Hoping for the best but preparing for the worst.

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Sparky4377

today, I received a third opinion from a urologist, and he essentially provided the same answers as the previous two urologists. he examined my penis, noted that he didn't feel any scar tissue, and I explained my symptoms: hour-glassing, mild deformity, and mild penile pain. I showed him photos of my flaccid, semi-erect, and erect states. He said everything looked okay. I mentioned a Doppler ultrasound (even though I was somewhat apprehensive about getting one, given stories I read that it could worsen people's Peyronie's symptoms), and he explained that an ultrasound and MRI would be pointless in my case unless I had a significant curve or deformity preventing penetrative sex. at this point, I'm essentially just monitoring the situation and continuing to take my vitamin E supplement, along with using a vacuum erection device (VED), which he suggested I should use for now; thus, I plan to purchase one. what can I really do at this point? I'm tired of dwelling on it, and I've decided to push through and hope my situation doesn't worsen. I can't imagine how others feel about their situations, based on the stories I've read; I feel fortunate that my penis still functions at this moment. if you're reading this and have been in a similar situation, has anything changed for the better or for the worse? did your Peyronise progress? I'm currently three months in and haven't developed a major curve or significant erectile dysfunction (ED). One thing I know for sure is that if my situation worsens, I would consider looking into surgical options or a penile implant. I feel quite optimistic about the implants based on the stories I've read. hopefully, they find another proven cure or miracle treatment for Peyronie's disease by the time (if my situation worsens). i appreciate every single one of you for taking the time to hear me out if you read this far, and I'm interested in anyone's opinions on how to move forward. We are all in this together, thank you!
24 years old, In a relationship, started noticing symptoms on July 5th, 2025, hourglass deformity, mild pain, hinge only when semi-erect, indent on shaft. slight curvature semi erect. diagnosed, ice, heat, and a healthy diet.

Mikel7

Is your Dr one that will work with you? Have you taken our survival guide and shown it to him? I am curious why he hasn't prescribed Cialis or something similar? An implant now is not something you should be looking at. Hopefully things will get better and not worse. Using s VED device will help and also looking into traction therapy if you are loosing size....
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Sparky4377


I have been trying to find a decent urologist who has a reputable reputation of treating peyronise disease. I seen on the forum you guys advocating for tom lue at UCSF which location wise is very close to me. I didn't necessarily show him the survival guide but talked to him about what was discussed on the survival guide and just turned down everything, I asked for a prescription low dose of Cialis 2.5mg but he said he wasn't going to prescribe them to me for the fact that I don't had ED. Thankfully I haven't lost any size, just dealing with some deformity and mild pain. I've noticed some slight curvature when semi erect (that is something new never been there before) hopefully doesn't progress.
24 years old, In a relationship, started noticing symptoms on July 5th, 2025, hourglass deformity, mild pain, hinge only when semi-erect, indent on shaft. slight curvature semi erect. diagnosed, ice, heat, and a healthy diet.

Ukguy1234



I started out very similar to you. Pain continued and eventually plaques started to grow unfortunately. I'm now about 6 months in. I bought a Restorex thinking it would help but there isnt any photo evidence (before and after) of it working for anyone, anywhere on the internet. Beyond anything incredibly minor.
34
In a relationship
Diagnosed with Peyronies
Symptoms started Jan 2025
Fibrous Bands, Lumps, Dents
0.5cm Lost Length, 25-30° Upward Curve
Started Restorex Traction July 2025
Pentox, Acetyl L-C, CoQ10
Taking a break from this website. Good Luck all.