Re-introducing myself... hope that's okay (new questions/concerns)

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mjoas

It's been two months since my original injury and I've had what appear to be multiple symptoms of Peyronies Disease: indentation, constriction, hard flaccid, pain (and tingling), cold flaccid penis, significant ED, apparent shortening, increased curvature to the left (from my congenital curve of 10 degrees to probably around 40 degrees).

I've seen six urologists in the last couple months and still don't have a Peyronie's diagnosis. Quite a few of those uros were useless, and many admitted as much ("I'm a bladder guy"). I've had two ultrasounds, one with induced erection, one not, and neither showed scar tissue. Of the six uros, three were sex medicine specialists. One of those specialists said even if it is "an early stage" of Peyronie's there's nothing that can be done until it's run its course; another recommended vitamin E; and yet another never even looked at the induced erection (which looked very curved to me!) and instead just said the ultrasound was normal and "put Peyronie's out of your mind."

In the meantime I have started taking 2.5mg of Cialis daily, as well as recommended doses of ubiquinol, L-arginine, and acetyl L-carnitine. I also take high doses of vitamin D (which I'm deficient in) and fish oil. Oh, and I have serrapeptase which I'm considering adding as well, although I'm starting to worry all these supps are going to take their toll on my liver.

I have an appointment with a seventh urologist next week. This guy is currently heading a study on Peyronie's so I'm hopeful he'll be more help. (I got his name through this site.)

In the meantime, one of the other six uros I've seen ordered a nocturnal erection test. I have all the equipment for that with me now but it seems completely pointless to me. It requires that I stop the Cialis for at least three days, but I'm wary of doing that since that's pretty much the only thing that's lessened my cold flaccid symptoms.

I'd like to get on Pentox and start a VED regimen but it seems a doctor is either necessary or very helpful for both. (The VED I'd like to get [SomaTherapy?] requires a script for ED.)

It's kinda crazy to me that I don't yet have a diagnosis. It's this insane thing where I know my penis, erect or flaccid, looks and feels totally different, but no doctors seem able to give me any help or useful feedback.

Thanks for listening!

emasculated

The urologists I went to with my unexplained pain for 6 months figure in the hundreds.. reputable clinics among them. It's a common experience. The seventh guy sounds more promising but if he doesn't actually see new Peyronies Disease patients weekly (like my specialist here in germany) forget him too. Got to a Peyronies Disease _specialist_.. Everything else is useless...

Oh and btw: How old are you?
"Without health life is not life; it is only a state of languor and suffering - an image of death."

Knight

It sounds like you have a very good understanding of what you're dealing with so you'll know when you've found a reputable uro! Don't give up until you find the right doctor!

Best of luck!

Knight

mjoas

Thanks for support, Knight. emasculated, I'm 37.

Also, I forgot to ask questions...

Is there any way to get Pentox (U.S. American here) without a doctor?

Is VED during the active phase safe? I assume so but just want to make sure.

Thanks for the forum and advice.
-m

james1947

Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

mjoas

Thanks, James. Have you used River Pharmacy? I've read about online pharmacies sending counterfeit meds or the wrong ones. I assume you wouldn't recommend them if you didn't think they were okay but just wanted to check. Thanks.
-m

james1947

I used and using riverfarmacy for a few years by now and also other forum members are using them.
They are prompt, reliable and excellent.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum