No visible damage on ultrasound

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popopo

Hello,

I already made a thread like this but got no responses and was posting in a topic that maybe didn't quite fit my question.

Last week I finally had a doppler ultrasound of my FLACCID penis. The doctor said that from a urologists standpoint there is nothing wrong with my penis because bloodflow wasn't impaired.

I've damaged my penis by jelqing and pumping back when I was 17 (22 now) and I've been having a lot of pain, lack of sensitivity, a bend that eventually corrected itself, I lost half an inch in lenght and my penis is now irregular and at times it still hurts after masturbation or when tired etc.

When I wad about 19 the doctor could even feel some scar tissue inside my penis (I know I do since I remember what .y penis used to feel and look like). Now there is nothing to see, but I still have a lot of difficulties gettig erect, dents andwent from 6,75 to 6 inch in lenght..

How is it possible that my doc doesn't see anything wrong on the doppler? It would reassure me if I hadn't lost a lot of lenght and I wasn't so sure something is damaged. I had much pain too in the last couple years so there must be something going on.

Would another doppler ultrasound while erect be worth it? It's not that I think they could help me anyway, but I just can't accept that my complains are brushed off like it's no biggie.. anyone?
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

NeoV

A urologist has to be trained in identifying Peyronie's, it's something Dr. Lue pioneered with his research if I'm not mistaken. Even so, even Lue had made mistakes in diagnosing the disease. If your urologist says that ample blood flow signifies "nothing wrong," then he is an idiot. If the penis bends or has indentations, something is wrong.

Now with all that said, what would a diagnosis really do for you anyway? Can you see someone else?

popopo

Hey, thanks for replying. The thing is.. because I did those exercises when I was younger and I've had very low self esteem before and lot's of insecurities about my body I've been diagnosed with body dysmorphia at age 18.
I also smoked pot and was depressed. My physical and mental problems kinda overlap, but I'm not crazy. I actually wanted to do the scan just to make sure they knew I wasn't just bullshitting them or "imagining" things to clear things up a bit.
This BDD diagnosis made it harder for me to get proper treatment for the physical problems I actually have. I'm open for theraphy, stopped smoking pot, I'm trying to keep my chin up, but it annoys me that docs like this think it's "all in my head" because of my diagnosis.
I wish I still had a picture of my penis when 17 years old, but no..
At this point I'm not really sure if I should just wait for treatment to be available and get properly diagnosed then, or look for another doctor and plan ahead of time so to speak.
Trust me, I've tried theraphy, I tried to believe that it was all in my head, but it made things worse because it really isn't.
It's not just my penis too, I also have pretty severe eye floaters that bug the hell out of me, but that's supposed to be "normal" even though I got them from using a drug that is KNOWN for causing this side effect and I never ever had any vision problems before using that stuff.
I'm actually a bit traumatized by these experiences. Maybe I'm overreacting, but it's scary how easily doctors blame physical problems on "stress" or "mental problems" just because they don't know what the hell they're talking about. And getting mad at them, just makes them more inclined to think you're just mentally unstable.. I calmed down a bit now, but at 18 I would just say they're wrong and I now know that saying something like that will be used against you because THEY are a doctor and you aren't.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

NeoV

I've made the mistake of telling doctors about my anxiety too many times, I know how it goes.

When I was 18 or 19, I went through several years of extreme OCD and BDD. I would check my hands for one hour before leaving the house, wash them over and over and check my entire body for possible scratches or cuts that might have somehow given me HIV (I've always been afraid of HIV and other viruses.) It was very bad, I just remember how it hurt me so terribly. My penis was also on my mind 24/7, and it was right when I figured out how to get rid of my OCD that Peyronie's hit. I was 24 when the active phase started and it just made me go berserk. I've now had to beat OCD and BDD, and social anxiety, just everything because of this. The good thing about having Peyronie's and other issues is that it just pushes you so far into anxiety that your brain just stops caring eventually, and nothing bothers you anymore. Most anxieties do eventually burn out in time, since your brain gets used to them over the years.

I have some veins in my eyes, I hate it. I wonder what caused it, how to fix it, what people think etc. Peyronie's forced me to say "F^@% it" to all of those stupid insecurities. A real warrior is full of battle scars, there is no white knight in shining armor, it's a myth. Life is dirty, your dick is like your sword, full of gashes, chipped, even broken, but with all things in life, you have to get your elbows in the mud. The moment you can look yourself in the mirror, or at a women, or just go at life with a smile on your face despite all this crap is the moment you'll begin to be happy. I have a receding hairline. When I first met my wife she would always give me crap about it, but I knew this was simply a test, and I would laugh with her, or pull her in and tell her about all the benefits of being bald, how I preferred it and how it made me sexy. Everything is just a test to plow through, but I know how hard it can be. Just remember, life gets dirtier as you get older, not cleaner. Remember too, that this is actually a good thing. When things get messy, you know you're on the right track because it means you're actually living.

Now, do see a urologist or doctor who does not know about your anxiety issues, and tell them about only ONE issues at a time. Don't try to connect the dots with two many of your issues. Just tell them you think you have Peyronie's. Even lie and say your dad has it if you have to. Say your dad has the disease and Dupuytren's contraction. Try to see a true specialist.

If that fails, as I said, what does it change? Treating Peyronie's is funny because with or without a diagnosis, you're left with very few options. I do believe in the physical therapies, supplements, and drugs however, and I do think lifestyle changes help as well, as well as diet and exercise.

popopo

Hey, thanks for reacting, I was afraid people wouldn't understand, but you clearly do.

I know there is not much to do about peyronies anyway, so I accepted it for now and will get a diagnosis when something could be done. My GP takes me seriously and so does my addiction therapist.

these are the ones that have seen me at my worst so they know how much progress I made and they seem to believe what I tell them. Right now I just try to focus on things like work, sports and moving out of the house. If I stay busy doing things I like I'm able to kick some habits.

I also try to avoid porn as much as possible since right now it only depresses me.
Age: 25
Date of onset: 17
Symptoms: sharp pains, numbness, change in shape/size, hourglassing and discolaration from jelqing/VED usage as a teen. Diagnosed with a venous leak and possible scarring.
Treatments tried: cialis, pentox and VED didnt help

peyronny

My doc told me nothing was wrong either, but I have a clear bend that was not there previously. Even good doctors make mistakes so trust your own instincts and the way your body feels.