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[edzo67]

]I would like to start this by inviting members who "are currently" or are considering getting a priapus shot in hopes of getting "some" relief temporary or otherwise, of their peyronies symptoms. Please lets have all photos of size change be backed by clear "bone pressed" measurements with a ruler(for length) and a fabric(sewing kit) type tape measure for girth measurements. I have my uro appointment this Monday, where I will receive an ultrasound of my plaques for a start. then I will find a credible dr. to administer a priapus injection. I will provide before,during and updated photos as needed. Anyone else that wants to participate in a fact based self study? is welcome to post on this thread, following the guidelines for measurement technique.

[UrsusMinor]

If I decide to try that at some point, I'll try to comply. But I have to say that documentation--especially before-and-after ultrasound images--wouldn't be my number-one priority.

And I might add that a lot of people here seem to microanalyze pictures of people's erections and have a thousand opinions about how the picture should have been shot. Now, for me, snapping shots of my erections is not a big turn-on (it may be very different for some of you, I suppose), so doing it to science-journal standards probably isn't going to happen. I don't even take selfies, much less selfies of my dick.

Truth is, if a fairy godmother suddenly appeared and told me, "I can wave this wand and fix your Peyronie's...but no one will ever believe you," I'd have her wave that wand without a second's hesitation. Guess I'm just selfish. 

[NeoV]

Thanks a lot for volunteering Edzo.
As Ursus says, I can't promise anything either but will definitely be getting the shot eventually.

I may take some pictures now since I do expect more improvement.

[edzo67]

ursus, that is the reason I started this thread. I questioned those photos. I for one, don't want there to be any question in anybodys mind about my results, or lack thereof. Nobody here knows me in my "real" life. So im not too embarrassed to post pics. nobody in this forum has anything to be ashamed of. We are all in the same boat here. Nobody is going to recognize me walking down the street by a photo of my junk posted on this forum. :)This forum is about sharing information and supporting one another through this awful time in our lives. We should want to share and help our fellow peyronies sufferers. I am skeptical about this treatment and don't have high expectations, but if it even helps me have a better erection? it was some kind a positive success. I will not BS anyone in this forum! there is no room for it here...Im not here to say "hey!, look at my junk" "what do u think of It?" lol
Its not that impressive I plain and simply want to get better...I want all of us to get better.. I want us to help each other as best we can. What I have been seeing going on? I haven't agreed with on a few different levels. Please take this seriously and lets conduct this as professional as possible. That's why I will be posting photos..I wont just tell u there has been a change. I will show u proof with accurate and clear forms of measurement, so there is no doubt. And pray that there are some kind of positive results from this new potential treatment. I don't feel I have much to lose by giving it a shot. My Uro appointment is 7 hours away. guess I should try to get a bit of sleep first.

[UrsusMinor]

Dude, I'm totally in favor of whatever documentation can be provided, and bless you if you add detailed documentation to the procees. I wish you the best of luck, as it would promise more luck for the rest of us, too!

What I'm saying is that I'm really not concentrating on documentatation, at least not until they make my dick a reality show with high ratings. At the moment, I don't have a single picture of my present condition, and I really can't imagine the mood I'd be in to get one.

That said, if you are willing to go through the start-to-finish documentation of this process, then you are in a class with the great self-experimentationalist of medicine, and my hat is off to you--and my hopes are with you!

[Nemo]

You want to talk about self-documentation?  About five years ago, I bought one of those "make your own dildo" kits and made a rubber mold of my erection, expressly so I could have a standard against which to judge any potential later changes because of Peyronies Disease that, sadly, over the last six months have taken place after a nearly 13 year "dormant" state. 

That rubber mold is actually extremely helpful in judging whether stuff that's going on is in my mind or in reality - often changes happen so slowly we just don't notice them.  Accurate pictures are just as helpful.

But when I die, someone's gonna have to come get that "dildo" out of my house lest my family find it and think I'm just flat-out weird! 

Best,
Nemo

[UrsusMinor]

Wow! I'm seriously impressed!

[edzo67]

LOL Nemo, I had actually considered doing that myself a couple years ago. Not so much for marking change, but more for my wife to have something that was "kind-of" me to use if I couldn't perform again. This disease makes you think outside of the normal thinking of most! Btw? My uro appointment got changed to 2 weeks from now, due to a scheduling conflict

Better than PRP/Priapus shot!

Started by MIKEHAWK Alternative Treatments of Peyronie's Disease