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Author Topic: Implanting while Peyronie still in active phase?  (Read 364 times)

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hope794

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Implanting while Peyronie still in active phase?
« on: October 21, 2020, 08:51:36 AM »

Hello brothers. As you know, i'm considering an implant.

The main issue is that my Peyronie's disease, which i have since like 6 years, is still progressing, and i still feel some numbness, pain, discomfort and see from time to time some worsening of lenght, girth, erectile function and so on.

My question is: did anyone here got implanted while his Peyronie's was still in active phase? if yes, which have been your results? Did you mantain or got back lenght and girth? Did the pain disappear? Did the disease stop?

Tell me something about it.. I'm scared that it can worsen the situation and, if the fibrosis progresses, it could attack the nerves..

Thank you really much for sharing
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

peter123

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Re: Implanting while Peyronie still in active phase?
« Reply #1 on: October 21, 2020, 10:39:51 AM »

there is no 6 year active peyronies. i bet if you posf your oictures 2 things will be true, significantly above avwrage penis and barely any deformity plus no consulwtion with a peyronies expert just like with the other guy, same exact thing
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

LuisFernandez

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Re: Implanting while Peyronie still in active phase?
« Reply #2 on: October 21, 2020, 11:35:12 AM »

You can get an implant during the active phase of Peyronie's. It will effectively halt and stop any progression of the diseases. But I am a little bit hesitant that after 6 years your Peyronie's is still active, you just don't hear of that. Are you continuously traumatizing your penis and creating macro tears that would cause an on-set of scar tissue creation?

Most likely you would re-gain girth: https://www.youtube.com/watch?v=mr3pE7KORq0. Unless your scar tissue is severely stubborn and calcified.

Have you done extensive traction and VED therapy?
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Peyronie's From Unknown Injury in April 2020. Erectile Dysfunction.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Loss of girth, but gain of length (1in) with consistent traction.
Continuing VED to try to restore girth

jan.schaller1958

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Re: Implanting while Peyronie still in active phase?
« Reply #3 on: October 21, 2020, 11:37:18 AM »

Yes, I’ve never heard of a 6 year active Phase for Peyroines. I’ve had Peyroines roughly 5 years and it hit a stable phase probably 3 years ago at least, then it even improved (hourglassing disappeared, probably even earlier, and no more loss of girth or length and no increase in bend. Never had Erectile Dysfunction anyway. Used Pentox first to second year. Not sure if it helped but it didn’t hurt anything either).
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hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #4 on: October 21, 2020, 11:47:28 AM »

there is no 6 year active peyronies. i bet if you posf your oictures 2 things will be true, significantly above avwrage penis and barely any deformity plus no consulwtion with a peyronies expert just like with the other guy, same exact thing

Shut up and get out of this post. Goodbye peter
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #5 on: October 21, 2020, 11:56:04 AM »

You can get an implant during the active phase of Peyronie's. It will effectively halt and stop any progression of the diseases. But I am a little bit hesitant that after 6 years your Peyronie's is still active, you just don't hear of that. Are you continuously traumatizing your penis and creating macro tears that would cause an on-set of scar tissue creation?

Most likely you would re-gain girth: https://www.youtube.com/watch?v=mr3pE7KORq0. Unless your scar tissue is severely stubborn and calcified.

Have you done extensive traction and VED therapy?

To be honest, i don't have an hard sexual intercourse since years, unfortunately :( So i just masturbate and have a really calm sex.. I just think this is my peyronie's behaviours.... :(
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #6 on: October 21, 2020, 11:58:43 AM »

Yes, I’ve never heard of a 6 year active Phase for Peyroines. I’ve had Peyroines roughly 5 years and it hit a stable phase probably 3 years ago at least, then it even improved (hourglassing disappeared, probably even earlier, and no more loss of girth or length and no increase in bend. Never had Erectile Dysfunction anyway. Used Pentox first to second year. Not sure if it helped but it didn’t hurt anything either).

thx for the reply. Unfortunately, yes, Peyronie's can last years or even more than a decade. I know many people in my same situation.. Often, you just don't know it. You feel some pain for 1-2 days, then nothing for weeks, and you think you're in the stable phase.. But it's not.

I wish my Peyronie's stopped the 2° year.. =(
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

peter123

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Re: Implanting while Peyronie still in active phase?
« Reply #7 on: October 21, 2020, 12:01:48 PM »

thx for the reply. Unfortunately, yes, Peyronie's can last years or even more than a decade. I know many people in my same situation.. Often, you just don't know it. You feel some pain for 1-2 days, then nothing for weeks, and you think you're in the stable phase.. But it's not.

I wish my Peyronie's stopped the 2° year.. =(

the amount of pseudo science makes heads explode. you aound like a hypochondriac to me. yiu can only read these things on the internet and when they post pictures they have barely any deformity. butworsening for decades and a 20 degree curve? doesnt make any sense.  i just feel sad for the men who read this nonsense and become utterly terrified
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

jan.schaller1958

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Re: Implanting while Peyronie still in active phase?
« Reply #8 on: October 21, 2020, 05:53:01 PM »

Hope 794

I can’t imagine any reputable surgeon implanting you at your age. What? Age 26? I’ve never heard of such a thing. And there is no active phase after 6 years. In fact, a minority of Peyroines cases resolve spontaneously after a while (I haven’t looked at it in awhile, but something 10-15%, not very encouraging).

The average age for new onset Peyroines is 55 (I got it at at 56), and it has nothing, zero, to do with vitamins and nutrition. So you can toss all that mythology out the window (saying a lack of nutrition or vitamins causes Peyroines is like say a witchdoctor casting a voodoo spell on you causes it).

It is true younger guys can get Peyroines (I think the earliest age I’ve seen in the literature is somewhere in the teen years) but that’s by far the exception, not the average. You said you know many people in your situation? Really? How many? That is very odd indeed.

And why you would you even be considering an implant in your situation? At 26? Are you serious? I can’t imagine anything worse than having to pump your penis up for sex, like a bicycle tire. I mean if it’s either that, and you’re over 50, or no sex at all, fine. I get that. So no offense to those guys around 50 or above who had no choice.  But for you? It’s just doesn‘t seem remotely appropriate.

You said Peyroines can last for years or even a decade. Of course. With the exception of those few cases (what 10%?) that go away on their own, Peyroines lasts your whole life. It never goes away.
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hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #9 on: October 21, 2020, 08:16:34 PM »

To be honest, i'm tired of being considered a liar. I haven't got anything to explain to you guys. If you want to believe me, it's ok. If you treat me like an idiot, then i'll do the same: i'll just ignore you all and read&reply to comments from serious people.

Cheers.
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

SW01

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Re: Implanting while Peyronie still in active phase?
« Reply #10 on: October 21, 2020, 08:41:46 PM »

My peyronies started and just got worse for 2.5  years. It was still there right up until I got my titan. Pain would come and go. Plaque seemed to get bigger but seemed to shrink at times.

70 degree curve went back to 35 when implanted after traction and ved for 8 months.

My surgeon said active, inactive, did not matter. Once they put titan in. Peyronies is over. Was for me and plenty of others on here. No more curve, no hourglassing. Cannot find any plaque and I had a piece as big as my thumbnail about a third up my shaft. I cannot even tell today i had any of that with peyronies.

Just have to pump up my erection. For me it was only option.

Everyone has to come to terms with that themselves. Till then do your best and try to stay sane. Damn hard to when dealing with this crap.

Anyone reading my old posts know while I was dealing with Erectile Dysfunction, peyronies, an implant, a failure, and reimplant, my wife had her skull operated on twice. She has a hole in her brain cavity into her ear canal they determined they cannot fix after trying. Just have to see what happens. She never once said my Erectile Dysfunction stuff was not important, and we worked both our surgeries in over time.

In reality though. in the scheme of things my issues were not crap compared to having a 3 inch square piece of your skull taken out and put back on. Twice.

She really does like the implant though. We figure we will use it all we can till one of us can't anymore. Then I wont worry about it again. Till then though fun fun fun till it gets taken away.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

peter123

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Re: Implanting while Peyronie still in active phase?
« Reply #11 on: October 21, 2020, 08:44:23 PM »

i think the old guys rrally fail to understand that there is a difference in then getting an implant vs someone at 20.sad
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

McChicken94

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Re: Implanting while Peyronie still in active phase?
« Reply #12 on: October 21, 2020, 09:03:11 PM »

Did you read what this "old guy" is saying though? An implant stops the progression. You seen my dck and if I got an implant now I'd be ready to go for the next like 15 years then worst case scenario I need a replacement. More likely I might have even better options by then. But honestly, I don't think it even matters much what ths future holds. Gotta make the best of it now. And denying that it's possible to keep progressing over years is not helpfull at all. I have experienced it myself, I have a friend I met here who has the same, hope has it. Who knows how and why? But it defenitely exists. What SW01 said is actually the only helpfull post here. He is right.. if you have to pump up your erection, but it works, you don't have to worry about getting progressively worse, your flaccid will look normal again, etc. Why the heck wouldn't you want that? I honestly waited too LONG rather than too short to think about an implant. But it is defenitely the only accepteable option in my case and probably that of many guys like Hope.
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peter123

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Re: Implanting while Peyronie still in active phase?
« Reply #13 on: October 22, 2020, 02:33:31 AM »

i just wonder it looks like a normal penis so if ut hsd been progressing for years, id expect itto look really awful rn but it doesnt
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #14 on: October 22, 2020, 05:56:23 AM »

My peyronies started and just got worse for 2.5  years. It was still there right up until I got my titan. Pain would come and go. Plaque seemed to get bigger but seemed to shrink at times.

70 degree curve went back to 35 when implanted after traction and ved for 8 months.

My surgeon said active, inactive, did not matter. Once they put titan in. Peyronies is over. Was for me and plenty of others on here. No more curve, no hourglassing. Cannot find any plaque and I had a piece as big as my thumbnail about a third up my shaft. I cannot even tell today i had any of that with peyronies.

Just have to pump up my erection. For me it was only option.

Everyone has to come to terms with that themselves. Till then do your best and try to stay sane. Damn hard to when dealing with this crap.

Anyone reading my old posts know while I was dealing with Erectile Dysfunction, peyronies, an implant, a failure, and reimplant, my wife had her skull operated on twice. She has a hole in her brain cavity into her ear canal they determined they cannot fix after trying. Just have to see what happens. She never once said my Erectile Dysfunction stuff was not important, and we worked both our surgeries in over time.

In reality though. in the scheme of things my issues were not crap compared to having a 3 inch square piece of your skull taken out and put back on. Twice.

She really does like the implant though. We figure we will use it all we can till one of us can't anymore. Then I wont worry about it again. Till then though fun fun fun till it gets taken away.

Thank you for the heads up, SW01!! So, no further progression of Peyronies and plaque dindn't grow more?
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #15 on: October 22, 2020, 05:58:05 AM »

Did you read what this "old guy" is saying though? An implant stops the progression. You seen my dck and if I got an implant now I'd be ready to go for the next like 15 years then worst case scenario I need a replacement. More likely I might have even better options by then. But honestly, I don't think it even matters much what ths future holds. Gotta make the best of it now. And denying that it's possible to keep progressing over years is not helpfull at all. I have experienced it myself, I have a friend I met here who has the same, hope has it. Who knows how and why? But it defenitely exists. What SW01 said is actually the only helpfull post here. He is right.. if you have to pump up your erection, but it works, you don't have to worry about getting progressively worse, your flaccid will look normal again, etc. Why the heck wouldn't you want that? I honestly waited too LONG rather than too short to think about an implant. But it is defenitely the only accepteable option in my case and probably that of many guys like Hope.

Thank you for the kind words. Please, ignore Peter. He has some huge psychological issues and probably his mind is f*cked. I can accept it, but i can't accept that he comes here and tries to ruin other people's post and thoughts.
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

peter123

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Re: Implanting while Peyronie still in active phase?
« Reply #16 on: October 22, 2020, 07:25:08 AM »

Thank you for the kind words. Please, ignore Peter. He has some huge psychological issues and probably his mind is f*cked. I can accept it, but i can't accept that he comes here and tries to ruin other people's post and thoughts.

just think about this for a second. you and mchcicken94 are both suggesting your Peyronies has been active for more than half a decade yet, when looking at pictures there is barely any deformity. one would expect after an active progression lasting for so many years that your penis would be completely deformed. yet, there is barely any deformity visible. also the size loss you are talking about yet you both have significantly above average penises. another thing that is important to note is that there is no certain diagnosis of actual peyronies disease, the diagnoses is self made basically. adding all this together its kind of understandable where im coming from isn't it? this if it would be peyronies would be highly highly uncommon cases and has never been described in the literature. and then you suggest you know multiple people that have been in active stage for over a decade yet, once again, there is no scientific reasoning behind this. these things one can only read on the internet, I talked to many androgloist and none have seen a case where progression has been longer than 3 years which is already quite uncommon. im not ruining other peoples thoughts, im just trying to point out that first of all its kind of crazy that this question is not discussed with an andrologist that does the implant rather than with a board of people that dont really know what's going on anyway.

and what irks me to be honest is that after years of progression you all still have big normal looking penises. so what is progressing all this time? do you have accurate self measurements that let you conclude that there was an actual loss of size? then it'd be fine
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onset of symptoms in February 2020 initial pain when flaccid only which has since improved. 20deg left curvature, loss of girth indent
started oral treatment in march, currently on Potaba 12mg 1200mg Pentox, 2.5mg Taladafil and L-arginin
very depress

TonySa

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Re: Implanting while Peyronie still in active phase?
« Reply #17 on: October 22, 2020, 10:21:43 AM »

Peter, it’s pretty ridiculous that you minimize others Peyronie’s-you say it’s psychological YET You haven’t posted any pics that demonstrate that you have a curve or shortened length.  Many would call that projection.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #18 on: October 22, 2020, 11:07:11 AM »

Peter, it’s pretty ridiculous that you minimize others Peyronie’s-you say it’s psychological YET You haven’t posted any pics that demonstrate that you have a curve or shortened length.  Many would call that projection.

Thank you TONY.
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

jan.schaller1958

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Re: Implanting while Peyronie still in active phase?
« Reply #19 on: October 22, 2020, 09:16:26 PM »

I‘ve never heard of consistent Progression of Peyroines over several years or even beyond the first few years at most in anyone, and I haven’t seen any literature that says Peyroines can worsen over the course of a half decade. In fact, what I have read is that Peyroines reaches a stable phase after around a year or so, and that’s it. Some cases even either fully resolve (a small %), but most just stay the same, or they partially improve. All the pictures people here have posted, like Peter said, Show Little or no deformity at all. In fact the pictures I looked at here, at best, show an essentially normal penis in size and shape and only a slight curve that would make most people think that was a non-Peyroines simple congenital curvature. I cant discount a diagnosis by a urologist of Peyroines, but to say there’s a „progression“ going on over 5 Years makes me sit and ask, „Progression of what? Where?“ Not from the photos anyone posted here. So, Peter‘s comments are spot on.

In my case there was a progression, but it was pretty fast, definitely not more than a year, more like 6 months, and later actually a partial improvement where the hourglassing went away, and most of the girth returned.  That’s why 5 years ago, within less than a year from date of onset, Dr. Lue said he couldn’t do Xiaflex and offered me a surgery, which I turned down. Then i go back to him 5 years later and, with the hourglassing gone, and just an upward bend of maybe 30%, he now says he or another urologist can do Xiaflex and surgery is off the table due to a 40% risk of Erectile Dysfunction. Well, I’m not risking Erectile Dysfunction. I sure don’t want an implant.

I wish I could ask Dr. Lue about this „progression over 5 years“ stuff, but that’s probably not ever going to happen. But, I’m sure he could answer this question in 5 seconds. And I bet I’d know exactly what he’d say. That Peyroines reaches its plateau or stable phase within a year and either stays the same or could improve somewhat.
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LuisFernandez

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Re: Implanting while Peyronie still in active phase?
« Reply #20 on: October 23, 2020, 03:48:36 AM »

If you're thinking of getting an implant then i would personally suggest absolutely heavy traction and daily VED. This would be to re-gain your lost length and gain as much length as possible before your implant.

You can do very advanced things like weight hanging and many hours of rod extending. I personally do weight hanging followed by an all day stretcher and many hours of rod extension.

You will absolutely gain length. Couple it with heavy Cialis to hold off on the implant as long as possible. Once the Cialis fails altogether then you have ~3-4 months to get the implant to avoid further length loss. But with VED you can probably stretch that time even further.
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Peyronie's From Unknown Injury in April 2020. Erectile Dysfunction.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Loss of girth, but gain of length (1in) with consistent traction.
Continuing VED to try to restore girth

hope794

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Re: Implanting while Peyronie still in active phase?
« Reply #21 on: October 23, 2020, 05:44:21 PM »

If you're thinking of getting an implant then i would personally suggest absolutely heavy traction and daily VED. This would be to re-gain your lost length and gain as much length as possible before your implant.

You can do very advanced things like weight hanging and many hours of rod extending. I personally do weight hanging followed by an all day stretcher and many hours of rod extension.

You will absolutely gain length. Couple it with heavy Cialis to hold off on the implant as long as possible. Once the Cialis fails altogether then you have ~3-4 months to get the implant to avoid further length loss. But with VED you can probably stretch that time even further.

Thanks for the advice Luiz, i've tried both traction and VED. VED was really good, but cilynder was too big for me and i "sucked" some veins near the penis and hurt myself.

Regarding the TRACTION, i was having great results as first, then suddendly i inflamed myself again and it worsened my situation.. :(
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26 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 20-25°, with a moderate twist to the left. Erectile Dysfunction since 4 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

LuisFernandez

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Re: Implanting while Peyronie still in active phase?
« Reply #22 on: October 25, 2020, 06:42:56 AM »

I think you need to keep trying and work your way through your issues.

For VED, there's the Vacurect which you pump from the top and uses a special ring to slide down to the base. This helps avoid skin being pulled in. You can also throw some cardboard into your cylinder to make it smaller. You can also use a penis sleeve like this one: https://totalmanshop.com/collections/accessories/products/penis-sleeve

You stretch the sleeve at the bottom and it creates a barries to avoids the scrotum and extra skin to be pulled in.

You can look at other sites and forums for advice.

For traction, maybe you overdid it. Just let it heal but as soon as you can just start again, lower tension higher time.
The penimaster pro would probably be good for you. You need to use it 6+hrs per day.

Best.
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Peyronie's From Unknown Injury in April 2020. Erectile Dysfunction.
Started RestoreX and VED 2 months after injury.
Taking 10mg daily cialis, pentox, coq10, vit-e.
Loss of girth, but gain of length (1in) with consistent traction.
Continuing VED to try to restore girth
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