Surgery - Need Advise/Reassurance

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OnABender

Hi all,
I have a massive upward curve - probably 90-100 degrees total (yes, the top curves backwards towards my stomach - ughhhh). Its always been curved up - congenital, but gotten worse. Never caused me problems and I even liked it at first bc for sex people said it felt good!

This all changes in 2021 - I was having sex and on ejaculation - I said intense pain in my shaft - near the bottom. After that, I had BLOOD come out after the semen. Not a little either, a lot. Like, runny, red blood and it continues for a few minutes and more comes out when I squeeze. It's traumatizing, for me and my partner.

I thought it was a fluke, but over the last 4 years, it's happened multiple times. It's always the same - no issues with masturbation, and if I'm able to align my body so that the penis does not feel bend at all (think, if missionary, I have to be laying almost directly on top of them) - then I can ejaculate without issue. But if there is even a minor movement, curve - like they move their body or head (if oral) - BOOM! Pain and blood. It's so horrifying and has killed my confidence :(. And now the curve makes my dick look weird.

I did try traction with restoreX however 1) I think the curve is just too severe and 2) tbh, I couldn't get into using it enough to make a different. That one is on me - but I really feel like a 90 degree curve that's bleeding just unfortunately needs surgery.

They did an ultrasound and no plaque, but I feel the curve starts almost all the way at the base, and continues throughout. The pain from ejaculation/blood though is always near the base.

Do you think surgery is the right way to go and should I get plication? I feel like it's the only option. I can't keep bleeding everytime I orgasm. I'm soooo scared of losing length or having ED - but something has to give.

Also, I'm in Chicago. I have read Dr. Levine stories and just do not feel comfortable seeing him. Has anyone heard/experiences either:
Peter Tsambarlis
Channa Amarasemera

Thank you SOOOO much!
This forum is a life-saver truly.
Such a crappy  disease!
90 degree upward curve
Congenital
Searching for answers

Mikel7

I responded to you in another posting that you made.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

alex_be

Hello OnABender,

I'm sorry for your situation. How long have you been trying RestoreX ?
36y
Peyronie since 06/'24. Left and up curv.
6 months RestoreX + 3 months VED.
From 47° to 18°, up curve gone, but now hourglass.
Plaque left under glans
Tadalafil 2,5mg+Acetyl L-C 2g & Arg 2g+CoQ10 200mg
Amazing psychologist therapy
4y relationship

john.doe.550

Dear OnABender,
I had the very same upward curvature that you described. In contrast, it was caused by peyronies in which a thin, narrow plaque runs the entire length of my penis on the dorsal side.

Dr. Gelman at University of California (UC) Irvine performed a plication surgery on me. Dr. Gelman expressed the professional opinion that he could make my penis nearly straight.

Post surgery results demonstrate Dr. Gelman delivered on his opinion. My erect penis is very straight. Dr. Gelman is no nonsense and thinks very much like an engineer.

Immediately following my surgery, Dr. Gelman told me the surgery required 6 hours to complete. He was visibly tired, but was satisfied with his effort.

I'm satisfied and am still surprised it was possible to achieve this amount of improvement. I suggest you consult with Dr. Gelman.
Age: 66. Peyronies Disease in MAR 2019. 90 dgree upward curve.. Immediate &  severe. Xiaflex, APR 2019 to early 2021, slow but minor improvement through 2021. Incisional corporoplasty surgery completed in late 2022. Straight erections post surgery.