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Author Topic: Starting Out  (Read 1000 times)

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mrmartini1999

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Starting Out
« on: May 18, 2019, 04:11:41 PM »

As I shared in my Intro, I am newly bent. I met with my urologist on 5/15 and am scheduled for a Penile Doppler on 6/5. I’m bent in two spots. At the base of shaft I have an indentation causing a downward angle and a dorsal bend of 30 degrees ¾ the way up the shaft. From the side it looks a bit like the letter S. My Dr is a Peyronies Disease specialist in my area. Numerous urologist refer their cases to him. He does use various approaches but I don’t have a clear picture yet what he does or does not agree with. Definitely molding, injections and certain surgical techniques are part of his normal repertoire. I want to see his position on VED and Traction. He did downplay Vit E and CoQ10.

I’ve started taking CoQ10, Carnitine, and L-Arginine. Also been doing some gentle stretching. More to come after the Doppler.

Question, please, how long should I be stretching per session and how many times a day?

Thanks!
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49yo, Peyronies Disease developed in Apr 2019, treating with supplements and stretching/traction.

NeoV

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Re: Starting Out
« Reply #1 on: May 18, 2019, 07:44:15 PM »

The longer you use traction, generally the better. Studies generally mention 6 hours a day. However, I get benefits even with a minute or less a day by hand.

Your urologist needs to make money, he will downplay all supplements and (cheap) physical therapies. Vitamin E likely won't do much, but thinning out the blood is useful in treating the disease and synergistic with VED and traction. CoQ10 works very well at, arguably the root of Peyronie's, which begins with dysfunctional mitochondria and glucose intolerance. That said, you can raise BOTH CoQ10 and vitamin E by fasting or low carb and consuming more cholesterol and fat along with exercise. Your body needs to know how to use fats at the mitochondrial level in order to defend itself from inflammation and all kinds of diseases. LDL cholesterol is required for CoQ10 production, and is not bad. A bad HDL to triglyceride ratio is definitely bad.

Personally, I recommend realistically a half hour or an hour of traction a day. But also just know that even a few seconds can make the difference between a good day with Peyronie's, and a bad day. Many good days = a recovery.

Bubba dawg

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Re: Starting Out
« Reply #2 on: May 19, 2019, 07:09:36 AM »

Let me tell you my experience. E helped me the most. So good softener. Sold in many cosmetics as a skin softener. More is not better when it comes to E. Ya it is a blood thinner. But thin blood does not necessarily help erections be strong enough to penetrate. Doctor recommended(mine at least)
CoQ10 did nothing for me but help me feel much better mentally. Studies show it helps with the painful stage of Peyrones. I have not found any literature where it would help get rid of plaque. I got NO benefit penis wise. I stopped using it. Just mixing all these drugs was making me uncomfortable. Just seemed to have a negative effect on my erections.
I got NO benefit from amino acids penis wise. Erections wise. Peyrones wise
I tried hand stretching exercises. This is long after treatment with Xiaflex. Maybe help with the 20% bend I still have left. All I got was inflammation of the base 25%. No much blood would pass through for an erection! Now I do have some calcification left. The base would just swell up when I started manipulating for masturbation or sex. I just don't touch that area anymore. I was lightly stretching
Hence the problem with recommending treatments. What treatment worked for you may cause harm or not work for others. Peyrones is so complicated. I don't have all the answers or any answers to it really that would fit everybody. My experience would not be everybodies experience or cure. Xiaflex helped me. I read on here where some got no benefit from Xiaflex. I did not get ewhat the doctor said--a completely straight penis. Calcification was not mentioned in the beginning
That is why I get so frustrated with members getting all excited with their results like it will work for everybody.  They should definitely do this because it works! Really hard to pinpoint what caused the improvement. Of course losing weight would help your over all health. I am in tip top shape. No diabetes. No over eater. Drink a lot of water. I still got Peyrones
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5 Rounds of Xiaflex. Good results.

I am known to give out false information and post nonsense with little to no evidence to back up my claims.
I have ignored several warnings. Further reports to the moderators or Administrators and I will be banned.

TonySa

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Re: Starting Out
« Reply #3 on: May 19, 2019, 10:40:32 AM »

Def start by reading the survival guide here before you return to your doc. Peyronies Survival Guide - Information for New Members - Peyronies Society Forums
For early peyronies a great treatment regimen would be pentox, low dose nightly PDE5i, with VED/traction.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

mrmartini1999

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Re: Starting Out
« Reply #4 on: June 05, 2019, 09:24:50 PM »

Had my ultrasound today. No visible scaring but the Dr thinks it’s there just too small to pick up in the scan. There is definitely reduced blood flow from fibrosis which he feels my 33yrs of being a diabetic is a main factor. My upward bend is 30%. He said if I really wanted to he could put a couple of stitches on the underside of my penis to straighten It out, but he doesn’t think it’s warranted. I told him surgery should be last option and I’d like to consider less invasive options.

We then discussed shots and molding but it’s risky due to the location of the bend being in a highly vascular and nerve dense area. I asked him about traction and he was aware of the studies. He said that is an option and could very well help with the plaque. He encouraged me to look at doing that. He’s had 1 patient over the last 5-6 yrs who used it and that guy did have success.most of his patients have more severe cases.  I asked if there was a medical grade prescription device but he said there wasn’t.

I felt he was being frank with me and wasn’t pushing me into a surgical option. The fact he knew of the traction studies and encouraged me to try them was very reassuring. He did say the fibrosis is what it is and likely won’t improve.  We’ll need to watch how the flow affects my overall erectile health so he’s now on my annual checkup cycle.

I’m going to continue with my stretching and look for a traction device I can wear at work and will accommodate my Frenum and Prince Albert piercings. Whether it will help restore the 1.5” (~4cm) of length I’ve lost is unknown. Worth a try.

Open to suggestions. Thanks.
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49yo, Peyronies Disease developed in Apr 2019, treating with supplements and stretching/traction.

lumineer78

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Re: Starting Out
« Reply #5 on: June 17, 2019, 06:48:39 PM »

I would recommend Restorex device as traction. You don't have to wear it at work for many hours, only 30-60 minutes a day. I haven't used it myself, but all I've read is wonders, and since you seem to live in the US, that might be your best shot.

VED I have been using it for 3 months and has helped a bit with size recovery, has helped definitely with erections, but not with plaque (mine is very old). Overall a great tool I would recommend to everybody, Peyronie's or not. Somaerect is a great device.

Definitely take surgery as a measure of last, last, last resort.

Try traction, VED, antioxidants, improving food, exercise, etc. There are many things you can try before more invasive treatments like injections (though there is some good studies with HA), but go for all of them before doing something drastic and good luck. You're lucky you treated it early.
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mrmartini1999

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Re: Starting Out
« Reply #6 on: June 17, 2019, 09:55:59 PM »

Thank you lumineer. I do like the restorex, it’s just a bit costly right now. Need to save some money for that. The VED I haven’t decided on yet though I’m leaning towards (pun intended) the bathmate as I can use in the shower. I’m open to other options I can use in the shower.
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49yo, Peyronies Disease developed in Apr 2019, treating with supplements and stretching/traction.
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