Peyronies driving me insane

[idunno]

wow so this sucks I wrote a good 900 or more words story about my peyronies and i got logged out and my message disappeared....  I'm going to write it again but a short version I guess.  Sucks, i really pour my soul into that message.

 So first off, I am a 30 year old male living in Japan and work out 3 days a week, great shape and mental health.  That was until I got peyronies.

 It all happened sometime last year.  I was with a girl who we had an intense amount of passion.  We were having sex about three times a day and one day she was on top and grinded me the wrong way and i head a pop in my dick.  It started to hurt the next day so I went to my Urologist who said nothing was wrong.  I started to feel a capsule size bump on the left part of my dick and a hard vein on the top of my shaft so i ended up going again.  He perscribed some anti inflammatory which helped the pain but after a couple days the bumps were still there.  I then went again and suggested maybe that i had peyronies disease, but yet again  he again said he didn't see anything wrong... It still continued so i ended up going maybe two more times before asking to see a specialist.  

 When i went to the specialist he told me I had peyronies disease and that if i take the medicine he gives me that I would eventually get better and the pain would reduce.  It did at first, but after i started having sex regularly again with my current gf the pain came back.

 I am so ashamed of this that i haven't told my gf about it yet, and when it hurts during sex i just ignored the pain.  Now it seems that i have a twisting in the shaft, the bump is a bit bigger and the vein on top disappeared but it feels....different then before.
I eventually told my gf that i "have an injury" and she just looked disappointed... and now during sex she will stop every once in a while and as k"does it hurt?".....  huge mood killer... although I know she's just being kind, man does it suck.

 I am messaging my penis a big, but am going to start more now, I am taking ibuprofen on top of the prescribed drugs, and taking hot cold showers as well.  I dunno what else to do.

 My penis is definitely a lot worse lately due to sex i would guess... The twisting to the left is now annoying me mentally, and the capsule like bump which is just below my penises head is also giving my penis head a slight curvature.  The pain in the base of my penis doesn't seem to go away.  But all in all i don't think i can tell my gf "no" when she asks for sex this weekend....

I also seem to be having some weird half erection problem where the base of my penis is erect but the top is not getting enough blood or something.  I get this in the mornings or for prolonged periods after sex.

Anyone with a similar story, solution, advice?  Anything could help, i seriously cannot stop thinking about it every day.  I still do not have a large curvature but just feeling my penis being so....different.. than it was before is freaking me out.  Should I message, take loads of vitamin E pills, stop sex and risk losing my partner........I am helpless and confused

 

[NotWorking]

This may not be a popular opinion, but have you thought about taking some medication to calm yourself down? I was really anxious at periods of my life and once it got so bad I started getting depressed, unmotivated and even suicidal. Prescribed medication helped me greatly, it normalizes chemicals in your brain. I am now more calm and more accepting of life in general. Best of luck, brother!

[nemo]

idunno, very sorry to learn you're dealing with Peyronies Disease, but "welcome to the club."  Yours sounds like a fairly typical case, I'm afraid.

There is much to read on these forums, and I would suggest you familiarize yourself with the current "best practices" - the treatments that seem to have the most support (either anecdotal or research), those being: Pentox; VED; Traction; CoQ10; Acetyl L-Carnitine; the recently FDA approved injection Xiaflex; and numerous other supplements that some feel have helped them.  

Unfortunately, there is no "answer" - no cure, no magic pill or solution. Sometimes Peyronie's gets better on its own, something it gets worse, sometimes it stays the same. I'm afraid no one, not even a doctor can predict what yours will do. Each of our journeys involves trying to find a strategy that offers some improvement. Feel free to ask any specific questions about these strategies, and guys will be glad to offer their advice.

Best,
Nemo

[idunno]

Thanks for your advice notwork...  I am trying meditation and to calm myself down with the stress of this, but I'm already taking so many pills (mostly supplements) I don't want to pile more on.

Thank you Nemo for the kind welcome and advice.  I am currently living in Japan and my medicine is all in a different language.  MY doctor has me on two pills, I will have to research what the English name is but i don't believe it is Pentox.  I also ordered CoQ10 and  Acetyl L-Carnitine online from amazon yesterday.  Also unfortunately for me, the Xiaflex and any form of injection for peyronies is not available in Japan so I have to rule that out.  However,  I do not have a huge bend yet, the most difficult point right now for me is the twisting and pain.

As for VED and Traction, I have been reading the forums and feel that maybe it would not be as applicable to me at this stage?  I think my main problem is the plaque, twisting, and the small bend near the head.  Would VED or Traction be able to help this or am i better off to rely on the medicines and slight message?

Thanks everyone for your help

[james1947]

Would VED or Traction be able to help this

In my opinion would help.

James