Open Questions on Peyronies Disease (That won't fit under any of our current topics)

[miller798]

Hello again - I scheduled myself with a urologist, which wasnot easy, since our health plan only has a few.  None of them listed peyronies as a specialty interest, and most of them seem focused on cancer.  When I called to schedule, I told them I had BPH and possible Peyronies Disease.  The receptionist, at least, said that this doctor could see me for those complaints, so we will see.  

Question - ED - I have no ED issues at this time.  Some reading says that rather than losing the whole erection, it just stays soft around or above the area of the scarring.  Is that correct?  

Is this partial ED, or even full ED, something that is likely to happen in the future?  I think that could be the end of my marriage.

[jackp]

miller798
I have had Peronies and ED for almost 15 years. Yes Peonies led to more problems and ED progressively got worse to the point that normal erections are not possible.
Do Not Think Of This and An End. There are ways to help yourself. The most important now starting VED therapy. Go to the VED section and talk to Old Man and follow his advice. I did and it helps LOTS.
Forget the thought of loosing your marriage. This has only made my relationship with my wife of almost 40 years stronger. The one statement she made said it all. "Jack, I did not marry you for your penis." Wives a more supportive than we give the credit for.
Good Luck. You are in the right place for help all you have to do is let us know how.
Jackp

[Hitman]

Miller get rid of that attitude . you're already setting up yourself for failure before even starting.

[miller798]

Hey thanks, men.  But can you tell me what percentage of Peyronies Disease guys get ED?  Does Viagra help?

[jackp]

Hey thanks, men.  But can you tell me what percentage of Peyronies Disease guys get ED?  Does Viagra help?

Miller
In my case Viagra and the other drugs only helped a little while. I also have Venous Leakage and Corporal Fibrosis.
My best advice other than getting VED therapy is STAY AWAY FROM SHOTS FOR ED! They cause Corporal Fibrosis.
Jackp

[George999]

I think it is important to understand that Fibrosis is not a normal response to trauma.  A lot of people suffer trauma (including to their penises) and they DO NOT end up with Fibrosis.  Fibrosis occurs because the person incurring it has an underlying metabolic problem in the first place.  Once the Fibrosis starts, it tends to be progressive.  In other words, even if the underlying metabolic problem is resolved, the Fibrosis has already taken on a life of its own and remains difficult to control.  But to state categorically that trauma causes Fibrosis is not quite the whole picture.  But having said all of this, I would have to agree that ANYONE with Peyronies has already demonstrated a propensity for Fibrosis and SHOULD NOT be subjecting themselves to injections, either for Peyronies itself OR for ED.  I am also convinced that most of us spend far too much time trying to find a way to cure the Peyronies or ED and far to little time trying to understand and correct the underlying metabolic problem.  Just something for you all to chew on.  - George

[jackp]

George
My Corporal Fibrosis was caused mainly by the drugs in Trimix.
Venous Leakage will cause you to loose night time erections and loss of normal erection process will contribute to the Corporal Fibrosis.
This all started from Peronies in 1995.
If I seem to rant against penile injections, so be it. I believe that the drugs in the injection helped speed up the fibrosis and left me 100% impotent. They are also a major contributor to the failed implant surgery last October.
There is not a Urologist in the area I live of over a million people that has the qualifications to do the implant surgery I need. The closest to me is Vanderbilt. I was given the choice of Vanderbilt or Huston TX. Vanderbilt is only 3.5 hours and Huston is 10 hours. I also had a friend that had his penile problem fixed at Vanderbilt by the same Dr. I am going to.
IMHO Metabolic is not the only cause of fibrosis. Drugs and lack of physician knowledge are a major contributor.
Jackp

[George999]

IMHO Metabolic is not the only cause of fibrosis. Drugs and lack of physician knowledge are a major contributor.
Jackp

Drugs -> Metabolic Dysfunction -> Fibrosis = Pretty simple equation  - George

PS - In my case, part of the mix included a beta blocker, Metoprolol.  Beta blockers are known to be associated with Peyronies.  Beta blockers are also known to have a significant effect on the body's metabolic processes.  Connective tissues such as the Tunica are highly dependent on adequate blood supply in order to stay healthy and avoid fibrosis.  This blood supply is tenuous in the first place and these tissues are among the first to suffer when metabolic processes go awry.  And multiple factors can conspire together to produce this affect.  Metabolic syndrome is a prime example.  Once this stage is set, the most minor physical trauma can trigger the Peyronies cascade.  On the other hand, a healthy tunica can be injected over and over without long term injury.  It is not so much as an array of possible causes, but more an array of possible triggers.  The underlying environment from which Peyronies and all other forms of fibrosis spring is metabolic.  (In some cases the metabolic dysfunction is a result of genetic issues).

[LWillisjr]

Many of us with Peyronie's are in violent agreement that there are many urologists who attempt to treat Peyronie's Disease, but they really don't have the background and knowledge that many of us are seeking for treatment. We all have stories to share regarding first visits to uro's who state "nothing can be done", or "you'll learn to live with it", or "want and see", or "maybe it will go away", etc., etc., etc.

I was wondering if it is possible for us as a group to develop of list of FAVORED urologists. I know there are not many in the entire United Stated who truly specialize in Peyronies Disease. But I think one of the areas we as a group can help new members with is helping them locate a reputable urologist. I don't want to get into uro bashing....  but I think it would seem reasonable to compile a list by location of those we as a group would recommend.

Instead of starting a separate thread, is there a way we can make recommendations and have the Dr.s and locations added to single FAQ of some sort.  

[Old Man]

JackP:

Friend, keep on ranting against penile injections! There are a lot of us on this forum that have been there and done that with the pesky shots. I had 12 with new plaque and nodules with each and every one. Finally convinced my uro to give up and we started other therapy. So, don't let anyone deter you from betting against the shots!!!

Old Man

[crank]

Old Man and JackP..

I'm with you on that...I don't intend to let anybody inject anything into my rod...even if it bends over double..

If the VED doesn't help, I will just retire that dude...

crank

[MUSICMAN]

As per the Uro recondition list I would have a blank
sheet of paper. I have seen one of the "best" and wasted
my time and money. (cash, I don't have the $2.00 co-pay )
I called and asked to talk to the doctor and I did. He said
he had options to try so I got a little hope. On my visit his
only option was surgery. I asked for Pentox, VET, or anything
but he said NO. I won't put his name on my post but he is
one of the recommended "BEST" in Los Angeles. They know
they can't help you but don't want to admit to it.   I do use
some oral supplements and VET  ( had to get my own equipment
as the "Best" would not give me a Rx for one. )  I do think the
VET is helping some but in the long run I don't think it can do
a lot with the deg. of bend that I have.  If in a year or two if
I could get the money for the surgery I would go for it with the
best knife doc I could find. As per a medical break-through, for
a pill that will dissolve scar tissue and replace it with normal
tissue I don't think I will live long enough to see the day.
                                     My List        Musicman

[George999]

I really do think that depression and resignation can be the worst enemies.  With perseverance, there is a lot that can be done.  Peyronies is NOT irreversible no matter what the experts imply.  I have experienced ups and downs in my own case.  Right now its a big down.  After many months of complete control with ALC and other supps, I am no longer able to tolerate ALC and my supplement defense has been totally blown away.  I have requested a referral for access to Pentox and after nearly two weeks have heard nothing back from the Urologist.  My penis is on fire.  I should be in complete depression.  But I am too busy exploring new ways to deal with Peyronies to have any time for depression.  Right now I am experimenting with Mangosteen.  Over and over I have seen my Penis curve and then straighten, shorten and then lengthen, etc., so I KNOW that these things are NOT as irreversible as they are portrayed to be.  Additionally, I have seen plaques come and go.  Some respond that my symptoms must not be "real" symptoms, but something else.  Well, thats good news, because perhaps what many of the rest of you are experiencing are not "real" symptoms either and perhaps if you would not "accept" them as "permanent" changes they would go away as well.  In any case, the depression I am seeing on this forum often out paces the reality.  And I remain absolutely convinced that while fibrosis is extremely difficult to reverse, it is definitely NOT impossible to reverse.  But it doesn't happen overnight and it definitely doesn't happen for people who are immobilized by fear and depression.  AND, the reality is that there are plenty of doctors out there who are willing and able to help.  They are not easy to find or gain access to, but they ARE out there.  And the science surrounding Peyronies treatment just keeps getting better and better.  We are not seeing a lot of this yet on the patient level, but it is happening and it is coming soon.  In the mean time there are things like Pentox and the VED.  So don't do anything rash that you will later be sorry for just because you insist on wasting your time and energy on a pity party instead of taking whatever small steps might be available in terms of getting closer to a solution.  - George

[jackisback]

Quick question: sounds basic, but I don't know the answer:

Does massaging the plaque do any good/harm?

[Old Man]

Jackisback:

Mild massaging might not hurt to do, but do not under any circumstances bruise the area in any manner. We have found that mild vacuum pressure does a better job than massaging. Some guys call the hand manipulation exercises jelqing. There are many sites on the web that advocate the use of jelqing. But, folks on this forum have reported very little if any success with its use.

So, if you do hand exercises, be careful and use caution, etc.

Old Man

[Warthog]

I'm 99% sure I have Peyronies.  There is scar tissue and my penis bends to the left at around a 40 degree angle.  I would say it is more banana shaped though.  I'm not all too worried about it, but what I am worried about is if this will make sexual intercourse difficult.  I have no experience with such things and I wont for awhile.  I'm just trying to figure out if I should see a doctor in order to see if there is anything I can do about it if it is going to be problematic.  Can someone please tell me if this will be an issue in my future sex life?

[LWillisjr]

Warthog,  ...... welcome.
Peyronies's isn't that easy to diagnose. There is quite a bit of good information on this site. But don't confuse Peyronie's with a congenital condition. Congenital means you were born with it. And many men have a slight congenital curve. Peyronie's is the result of some trauma to the penis and can be from sex, sports injury, etc. And is usually defined with a sharper bend instead of a gradual curve. And there often can be pain associated with your erections. There are pictures indicating this on the Peyronie's Disease Society website. If you have always had the curve it is likely congenital. The best way is to discuss this with your doctor. If he/she is not sure, they will refer you to a urologist. Many urologists should be able to diagnose or confirm Peyronie's, but many of them don't know how to treat it.

As for whether this will impact your future sex life.....   Only you and your future partner will be able to answer that one. As long as you can achieve an erection and orgasm without pain, then certainly sex is possible. It is more of an issue of whether you yourself have pain associated with sex/orgasm, or if it is uncomfortable for your partner.

Hope this helps.

[Angus]

  Welcome to the forum Warthog. Intercourse with a 40-45 degree curve is usually no problem but some care must be taken in the form of certain positions and precautions, and many of these scenarios are documented on the forum and can be searched for. If you have full function and no other erection problems, you shouldn't have future sex life problems. But, can you please post again with some more information? You sound relatively young... what is your age? Have you had the curve all your life or is this a fairly recent development? You say there is scar tissue... how can you be sure if you've not seen a urologist? Did the curve appear after some kind of sexual activity? Please post with your age and other honest information as this will influence the information in replies you will get. My first thought is that unless you experience pain or other uncomfortable problems with intercourse, you'll probably be just fine, but more information will help others provide advice. Again... welcome!  

[Warthog]

Thanks for the fast response guys...  I will try to answer my best to both of you.

I am 20 years old and this has been the case for as long as I can remember.  I have a feeling though that somewhere in my repressed memory there can be 2 possible reasons for this.  I had a step sister, at right around the start of puberty, thought it was really funny to jab me in that area.  Also, when I was younger, I masturbated with a hand warmer, and fell asleep with it in my pants, I woke up and it was really hot, there may have been some pain the few nights after words but honestly, I think I may have repressed that bit.  

The scar tissue is around the middle and it circles around the left and slowly goes away as it circles to the right.  I dont understand how something as much as a 40-45 degree angle can be considered a congenital curve.  It just seems too much.

I have not masturbated in over 5 years so I cannot tell you if there is any pain.  However, it does not appear as if there is any.  Jesus found me and since then, I have stopped most and if not all of my past sexual practices.  I however do have a girlfriend of 2 years, and we plan on getting married in another 2.  I just want to have enough time for treatment if it is deemed as needed.  I'm trying to avoid going to a urologist.

Not that I dont trust your info Angus but I would like to hear more from people concerning the effects on a sex life that a 45 degree curve will cause.

Thanks a bunches!

[Warthog]

Sorry for the double post but I have a bit more info.

There is also little bumps around my penis which get slightly bigger when I have an erection.  I know its not any form of STD as frankly, I've never done anything to contract one.  That was just a small concern.

But Angus, you mentioned that certain precautions and positions need to be taken.  I've searched the forum for these and I cant find any.  Could you possibly provide a link or maybe some just info yourself?  Thanks bro!

[Angus]

  I dealt with a 45 degree curve for years, and intercourse is possible and acceptable with this. Without becoming very graphic with imagery, I'll start by saying that unusual, gymnastic-like positions should be avoided. "Traditional" positions such as the missionary, rear entry and other less contortioned positions will work. Peni and vaginas can adapt to the situation amazingly well. One of the primary things that must happen is communication between the partners. Talk, discuss and ask questions to always be aware if the other is comfortable, feeling pressure or pain, and generally share how the experience is going. I can't stress enough how important communication is; when the time comes, talk to one another and constantly be aware of how the other is feeling during sex. Determine what feels good, what does not, what is comfortable and what is not, then both of you learn from this and know what things to avoid and what things are ok to do. One thing that you will want to avoid at all costs is long strokes and the penis withdrawing completely; during the heat of the moment this causes the penis to be jammed outside the vagina and believe me you want to not go there and stay focused to keep this from ever happening. It causes pain and bends the penis which may or may not  cause more  damage. Just remember that sex is a gift and that talking about it between partners is NOT a taboo, and you're not breaking any rules. Base your relationship on communication and keep those lines open, and more than likely you two will be fine. Slow and easy is the word.
  I still think that you should at least consider getting an evaluation by a urologist, considering your concern with the issue. Is the curve is congenital or not... a talk with a uro about your condition and past experiences may shed some light on whether there is scar tissue or not. You need this information from a professional (in my opinion) so you can decide what direction, if any, you'd like to go with treatment. Don't let your concern with this turn into panic and obsession; at this point you are young and functional, and when the time comes for sex you two will need to take it slow and easy and communicate.  

[Warthog]

Thanks Angus!  That actually helps a lot.  I'm still interested in more info or confirmation of already said info to anyone else reading this.

Honestly, my family is slightly tight on the money area.  But hey, arent we all?  So I guess my next question is if anyone knows if Blue Cross/Blue Shield cover just a regular visit to a urologist for a small  fee/deductible?  If not, I would feel much better about going to one.

[Tim468]

Warthog (I always wonder about name choices here...)

You are young, so I think I get your questions. A few of them are really about asking others to tell you what to do (i.e. does Highmark cover urology consultations)(answer is almost certainly yes...).

My advice is more generic. We can help you understand this problem, but you are going to have to take ownership of figuring out what to do. If you don't know what your plan covers, then you call the insurance company and ask them what the plan covers - no one here knows the answer, that much is certain.

So, briefly - there is no reason not to ask for help and to go after it aggressively. And you similarly might want to speak to a pastor about masturbation; most modern and enlightened denominations do not condemn it as a sin and view it as normal. Learning about your own body will help you to take care of it, and help you to be as good a lover as possible for your partner when the time comes to consummate the relationship.

Good luck!

Tim

[LWillisjr]

Warthog,
Is your scarring visible? What I mean is can you see it on the surface of your skin? As Peyronies scarring is under the outer layer of skin and is actually on the tunica. So for a Peyronies scar you have to "feel" for it under the outer layer of skin and on the tunica.

I support Angus and Tim's recommendation on checking with your medical coverage and getting to a urologist to make sure you don't have some other condition. Believe me there are other conditions besides Peyronies Disease.

As for my experience, you can read my history in the "Meet the members" posting. I have a 60 degree acute upward bend. I'm fully functional, can achieve erections, and climax. This makes certain positions for my wife a little uncomfortable. Since the vagina tips slightly up when facing your partner, then the missionary position is most accommodating to her for my curvature. We use to enjoy rear entry (not anal entry, just vaginal entry from behind) but this is the most uncomfortable for her now since in this position my curve and hers are basically opposing each other.

BTW....   as a fellow believer, I applaud your abstinence until you are married. If you can wait, it will be special for both of you. I feel blessed as my wife and I have been married for 32 years.

[Warthog]

Tim-  Warthog is my name on all the forums I've been on (mostly not medical)...  Which is around 5 now I think.  I hope I dont come across as rude but I dont need to talk to my pastor to know that masturbation is wrong.  The only thing I need to know for that is the Bible.  Jesus himself said that whoever looks at a woman lustfully has already comitted adultery with her in his heart.  I don't know about you guys, but before I needed to think and look in my mind at a woman lustfully in order to masturbate.  Thank you though for your input, I've been praying for an opportunity to suggest to my dad that I go for a consultation as I already have a referal from my physician.  

Willis- My scarring is visible but I cannot feel anything.  No lumps or anything of the sort.  Just some browned skin.  As I'm not sure what this all is it is starting to seem like a better and better idea to go in for a consultation.  Thank you for the spiritual support!  I really dont think I'll have a problem waiting 2 more years, it is just all the other impure stuff that can come before it.

It seems like the rough consensus on google is that a curved penis is actually better for the ladies during sex.  That true or just a bunch of mumbo jumbo?

[Tim468]

Dear Schwing(!)

Please stop spamming our board.

Tim

[hornman]

I was just wondering if anyone is aware of any other disease or condition that mimics the symptoms of peyronies.  I was diagnosed with this condition after I told my urologist that I suspected I had it.  Prior to that he was treating me for prostatitus which I do not think I ever had.  I was complaining about penile pain.  I've got the hour glass shape along with palpable plaque.  My urologist barely examined me!

[MUSICMAN]

We are fortunate that Uro's went into the med.
profession as I would not want one for repairing
the brakes on my car!
                                       Musicman

[crank]

Musicman..

I agree with you...A URO cost me my left nut..literally, now my Dr. says the "altered blood supply" caused the Peyronies Disease..He may not know what he's talking about either..

crank

[LWillisjr]

Warthog,
IMHO the stuff about "a curved penis is best" is all mumbo jumbo. It's all about being in-tune with each other's needs and understanding what beings pleasure to each other. Before my Peyronie's the sex was great.....   actually, even now the sex is great. As I said before we are just more limited now to more comfortable positions. Before the Peyronies we would have tried any position and been comfortable. So I guess I'm thinking a straighter penis is better from my perspective.

[Waiter]

Hello there, I am new and would like to seek your opinions on my condition (if I have one). I have already booked an appointment with uro but I have to wait for a long time to see him.
In the last 2 months I have noticed a curve on my penis. The curve is to the left and is no more than 20 degrees. I know that all penises are different and that some of them are curvy but I have never noticed it before. The curve does not seem to get worse nor better so far. I do not have any pain or discomfort in my penis. I cannot feel the plaque but I do have that curve. I am also fairly young (22 years of age) and healthy. Furthermore, I still have that curve when my penis is flacid.
Am I being paranoid and should I just forget about it or could I possible have peyrone's? It could have been possible that my penis have been bruised since I regularly play rugby.
The fact that there are not proper information about the illness is also frustrating. Would be very glad to hear from anyone who could give me advice.

Adam

[Warthog]

Adam, you seem to be in a very similar situation that I am in.  I am 20 years old but instead of only a 20 degree bend its much closer to 40-45 degree bend.  The tell tale sign to peyronies is that you have a palpable plaque that you can actually feel on your penis.  If you do not have this, you do not have peyronies.  Considering your bend is only 20 degrees I would consider that relatively normal with no problems.  However, if this did just show up, I still would consider getting to that urologist.  I'm pretty new here, so I hope some of the older guys can give you some more knowledgeable advice.  Welcome!

[Waiter]

Thank you for your reply Warthog.
I have tried looking at my curve again and noticed that my penis (actually the head of the penis) bends towards the left at around 10-15 degrees, not 20 as I have stated so I am starting to think that I am just being paranoid and that I have always had this slight bend but just haven't noticed it. I cannot feel any plaques or any pain at all. Do you think that it is something that I should just forget about since the curve has not been getting any worse? Does the curve only exist in this condition when the penis is erect?

[crank]

Waiter...

After 30 years in the gym and the men's locker room, I would offer the following:

Many, many men do not have a perfectly straight penis..they hang right and left, they curve, and the glans (head) can be twisty to the right or left..they can be both curvy and twisty...

If I saw you in the shower with the condition you describe, I would not notice anything unusual, nor would anyone else that happened to be there..

Until something more dramatic develops, I think you should forget about it..

crank  

[zone611]

I have Peyronies and I am able to still have sex with my Girlfriend, what I was wondering since my penis is bent (down) would that prevent her from getting pregnant?

We have talked about this and I am in the process of getting a fertility test which I suspect will be normal.  She thinks that because it is bent (down) and is not totally erect that the possibility of getting pregnant is reduced.

I did talk to my doctor about this and he explained that as long as there is penetration she can still get pregnant. basically having Peyronies does not change the outcome or reduce the changes of getting her pregnant. I am able to archive a full erection (bent) and Penetrate her with no problem. Some positions are more problems then others. (can anyone offer any suggestions)?

I hope someone can help me here because I very much want to have kids and I have heard conflicting ideas on the subject. I have had Peyronies for about 10 years and only recently have decided to investigate it further.

Please Help

Zone611

[FreshKid]

Hello guys

Newbie here, with a question.
I'm 21 years old and i just recently started having problems down there.
I feel a slight numbing pain when erect and there is a slight curve to the left and upward. Actually, there is a curvature in a flaccid state also (to the left side only), which i didnt have previously. In addition, it takes me more time than before to achieve strong erection.

The thing is, i'm 90% sure that my case is strictly a result of past injuries (i can remember quite a few cases of unfortunate moments), with no specific genetic factors involved whatsoever.

With that in mind (something is telling me that this is very important), can somebody please advise me what kind of approach should i take at this early stage. I'd definately need some advice as i'm still pretty much freaked out by the whole thing.

Thanks!

[Tim468]

Dear FreshKid,

Read the "Child Boards" here for general advice about what to do.

Go to a good urologist and get a diagnosis to rule out anything else.

Read up on the VED, on medications including Pentox, vitamin E, supplements and other therapies.

I would start with a VED and work on maintaining your length and girth right now.

Tim

[I_H8_PD]

Hi,

I am 21 years of age and i feel that i definately have the disease (for about 3-4 years kept getting progressively worse- although i always have had a slight curve downwards). From some online research i have the rare case where the penis is curved downwards (and severly) and i havent the slightest clue how i contracted it at this age!!!

Is the curved down case generally easier to treat?

What options do i look at now? What is happening with that Xiaflex (from auxillium)?

Is their a cure overlooking the short term? What would you recommend i do now?

My penis is as mentioned before bent, downwards and looks like this except it is curved down, not up:

http://www.andrologyaustralia.org/docs/PeyroniesDisease.jpg

i hate talking to girls now just incase they ask the question, any advice, i currently live in sydney.


Cheers
John
Sydney, Australia

[Tim468]

Dear I hate Peyronies Disease,

See a pediatric urologist and explain that you have a congenital curvature that is getting worse as you mature. It sounds like you have uneven growth and need to get that looked at.

Tim

[jsotheby]

I just wondered if stretched length necessarily equals erect length?  I believe due to a cavernography (like 6 needles inserted) I have lost an additional 2 cm of length.  All together I believe I have lost 3 cm since I was stricken with some mysterious penis-shortening, ED-causing ailment that I have been told several times is not Peyronies Disease or even fibrosis.

Anyhow, I have read I can't expect erect length to be longer than stretched length.  i have noticed a correlation b/w the two, but was hoping that with proper blood flow, my erection might actually be a little longer than what I get stretched.  Is that possible?

[jakesnake]

I have had Peyronies Disease for about 18 months now. I have a question that may sound strange and if it is then please disregard what I'm about to ask, thanks. I have no problems getting an early morning erection,I curve upward and to the right at about 30 degrees. When I have this erection it feels as if it was the way I felt before the onset of Peyronies Disease.  I want to know if any of you men here have the same sensation that I'm feeling or am I wanting my penis to feel this way(imagination)?

I am 57 years old and I use to have a nice sized penis about 7 inches erect. Now it's 4 inches erect. Call me dejected and I live in a small town where my urologist tells me to take Vitamin E. Thanks for any help.

[jackp]

After about 18 months after my Peronies started (1995) when the curve started to straighten I lost 1.25 inches in length and some girth.
The way a urologist explained it to me is when the curve straightens your length is that of the side of the curve (short side.)
Go to the VED section and talk to Old Man. He has a 26 week protocol that will help. I started it last October and gained back almost 1/2 inch.
The daily VED exercise will help the blood flow to the penis. My Peronies lead to Venous Leakage and then Corporal Fibrosis.
I don't know what part of the country you live in but good doctors for Peronies and its side effects are hard to find. I live in an area of over a million with a Medical School and will have to travel 3.5 hours to Vanderbilt to get a doctor that can help.
Good Luck, Welcome to this board it will help. A lot of guys here in the same boat.
Jackp

[jackp]

I started using Old Man's VED routine after failed implant surgery last October. Since that time I have gained back almost 1/2 inch of length lost to Peronies.
The gain was slow and over a period of about 9 months.
Like you I lost about 3 cm (1.25 inches). The VED is the only thing that helped. Now my stretched length and erect length are almost the same.
Jackp

[Tim468]

I posted on this before - here is the link:

https://www.peyroniesforum.net/index.php/topic,25.msg12561.html#msg12561

It is important to note that the figures show a correlation between stretched and erect length, but it is not uniform for everyone. BUT, if you are stretched to say 5 inches and erect to 5 1/2 inches (or vice versa), then presumably if you increased one half inch with traction, it would be seen by either method of montoring.

I think it is important to note what length and degree of curvature that you are to document improvement. I just read an abstract of men who have had injections for premature ejaculation into the head of their penis, and who have a loss of circumference. What was very interesting is that the men underestimated the degree of loss of size consistently. So what we think we are seeing is demonstrably not always correct.

Tim

[LWillisjr]

jakesnake,
Interesting observation, hadn't thought about it. I have no pain with my Peyronies Disease (fortunately). So when I have an erection, yes it "feels" hard just like always. Is that what you are referring too? Of course when I look or touch it, I am reminded of it's current shape.

You seem to have lost considerable length. Assuming that when you were 7" flacid you were at least 7" when erect. And now you are 4" erect? Have you experienced any hourglass or other deformity with your Peyronies Disease?

[jakesnake]

Yes, I'm talking about the "feeling" I have when erect. I do have an hourglass shape near the base.

[gwar]

I must admit that finding out by hitting the internet today why my penis is going L and getting an hour glass is a bit of a bummer
I had no idea???
Im taking Propecia
Any comments
I guess a VED is next?
GWjavascript:void(0);

[isitgone]

I am 61 years old and had a radical prostatectomy in December of 07. It was supposed to be nerve sparing but I failed in getting a stuffable erection using Viagara, Levitra, Cialis, several forms of injection, finally ending with Trimix. By then I had Peronies suddenly show up. Went from 6" erect to 4" with an upward curve.

I discovered this forum and have just received my three tube VED from Augusta Medical. I plan on using the 26 week protocol starting Independence Day! I saw a note that said not to use the VED for sex right off. Why is that?  I would love to have a non-drug induced erection for a change. Help me with this.

[Old Man]

isitgone:

From my experience in working with quite a number of guys using the VED, I have found that using the VED for an erection so soon after starting to use it can and will cause some further damage. To explain: since your penis has not been fully engorged with blood for maybe a very long time, the added pressure from the VED can "overwork" the erectile tissue.

My recommendation based on my long experience with VED usage is to start off very slowly with only a mild amount of pressure. DO NOT USE THE RETENTION RINGS WHILE DOING Peyronies Disease EXERCISES. Use the retention rings only to hold up your erection when going for a sexual encounter. Practice with the VED under very mild pumping for several days to "acclimate" your penis to the added pressure. When you can pump to a fairly good erection without feeling any pain or discomfort, you can start off with a low tension ring and work up to higher tension, if needed, to maintain an erection long enough for sex.

Use only the medium or large cylinder with the three cylinder model VED since the small cylinder will confine the penis too much. Use the best cylinder that will let your penis expand to its fullest when going for an erection for sex. You may need to practice with the two larger cylinders to determine which one works best for erections.

Again, practice with the VED, try different tension rings to determine which one is the best without causing any pain or discomfort when having sex. Use good judgement and you should have no problem.

Above all, use extreme caution to never overpump the vacuum pressure and use plenty lubricant on your shaft as well as up into the cylinder(s). Let me know if you have further questions.

Old Man

[isitgone]

I also had a very light stroke about 10 weeks ago and have since been on Plavix 10 mg per day. I read a caution for those on blood thinners and want to know the caution needed for use of the VED.

I really appreciate all the knowledge I have gained from here in such a short time. My Uro seemed to be clueless and mentioned surgery in his first breath after I told him I had developed Peyronies Disease.