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Author Topic: Posting VED related improvements on the Improvement board  (Read 8612 times)

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DannyOcean

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Posting VED related improvements on the Improvement board
« on: July 21, 2010, 12:43:48 PM »

When I first developed Peyronies Disease one of the things that was most disheartening was stumbling on these forums and reading the threads (what little there were) in the "Improvement" forum.  I figured that since this forum has been around a while and there are a lot of people posting here that if only a small handful had actually improved then the case was pretty hopeless for me.

Now that I've started with the VED and read many of the encouraging posts here I have a completely different attitude towards Peyronies Disease.  I'm more encouraged than ever and think that the VED (which already seems to be helping) + other strategies such as Pentox could indeed help to cure or at least largely alleviate the symptoms of Peyronies Disease. 

However, I'm curious as to why more people who claim improvement from the VED (and other strategies) haven't posted to the Improvement forum.  It seems like there could be a lot of people who, like me, see how barren that forum is and give up rather than spending the time and energy to fight this thing.  By posting more stories of improvement there I think we'll only serve to encourage people, build a stronger community and get more people sharing information as to how to approach Peyronies Disease.
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Old Man

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #1 on: July 21, 2010, 01:08:13 PM »

DannyOcean:

You have asked the $64,000.00 question! I have given up on trying to get guys to come back on the forum to report their results with their use of VED therapy.

Some few complain about no results, others have questions about how to use and develop the protocol, and still others do have good results. It seems that very few, if any, ever come back on the forum and give us the benefit of their results <><><><> good or bad.

I implore everyone of us to at least give the forum the benefit of their results with our use of the VED therapy. So, bottom line guys is this, HELP ALL OF THOSE ON THE FORUM USING THE VED BY POSTING WHAT RESULTS YOU GET WITH YOUR VED THERAPY!!!!

Old Man
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Age 90. Peyronies Disease at age 24, Peyronies Disease after radical prostatectomy in 1995. Heart surgery 2004 with three bypasses/three stents. Three stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries in the last 10 years.

fubar

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #2 on: July 21, 2010, 02:11:18 PM »


Dannyocean:
I have often wonder the same where are they? And I have Many answers, but I think we all have some clue. Selfishness, doubtfulness, loss of interest and many other reasons.

I believe we do owe reports of progress good or bad. To help others struggling with this disease . It also is important ,So to keep the validity and success of this forum in helping the new and veterans of the disease.

Most importantly the members that do keep up this forum deserve the support they are so deserving of. I have just started using the fitzz ved for about a week and a half. I have noticed quality improvement both in flacid and erected states.

I promise to add more to my success and what I encounter during the protocol good or bad. I have to get back to work.

Stay up,  jim


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DannyOcean

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #3 on: July 21, 2010, 04:45:40 PM »

To be honest, I think it's simply because the forum is so far down the page and even the people that see it might not understand what it's there for.

My guess is that if it was moved up higher in the list and if there were clear instructions that anyone who is confident they've had improvement can post that you would see much greater activity there.

In some ways that forum is the most important one we have in that if we can learn from people who truly improved then we all have a chance of improving.  The CPPS forum that I checked out has a cool feature where each member can put in the things he or she has done that have helped, those that haven't and those that have hurt or made things worse.  If you read enough of these you start to pick up some patterns as to what the most effective things are to battle against CPPS.
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GS

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #4 on: July 21, 2010, 04:47:47 PM »


To Old Man and all,

I am in the 25th week and was waiting until I finished next week to write about my progress.  After reading your posts, I went ahead and posted in the "improvement section".

Basically, I have made a slight improvement and I'm very hopeful of future ones.  I'm sure it's going to take a year or longer of using the VED, but it's the only thing that really gives me hope.

I have been very consistent in my therapy; except I take the day off after having intercourse.  I am usually a little tender after sex and using the VED causes some pain, so I quit using it the day after at about the 13th week of the protocol.  Trust me, not using it the day after sex hasn't cost me too many days off.  (a little humor)

I also quit using the large cylinder around the 13th or 14th week.  I get a good stretch in the small and medium, but all I get in the large cylinder is a curved erection. I think the Spivey Treatment mentions this as an option.

GS















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Old Man

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #5 on: July 21, 2010, 06:15:36 PM »

GS:

Question: If you are using the three cylinder VED, how can you leave off the large cylinder? It is the one that "houses" the medium and small cylinders in those models. Somehow, I missed something in your translation.

Old Man
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Age 90. Peyronies Disease at age 24, Peyronies Disease after radical prostatectomy in 1995. Heart surgery 2004 with three bypasses/three stents. Three stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries in the last 10 years.

fubar

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #6 on: July 21, 2010, 09:17:03 PM »

Gs

I have noticed improvement in the short time I have been using the fitzz. I have only been using it for a week and a day. I have noticed flacid state know longer tight like getting out of a ice cold swimming pool. It now resembles itself ,full, soft hang. Very happy about this. However,I have skipped days because of the constriction I encounter. So I do two cycles some days.

I really do dread doing the two full weeks.Even though the ten cycles take a short time to do ,less time than the protocol has stated. I have found the pump to much more efficient than the toys. It only takes 4 or 5 pumps after establishing a good seal ware as you could pump 20 or more with junk toys.

This makes me want to try the other cylinders.The constriction with the small one, let me explain to others is not just that is narrow. But as the cylinder extends it also gets narrower going into a point.

This leads me to my point would it be wrong to jump to the medium cylinder and putting my penis in less discomfort. Or continue punnishing him for being deformed I don't know? What is your opinion?

I personally understand why you are excluding the large cylinder. How is that remodeling your penis if it is bent in The large cylinder?

Thanks for posting your achievement!

Fubar
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GS

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #7 on: July 22, 2010, 09:09:58 AM »

Guys,

I'm just always adding the medium, or the medium and small cylinders, on an every other week basis; and not using the large cylinder by itself.

When I start the second round of the protocol, I will try using the large cylinder by itself again and see how it feels.  The first time around it just seemed like it wasn't doing anything, as far as stretching my scar.

As I said in my previous post, I am seeing an improvement in my erections and I give all the credit to the VED.  It takes awhile to get used to it and it's a little time consuming, but I believe it will help over time.

GS
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Old Man

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #8 on: July 22, 2010, 09:57:52 AM »

fubar, GS and all VED users:

Guys: IMHO you should stick with the prescribed weekly schedule with the three cylinder VED therapy. The whole purpose of alternating the cylinders per the schedule is to give the remolding of the penis varying degrees of pressure over the time set for each change in cylinders. IOW, simply use the cylinders set forth for each weekly schedule!

The best scenario that I can give to explain is this: It is likened to working out at the gym, you don't just use one particular exercise device to develop your muscles, you use many and varied exercise machines to vary the degree of workout, etc. You use the tread mill for one, use the stationary bike for another and then maybe move on to the strength machines for the finishing touches, based on ones age, physical condition to begin with and what one hopes to accomplish by the workout. Same applies to the VED therapy.

So, my urgent advice to any and all using the three cylinder VED protocol: try your dead level best (0ld Southern term), to keep on the schedule. The 10 cycles recommendation in the protocol is simply just a calculated one so that over zealous users won't further injure themselves by overpumping. As stated many times before now, the number of cycles can be varied to suit the individual. The time limit for each individual can be varied according to ones own feeling.

The maximum recommended time for VED therapy is about 30 minutes for each session. Over and over it has been stated that VED therapy is a case where less pressure is better than more. This caution is intended to catch the attention of any and all using the VED therapy. So, as each case of Peyronies Disease being totally different from any other, each user must use their best judgment in using the protocol. Patience is the watchword!!!

Good luck to all and happy pumping!!

Old Man

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Age 90. Peyronies Disease at age 24, Peyronies Disease after radical prostatectomy in 1995. Heart surgery 2004 with three bypasses/three stents. Three stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries in the last 10 years.

newguy

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #9 on: July 22, 2010, 10:52:45 AM »

I'm sure a few guys have posted about VED improvements in other areas of the site. Maybe there is a psychological component to it too, where unless people experience spectacular improveements they aren't terrible excited about them.

Off the top of my head, I remember that the user JackieO experienced good improvements with the VED. Worth searching for his posts.
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cowboyfood

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #10 on: July 22, 2010, 11:08:15 AM »

I believe the VED mitigates peyronie's disease deformity.  Guys affected with Peyronies Disease who treat the condition during the "early stage" with the VED could be fighting an uphill battle during this stage, but this circumstance does not take away from the benefits of VED usage.

In other words a person who treats the condition with a VED during the "early stage" may notice no improvement and even a more noticeable deformity, "but it coulda been worse."  Once the scar "stabilizes," the deformity improvement would logically be more noticeable with continued VED treatment.

The above is based on my personal experience.
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newguy

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #11 on: July 22, 2010, 11:34:21 AM »

I believe the VED mitigates peyronie's disease deformity.  Guys affected with Peyronies Disease who treat the condition during the "early stage" with the VED could be fighting an uphill battle during this stage, but this circumstance does not take away from the benefits of VED usage.

In other words a person who treats the condition with a VED during the "early stage" may notice no improvement and even a more noticeable deformity, "but it coulda been worse."  Once the scar "stabilizes," the deformity improvement would logically be more noticeable with continued VED treatment.

The above is based on my personal experience.

Exactly. It's unfortunate that most men do have have access of knowledge of the VED (or oral treatments) in the very early stages of their condition. Like you say, it may make all the difference, even though those using such treatments may simply see the worsening of their condition and come tothe conclusion that the treatments aren't working (and possibly stop the treatments, which would be a mistake). It's a proactive approach and can make all the difference in my view. A stark contrast to some urologists with their "do nothing, just wait and see" advice, which hopefully is becoming less common nowadays.

I should think that in future there will be better understood and tailored treatments for those in the early stages and those whose conditions have left the active stage.
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jackp

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #12 on: July 22, 2010, 04:54:33 PM »

Why have no VEDers posted in the "Improvement" forum?

Probably they did like I did and posted my improvement in the VED forum.

I credit Old Man and the VED usage for my better than expected outcome with my penile implant. Now most good Male Sexual Function Doctors, not general practice urologist, recommend VED usage to help improve penile health.

My peyronies started in 1995 and I did not start using the proper VED exercise until 2007. In the year that I used the VED exercise and then after my implant I have gained back over 1" of penile length lost to peyronies.

It does not work over night it takes time and daily commitment.

Jackp
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ComeBacKid

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #13 on: July 23, 2010, 01:05:57 AM »

I think a lot of people saw partial improvement, as I did with pentox and the VED usage, some bigger improvement than others, and they simply don't take the time to write, and respond, life is hectic, and people are busy.  I've talked to a handfull of people seeing results using the VED or a stretching device.

Comebackid
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DannyOcean

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #14 on: July 26, 2010, 12:33:34 AM »

I hear you ComeBackKid but many people post here and across the other forums but almost no people post there.  It's disheartening for a newbie to come to this forum and see thousands of posters and then see only a few who have posted there of improvement (even though many others have posted elsewhere of improvement).  I think if more people posted there of (legitimate) improvement it would raise the hopes of others.  We could also do a better job of triangulating around what strategies actually work well.  Right now the only way to do that is to read all the forums and try to synthesize all that knowledge.  Many people don't have the capacity to do that.  By centralizing stories of legitimate improvement into a single forum I think we will accelerate the process of figuring out what does (and doesn't) work for fighting Peyronies Disease.

(Note: A lot of the inspiration for this comes from a popular CPPS forum which asks every user to post what has and hasn't helped them (in their opinion) with CPPS.  They display this prominently next to each user post and I think it's both educational and inspirational.  I'm not sure if the software here allows for such a thing but even if it doesn't, simply having more folks post to the Improvement forum would accomplish a similar aim.)
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luka-brasi

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #15 on: July 28, 2010, 05:28:53 AM »

I think a lot of people saw partial improvement, as I did with pentox and the VED usage, some bigger improvement than others, and they simply don't take the time to write, and respond, life is hectic, and people are busy.  I've talked to a handfull of people seeing results using the VED or a stretching device.

Comebackid

could be very well kid. i know that i would do other things rather than hanging around on such forums. no offense to you guys!
having fun out there and dedicate to the womans world more for example.

i think:

some just gave up
some have improvements and are happy to have their lifes back again
some will come back one day and report wether good or bad
some only read and do never post anything not matter what happens
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YMENOW

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #16 on: July 29, 2010, 05:06:56 PM »

The rules in red alone are intimidating....

It takes time and energy to do all that is required to post there....

ymn

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Angus

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The Improvement board
« Reply #17 on: August 01, 2010, 12:25:09 PM »

  Hawk didn't intend for the rules in red there to be intimidating when they were posted. Years ago the improvement board became a confusing, hard to read board with posts and replies that became almost impossible to make any sense out of. The rules were posted to help people realize what that particular board is for. I supposed the first time someone sees the rules in red that they might think that they're getting in to something they might do wrong with a post or something. We have tried for years to make that board easy to post in so we would have more people post. But for whatever reasons, people aren't posting improvement stories in the numbers that I feel are out there. Luka I think you have a good thought that some have improvement and are glad to have their lives back. We're dealing with a sociological issue... to those who have improvement and their lives back, visiting this board may represent bad, stressful times in their lives and coming back to read may trigger those feelings that they are free of. Getting a true sampling of how many men have improvement on a message board may be next to impossible. All we can do is encourage those with improvement to post there and hope they do.
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YMENOW

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #18 on: August 19, 2010, 03:57:59 PM »

Angus,

I just discovered your response today while reviewing the messages.  I perfectly understand what Hawk meant and it should be something others can follow. You are definitely correct 100%.  At the time I wrote that I was just beginning the VED and I didn't know exactly what I was doing. For that matter, I didn't know where to post when I first got-on. I know that I had remarkable improvement with the VED after several weeks and was very happy of the progress I made.   When I saw the RED.....I knew this is where I should post after the 26th week of Protocol. 

I also hope that more will post their improvements so that we can learn from them.

YMN


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joe

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Re: Why have no VEDers posted in the "Improvement" forum?
« Reply #19 on: August 23, 2010, 10:52:23 PM »

I plan to post my improvement from VED use when I finish the 26 week protocol.  I am currently in week 12 (almost halfway) and if today were the end I would be happy with the results.  The fact that I have over 13 weeks to go makes me very optimistic, so I'll post a mid-protocol update.

My curve before starting was bent up from the base at a 50 degree angle, with significant hour-glassing at the bend.  Similar to this illustration - http://www.bath-mate.com/images/peyronies.disease.jpg, although not quite as badly angled up.  As of today the angle of the bend is down to about 35 degrees, and I've gained 1/4 inch in length back from the 1 inch lost.  The most striking result is that the hour-glassing is almost completely gone, which was the worst part.  Now I feel that it just looks like I have a minor congenital curve upwards.

I was taking Pentox twice a day for 3 months before starting and also for the first 6 weeks of using the VED.  I stopped the Pentox about 6 weeks ago because I felt it was making me depressed..  I think it helped though because the greatest effect on the hour-glassing was in the first few weeks.  I haven't noticed any regression or felt the plaque was less pliable since stopping it.

I am looking forward to posting even more improvement when I finish the 26 weeks.  I am deeply grateful to the posters on this board (especially Old Man) for sharing their experiences so that I could find some relief from this condition.   :)
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james1947

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Posting VED related improvements on the Improvement board
« Reply #20 on: April 30, 2012, 08:45:18 PM »

I am reading the topic "Why have no VEDers posted in the "Improvement" forum?" on the VED board and I am asking myself the same question.
This question was asked back on July 22, 2010.

Almost two years passed and no one have a major improvement using VED alone or combined with oral and other treatments?

Myself sow improvement when I started VED (it was my only treatment) by gaining more than 1cm (approx 1/2") in one month.
It is not an improvement to post on the Improvement board, but I think that other members on VED for longer period may have improvements worth posting on the Improvement board.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

jackp

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Re: Posting VED related improvements on the Improvement board
« Reply #21 on: May 02, 2012, 06:46:32 PM »

James & Joe

There are many stories of improvement on the VED board. Old Man's, mine and many others.

There is a lot of good information there and worth doing some reading.

On my blog is a study about the VED to combat penile shorting for men scheduled to undergo a penile implant. A lot of that study is based on information found on this forum. In my case the VED protocol is one of the reasons for my better than expected outcome.

Jackp
http://jackp-penileimpant.blogspot.com/
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