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Author Topic: 6 to 8 months with Peyronies  (Read 1819 times)

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Zackius

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6 to 8 months with Peyronies
« on: June 29, 2013, 12:30:29 PM »

I am 59 years old and noticed about 6 months ago what appeared to be a slight dent on the left side of my penis when erect. I didn't think much about it at the time, however a couple of month's later I notice some discomfort when I ejaculated. A few weeks later I did notice a bend to my penis, but my penis always seemed to "hang to the left when erect, but not bend. I googled "dent in penis" and learned there was such a thing as Peyronies.
I read every article I could get my hands on. I felt for a "nodule" on my penis and found a short hard nodule on the left side toward the head of my penis. Due to researching on the internet, I began taking 400iu of vitamin E and 2000mg of Arginine on May 15th, 2013. I have a urologist but wanted to go to a"specialist" so one forum I found stated Dr. Baum was a specialist, I live in New Orleans. I made a visit, brought a picture of my erect penis, he examined me and said yes I have Peyronies.He gave me a sheet of paper explaining the disease, said it looked like a 30 to 35 degree bend and said continue to take the vitamins and come see him in 6 to 8 months unless it gets worse. He never mentioned Pentox , but said sometimes the disease corrects itself after a year.
Well, I believe it is getting worse, because I still have pain when I get erections and if I squeeze the area with the nodule it hurts. I am assuming it is still in the "acute" stage as I have read here. I also believe the bend has increased a little. I decided to go to my Urologist, I brought him a picture, he examined me, said I have Peyronies. In my discusion with him, he told me he has Peyronies as well. I found comfort in the thought that at least he understood because he has it as well. I asked about treatment and he stated if it doesn't get worse and if I can have intercourse then I should " wait and see". I asked about Verapamil injections and he said he has seen some improve and some not. I asked if there was any "down side" to the injections and he stated none.
He informed me that he didn't have any Verapamil in stock but to call in a week and he would set me up for 6 treatments.
Well...I am frustrated about what to do. He didn't mention Pentox, as I have found on this forum. I am on the fence about having the 6 injections. Also, in the last 60 days since I believe the curvature has gotten worse  , I have not attempted intercourse with my wife because I fear I won't be able to perform( my urologist has given me Cialis 20mg).
I am getting depressed, I don't know if I should  get the injections.....I would like to get another opinion from a specialists but do not know of any in New Orleans. If someone does, I would appreciate a referral.
Thanks for listening and I am so glad I found this forum.........
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bigfish

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Re: 6 to 8 months with Peyronies
« Reply #1 on: June 29, 2013, 08:28:12 PM »

Hello Zackius:
I also was recently diagnosed with Peyronies Disease with symptoms very similar to yours, there are may folks here that know much more than I and am certain they will answer some of your questions. Most Peyronies Disease experts recommend a three drug regimen at first with Pentox being the main drug. I did find the doc listed below on another site, he may be of more help to you.
Regards
BigFish

Dr. Wayne Hellstrom
 Tulane University School of Medicine
 Dept of Urology Box SL 42
 1430 Tulane Ave.
 New Orleans, LA 70112-2699
 Tel: (504) 587-7308
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LWillisjr

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Re: 6 to 8 months with Peyronies
« Reply #2 on: June 30, 2013, 09:16:03 PM »

I assume you will quickly learn from all the information here that there is a very wide degree of knowledge among doctors who claim to treat Peyronies. And in your case even a doctor who claims to have it. On this forum we say the "wait and see" approach is the last thing you should do. You need to become very proactive in treating this. You will find a "Read this first" on the main forum page.

There is no sure fired cure, and even some of the suggestions here have mixed support. VI's fall into this category. Some feel there is more risk than reward. There are reports of those who had some success, and some reports from those who claim the injections made their situation worse.

I was willing to try whatever it took and had a series of 6 VI's. I saw little if any improvement and no side effects. This led me to other alternatives all documented in "My History" link below.

Les
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Les - 10 yrs Peyronies Disease free
My History

Zackius

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Re: 6 to 8 months with Peyronies
« Reply #3 on: July 01, 2013, 11:26:47 PM »

Bigfish and Les.....

Thanks so much for the information. I am making an appointment with Dr. Hellstrom. I am hoping he gives me some proactive measures...namely Pentox. I will update after seeing Dr. Hellstrom.

Thanks............
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LWillisjr

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Re: 6 to 8 months with Peyronies
« Reply #4 on: July 03, 2013, 09:22:34 PM »

You have to be prepared that you might have to go to several doctors until you find one who knows how to treat peyronies and is willing to work with you.
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Les - 10 yrs Peyronies Disease free
My History

Norm

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Re: 6 to 8 months with Peyronies
« Reply #5 on: July 03, 2013, 09:40:03 PM »

It won't hurt to print out the articles regarding Pentox that you will find here as it relates to Peyronies Disease. You may have to be forceful. I had to take a printed article and demand my doc prescribe it. Just remember, you are paying him. You have a say. I let my doc know that if he would not prescribe it, I would go to another doctor til I found one that would. Unless there is a particular reason you cannot take it, you should get it. Will it cure you? Nope! But it is the gold standard treatment.
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Plication Surgery Dec. 2013. Straight Again!
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