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Author Topic: Post Xilaflex and Loss of Length  (Read 1262 times)

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Rjljr

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Post Xilaflex and Loss of Length
« on: November 22, 2018, 12:47:13 PM »

My apologies if this is in the FAQ.

I've been away from the board since 2014. Saw a Urologist in Boston for treatment with Xiaflex in its early production.

I've been lucky and my curvature is gone but I lost about 2.5" in length and gained sensitivity which leads to PE. I can treat the PE with lidocaine products.

Anyone else lose length from the Xiaflex procedure?

Any recommendations on how to gain any of the length back?


Thanks for your support.
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TonySa

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Re: Post Xilaflex and Loss of Length
« Reply #1 on: November 22, 2018, 12:48:01 PM »

Traction and VED would likely be your best bet.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

JohnR

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Re: Post Xilaflex and Loss of Length
« Reply #2 on: November 22, 2018, 11:12:16 PM »

Funny you should ask...

My wife and have both noticed a loss of just over an inch. Was 7 3/4 before now 6 5/8" after 4 rounds of Xiaflex.

Another shot to the head in this battle... still ok but damn...
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50 year old, onset in Feb. '18, diagnosed in Mar '18, 4 rounds of Xiaflex completed, little improvement, mentally overwhelmed...Erectile Dysfunction issues, major anxiety issues now.
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