Peyronies Society Forums

Please login or register.

Login with username, password and session length
Advanced search  

News:

Please go to PROFILE then FORUM PROFILE to replace your signature line text with your profile info such as age, date of onset, symptoms, treatments tried, etc

Pages: [1]   Go Down

Author Topic: peyronie's disease inside glans? anyone heard of it?  (Read 5359 times)

0 Members and 1 Guest are viewing this topic.

peyroninsidepglans

  • Voting Member
  • **
  • Offline Offline
  • Gender: Male
  • Posts: 19
peyronie's disease inside glans? anyone heard of it?
« on: August 31, 2010, 04:13:03 AM »

Hello, my names Mark and I have what I think seems to be very rare form of peyronie's disease as I have done search after search on google and can't find many with the simular type as I have.

What I have is actualy pyronie's disease inside the left glan of penis seen on ultra sound it's about just under 1 centimetre in length fibrosis on the left gland of penis (head of penis) left gland, and the buggers inside, and like all of you although i have no curvature it effects me getting erection and effects blood flow.

My question is is there any advice anyone could give, possibly a doctor in here? that is there some possiblility of surgury and cutting it out without damaging nerves as the doctor told me here, but there must be a way?

well thats my story, it sucks I wish I had my old erection back :(

has anybody heard of this type of peyronies disease?, just a bit more contribution, I think the theory that it runs in the family is correct as my father has peyronies disease also, it must be genetic
Logged

LWillisjr

  • Administrator
  • *****
  • Country: us
  • Offline Offline
  • Gender: Male
  • Posts: 2826
  • 62 y/o - 10 yrs Peyronies free
    • My Peyronie's Story
Re: peyronie's disease inside glans? anyone heard of it?
« Reply #1 on: August 31, 2010, 09:00:29 PM »

Mark,
Why do you think you have Peyronie's Disease? The reason I am asking is that I am trying to determine if you ahve been diagnosed by a doctor, or have you come to your own self diagnosis? I think I understand what you are describing as symptoms, but I don't see how that can interfere with an erection. Blood flows from the base of your penis into the corpora chambers so I don't see how fibrosis in the glans could affect this.

If you have not seen a doctor, I highly encourage you to do so.
Logged
Les - 10 yrs Peyronies Disease free
My History

peyroninsidepglans

  • Voting Member
  • **
  • Offline Offline
  • Gender: Male
  • Posts: 19
Re: peyronie's disease inside glans? anyone heard of it?
« Reply #2 on: August 31, 2010, 11:13:54 PM »

Yes I have been to the doctor, who then sent me to the urologist who then pin pointed my pyronies disease in the glans of penis :(,
then was sent to a penile ultra sound and seen it in the left glan of penis about a centimetre big,
well it certainly does effect blood flow as it feels like I have no head of penis aswell the fibrosis effects the head of penis not getting big aswell and , well I'm not a doctor or techincal but it doesnt stay erect because of the blood flow problems, and also as you other guys have pain on like the side of ur penis where the fibrosis is, I get pain in the head of my penis,
Logged

peyroninsidepglans

  • Voting Member
  • **
  • Offline Offline
  • Gender: Male
  • Posts: 19
Re: peyronie's disease inside glans? anyone heard of it?
« Reply #3 on: September 17, 2010, 04:57:01 PM »

Well talked to the head guy recommended, and yer no cure nothing
this thing sucs, I know you guys have it worse than me at least i have no curvature but seirously , sheesh I
wish they could work on this crap where is our charatiy :(
Logged

boomerang

  • Voting Member
  • **
  • Country: gb
  • Offline Offline
  • Gender: Male
  • Posts: 59
Re: peyronie's disease inside glans? anyone heard of it?
« Reply #4 on: September 18, 2010, 08:04:20 PM »


The first thing I noticed was that my penis was sore just inside the glans area.  It was painful having sex and I thought at first it was my wife’s fault so we had her bits tested but they tested OK. I then went to a sexual health clinic and they could not determine what it was.  Then soon after all the other problems started including a heart attack and I was put on the beta blocker Bisoprolol, which is known to trigger peyronies as a side effect.  My peyronie's accelerated and soon it was down the whole length of my penis along the top edge.  The sexual health clinic diagnosed peyronie's but not until it was full blown, they also noted that I had dupuytren's in my hands and told me it was a related condition. 

I still feel that if I had taken the Neprinol in the beginning, I would not have peyronies now or have had the heart attack.
I have only just recently been able to reduce my doses of supplements after 8 months of self treatment.

I did get my erection back but my penis is still very curved so I obviously had severe peyronie's.

All I can say is this is what I took for the 8 months, having previously been on heparin injections for 6 months.

Neprinol 9 capsules a day.  taken in 3's half an hour before main meals with a glass of water.

Then after 5 months I also started taking:

Magnesium Glycinate 220mg (after a post by someone on this site)

Zinc 15mg

Omega 3 capsules

Multibionta (probiotic and multivitamins)

Kelp plus (for the iodine)

Half a bottle of Indian tonic water (for the quinine) I found this had a positive effect by stopping my leg cramps at night

I have now started a  course of D-Mannose (For curing urinary infections)  I thought I had a urinary infection but was told I didn't have one.

Taking D-Mannose does seem to have had some effect.

I am now able to cycle over rough terrain and up hills no problem.  Masturbation works fine now but have not tried proper sex yet.
I am using a VED and will start traction to try to get straight again.

Of course you may not have peyronie’s at all but these are my experiences if that helps.






.

Logged
Pages: [1]   Go Up
 

Related Topics

  Subject / Started by Replies Last post
8 Replies
1856 Views
Last post October 31, 2014, 05:52:53 PM
by james1947
3 Replies
1501 Views
Last post May 22, 2015, 07:30:59 PM
by Lucketts
18 Replies
898 Views
Last post August 05, 2019, 07:48:36 PM
by TonySa