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New app for Peyronies self assessment - Details here



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DLM

Hey Guys,

I am a 47 year old that was diagnosed with Peyronie's a couple of years ago.  At first when I was fully erect, I would feel a bit of pain so I went to see the doctor.  He diagnosed me and gave me some pink pills (I forgot the name) which didn't do anything that I could tell.

A couple of years in and I have lost just over 2 inches in length and some girth.  Before this I was known for my appendage and now I am just average...I don't like being average.  How do you deal with the mental / emotional impact of this disease?

QuackAttack

DLM, sorry to hear you are dealing with this too.  On the bright side, if you were above average, think about all of those people who were at or below average in the same boat.  You might want to start taking magnesium, I go to Costco and get the big bottle of magnesium because it is the most cost-effective out there. Acetyl l carnitine is another good supplement. I am also taking Blockbuster All Clear which has serrapeptase and nattokinase.  All of which are beneficial for the circulatory system and blood flow. Look into traction and VED. While I am using a different traction device, I would suggest the phallosan forte because it seems to be the most comfortable one to wear, the least revealing, and the one that you should be able to wear for the most extended period of time.

Good Luck

walrus67

its strange, how a new member asks how to deal with the emotional and obvious depression attached to this disease...another senior member gives him a shopping list...of , you guessed it...mag bloody nesium..and a cock pump...!!
sorry man dont mean to make light of your situation but i believe the shopping list wasnt what you wanted or posted for...
but answers about emotionally dealing with it
do you have a supportive partner?  i'm sure you'll either know or find out...when YOU decide your course of treatment.....
be confident in yourself ,as a man, as a person...and not see or view your persona as just how big your willy is...it works when you 18 but if you look at it as a grown man ..is it really important?
as youve said 2inches loss making you average...hardly meant it was a knee strap job mate..be honest..? .give us some figures..
however as a Peyronies Disease sufferer myself i do understand that looking at your body...and not liking what you see is not nice
i do sympathise, but its about prioritising ..
im not a doctor pal....but many things effect different people differently
theres no answer on here for the emotional aspect of how this effects YOU....maybe the shopping list might help.....
maybe you should  go and see a surgeon...in the end it seems more of a self worth/esteem issue...many on here would jump at the chance to lose length girth ..but be functional....i somehow do not see you sucking magnessium , big jar obviously...for 2 years...and spending $349rrp on a cock pump...
stay positive pal...sounds like a roller coaster ride is about to set off...
good luck

Stabler

Good Morning DLM,

I have sent you a PM with some beneficial links throughout the forum, please have a look at them if you havent yet. It seems that with the loss of length and girth that you may not be following a proper treatment regiment. I would like you to make sure that the urologist you are seeing is one that specializes in Peyronies. Our list here in the forum is one that you should look at. it will make a huge difference in the treatment that you use.

This disease takes a physical and emotions toll on a man, this is not something you should try and deal with by yourself and that is why we are here. We have many members that can/will offer you sound advice, if you have questions about anything please ask. The first step in this disease is having a good urologist this will make the difference in how this disease will impact your life so please make sure you are seeking treatment from a Peyronies specialist.

Hugs,
Stabler67
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

kuaka

Yes, the emotional toll can be pretty high too.

Guys tend to be "physical" creatures though, and advice on physical things to "do" right off can also help with the emotional situation...because "doing nothing" only makes it worse on both the physical and emotional fronts.

Definitely my advice to someone first here is learn as much as you can about how a Penis works (when it works properly) and how your specific case of Peyronie's is interfering and what you can DO about it NOW.  It really doesn't take a lot of $ to get started...a home-made VED device can be put together for under $100 if you are resourceful...and the Mag supplements are not too much either.  There is plenty of experience here in how NOT to approach it, so staying on this forum and communicating with us is a big plus.

Definitely high on the list is a good URO with Peyronie's experience and skills though.

kuaka

QuackAttack

To all, I didn't mean to get people into a pissing contest about advice and who has been on the forum longer. I have taken the approach that doing nothing is the worst thing I can do because it can only get worse and doing research on what has been done clinically like traction etc. as a first round approach. I, personally, try to avoid the MD establishment and prefer naturopathic doctors. However, when the need calls, peyronies, for example, I go see the specialist, but I don't want him slicing and dicing me right off the bat. I have a long history of connective tissue damage and have been dealing with an elbow for 5 years that doesn't completely straiten because of pitching and catching too much, now it's time to seek surgical advice on that.

As for the emotional aspect of this condition, there is no way to advise on emotions because everybody has different emotional processes at play, so I offered advice that others are advising and I have been doing both before and joining the forum. I guess I'll try to advise less and cheer lead more.