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Author Topic: New introduction, advice would be greatly appreciated  (Read 1605 times)

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lmlalo

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New introduction, advice would be greatly appreciated
« on: September 29, 2016, 09:05:33 AM »

Hi guys,

I'm 35 years old and was diagnosed with Peyronie's a couple of months back.

My story began with some pain during erections around April/May of this year—a mild but persistent ache that I ignored, thinking it was due to too much masturbation coupled with sex. The pain got slowly worse and it was in early June, during masturbation, that I felt a slight lump in the middle of the shaft on the top side. It was then that I decided to see a urologist.

The first one did an ultrasound and noticed some plaque and suggested I wait and see what happened. I wasn't happy with this and saw a second urologist who suggested I also wait and see (I had no immediately noticeable curvature from the Peyronie's but I have some pretty decent congenital curve and thought I started to notice some indentation on the right side of the shaft). I pushed this second urologist and he told me to take Aleve for two weeks. After digging around online and realizing that Peyronie's was a form of inflammation I put myself on an anti-inflammation diet.

Unhappy with the wait-and-see approach I made an appointment with Dr. Stahl in New York, who specializes in Peyronie's, and he confirmed I had it and said I could wait and see or treat it aggressively. I chose the latter and have since started on verapamil injections, traction therapy and Pentox three times a day. I had to push him on the Pentox (after reading about it on this forum, thanks!), as he said he's not convinced of its efficacy, but that I could take it if I wanted.

My treatment so far consists of (I've been doing all of this for about a month, though the anti-inflammation diet for about two):

Verapamil injections every two weeks (I had my second round yesterday).
Traction, minimum two hours a day and four-to-six hours several times a week.
Pentox, 400mg three times a day.
Ubiquinol, 100mg three times a day.
L-Arginine, 1000mg twice a day.
Acetyl-L-Carnitine, 1000mg twice a day.

I haven't gone down the path of Cialis or Viagra as my erections are normal, and have maybe gotten firmer since starting traction/Pentox.

I'm lucky in that I have no noticeable curvature at the moment, just residual pain with erections. But my plaque seems to be getting bigger and has now formed on the other side of the shaft where the lump first formed. I read in Dr. Levine's 'Understanding Peyronie's' book that plaque which forms through the shaft ("I-beam") causes narrowing and shortening but no curvature, and my biggest fear is shortening of the penis. I have a good six or so inches (erect) that I'm more than happy with, but it's not like I have a surplus of length play with here.

I realize I am lucky not to have noticeable curvature at this stage, but I have still been dealing with a bit of depression since this really got going. I used to exercise a few times a week but I'm struggling to find the time around long work days and all the hours I'm supposed to be strapped into this traction device. I have an understanding husband, but with all this medical focus on my dick all the time my interest in sex has waned a bit.

My urologist mentioned yesterday that there is a new vacuum device that his patients have been having some success with (apparently it comes with a belt and you can wear it during the day), but said since I was adhering to the regular traction I should proceed as normal. I said okay, but now I'm having second thoughts as a lot of my depression, I think, stems from being strapped in and sitting around the apartment most of the time I'm not at work.

I'd love some advice on my treatment regiment. And would greatly appreciate if anyone has similar plaque on both sides of the shaft and if they can recommend anything else I could be doing to prevent shortening.

Thanks, chaps. This is a great resource, and I'm lucky to have found it.

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Gutted

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Re: New introduction, advice would be greatly appreciated
« Reply #1 on: September 29, 2016, 09:15:36 AM »

Interesting VED therapy hasn't come up ?

If you have no curvature but think you may be developing "dents" or an I-beam plaque, then one would have thought the 3-D stretch that vacuum therapy provides would be more beneficial than the 'straight' pull of a traction device / extender..... ?

Your supplement schedule looks good. If anything, you could add Magnesium Chloride tablets (approx 500mg / 2x / day)
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lmlalo

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Re: New introduction, advice would be greatly appreciated
« Reply #2 on: September 29, 2016, 09:24:09 AM »

Thanks, Gutted. Yeah, I will chase up the VED option with Dr. Stahl. Are there any devices you can recommend? And what are the benefits of Magnesium Chloride tablets? Again, thanks.
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Gutted

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Re: New introduction, advice would be greatly appreciated
« Reply #3 on: September 29, 2016, 10:39:38 AM »

VED is a very established and widely accepted approach to Peyronies Disease treatment, particularly in cases of 'hourglassing'  / 'dents'.

Obviously, feel free to talk to your Uro about it but there is a wealth of knowledge and experience on the Forum here :

Vacuum Erection Devices (VEDs) for Peyronie's Disease - PDS - Peyronies Society Forums

The Forum has also negotiated a preferential rate on what is probably the most widely used and recommended quality VED unit on the market. See here :

Forum member discount from Augusta Medical - Peyronies Society Forums

Magnesium is involved in many of the body's biochemical processes and is very commonly in very short supply in the modern diet. The Chloride salt is the form that is most bioavailable when taken orally. One of the functions of Magnesium is to modulate Calcium chains in the body and many Peyronies Disease sufferers take the supplement in the hope it will slow / prevent calcification of their plaque(s)

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lmlalo

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Re: New introduction, advice would be greatly appreciated
« Reply #4 on: September 29, 2016, 11:05:47 AM »

Really useful advice. Thanks very much.
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