Open Questions on Peyronies Disease (That won't fit under any of our current topics)

[Caring]

OK. THis may be obvious, but...GET THYSELF TO A DR.!!!!!
If it is a hernia, that is nothing to play around with. Get it repaired before it has the potential to strangulate and cause more physical damage that you dont even want to think about right now!!!  I have had this done 3 times, and it is not that big a deal. But it can be if left to it's own devices.
If it isn't... then you only have spent whatever your deductible is and you can relax. Plus, your DR will be able to diagnose. This forum discussion cannot replace any urgent medical attention one may need. At times we all need the expertise of a Dr. even if we dont generally like going to them.  

[mark501]

howcanthisbe, I forgot to mention that with laparoscopic hernia repair, they usually have you walking a few hours after the surgery. In most cases you can go home the following morning. They just want to observe you overnight; mainly to see that you are having no problem urinating. The recovery period is much shorter than the traditional surgery. Mark 501

[Old Man]

HCTB:

The best advice for you right now is what Caring said....get to a doctor and quit worrying about your condition. When you know for sure what is causing the pain, then if necessary worry. However, worry will only increase the pain, so relax, get medical attention ASAP.

I have had numerous surgeries in my extended life including a double hernia patch with Goretex patch material. I was home in about 4 hours drinking a cup of coffee.

Best of luck to you, Old Man

[Liam]

HCTB,

Why don't you go to the doctor?

Liam

[howcanthisbe]

alright thanks all, im gonna go to the doc soon. Thanks for the great answers.

[Blink]

Don'tcha just hate it when your friends all gang up on you? I'm with them, Get thee to da doc!   Keep the Faith...Blink

[zigwyth]

By the way. I had lower right inguinal laporascopic(Sp?) hernia surgery last Nov. Didn't do any research on the particular Surgeon, because of ignorance and it was work related. The clinic that we are sent to when we have on-job accidents had sent me to this guy. I just assumed I had to take this Surgeon.Well, after the surgery, not only did he not discuss the outcome with me or any of my family, (he was in a hurry), a disaster resulted. I had lost 2 pints of blood, 2 Blood clots eventually formed, one being in my lower extremeties. They sent me home 2 hours after surgery.Everything was Black and Blue for 2- 3 weeks, including my penis and jewels. I was rushed to an emergency room a few days after the surgery when I blacked out in a store parking lot.That's when they found out about the loss of blood and abnormally large clots. The surgeon simply told me that I needed Bloodflow to the extremeties. He told me to buy iron tablets and to masturbate. I did this, and I feel like I didn't get crazy with the Jerking, but that's when the"Pop" was felt. Now I have Peyronies. Of course he denies any wrongdoing, and that's O.K. My whole point to this matter is, with any surgery if needed, PLEASE research out the Doctors(history-how many operations have been successful, any malpractice lawsuits, etc) before making your choice and ask many questions. I wouldn't want anyone to go through what I did. Good Luck
Zig the Twig

[Tim468]

I have often thought that the Urologic community, and the "Peyronie's Disease" community (which I see as made up of patients and those who care about the affliction) should forge an alliance to provide better care for Peyronies Disease. The model I like to refer to is the Cystic Fibrosis Foundation (CFF) which helps coordinate clinical trials and sets standards for care that centers of excellence are expected to reach. Wouldn't it be nice to know that if you went to a "Peyronies Disease Center" you would get the same quality of care as at another place? To know that the care was good enough?

Well, the CFF has gone a step further. They now are going to provide outcomes data on how centers do - so you will find out precisely where your docs stack up against others. Here is their latest press release. If only the urologic ommunity could step up to bat like this...

The CF Foundation plans to release center specific health outcomes data for care centers (pediatric and adult programs) and affiliate programs in December 2006. The data will include outcomes for children and adults in the following areas: lung function, nutritional status as measured by BMI, percent of patients screened for CF-related diabetes, and proportion of patients who meet guidelines for visits, PFTs and cultures.

The pulmonary and nutritional outcomes will be adjusted for the following characteristics of a center's patient population: pancreatic status, age distribution, gender, race/ethnicity and household income estimated by U.S. Census zip code data.

The data will be posted on the CF Foundation's Web site (www.cff.org). By sharing this information with the CF community, the Foundation hopes to strengthen the partnership between care center teams and their patients and families, and continue to accelerate improvements at all CF care centers.  

[snarf]

When I was about 14-16 (can't remember exactly how old), I specifically remember being in an erect condition when I laid on the bed stomach down.  I felt a non-painful tearing.  At the time I thought it was a good thing because I was always embarrased of getting erect in jr high so easily.  

Now in my adult life (now 29), I find that I may have Peyronies disease.  When I'm fully erect, I do have a curve in my penis, which is more like a banana, and not the sharp elbow joint shape shown in illustrations.  In addition, I seem to not have a bloodflow problem or with normal ejaculations.  Perhaps it does take more to stimulate me because of the curve and the reduced exposure to sensitive tissue, but I have no way to make a comparison.  I appear to have normal sexual function.  I have no pain.

What I do have a problem with...

• In the morning, when I have a blood filled penis, I can be difficult to urinate without bending the penis down.  It doesn't hurt, but I can't aim as easily.
• Last time I had sex, she informed me that I was hurting her.  She also mentioned the curve in the penis, but didn't say anything else.  I wonder if I hurt her from some a curved penis.
• My penis does almost end at 90 degrees from the shaft if measured from the shaft to the tip.

From what I have read, I seem to have a shape problem, but not the pain some people allude to.  Also, I cannot see any kind of tissue discolorations on the top of my penis (it bends up).  It seems like the whole shaft is uniformaly sloped, and bone-hard when erect on the top side.

Do I have Peyronies Disease or something else?

[Liam]

Snarf,

No.  The things you seem to have a problem with are things I remember from long ago (Pre-Peyronies Disease).

But, a Doctors opinion based on an exam and medical history would be better.

[snarf]

Snarf,

No.  The things you seem to have a problem with are things I remember from long ago (Pre-Peyronies Disease).

But, a Doctors opinion based on an exam and medical history would be better.

Are you saying that I might get worse, and eventually get Peyronies?  I hesitate to go to the doctor because of my position in the federal government.  I may be dismissed from my occupation if I am diagnosed with certain conditions.  I don't know if they will consider this purely cosmetic, since it really only affects my sex life at the moment, or if it will disqualify me.  So I'd rather keep this anonymous and away from the doctors I would normally see.

Thanks

[Hawk]

I have never heard of a single soul being dismissed from any job (except maybe porn star) for Peyronies Disease.  Additionally, HIPAA severely limits who can access personal medical information.  None of us (or even a urologist) can diagnose you over the Internet.  Your symptoms as you have stated them don't sound typical for Peyronies Disease.

I think most men have trouble urinating with a raging erection
Your curve sounds like it has been there and been stable all your adult and your adolescent life.

never the less, only a "qualified urologist can be sure.

[Liam]

Are you saying that I might get worse, and eventually get Peyronies?  I hesitate to go to the doctor because of my position in the federal government.

Snarf,

What do you see in what I wrote that would make you think I was predicting you might get Peyronies Disease?  You might get hit by space debris. You might win the lottery.  I didn't say those , either.  "Might" covers  many things.

One thing it does NOT cover is losing a government job.  Hello, they can't get rid of incompetent employees whom they have a reason to fire (and never should have hired) .  

If it is an elected position, look at our poster boy (Lord help us), Bill Clinton.  Do you remember Paula Jones and her talking about his "curved penis"?  Well, he served out his term.

One other suggestion, see a different doctor in a different town.

[Power]

Hey Guys,

Can anyone make sense of these results. What do they mean.

Testosterone, Free, Direct    13.4
Prolactin                             6.2
Luteninizing Hormone (LH)     3.2

Are these normal. I'm 24 years old.

Power

[Tim468]

To answer your questions, I would need to know the units of measurement, and the range of normal for that lab.

Tim  

[ComeBacKid]

Power,

I just got another testosterone test done today with LH and Prolactin and a whole list of other things.

My first test came back at 198, I requested it after having absolutely no daytime erections spontaneously.  After going on lexapro for a year my sex drive diminished, I was also drinking heavily which can effect testosterone.  When my Peyronies Disease worsened a year after stopping lexapro I lost all daily erections.    Today I got the test done again except that had to take three tubes of blood and I got dizzy and almost passed out, I had to lay down for awhile to recover, as they wouldn't let me walk out of the place, cause they took to much blood.  After I recovered they informed me they needed more for the plasma test, I just told them I'll pass and said I didn't want it, I was kind of irritated.  I'm done with the blood tests for now, thank god, hate them won't ever get one unless its absolutely necessary.

Your numbers need to be converted into a three digit number for testosterone I believe to compare your data, if you got test done good work you want to examine your condition as much as possible.  Have you had an ultra sound done?  I'm getting this done when I go to visit Dr. Mulhall.  This will add to your data collection, it should be done for anyone with peyronies.

ComeBackid

[Steve]

Anyone ever hear of this???  I masturbated today, and the ejaculate came out blood red with a browinsh lump in it!!!!!  The lump looks like a blood clot as far as I can tell.  

Needless to say, I'm kinda freaked out

I did a quick google search, and found 'Hematospermia' as the probable diagnosis, but that basically means 'blood in the seminal fluid' -- very non-specific!  To make matters worse, I saw the same cause as my Peyronies Disease -- 'Doctors are unsure of the cause of Hematospermia...'.  GREAT, here I go again!!!!!  It did say that less than 1% is caused by cancer...I'd be much more comfortable with less than 0.000000000001%!!!

I've already got a Dr appointment set up for tomorrow morning (set up last week for a normal checkup), so I'm going to bring this up and see what he says.

Any comments Tim (our local Dr on call)?

Steve

[Hawk]

Steve,

Guessing here, but the brown is possibly old blood and the red fresher more recent.  The only thing I can add is that the prostate produces seminal fluid and pushes it into the urethra during ejaculation.  it is not a very long trip.  Also, after leaving the prostate, it does not encounter a lot of other complex structures so guessing, I would say you may have a prostate problem.  After a prostate biopsy, you ejaculate crud such as you describe for several weeks.  One bad event in the prostate is enough to effect the content of seminal fluid for some time.  

I would think this could be triggered by a bad infection, injury, hard off road bike riding, or something more sinister.  It could also be just a small ruptured blood vessel along the way.  You are wise to see a doctor and closely monitor this, even though it could be and hopefully is something minor.

[Tim468]

Answered in PMs.

Could be bad, probably isn't. See the doc and get it checked out.

[Mister Dillon]

Rico and Hawk

I would love to see a new topic on an anti inflammation diet.  I would even buy a book by Rico.

Mister Dillon

[George999]

My favorite in this category has to be Mangosteen.  Expensive, but it doesn't require more than a couple of tablespoons to do the job.

- George

[wasa]

Hi,

I also don't know if I have peyronies or not. I already went to three urologists, and none was particularly interested in finding out it seemed. None of them was very keen on doing ultrasound to see what it was. They all seemed to say it wasn't peyronies, as they couldn't find any hard plaque like tissue. But the fact is that my penis has reshaped during the last 2 years, it has A LOT of new veins (they always start small reddish, purple coloured and eventually develop into big, rather broad blue veins) all over (sides, front) and since 4 months or so it has gone upwards, so now my penis in erection looks very much like a banana. The last urologist said this could be normal, as a penis can change in size during the life, especially if you're young. I'm 25 now. But i still haven't got any clue as to what it is. I have been looking up on the internet and I read about Mondor's disease. Does anybody know if my description sounds familiar for Mondor's? I haven't been able to find any picture about it.
Another diagnose i might think of is that all the new veins on the base of the penis cause it to bend upwards when it gets erect. but i wonder what could be done about it then..

Thanks for any help you might give, as I'm quite worried..

[Hawk]

Welcome to the forum Wasa.  As you might guess, if 3 urologist are unsure after an examination, we are likely to be more unsure but I do have a few questions.

Have you had any pain or tenderness, or erectile disfunction?

Have you been using any perscriptions or significant over the counter products?

Have you had any injury?

Do you have any other health issues or symptoms?

[johnnyboy]

I'm going to tell my story here and hopefully whoever reads it can give their input...

I'm a 22 year old and I think in the past week I have contracted Peyronies Disease.  One week ago today my penis suffered some probably unneeded trauma.  I masturabted for a good long while, thinking nothing of it really.  A few days after I noticed firm tissue inside my penis when limp.  When I peed it was usually normal, but I've noticed that the head of my penis is cold pretty much all the time.  When I get an erection it is of normal firmness and length, BUT getting to erection is slightly more difficult due to the "bottleneck" or "hourglass" that forms.  That eventually fills out and a normal erection forms.  I have masturbated since I've noticed this problem, and honestly I think I made it worse.  I noticed a small indentation on the side of my penis closer to the head. Today I noticed my penis slightly hurts when I walk and it rubs against my boxers/pants.  I have been up for 24 hours now (damn exams).  No sleep certainly hasn't help.

Is this Peyronies Disease?  Is pain on the way?  Is cervature coming?  Am I doomed?  WHAT CAN I DO?!

I am going to a urologist next week, so that is good, but what should I do in the meantime?  I bought a big bottle of Vitamin E and started taking 800UI today.  I want to attack this aggressively and hopefully cure it 100%.  Is this realistic?  I pray that the doctor can help me, but from what I've read online, doctors haven't been the most helpful.

HELP?!

[Hawk]

Johnnyboy, welcome to the Peyronis Disease Society's forum.

Your symptoms sound like classic Peyronies Disease symptoms.  Fortunately, you are getting information early on and not after 3 years of killing time. You are following the right course in seeing a GOOD urologist.  Your age makes you more likely to recover, especially if you know your were rough and this is from direct trauma to your penis.   In the very short term, my personal plan would include the following.

Take an anti-inflammatory like ibuprofen
Throw the vitamin E you have away and get one with a full spectrum tocopherols (Gamma, Beta , Alpha)
Take acetyl L-carnitine 3000 mg per day (split it into 3 doses with meals)
Do not treat your penis like it is indestructible.  If it is uncomfortable, don't do it whether that is wearing tight jeans, bull riding, or sex.
Get as much rest as you can (7-8 ) hours per night and de-stress your life

I am assuming you still get night -time erections and occassional random day time erections.  If you do not then there are a few additional things I would recommend.

In the long term there are several other things you can do such as recommending prescriptions to your Uro and some lifestyle changes like not smoking, but I would start with the other things now and start reading the forum.  I would start with "Oral treatments" and "Alternative treatments"

This is no more that my personal plan that I would follow.  I am not an expert or a trained medical person.  Others likely have different views.

[johnnyboy]

Hawk,

Thanks for the advice.  I'm actually meeting with a uro that specializes in Peyronie's.  I am not getting night time erections or random day time ones.  The only time I get them is when I work for it.  I also feel like more and more of my penis is hardening when it is limp.  I am really starting to freak out.  The head of my penis also seems to be cold all the time.

be honest, does this look really really bad?  I think this whole thing was caused by some form of trauma.  I am young, healthy, but I do not get 8 hours of sleep last night.  What would you say my chances are that my penis will be back to its old self 100%?  How long will it take?

[Liam]

Johnnyboy,

That is a new one to me.

Trauma may cause a temporary lesion and then resolve itself.  It may also lead to Peyronies Disease.  Only time will tell.

BTW, did you notice any discoloration or swelling?

[johnnyboy]

No discoloration or swelling at all.  I did notice a small, not thick bump on my penis as well as a small indentation on the right side slightly below the head.   I am worried that I am gonna start to get indentations all over the place.  I think more and more of my flaccid penis is getting harder too.  I am really starting to worry.  Does this sound like Peyronies Disease or just a response to trauma + masturbation after trauma?

[Mr BLBC]

I dont believe that I've read anything that indicates masturbation is a cause of Peyronies Disease, infact getting good blood flow and giving your self gentle massage is encouraged....

At least in my world......

No discoloration or swelling at all.  I did notice a small, not thick bump on my penis as well as a small indentation on the right side slightly below the head.   I am worried that I am gonna start to get indentations all over the place.  I think more and more of my flaccid penis is getting harder too.  I am really starting to worry.  Does this sound like Peyronies Disease or just a response to trauma + masturbation after trauma?

[Hawk]

Mr. BLBC makes a good point.  Since you made the statement you caused some unneeded trauma, I assumed you had reason to make that statement without getting into details. However, conventional masturbation would not likely cause trauma.  

I want to be clear also that no one can possible calculate chances of recovery.  Your odds are better than most of us here.  Even if odds were 90% of total recovery, it does not tell you what will happen with your particular case.  If we Assume you have Peyronies Disease, remember, your odds of getting Peyronies Disease at your age were probably less than 1%, but those statistics were of no benefit to you. Try to be calm and take comfort in the fact that you are doing all you can to combat this and that you have found a good source of information and support.  There is nothing you can do more important that not obsessing over this even though it is understandable that you are very concerned.

There are several men here your age.  We are all here for you and you will get through this.  When I was diagnosed with prostate cancer 2 weeks after I took an early retirement, I was told I had a 50 % chance it could reoccur.  To cheer me up the doctor told me a truck could kill within the next 2 or 3 years and none of that would be a factor even if it was to return.  I guess my point is that your worst fears could in theory come true, BUT there are far worse things to worry about if you want to spend time worring about bad possibilities.    Enjoy what is right, and don'tt live in dread of all that could possibly go wrong.  

[ComeBacKid]

JohnnyBoy,

If rough masterbation caused peyronies, there would be a lot more people who had it my friend, although how many people have this disease worldwide... whos counting?  You may want to check out pentox, its very safe, and studies show its effective at helping get rid of the plaque, even with calcifications.  You seem to be getting the same shrinkage/hardening effect I got, the harder the tissues get the more I'd be willing to bet you have a calcification.  An ultra sound would help determine this, I will be getting one soon.  See if you can get one of these when you visit the urologist.  Feel free to PM me again if you have any questions.

ComeBackid

[Hawk]

Not sure if you are aware ,but my understanding is this just began last week.  If so he would not be getting any calcification anywhere near this soon.

[johnnyboy]

Thanks for all the responses!  i really think it was a long, rough mastubration session that did this.  But saying that masturbation doesnt cause Peyronies Disease is good news to me, but who knows.  This looks like Peyronies Disease and I really need to get on a very serious regimen.  I'll see what the uro says.  

I did notice that when limp my penis is beginning to hang slightly to one side.  It seems to stay in whatever position I place it in.  I believe that this will lead to curvature.  

Keep in mind this all happened in the past 7 days.

Doc i spoke to on phone suggested some sort of injection, once a week for 12 weeks.  should last 2 years, about 70% "success" rate.  I don't recall the name.  any thoughts?

How can I get more blood flow down there?  the head of my penis always seems cold.

THANKS in advance, i'll be sure to report my findings from the uro.

[Liam]

JB,

I did notice that when limp my penis is beginning to hang slightly to one side.

As opposed to.........

It seems to stay in whatever position I place it in.

As opposed to.........


I may be getting old and stupid.  But, isn't that what penii (plural of penis do?

If a doctor suggests something on the phone, I would take it with a grain of salt.  He has not even seen you.  I am amazed that you were able to talk to a doctor on the phone.  WOW  They don't do that around here unless you are a family member or in their golf foresome that day.  This miracle shot of which you were speaking does not exist, at least,  as described (read the Verapamil section).

Many people have trauma to the penis.  Not all get Peyronies Disease.  Peyronies Disease may be thought of as the response to the trauma.  So saying any trauma is the cause of Peyronies Disease is not exactly accurate.  Also, the source of the trauma (long, rough masturbation) is inconsequential.  If you had a sports injury or the trauma was from the use of a medical clamp, the results, or lack of results, would be the same.

Keep in mind I am not a urologist and I have never met you.  But, you have a good chance of not having Peyronies Disease.  I have never heard of nor can I imagine Peyronies Disease coming on then progressing so fast.

As for cold penis, try Rico's warm epsom salt bath.  They're grrreeeaaat :::ala Tony:::.  

BTW, are you taking midterms already?  

[wasa]

Thanks for replying Hawk.

I can't say that I have any problems with erectile dysfunction. I get healthy erections every night & morning. Actually it's even quite the opposite, I seem to be getting erections much easier, and sometimes (like at work) that isn't such a good thing, especially because the curve makes it harder to hide it. In other words it gets erect quite easily.

I have looked some more on the issue, and I found a picture that is actually very similar to my curve. Look at the second picture, I think mine is maybe a bit more bend upwards. http://en.wikipedia.org/wiki/Peyronie's_disease

There it states that it's not peyronies but a normal curve. Still, I don't know, its very strange that all of a sudden the bend forms. I do think I had a small trauma due to a very long/intense period of masturbation about 1.5 years ago. There was just some redness on the start of the base of the penis, it went away and it didn't feel that painful either. After that (during the following year) the penis did become more 'floppy' (when flaccid point to left, right, it's like i had no control over it, still feels like that but less these days). Also while getting erect, it didn't happen simultaneous, so it looked and felt a bit strange when getting erect,  that worried me. When fully erect it was just very normal, and perfectly straight. About 3-4 months ago during the summer a curve developed, not at once, but in one month the bend was there, and still is to this day. I do think my penis also looks a lot different in flaccid state (a lot of prominent veins all over the place, lots of small ones and constantly changing in look, some slight 'bumps' at the sides of the penis if you call it that, it's like the blood is a bit thicker there).

I don't know, if you ask me i think I somehow 'damaged' the base or the ligament of the penis, and the penis is somehow adapting to it. Unfortunately this results in the bend. But i'm just guessing here..

I have no heriditary diseases or anything. It's the first time i experience some physical problem. And it bothers me as it the curve does (slightly) hinder masturbation/sex. It just felt better when the penis was perfectly straight..

[Steve]

Thought I'd bring Hawk and Tim up to date with my bout with Hematospermia...

I had my Dr visit the next day, and explained the symptoms to him, so he set me up with another visit with my Uro.  He also tested for blood in the urine, and sure enough, there was a lot (his term).

So, I visited the Uro, and he was much more concerned with the blood found in the urine than in the seminal fluid, and set me up for a CT/IVP (CAT scan and an X-Ray), and visit up inside my bladder.  The X-Ray and CAT scan showed nothing unusual inside (although I did bleed all over the floor after the IV for the contrast dye was pulled out).  Then came the scope (I've forgotten just what exactly it was called).  It was extremely uncomfortable when the scope passed through the Prostate, but again, the Uro didn't find anything to be concerned about.

Bottom line (HCTB and other's who're doctor shy please take note) a visit to the doctor, while not always the most enjoyable experience, did a great job of alleviating my fears and concerns.  That plus the fact that if there was something wrong, it would have been caught at the earliest possible time, when the most can be done for it.

Thanks to all for hearing my bell ring, and I've still got my ears open for yours...

[Old Man]

Steve:

The name of the scope is cystoscope. It usually hurts a little when the end of the probe passes through the prostate area. Most of the time the "neck" portion of the prostate in older guys is shrunken down somewhat and this is caused by the prostate being enlarged as we grow older.

I have had many of the "scopes" done durng prostate cancer surgery and the exams leading up to it. One never gets "used" to it as each insertion of the probe might be handled different by nurses/technicians or doctors.

Sometimes the bleeding that you had was a result of the probe being forced through the shrunken area. It heals fast, but if bleeding continues for a few days afterward, you should return for a checkup by your uro or MD.

Old Man

[newbie]

New Member...
Hello,
I have been reading the forum for about an hour and find it helpful. The one thing that seems most clear to me is that there seems to be a lot of frustration.

Here's my story...
I am 31. I have had this for about 1 year. I have one fairly large and hard nodule in the middle of my shaft which causes a slight indentation on the top of my penis. I have another softer nodule on the left side (beneath the head) which causes a narrowing on the same side just above the nodule. It seems that my erections are not as hard as they used to be and don't last as long either. I have been to a few doctors. The one I have been going to lately here in NY seems very well qualified. He, just like the last doctor, put me on Colchicine... this last time for 90 days. While I was on it no more nodules formed and the erection quality seemed to improve very slightly. Now that I am off it it seems like another nodule (or two) is forming.

Does my story seem typical?
At this point are there any steps I should be taking to halt the progression?
Any advice would help!

btw... my doctor seems to think that collagenase (pill form) will be available this spring. But from what I have been reading on the net it seems like it will be a much longer time?

Newbie

[NewlyDxd]

I was diagnosed yesterday by my family physician as having Peyronies Disease but he did mention that he can't be sure if it's congenital or if theres a calcification/plaque.  I'm going to a urologist soon to determine whether there is one or not...If there is no plaque, what treatment options are there other than surgery?  I have downward curvature which makes sex with my girlfriend difficult.  

[howtofixme]

Guess this is a good place to say hello.

I'm a 55 yo w/m with a 40 yo wife.  My penis has always curved downward a bit but in the last 6-12 months it has developed an almost 90 degree bend downward and I can feel two little lumps on each side near the bottom.  I can't call it "pain" but I sure have some "discomfort" with erections and sometimes even without.

I finally made an appointment with a urologist for this coming Friday and dreading it like the devil but I feel like I have read enough to know that I do have Peyronie's disease (unless it is something worse--which, at this point, I prefer not to think about).

Can anyone tell me what I might expect at a first visit to a urologist?  I want to get my money's worth as my insurance does not cover "erectile disfunction."

I'm looking forward to this forum.

Good luck, Guys--and the Ladies who are affected as well.

[Liam]

HTFM,

He will get some history, examine and palpate, then prescribe.  There is usually very little discussion.  I attribute this to two factors.  There is not much to say and talking takes time (note just a hint of cynicism).  If he does more than this, you have a winner.  If not, it doesn't mean he's a bad doc.  He'sjust not up on Peyronies Disease.

Go with info in hand.  Bring info on VED and pentoxifylline (Trental), viagra and l-arginine.  Be ready when he offers vit. E and Potaba.

Also, tell the doc you want to get your psa (prostate) checked .  That is covered by insurance and you need to get that done anyway.  He should bill under that code.  Ask him to bill under that code.

[Steve]

One more thing to expect on your Uro visit...

On my first visit with the Uro, I was so focused on my Peyronies Disease, that I forgot what Uro's do best...check your Prostate!  Yes, a PSA test will be a good idea, but a Uro will most likely want to do a digital exam (digital as in Finger ).  If you're not expecting this (as I wasn't) or have never had it done, it comes as a bit of a surprise.

Just wanted to give you a heads-up (or perhaps a tails-up  ).

[howtofixme]

Thanks for the encouraging replies.  I'll post Friday after my appointment.

[Liam]

OK Steve,  Just ruin the surprise  .  

HTFM,

Start warming up on "Moon River".

[howtofixme]

Come on Guys!!

I was a Marine almost 40 years ago.  I know the turn your head and cough routine and the DRE.  Heck, if it were a cute little young urologess I might even...well, never mind that.

Seriously, though, the kidding keeps things light and although I am not looking forward to all the poking and prodding at least I am not dreading it like I was.

Might even save my life someday!

Thanks again.

[Liam]

I picked on my friend after my prostate surgery last year.  I bugged him about getting a prostate check up.  Long story made short, he had a radical prostatectomy 2 weeks ago and is doing great.

The odds are against having PC.  But, if you have it, early detection will save your life.

My doc says he has the worst end of the DRE  .

GOOD LUCK!!!

Liam

[gibson101]

Greetings

I have suffered a injury to my penis within the last month. After much research I believe that it is Peyronies Disease. My penis is shrinking. it is a lot firmer when placis and when it begins to get erect it tightens near the tip(this sometimes does not happen) . The other day though I had a spontaneous erection that would not go away and so I masturbated and this seems to have aggravated the injury alot. The head is number and the penis is harder. Does anyone have any advice I know there are no cures and I am raced for the worst but I believe it is still fresh so maybe I can still do something early on to help it. Got appointment tomorrow with urologist but I went to him first week of this and he told me nothing was wrong so cant really trust him. Has anyone made a recovery from something similar at all??or heard of someone who has.

Regards to all
D

[ComeBacKid]

Gibson,

I also suffered an injury and had very similar symptons compared to you.  Why don't you tell us about your injury, what exactly happened, try to go into as much detail as possible.  I would see another urologist, not just one, I've had 2 diagnose me with peyronies and 1 who didn't, a lot of doctors know nothing about peyronies.  

ComeBackid

[gibson101]

it is really embaressing to be honest. I experimented with a few penis enlargement exercise that are a complete hoax but at the time seemed real harmless. I only did them on one occasion too. It envoled pulling on the flaccid penis but this is not what injured me. The 2nd exercise i tryed is called jelqing. It is basically milking the semi erect penis. The problem is I did it to hard and I think while pushin the blood towards the tip I damaged the tissue and most probaly all around the penis which is the worrying part. I was seeing improvements until I masterbated the other day which seems to have significantly worsened the situation. So that is my story. Feel like a complete and utter fool. Not sleeping at all and have lost my appitite completly

[Liam]

Peyronies Disease is not an injury to the penis.

It is the underlying condition which causes plaque formation.  This condition may become apparent after trauma to the penis.

You can have scar tissue and not have Peyronies Disease.

An injury to the penis can heal.

You can trust your doctor.  Peyronies Disease is not a hard (no pun intended) diagnosis.

Liam