surgery' which might result in a massive loss in sensitivity (which is a joke to begin with, haven't been all that sensitive whatsoever down there since I injured myself).

A implant there can actually 'fix' the sensitivity anyways, no?

For the record, alcohol has been my best friend for dealing with this.  Without it for 4 or 5 days, I get VERY angry about my situation --  how's everyone else dealing with it, is there a website link, or have a I missed something good on here (that doesn't include talking it over with your wife of many years, which is a blessing I don't have).  

Dear astyanax

Alcohol is not your best friend. In addition to Peyronie's disease, you are welcoming into your life the second disease of alcoholism, which can kill you (something Peyronie's Disease does not do).

You mention poor sensitivity. Anyone here with a bit of experience in drinking and sex will point out that alcohol will impair that, as well as erectile function.

I did not develop Peyronie's at 15. I did at about 20. Since then I have had sex with far too many people for my own emotional good (going after sex to prove I was "OK" was my own form of insanity). What I do know is that Peyronie's did not stop me from having sex with women along the way, nor did it stop me from forming deep, close and loving relationships.

The "stinking thinking" that you are expressing here is going to drive any thoughtful woman (running) away from you much faster than the shape or function of your penis.

You say that you "can't afford -- nor need" to go to a psychologist, because you already know what the problem is. May I suggest that you examine whether or not that is really true?

You say that Peyronie's is driving you insane. Well, it isn't. Your poor set of skills for coping with stress, your incipient alcoholism, and your depression and anxiety are what are leaving you feeling so shaky and crazy.

You can't afford to go to a psychologist? You can't afford NOT to go to one. May I compassionately ask that you get your butt in gear and get help now. Get a second job to pay for it if you need to. Problems need to be solved, not fretted about and obsessed about. Good luck.

Tim

I'm the same age asyntax, and although I've only had Peyronies Disease for 4 years, I'm suffering in the same way. I don't have any words of advice other than to echo Tim's assertion that alcohol will make the situation worse. It encourages inflammation and can inhibit natural processes in the body, thus making things worse. Try to find that "escape" in something else - be it exercise, meditation, sports, a hobby, etc.

asyntax- i am a 18 year old with peyronies and i know exactly how you feel. when i say exactly i mean exactly. i have been drinking everyday obsessively for a month including drinking and driving. i thought it helped me out temporarily but in the end it truly only did make things worse. what tim said has to be the best answer anyone can give you. you must be strong man for we have no other choice. instead of obsessing over our misfortune we must overcome them. drinking for one is not the answer and that is for sure. please listen to tim and get yourself some help. i went to a phychologist and decided that drugs wasn't the answer. he prescribed me xanax and well that only made me more lazy. i think physical excercise is a key component with dealing with peyronies. i mean first of all it will help you phychologicaly and secondly it will quite surely help you with it physicaly as well. don't let this disease destroy you man. there is so much more to life! i have been trying to get with girls the entire time with this disease and when i finally succeed my low self asteem ends up crashing everything. i will prude out and in the end it was a waste of effort. i think the best thing you can do is try to have fun without destroying yourself. alchohol will destroy you!!!! i will stress that more and more if i have to. get a hobby! go out and play some games with some friends! if you have to tell your buddys about your disease like i have you will feel so much better. instead of having to hide yourself you can be who you are. my anxiety has gone down plenty when i told my friends about it. they all understood and not one treated me any different. i even grew some balls and told this girl kylie about it and she didn't look at me any differently. she still loves me. now if i can only grow some balls and tell amanda haha =/ but my friend i am truly worried about you now and i don't want you to make any bad decissions. i have made so many bad decissions its unbelievable and i am truly lucky to be alive. this stress can be delt with my friend you just have to be strong enough to do it. again about alchohol, other then it destroying you it will simply not help your mental anxiety. you might think it does but i promise you it doesn't. if you think it is completely neccessary then go to the phychologist and get some depression anxiety medication that will help you in the long run. it might even save your life my friend. again keep your chin up because you are not alone on this. we are ALL here for you! every second,step, and breath of the way. please don't hesitate to message me if you would like to talk or whateverz.

I definitely came off a little harsh when I posted.

I'm far from suicidal by any means, or making any 'rash' decisions because of this affliction.   Ie.  I don't drink and drive, do any drugs, pick fights with people, etc.

I don't know, I'm well aware alcohol is a depressant, however getting trashed once a week with some friends, having fun, definitely gets my mind off this for a little bit.  I haven't had much sensitivity well before I started having a few once a week.  (My original post was exaggerated, I don't wake up and have a drink).

The 'stinking thinking' was, well, just me venting (sorry, I know this isn't a blog, or a emo forum).  

We all have this problem, I found that writing about it actually makes me feel much better. Most of the time I don't have that, 'attitude', just some days are much better than others.  I was not having a good day, having friends / coworkers talking about sex all day, and hearing people (I work at a hotel) having it that night was driving me up the wall.

I'm just not sure what I would benefit from getting help from a mental health specialist.  I suppose just having someone to talk to about it would be a plus.  However, I'm sure he/she would just try to convince me that I could have a healthy relationship with a woman regardless of my condition -- which is simply not true, for the most part.  I have never met any woman in her mid 20's that would have a relationship with a man that can't perform, nor am I hanging out with sex maniacs.  Has anyone felt better about seeing a psychologist due to peyronies?

I'm fine at coping with most kinds of stress, at work, family, etc.  The anxiety of having to wait months to see a specialist is driving me up the wall.

astyanax :

Venting is fine. That's why this forum is here. In many cases we can't vent to our friends and family about our condition and that makes us feel like we are carrying a secret burden. Vent away.

Regarding alcohol, excessive use is not a good thing. Even if it does not directly affect Peyronie's per se, being dehydrated and sluggish from hangovers isn't a good thing. Keeping active and fit will take your mind off of the problem while giving your body the best chance to heal (to the extent that it can heal). Also, most women would prefer a man who is in shape, confident and happy with a penis problem than an out-of-shape drunk with a perfect penis (whatever that is). The women who will make you happy IN THE LONG TERM are not going to judge you about this. You need to figure this out. Too many men beat themselves up about pleasing some fantasy girl when they should be looking for the girl who is fun, understanding  and emotionally fulfilling. You'll be surprised to find that many of them are smoking hot and tired of dating selfish jerks. Trust me on this one and stop getting your ideals for women from pornography or pop culture.

Psychological counseling may be beneficial. I suggest using the internet to find psychologists who specialize in sexual health and/or traumatic injury (Peyronie's counts as a traumatic injury). Talking things through can be tremendously beneficial . I am in the process of searching for someone with whom I can share and discuss my struggles with this disease. It's tough but I know it will be worth it. Chin up and best of luck.

-Skjald

23 years old with peyronies disease. I dont understand why everytime I go see a urologist they say its all in my head or they dont know whats wrong there the doctor they should be checking and figure out whats wrong its so frustrating. Like I got tested through a vasculatory lab and it said I have calcification within the penile indicies and the urologist still thinks its all in my head it sais it on the paper. A question I have is with peyronies disease do you have trouble reaching orgasm? Or if that at all?

Quote from: Noway on July 19, 2009, 01:51:21 AM
23 years old with peyronies disease. I dont understand why everytime I go see a urologist they say its all in my head or they dont know whats wrong there the doctor they should be checking and figure out whats wrong its so frustrating. Like I got tested through a vasculatory lab and it said I have calcification within the penile indicies and the urologist still thinks its all in my head it sais it on the paper. A question I have is with peyronies disease do you have trouble reaching orgasm? Or if that at all?

I never had a problem reaching orgasm..... even with a 70 degree bend.

Hello, although I've been a member since May, I've never posted anything. This problem has been so overwhelming I guess I just couldn't bring myself to posting anything. I started out with pain about a year ago, but the curvature didn't manifest until last Christmas. Since then it has gone from about a 40 degree to a 90 degree angle. Kind of like having a boomerang (one you can't throw away) between your legs. Well here I am, just wanted to say hi.

dhb2000,

thanks for posting.  

As with your situation, my deformity presented last December.  Also, I've experienced the psychological "weight" that this condition may cause.

I visited my urologist's P.A. today, and he told me some anectdotal information that I believe is psychologically beneficial.  He said that
"many" of their peyoronie's disease patients respond well to treatment during the first year since presentation and even experience resolution of the condition (15 degree bend or less).  He told me they see about 20 peyronie's patients each week, (some new, some follow-up).  

I believe I asked him "do patients respond favorably to treatment?"; his reply was "most definitely."

He believed that the use of the VED, prescription meds such as Pentox and Viagra, and L-arginine are wise "tools" to combat the condition, especially during the first year.

Fortunately for us, the above treatment course is widely discussed on this board.

In any event, this is purely anecdotal, but it reminded me that there are many other men dealing with this condition that do not post (or, visit) this forum, and according to the P.A., experience improvement.

CF

cowboyfood - Thanks for making such a positive post. It reminds us of how valuable this site is as getting the message out there that useful treatments and competent urologists are out there. A great many lurkers come here every day and the existence of the forum sets them on the right path..

Hey guys, thanks for the responses. After seeing the bend for the first time (I just happened to glance in the mirror while waiting on my girlfriend) and almost fainting in horror, I went to see my urologist, Dr. Dick Chopp (I'm swear I'm not kidding) who convinced me to begin verapamil injections right away. When I started the treatment I was at about 40 degrees. Buy the 5th injection I was at 90 degrees. He sent me to another guy who gave me no hope at all. I finally found a urologist who gave me some hope with the topical Verapamil, but my insurance said they won't cover it and the $300 for a 30 day supply X 6 is way more than I can afford on another gamble. I also have Dupuytren's contracture in both palms, but the left is much worse. My current urologist was the only Dr. of the 3 to tell me that it's related to Peyronie's. Anyway, since all this started I'm not the same guy I was. It's like everything that was wonderful in my life now seems "okay" and everything that was "okay" is just plain awful. Oh yeah, massive doses of Vitamin E didn't help me either.

CF,
Also thanks for the post. I have the same impression. I remember one of my appts with Dr. Levine. It was early afternoon and I was his 20th Peyronies Disease patient that day. So clearly many more are dealing with this. And Dr. L kept reminding me that 70% of his patients did respond to the Pentox, Traction, VI regimine.  I just wasn't so "lucky".

dhb2000,
Since you have been monitoring, have you tried any other therapies like VED or traction. Will your uro perscribe Pentoxifyline?

Les

Noway

I have been reading several of your post on the ED thread. A couple of things you should never use the female on top position. You can not control the angle and depth and a sudden move in the wrong direction hurts.

Also there is one thing that you need to learn. The size and shape of your penis does not make you a man.

Jackp

I haven't tried anything other than what I've listed. I' contacted my Ur to let him know I can't afford his recommended treatment and to see what his "plan B" might be. The amount of "Peyronie's Treatments" I've seen just searching the web is overwhelming. Many have no real success data yet the suppliers boast great claims. I know each case is different and what might work for one doesn't help another. What I found out about the injections were that a good percentage of patients' symptoms can worsen after the injections. My Dr. (at the time) never mentioned that to me. Had I known I would have gone a different route. I can feel much more plaque today then I did just a few months ago.

Quote from: jackp on July 21, 2009, 07:11:04 AM
Noway

I have been reading several of your post on the ED thread. A couple of things you should never use the female on top position. You can not control the angle and depth and a sudden move in the wrong direction hurts.

Also there is one thing that you need to learn. The size and shape of your penis does not make you a man.

Jackp

    So your saying not to not do the female position on top? What do you mean by the size and shape of your penis doesnt make you a man?

Noway -

He means your penis isn't what defines you as a man.

It can be hard learning that when you're young, since the media portrays manliness as always being ready to have sex for hours on end at the drop of a hat. That's obviously not true, even in men without Peyronies Disease. Your penis has little to do with your manliness - how you conduct yourself has everything to do with it.

ocelot556

I could not have said it better myself.

Thanks

Jackp

Quote from: Noway on July 21, 2009, 01:17:19 PM

So your saying not to not do the female position on top? What do you mean by the size and shape of your penis doesnt make you a man?

emphasis added . . .

YOU meant to state "So you're saying do not do the female on top position?"

Yep, that is what he is suggesting, do not do the female on top position.  Better safe than sorry.  Or, anyone on top for that matter (acknowledgment of ALL of our fellow board members).

CF

   I thought up a slogan...Peyronie's Disease: Nature's way of saying no more reverse-cowgirl for you.