Hi guys,

I've been a long-time lurker on this forum, and I've been suffering from what I believe is Peyronie's disease for several years. For a long time, I didn't have the courage to see a doctor, but I finally did last year and thought I'd share my experience.

My main issue is complete erectile dysfunction. During my first visit, the doctor examined me and said I had severe phimosis, which he believed could be contributing to the problem. I underwent a partial circumcision, but unfortunately, it didn't improve my condition.

Next, he performed an ultrasound on my scrotum and found a low degree of varicose veins. I also had blood work done, which showed that my testosterone levels were quite low. I started TRT, and while it slightly improved my erections, I still wasn't able to maintain them.
I was also prescribed 10 mg of Cialis along with Nolvadex. These medications helped a bit, but my erections were still not hard enough or long-lasting enough for penetration. Eventually, the doctor told me that the issue is psychological.

In addition to ED, I experience extreme numbness. I'm currently in Dubai and don't know of any other good doctors in the area. I'm 34 years old and honestly at a loss about what to do next. My erections are almost non-existent, I have no morning wood, and very little sensation in my penis.

Quote from: dave1211 on Yesterday at 09:37:30 AMHi guys,

I've been a long-time lurker on this forum, and I've been suffering from what I believe is Peyronie's disease for several years. For a long time, I didn't have the courage to see a doctor, but I finally did last year and thought I'd share my experience.

My main issue is complete erectile dysfunction. During my first visit, the doctor examined me and said I had severe phimosis, which he believed could be contributing to the problem. I underwent a partial circumcision, but unfortunately, it didn't improve my condition.

Next, he performed an ultrasound on my scrotum and found a low degree of varicose veins. I also had blood work done, which showed that my testosterone levels were quite low. I started TRT, and while it slightly improved my erections, I still wasn't able to maintain them.
I was also prescribed 10 mg of Cialis along with Nolvadex. These medications helped a bit, but my erections were still not hard enough or long-lasting enough for penetration. Eventually, the doctor told me that the issue is psychological.

In addition to ED, I experience extreme numbness. I'm currently in Dubai and don't know of any other good doctors in the area. I'm 34 years old and honestly at a loss about what to do next. My erections are almost non-existent, I have no morning wood, and very little sensation in my penis.

I also had severe phimosis when I was younger and had to get a circumcision to fix it. I also had a varicocele that with operated on to reduce it. Neither of these things directly correlate to Peyronies. They are separate issues.

I notice you haven't mentioned any deformity, curvature, plaque, scar tissue, lumps or indentations...What makes you suspect you have peyronies specifically? Did your Urologist diagnose you?

With regards to your ED, I'm surprised that Cialis hasnt done anything for you. It might be useful to have a Penile Doppler Ultrasound, which analysis bloodflow and can identify any contributing structural issues.

As a final point, never be too ashamed to see a doctor. Its a mistake far too many men are still making and a stigma that had no place in the modern day.

I'm sorry to hear about what you are going through. For your testosterone replacement I question if your Dr really knows how to treat your low T. I had to go through several Dr's before I found a knowledgeable one who knew just what tests to perform. It is not your total testosterone that should be looked at. It is the free testosterone that is the liquid gold. Also has your estrogen levels and prolactin checked as both of these will cause ED.

Seeking out a new Dr if you have to is not fun. Don't give up hope!! You will find a solution if you don't give up. Implants are successful if you can find a high volume surgeon.

I would say that you stll have a fair amount of things you can try. The fact that you have erections even if mild is encouraging.

You can....

-try cialis with l-arginine
-try these two and use a constriction ring
-use a vacuum pump to achieve an erection first, then use a constriction ring, in conjunction with those two
-try cialis daily 2.5 with viagra 25mg and up the dosage from there

what you also need to do is try to find a sexual medicine specialist. But if you can't find one, there's several videos online that can help you better understand your condition.

Also, you need to understand why you have those symptoms. As in, having a full examination. Is it heart disease? venous leak? hormonal? Post finasteride syndrome? that will help you in chosing the treatment path.

And yes, the implant is there as a solution for you! Also, if you have the financial means, you can always travel abroad to get the care you need!

Quote from: Ukguy1234 on Yesterday at 05:53:26 PMI also had severe phimosis when I was younger and had to get a circumcision to fix it. I also had a varicocele that with operated on to reduce it. Neither of these things directly correlate to Peyronies. They are separate issues.

I notice you haven't mentioned any deformity, curvature, plaque, scar tissue, lumps or indentations...What makes you suspect you have peyronies specifically? Did your Urologist diagnose you?

With regards to your ED, I'm surprised that Cialis hasnt done anything for you. It might be useful to have a Penile Doppler Ultrasound, which analysis bloodflow and can identify any contributing structural issues.

As a final point, never be too ashamed to see a doctor. Its a mistake far too many men are still making and a stigma that had no place in the modern day.

Thank you for your reply. Yes I know they are separate issues but regarding my phimosis that's the first thing most of the docs noticed when they examined me. Anyway I'm really glad I did it though.

Well I have a pretty significant curvature actually that's why I suspect I have peyronies. This is probably to over 20 years of very rough prone masturbation. I used to even masturbate on hard floors as a kid (dont ask my why i did it). In fact I used to have very strong erections as a teenage and I totally damaged it due to the proning.

Yes, I have gotten over the fear now of seeing a doctor. I'm just frustrated why my doctor didn't even bother to do a Doppler ultrasound for my issue and instead did it on my scrotum.

Quote from: Mikel7 on Yesterday at 07:26:43 PMI'm sorry to hear about what you are going through. For your testosterone replacement I question if your Dr really knows how to treat your low T. I had to go through several Dr's before I found a knowledgeable one who knew just what tests to perform. It is not your total testosterone that should be looked at. It is the free testosterone that is the liquid gold. Also has your estrogen levels and prolactin checked as both of these will cause ED.

Seeking out a new Dr if you have to is not fun. Don't give up hope!! You will find a solution if you don't give up. Implants are successful if you can find a high volume surgeon.

Thank you for your encouragement Mike. Yeah, I guess I will have to see another doctor. This whole process already took 6-7 months. I definitely did notice some improvement with the TRT though but it gave me a lot of acne that was the only issue.

I'm totally worried at the moment I'm gonna turn 34 soon and see no solution in sight.

Quote from: Pfract on Yesterday at 10:39:33 PMI would say that you stll have a fair amount of things you can try. The fact that you have erections even if mild is encouraging.

You can....

-try cialis with l-arginine
-try these two and use a constriction ring
-use a vacuum pump to achieve an erection first, then use a constriction ring, in conjunction with those two
-try cialis daily 2.5 with viagra 25mg and up the dosage from there

what you also need to do is try to find a sexual medicine specialist. But if you can't find one, there's several videos online that can help you better understand your condition.

Also, you need to understand why you have those symptoms. As in, having a full examination. Is it heart disease? venous leak? hormonal? Post finasteride syndrome? that will help you in chosing the treatment path.

And yes, the implant is there as a solution for you! Also, if you have the financial means, you can always travel abroad to get the care you need!

Thank you for your helpful reply Pfract. I shall try out the treatment methods you suggested. Only issue regarding the vacuum pump is I don't know if it's available here as I'm in a Muslim country. I had tried checking this out before too.

Thought it's not confirmed yet I'm almost certain this is due to a venous leak. One of my other docs said it as well but since he was in India I wasn't able to do a follow up test with him.

I also have severe numbness and no sensation at all. Not sure what is the reason for this but I guess it's due to the scar tissue blocking my nerves. It really feels like my dick is totally dead and without the 10g cialus I get O random erections. With the cialus it literally lasts for 2 seconds and goes down.

I have never had penetrative sex because of this issue and I'm getting frustrated. I'm also not sure if my insurance would cover my medical costs were I to do an implant in the US. I think there are implant surgeons in Dubai too but I feel it's too risky to do it with them.

Quote from: dave1211 on Yesterday at 11:39:41 PMThank you for your reply. Yes I know they are separate issues but regarding my phimosis that's the first thing most of the docs noticed when they examined me. Anyway I'm really glad I did it though.

Well I have a pretty significant curvature actually that's why I suspect I have peyronies. This is probably to over 20 years of very rough prone masturbation. I used to even masturbate on hard floors as a kid (dont ask my why i did it). In fact I used to have very strong erections as a teenage and I totally damaged it due to the proning.

Yes, I have gotten over the fear now of seeing a doctor. I'm just frustrated why my doctor didn't even bother to do a Doppler ultrasound for my issue and instead did it on my scrotum.

It sounds to me that your main issue is ED and your curvature is just congenital, nothing to do with peyronies.