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Author Topic: Chapter 3, TDix's implant  (Read 4667 times)

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TDix

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Chapter 3, TDix's implant
« on: June 17, 2020, 02:32:27 PM »

Hey guys, I am on hopefully my final journey to fix this condition.....I am getting an implant.  I will document this journey here, and you are welcome to follow my other threads documenting how I ended up here.  I have a Xiaflex and surgery thread (hence the chapters).  Looks like I’ll soon join the bionic club
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

samsung

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Re: Chapter 3, implant
« Reply #1 on: June 17, 2020, 02:43:47 PM »

Good luck sir. We're pulling for you.
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45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Frank55

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Re: Chapter 3, implant
« Reply #2 on: June 18, 2020, 06:41:18 AM »

Good luck TDix. As always, please keep us posted on your experience.

Have you decided on a surgeon yet? If so, who is it?
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Single and 58 yrs. old - first peyronies symptoms Fall 2015
Had grafting surgery by Franklin Kuehhas in June 2016 - complete failure
Borderline Erectile Dysfunction possible but not taking drugs, shots or using VED
Now evaluating options for next step

TDix

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Re: Chapter 3, implant
« Reply #3 on: June 18, 2020, 01:59:39 PM »

Dr Yafi.  He does 3-4 a week
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Stepone

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Re: Chapter 3, implant
« Reply #4 on: June 19, 2020, 07:44:55 AM »

Prayers are coming your way.
Stay in touch.
Sounds like you have a great surgeon.
Take before and after pictures if you are comfortable with doing so.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

TDix

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Re: Chapter 3, implant
« Reply #5 on: June 19, 2020, 12:30:43 PM »

I will.  I did the same with my Xiaflex and excision experiences but lost them on an old phone.
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #6 on: June 24, 2020, 04:02:54 AM »

Surgery was denied by insurance.  I’m so pissed.  Why would they cover excision and grafting but not an implant!  I’m so depressed.  Waiting to see what Dr Yafi says
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

samsung

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Re: Chapter 3, implant
« Reply #7 on: June 24, 2020, 06:14:52 AM »

Sorry to hear that. There must be a way around.
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45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

Stepone

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Re: Chapter 3, implant
« Reply #8 on: June 24, 2020, 06:44:08 AM »

I am sure the doctor can rewrite it for an appeal. That is odd. Maybe they simply coded it wrong.
Good luck with it.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

TDix

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Re: Chapter 3, implant
« Reply #9 on: June 24, 2020, 06:35:01 PM »

My insurance is just stupid.  They pulled this with my last surgery.  They say they cover the dr but not the hospital.  Hoping Dr Yafi can intervene.  I think he did last time as they said the same thing but covered me
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

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Re: Chapter 3, implant
« Reply #10 on: June 24, 2020, 07:35:37 PM »

It’s so important to not take no fir an answer and to enlist medical support for your appeal.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TDix

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Re: Chapter 3, implant
« Reply #11 on: June 25, 2020, 11:54:04 PM »

Filing an appeal with insurance company.  How can you cover a doctor but not where he works!
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

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Re: Chapter 3, implant
« Reply #12 on: June 26, 2020, 10:46:35 PM »

I had the same problem, doc was covered but not the hospital where he did the surgery.  After appeal, they covered it.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TDix

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Re: Chapter 3, implant
« Reply #13 on: July 15, 2020, 04:15:26 AM »

Insurance officially declined my appeal, as they said there are other “covered” doctors in the plan that deal with Erectile Dysfunction.  I’m devastated yet again as they cover a f’n specialist but not where he works.  I almost want to tell them not to cover him as you give guys like me false hope.  Yeah we will let you see a specialist that says you need this procedure but we don’t cover the hospital he performs it in!  Ridiculous!
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Hawk

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Re: Chapter 3, implant
« Reply #14 on: July 15, 2020, 06:16:08 AM »

That is totally disgusting.  Is there any option for your doctor to get a reversal?
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TDix

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Re: Chapter 3, implant
« Reply #15 on: July 15, 2020, 02:42:48 PM »

Trying to figure out next steps.  Cancelled my surgery and am trying to stay positive.  Was told by Dr Yafi’s office that the procedure was going to be $97k but Dr Yafi got it down to $27k.  Still, I don’t have $27k lying around with both children in college.
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Stepone

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Re: Chapter 3, implant
« Reply #16 on: July 15, 2020, 04:28:42 PM »

I am so sorry!!!!
Anyway you can find another excellent surgeon that your plan will cover. I know you have a relationship with this guy and despite what some people will say, there are some excellent surgeons in the U.S.
You need the implant, don’t give up.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Hawk

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Re: Chapter 3, implant
« Reply #17 on: July 15, 2020, 06:25:54 PM »

Trying to figure out next steps.  Cancelled my surgery and am trying to stay positive.  Was told by Dr Yafi’s office that the procedure was going to be $97k but Dr Yafi got it down to $27k.  Still, I don’t have $27k lying around with both children in college.

?????????
$97,000 THAT IS INSANE!    Dr. Eid or Dr Kramer charge nowhere close to that.  Regardless, you need the insurance to pay regardless of the cost.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TDix

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Re: Chapter 3, implant
« Reply #18 on: July 15, 2020, 07:31:03 PM »

I have a consult with a Dr Michael Hyman on July 31st.  I am going to grill this guy.  I know more than most about the specialists and procedure thanks to this website.  I am also going to follow up with insurance if things progress to say if I have ANY complications I will hold them responsible
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #19 on: July 16, 2020, 02:51:15 PM »

Just heard from Dr Yafi.  He is going to fight this for me
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

RandyPE

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Re: Chapter 3, implant
« Reply #20 on: July 16, 2020, 02:58:41 PM »

That's awesome! That shows how dedicated he is.
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Peyronie's since 2017
Have tried: X4Labs Extender; Phallosan; Jelqing; Manual Massage & Stretches; VED Pump; DMSO + Iodine, Vit E; Ultrasound.
Curve gone from 90 degrees to 20.
Still have hour glassing, which I HATE
Open to new suggestions & ideas.

Stepone

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Re: Chapter 3, implant
« Reply #21 on: July 16, 2020, 06:16:46 PM »

I think that is great about Dr. Yafi.
What ever turns out, I would still see Dr. Hyman, just in case.
I know you will share your complete struggle with Dr. Hyman.
When I have an issue with “medical Issues”, I always say, look “I am just a patient, I know I am not a doctor”, so please help me figure this out as I know your goal is to help me”.
It usually calls them to take a deep breath and truly try to help.
Good luck my friend and stay in touch.
I will include you in my prayers this evening.
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

SW01

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Re: Chapter 3, implant
« Reply #22 on: July 16, 2020, 08:04:24 PM »

They can do a pre cert as well as pre payment authorization so you know they not only cover it but will pay for it.
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I was implanted March 7, 2019 with a titan 18 plus 1 rte after dealing with Erectile Dysfunction, peyronies, and venous leaks for 3 yrs. Revision after hernia surgery. Dr. Andrew Todd, Richmond KY removed titan and put in lgx 18 cm plus 2 rtes, 20 cm total.

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Re: Chapter 3, implant
« Reply #23 on: July 16, 2020, 10:31:54 PM »

The doc appealing is usually the most effective!
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

TDix

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Re: Chapter 3, implant
« Reply #24 on: July 22, 2020, 12:03:02 AM »

Dr Yafi did it.  Still waiting for final confirmation but I am tentatively scheduled for Aug 11th.  Was supposed to be Aug 4th, but the OR is shut down for two weeks due to Covid
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Stepone

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Re: Chapter 3, implant
« Reply #25 on: July 22, 2020, 06:41:54 AM »

Congratulations!
I bet when your doctor heard you were going to go someplace else, I bet that’s when he decided to do the appeal.
After all, that is a big amount of money that comes into his hospital, etc.
congratulations.
I will pray for you.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

TDix

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Re: Chapter 3, implant
« Reply #26 on: July 22, 2020, 09:49:05 AM »

I never told him I was going anywhere else.  He just had my back.  My last surgery was more invasive and more expensive and they covered it.  Turns out with my insurance you have to talk to the right people, and move it up the chain until you get one
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

RandyPE

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Re: Chapter 3, implant
« Reply #27 on: July 22, 2020, 11:07:34 AM »

I'm so happy for you, man. This has been a long journey for you. I'm excited for you to get some lasting results.
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Peyronie's since 2017
Have tried: X4Labs Extender; Phallosan; Jelqing; Manual Massage & Stretches; VED Pump; DMSO + Iodine, Vit E; Ultrasound.
Curve gone from 90 degrees to 20.
Still have hour glassing, which I HATE
Open to new suggestions & ideas.

TDix

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Re: Chapter 3, implant
« Reply #28 on: July 22, 2020, 11:40:18 AM »

Yeah it’s been a crazy 3 Years.  Back in 2017, I’d never heard of peyronie’s, Xiaflex, excision surgery, implants....or even for that manner hematomas, etc..never in my wildest dreams would I have thought 3 years later I’d be scheduled for a prosthesis at 46.  This disease is no joke, but I have done what I needed to do.  I haven’t given up, even when in my darkest days of despair, depression, drinking like a fish.  The mental scars are still there, but I just keep on trucking
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #29 on: July 22, 2020, 12:10:22 PM »

Keep going man, do what you need to do.  If my 22 yr old son had this, I’d tell him the same.  Yes, this really is a gut punch to ones sex life.  As dark an area your mind wanders to, just don’t give up.  I’m also on antidepressants, and I still have those horrible depressing days.  Just know they don’t last.  Educate yourself, find the best doctor you can that LISTENS to you and has your back.  If they don’t, drop em and find another one.  As always, I post my experience here not to depress anyone, but to show you can fix this.  I will never be what I was 20 years ago, even 3 years ago.  I just have to accept that and make the best of what I have NOW.  I am here to help and support anyone
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #30 on: August 01, 2020, 02:43:52 PM »

Blood tests done.  10 days out
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

RandyPE

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Re: Chapter 3, implant
« Reply #31 on: August 01, 2020, 02:57:34 PM »

Awesome, man! One more hurdle down!
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Peyronie's since 2017
Have tried: X4Labs Extender; Phallosan; Jelqing; Manual Massage & Stretches; VED Pump; DMSO + Iodine, Vit E; Ultrasound.
Curve gone from 90 degrees to 20.
Still have hour glassing, which I HATE
Open to new suggestions & ideas.

Stepone

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Re: Chapter 3, implant
« Reply #32 on: August 01, 2020, 09:32:40 PM »

Congratulations man. Pulling for you!
Prayers
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

bustedchubb

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Re: Chapter 3, implant
« Reply #33 on: August 01, 2020, 10:51:40 PM »

Congrats man!  Definitely will be in my thoughts man. 
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.  Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 15 deg bend left, 90 deg bend up, lost length and girth top half.

CoQ10, Propolis, L-Citrulline/L-Arganine, Pelvic Floor Therapy

TDix

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Re: Chapter 3, implant
« Reply #34 on: August 05, 2020, 06:54:34 PM »

Official approval from insurance.  Had some bacteria in my urine sample so I am on Cipro until my surgery on Tuesday.
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Stepone

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Re: Chapter 3, implant
« Reply #35 on: August 05, 2020, 08:57:34 PM »

Keep holding on. You are in the home stretch.
Congratulations again.
Stay strong.
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Hawk

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Re: Chapter 3, implant
« Reply #36 on: August 05, 2020, 10:52:16 PM »

We are anxious to follow your journey.  Best wishes TDix.
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TDix

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Re: Chapter 3, implant
« Reply #37 on: August 06, 2020, 12:08:54 AM »

Thanks guys.  I’m anxious but in a different way!
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #38 on: August 10, 2020, 12:09:37 AM »

36 hours away now.  Urine is all clear and Covid test negative.  Now just have to focus on not getting anxiety and hopefully being able to sleep!
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #39 on: August 10, 2020, 12:12:01 AM »

?????????
$97,000 THAT IS INSANE!    Dr. Eid or Dr Kramer charge nowhere close to that.  Regardless, you need the insurance to pay regardless of the cost.
Haha I just reread this Hawk.  I think my wife misheard the rep over the phone!  I can’t imagine it originally being $97k
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Stepone

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Re: Chapter 3, implant
« Reply #40 on: August 10, 2020, 03:08:57 PM »

I think she heard it right.
I have had a stroke 5 years ago, so they wanted me overnight to be safe. Mine was done april 2019
Mine was $76,051, I had to pay about $750.
I had mine done at Duke Hospital in Raleigh NC>

StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

TonySa

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Re: Chapter 3, implant
« Reply #41 on: August 10, 2020, 05:33:04 PM »

The “list” price is never what insurance pays—or what you pay as private pay if negotiate well.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

pfract

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Re: Chapter 3, implant
« Reply #42 on: August 10, 2020, 06:04:47 PM »

Hoping everything goes smooth for you on this new step. I'll be following your diary!

bustedchubb

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Re: Chapter 3, implant
« Reply #43 on: August 10, 2020, 07:59:23 PM »

Yeah man, hope everything goes good and you stay calm and relaxed as a possibly you can be.   
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43 Yrs old, Peyronies Disease Onset 11/2019, Diagnosed 1/23/2020.  Stabilized 6/2020.

Dent/Hourglassing distal and dorsal side, 15 deg bend left, 90 deg bend up, lost length and girth top half.

CoQ10, Propolis, L-Citrulline/L-Arganine, Pelvic Floor Therapy

TDix

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Re: Chapter 3, implant
« Reply #44 on: August 10, 2020, 11:23:10 PM »

Thanks guys.  I’ll check in tomorrow
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #45 on: August 11, 2020, 01:09:30 AM »

I’m first up so I guess that’s a good thing! 
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

Stepone

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Re: Chapter 3, implant
« Reply #46 on: August 11, 2020, 06:50:54 AM »

Yes, it is a very good thing for early surgery. Prayers for you, your surgeon, and all those involved.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Hawk

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Re: Chapter 3, implant
« Reply #47 on: August 11, 2020, 09:10:54 AM »

Can't wait to hear back from you and follow you on this journey. 

Best wishes
Hawk
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Prostatectomy 2004, radiation 2009, currently 68 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

TDix

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Re: Chapter 3, implant
« Reply #48 on: August 11, 2020, 02:43:12 PM »

On my way home from hospital.  Wasn’t able to talk to dr Yafi after surgery as I was the first patient and he was fully booked, but I see him tomorrow to get my drain taken out.  Sore in the groin, but no severe pain.  Dr Yafi told my wife “ I think you and your husband will be very pleased with the outcome”.  I will get all the juicy details tomorrow
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE

TDix

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Re: Chapter 3, implant
« Reply #49 on: August 11, 2020, 03:15:39 PM »

Looking at my paperwork I got a Titan Zero degree 20cm with 2cm RTE so 22cm total.
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47 yrs old, 3 yrs diagnosed, xiaflex resulted in a fracture (original uro), excision/grafting surgery 3/26/19 performed by Dr Faysal Yafi, Implanted 8/11/20 by Dr Yafi, Titan Zero degree 20cm + 1cm RTE
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