new member here's my story

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

SadBoy

Hello people I'm new to this site. I'm 34 years old and was diagnosed with a traumatic form of peyronies 6 months ago by my urologist. It was caused by a sex accident 7 months ago. The urologist I saw was pretty useless really didn't really give me much information. He perscribed acetylcarnitine, and a drug called col chicine for 3 months. I am now only taking the col chicine(12months perscription) and a multivitamin. I think my peyronies is pretty mild but am unsure. I have no pain when my penis is erect and is still pretty straight but have noticed a band like line on the left side and looks like a small kink in that area although is pretty minor at the moment. My condition seems to be stable at the moment and isn't really getting any worse. I havn't had sex since the accident so am unsure of any pain during intercourse. My urologist has told me to do nothing and if the condition worsens to the extent I can't have sex then surgery is required. I don't want to wait and do nothing I now know that treating the plaque early has the best results so was wanting a little information and ideas of what I can do. I need to do something and was thinking of using a vitamin e oil from the Peyronies disease institute although I've now heard bad reviews with vitamin e so I'm unsure. Any information appreciated thanks :) I should have added that I'm an antidepressant called avanza and a drug called coversyl plus for blood pressure. Anymore advice very appreciated thanks.

Sargonnas

Quote in violation of forum rules - removed by Administrator

I think that institute its a good place to be ripped off.

Ubiquinol and Pentox would be and indeed are my first options in cases like this. I also have band like lines and kinks, my penis in erection doesnt hurts and its pretty much straight, but lately its hurting a lot in flaccid state and its obvious its gonna get worse without treatment. I am also gonna use topically the VIP cream, which its a bit quacky but I know of a guy that cured Peyronies with it and he had similar symptoms to me... The bad thing its, that guy has Peyronies again nowadays because of steroid use... so be prepared for being in supplements all your life, at least Ubiquinol.

Hawk

Sargonnas,

Do NOT quote posts that are immediately prior to your reply.  This is clearly stated in the forum rules under Read This First.  All members need to read all of these rules and help the few people that try to maintain this forum.  When you reply to a post, click on the REPLY button NOT the quote button.

Forum Rules and Member Rights -ALL MUST READ AND FOLLOW - Peyronies Society Forums

Administrator
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Sargonnas

Sorry for the inconveniences. I will read it to avoid future complications.

james1947

SadBoy

Acetyl L-Carnitine is indeed something that can help.
I will advice you to go on Pentox as well.
CoQ10 or Ubiquinol will help also.
My treatment regime now:
2*400mg Pentox – morning/evening, started at January 2012 now on 3*400mg
4mg Cialis (cutting the 20mg in 5pcs) – evening, started at April 2012 replacing Viagra that started at November 2011.
2*500mg Acetyl L-Carnitine – morning/evening, started at September 2012
2*1000mg L-Arginine – evening, stared at June 2012
2*100mg Ubiquinol – morning/evening, started at June 2012
VED, 20 minutes (30 minutes in the last month), started at October 2011

Don't give up and welcome to the forum
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum