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Author Topic: New forum member, starting treatment  (Read 1208 times)

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hoping for healing

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New forum member, starting treatment
« on: September 27, 2017, 02:43:25 AM »

I'm a nearly 51 year-old white male, just diagnosed with Peyronie's in August 2017, now having clear symptoms for about 5 months.    My urologist diagnosed a 22-23% curvature, and there's still quite a bit of pain with penetrative sex last time I was able to do it earlier this month.

From what I've read here and elsewhere I've had some prior conditions which may (or may not) in some way be related to the development of Peyronie's: possible minor trauma such as slipping out during sex, and a fairly recent tendency for my body to respond to injury with excessive fibrotic tissue (I have a keloid from minor surgery and an odd lesion on my leg this year that one dermatologist thought could be a dermatofibroma). 

This August I was diagnosed with Peyronie's when my urologist noticed a plaque and suggested Vitamin E once daily.  Then this month a different urologist offered oral medication with option for injections due to worsening curvature.

Psychologically it was increasingly difficult at first when I realized Peyronie's may prohibit penetrative sex at some point if it continues to worsen.  My wife, however, is very understanding, and said she would be happy with the situation however it turns out, we can just enjoy what we can in bed. 

My meditation practice has helped me cope as well, as it helps put things in perspective.  In a way, having chronic non-bacterial prostatitis/pelvic pain syndrome and hematospermia for the past 2 and a half years already undermined my hope for my previous relatively trouble free sex life, so at times Peyronie's seems to be just one more strange and disturbing part of a larger and hard to explain puzzle.

Not sure about asking for Pentox due to something I read about it's potential for chest pain as well as bleeding issues, as I already have hematospermia and occasionally have had some minor chest pain, possible due to stress, but perhaps will just set aside these concerns, or at least discuss them with my doctor. 

 I am considering the possibility of injections.  Very much would like to avoid surgery though I'm concerned that the curvature is worsening.  Hoping for the best, but sort of preparing for an unpleasant further progression of this condition.     



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Jonbinspain

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Re: New forum member, starting treatment
« Reply #1 on: September 28, 2017, 02:46:09 AM »

If you have any kind of chest problem Pentox may well not be for you.

I would firstly investigate the sections on VED and traction. VED will help maintain healthy blood flow and also helps maintain erection quality. Traction, used regularly, will help mitigate any curvature.

You should also look at the oral supplements. ALC,  citrulline Malate, ubiquinol, etc.

Surgery is the last resort when all else has failed and you either cannot enjoy normal sexual relations or cannot live with a bent penis.
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hoping for healing

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Re: New forum member, starting treatment
« Reply #2 on: October 27, 2017, 01:17:04 AM »

Thank you for the response.  I'm just getting stabilized at 3 400mg pills daily of Pentox.  The first week I could only do 2 pills a day comfortably, but 3 has been ok for the last two weeks.  I will look into some of the other oral meds you mentioned.  Not sure about the VED as erections are strong, just curving and still sometimes painful to a minor to occasionally moderate degree. 

Not sure if the curve is better or worse right now but the pain does seem to be lessening overall since I started on Pentox (no chest pain/heart rate side effects, only perhaps a small trace of digestive system effects sometimes).  There does seem to be some more blood flow down there, too, with greater girth.  I have had peripheral blood flow problems before so maybe this med will target a systemic problem that may have contributed to Peyronies. 

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kuaka

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Re: New forum member, starting treatment
« Reply #3 on: October 27, 2017, 09:45:55 AM »

Fibrosis is also indicative of magnesium deficiency.  This can be caused by excess unbound iron (iron supplements are not a good idea) combined with insufficient available magnesium intake.
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hoping for healing

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Re: New forum member, starting treatment
« Reply #4 on: February 07, 2018, 10:32:37 PM »

Update. 

Well, I took a course of Pentox 400mg 3x daily since October 7 and it doesn't seem to have helped.  My upward curve of 22-23% has increased to around 40% with a rightward bend as well without any signs of stabilizing yet.   

I discussed the range of options with my urologist last week--either several verapamil injections or 2 Xiaflex injections with a third appointment for remodeling which I would continue at home.  Since I haven't stabilized yet he ruled out surgery for now.  He doesn't get involved with traction but suggested not to apply too much weight if I go ahead with it on my own (he said less than the weight of a phone book). 

I'm continuing Pentox for now in the hope that it might work with traction (as per Dr. Levine's protocol that I've read about), or in case it just happens to start working with a longer dosage.

I'd appreciate any advice on traction devices in particular since I'm a little reluctant to have injections due to possible side effects. 

Best to everyone dealing with this!
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TonySa

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Re: New forum member, starting treatment
« Reply #5 on: February 07, 2018, 11:15:27 PM »

Consider low dose daily cialis or viagra.  ESL40 traction device is inexpensive, penimaster pro well regarded and expensive, newer restorex even costs more but purports only needbto wear 60-90 minutes per day.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte
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