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slidehammr

I discovered Peyronies Disease within the last year at age 69. I've had a long happy sex life otherwise and feel fortunate in that regard. I have about a 30 degree curve and some shortening. Seems like it happened rather suddenly. I'd always had some curve but I noticed that it had become more pronounced at the point I noticed some pain during sex. I've read about possible causes but can only speculate in my case. It's possible I sustained an injury without really being aware of it. I read on one of the medical sites that having plantar fasciitis (I do) might preclude Peyronies Disease but I don't think there's any proof. As long as my mind's right I have no problem attaining and maintaining an erection and the pain I had has diminished to the extent it's become manageable. The curve makes penetration difficult and shortening definitely took away some of the fun.

I saw a uro about a month ago. No cure, he said. He mentioned collagen shots at about $22k and gave me a pamphlet for a topical, H100 gel, that is used in conjunction with stretching. $700 for that and there's allegedly some success with that so he said. I've tried vacuum. Not much to report. I'll check around the forum and see what I can find. Best to everybody!
To add, symptoms are curve, 30 dgrs, minimal pain during sex, some shortening. Erection depends mostly on mental state at this point. Been married about two years. Sexual relationship is good.

Hawk

Welcome to the forum Slidehammer

Quote from: slidehammr on February 15, 2021, 10:07:22 AM
I saw a uro about a month ago. No cure, he said. He mentioned collagen shots at about $22k and gave me a pamphlet for a topical, H100 gel, that is used in conjunction with stretching. $700 for that and there's allegedly some success with that so he said. I've tried vacuum. Not much to report. I'll check around the forum and see what I can find. Best to everybody!

Stay away from that urologists.  Collagen shots are not a treatment for Peyronies Disease.  The only injections worth trying are Xiaflex, which breaks down collagen.

First, make sure you read this carefully.  https://www.peyroniesforum.net/index.php/topic,3180.0.html
next, it would help to know if you are in a long-term relationship. Do you have medicare and any supplemental insurance?

I am about your age and wasted a lot of time, effort, and money trying most treatment, so I will fast -track this conversation to reality.

Honestly, being new to the forum and Peyronies Disease, my next statement will likely shock you, but at your age, I would opt for a 1 hr outpatient surgery that will have your penis straight and no concerns about Erectile Dysfunction now or in the future.  I would get a 3 piece inflatable implant from a very highly rated, high volume surgeon.  With the right surgeon, you will be having sex within 3 weeks, and Medicare covers it. To me, the alternative is to fart around for 3 or 4 years trying different things that might or might not give you some improvement.  It is just as likely to give you nothing but lost time and more loss of size.  Some other procedures are likely to diminish erections, and at 69, just age in the coming years is likely to have some adverse effects on erection.

I would immediately start using a VED and/or traction to restore as much size as possible before any surgery.  Maybe that will give acceptable results, but since Plantar Fascitis and DC both have a known connection to Peyronies Disease, you would likely be facing an ongoing situation that there is little point in wrestling with at this point in life.

Please read this topic https://www.peyroniesforum.net/index.php/topic,10974.0.html
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Tortão Pra Direita

I respect Hawk's opinion, but I wouldn't jump directly to the implant option.
You have no erectile dysfunction, and your curvature is not severe. There's no need for an implant in your case.

You can explore other options, like traction and VED.
An implant is not the answer for every penis problem, principally the light ones.
1993 born. Brazil.
Peyronies since Sep 2019.
Penis developed curvature, lots of plaque, loss of size and axial rigidity. Severe peyronie.
Mar/21 TEP + Titan Touch 20 cm + 1.5 RTE.

Surgery done by Dr. Marco Tulio Cavalcanti, in São Paulo.

Hawk

Quote from: Tortão Pra Direita on February 15, 2021, 11:04:36 AM
An implant is not the answer for every penis problem, principally the light ones.
This is what is known as a literary strawman fallacy.  You counter an argument that was never even suggested rather than addressing the actual issues under consideration.  

Of course, an implant is not the solution for most, much less all penis problems.  But after close to 20 years of experience with Peyronies Disease and founding this forum, having tried the majority of solutions. Understanding that implants have (by far) a higher satisfaction rate than any other solution, there are clear situations where it is the best choice.  I think this is likely one of those situations.  For most men who have some Erectile Dysfunction (he suggested, he sometimes has less than optimal erections) has Plantar Fascitiand are 70 years old, it is nonsense to spend 3 or 4 years with failed attempts and risking greater loss only to end up needing an implant.  A person my age only has so many years they want to fart around while things get worse.

I did suggest "VED and/or traction" while he considers surgery.  That will give time to see if these alternative treatments are going to be a solution.  If these don't work, then his only other non-surgical solution would be Xiaflex injections, and I think any 69-year-old man with Peyronies Disease and some signs of Erectile Dysfunction would be a fool to waste time on Xiaflex.
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

FlatteningTheCurve

Quote from: slidehammr on February 15, 2021, 10:07:22 AM

I saw a uro about a month ago. No cure, he said. He mentioned collagen shots at about $22k and gave me a pamphlet for a topical, H100 gel, that is used in conjunction with stretching. $700 for that and there's allegedly some success with that so he said.

Based on my understanding of what most uros recommend, this sounds like a scam. There is scant if any scientific evidence of H100 gel or any topically applied medication improving Peyronies Disease in a group of individuals. Anecdotal evidence from a few individuals, sure, but nothing other than this. And they are all very expensive.

VED, traction and a few prescription drugs/supplements may lead to a gradual improvement over time and that might be a good bet for you. If not, then the suggestions regarding Xiaflex injections or surgery/implant are also good options. The combination of Xiaflex and traction is apparently very good, that is what I would go for if it was available somewhere close by.

I've also shared some links before to what regional urology associations have agreed on as being effective treatments for Peyronies Disease, you might want to give those a read: https://www.peyroniesforum.net/index.php/topic,14782.msg133161.html#new
Early 30s, diagnosed with Peyronies in 2017 after trauma during sex. ca 15 degrees upward curvature. Restorex, VED, 5mg Cialis, Pentox, L-arginine, Coq10, Propolis, Vitamin E. Underwent 12 rounds of Verapamil injections 2021-22

Hawk

I agree with everything FlatteningtheCurve said in his excellent post.  I do think some of it needs additional explanation. I had missed the H100 comment in your post, so I am very glad he addressed that.  I would not spend a dime on H100.

I want to cut and paste the information he referenced with the link to add some additional info.

I added my comments in red.  I think once you study these options, you will see why I suggested VED and Traction while simultaneously scheduling a consultation with an outstanding implant specialist.  If you are fortunate enough to get correction from the VED/Traction, you would know that before surgery. An implant by a great surgeon is over 95% successful and will likely restore at least some of your lost size and give you unstoppable "erections".  No tissue is removed.  The sensation is the same.  The implant is not detectable in the erect penis. Outpatient surgery taking 1 hour or less plus recovery, sex as soon as 3 weeks.

Some key takeaway points: (I added the comments in red)

Scientific evidence of improvement of curvature:
P-5 Inhibitors;
CCH injections; ( collagenase Clostridium histolyticum (same as Xiaflex) - you might have mistaken this for collagen injections.  About a 21% of men get improvement but very costly. often cause moderate trauma to the penis)
Interferon a-2b injections;
Verapamil + Diclofenac + Antioxidants combination injection; (Have followed multiple studies on this for a decade, and there are almost as many cases that worsen as improve)
Traction therapy, esp in combination with the above-mentioned injections;
VED, esp in combination with the above-mentioned injections; (There are medical WARNINGS AGAINST using VED with these injections since it will likely cause additional bleeding and swelling)
Plication Surgery (Usually works but shortens the penis and is somewhat out-dated)
Grafting Surgery;( Good results for many., suitable for young men with vigorous erections but frequently can cause Erectile Dysfunction requiring additional surgery for an implant)
Implants (Highest patient satisfaction rate of any treatment)


No scientific evidence of improvement of curvature:
Vitamin E;
Topical Verapamil;
Topical H100;
Botox;
ESWT (except in terms of pain reduction);
Radiotherapy
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums