Greetings - just diagnosed

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sully

Greetings all - I was just diagnosed with Peyronie's a couple weeks ago, after seeing my primary doctor in April and referred to a urologist in early June.  I have no curvature (yet?), but indentations on top and bottom of my penis, about 1" in length just behind the glans, only noticeable during erection.  (Is this considered a minor case, or does everyone start this way?)  The plaque feels like a small marble at that area, and in a second spot slightly behind it, and can only be felt by pressing inward when flaccid or semi-erect.  My version causes a slight downward droop of the glans during some erections, from restricted blood flow to that area.

The urologist talked to me for about a minute, and examined me for about 30 seconds before snapping off his latex glove and announcing the diagnosis (which I anticipated from advance Googling).  I guess that quickness might be typical.  He prescribed Verapamil 8% cream, which I just received today from a compounding pharmacy.  I'm still figuring out the when/how of application, so I'll read up & research some more here.

The urologist said I would find all kinds of possible remedies online, but "none of them work" except possibly Verapamil (prescribed) and Xiaflex injections (which I don't qualify for due to lack of curvature).  I thought it was odd that he instantly disregarded so many treatment options.

Thanks for the resource, and I'll be participating more in the near future I'm sure!

sully

I'll mention I'm just shy of 40, and don't smoke, drink, or use any drugs.  I'm fairly active, and married with a great wife and generally active sex life (several times per week).  No trauma that I can think of that would have caused the Peyronies Disease symptoms, which my wife actually noticed first (on the bottom side) early this year.  The Uro had nothing to offer there, as far as possible causes.  I've had varying internal pain symptoms during erections/intercourse, but so far it's never enough to make me want to stop what we're doing.  ;)  Some minor ED issues that have cropped up are largely psychological on my part I believe, while I've gotten used to this whole unexpected thing.

LWillisjr

The reason they dismiss other options so easily is because there just aren't enough case studies to prove otherwise. There are some studies available but unless a particular urologist is keenly specializing in Peyronies they may not be aware.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
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