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unkownCause

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Peyronie's similar symptoms
« on: September 04, 2017, 05:45:44 AM »

Hey guys!

I've been reading this forum for quite a while now but I never registered to tell my story, because I always felt that my problems are not caused by peyronie's. I finally registered because I don't find any good information on the internet and I know that you guys here have a lot of knowledge. So let me tell you my story.

About 5 years ago, I had pain in the glans of my penis, so I went to an urologist and he found some bacteria in my sperm. I was given antibiotics, but the bacteria just didn't go away. In total, it took 9 months of using different antibiotics until my sperm was finally free of any bacteria. During these 9 months, my symptoms that last until today began.
First of all I felt that my penis started to shrink and get hard in flaccid state (hard flaccid). Then one night while I was lying in bed, I felt something like a sharp pain on the left side of my penis. A few days after this happened, I realized that my penis bent a little bit to the left side (also in flaccid state). A few days later, I started to have ED.

I immediately visited a urologist but he didn't feel anything and also he couldn't see anything on the ultrasound. However, he said that it may be peyronie's and prescribed me Potaba, which I took for 6 months (without any improvements).
I went on with my life, because at that point my ED was not too bad. I still went to the doctor and he made a Doppler of my erect penis (he saw the slight curvature to the left but didn't see a cause for it). He recommended me to do a Iontophorese, which I did (it didn't help).

My ED started to become worse and since me and my doctor didn't know what else to do, I took cialis daily for about 1 year. It helped my ED but nothing else. I tried to forget about the disease for about 1.5 years, until about 6 months ago I decided to treat it again.

I read a lot in this forum and I started to take pentox, arginine and some other supplements. But to this point it didn't really help (it helped a bit to reduce my hard flaccid).

I've been to two doctors again and they couldn't see anything on the ultrasound. In 3 days, I'll have an MRI and I'm really hoping that this will finally find the cause.

So let my summarize my current symptoms:

-hard flaccid penis (it is better when I'm lying or sitting or when I need to urinate.. worse when standing)
-slight curvature to the left.. visible in hard flaccid state.. not so much visible when erect (however during an erection it feels like a small gap)
-the spot where the curvature is hurts, especially after an orgasm
-I believe to feel a string where the curvature is (not sure though)
-strong ED... Only able to get a proper erection with arginine

So I'm really wondering what might cause my problems.. I thought about hard flaccid and pelvic floor tension but that doesn't explain the curvature and the pain at the spot of the curve. (I still ordered the therawand to do pelvic floor massages).
I don't really think it's peyronie's because after 4 years, there should definitely be some calcifications visible.
It might be an injury but I think that an injury should already have formed a scar which should be visible on the ultrasound.
Finally, I thought of cavernitis (because of my infection).. However, I think that cavernitis should also be visible on the ultrasound and I didn't have other symptoms of a cavernitis (I didn't have fever during the infection).

So I'm really frustrated right now and I really hope that you guys maybe have some good advice for me. Other than that, I'm waiting for the MRI in three days.

Thanks for your help already. 
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Tychy

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Re: Peyronie's similar symptoms
« Reply #1 on: September 04, 2017, 10:51:08 AM »

Interesting. We have some similarities except the infection (was tested clean multiple times).
I do have symptoms of a painful urethra, but they almost resolve everytime I'm completely blocking out stress and get worse when having more. Also it's not sensitive to pressure at the point where it hurts. And I'm having this issue for almost two years now, bacteria would have gone mad in that time. That's what I feel is the signature symptom of my CPPS. What I've read about Cavernitis is basically a heavy inflammation with swelling, pus and fever. That is not something that goes undetected.

I can't get my head over the flaccid curvature. It's not that common for peyronies. I have those cords since my teens and after a injury the curvature developed and the cords run exactly through the site I'm feeling plaques. I had a thrombosed anal vein that was extracted and most likely caused by pelvic floor hypertension.
No calcification on my ultrasound, too.

Please update with the result and what kind of MRI they are doing (contrast, induced erection, etc).

Regarding Therawand, if internally start slow. Use your fingers first. Use silicon lube or Vaseline. Don't hit the spot between 11-1 o'clock. That's your prostate and too much pressure there may do more harm than good (especially when starting).
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unkownCause

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Re: Peyronie's similar symptoms
« Reply #2 on: September 04, 2017, 11:37:31 AM »

Thanks for your reply! I'm also pretty sure that cavernitis cannot be the cause for the symptoms. Also I can't imagine that our symptoms are caused by Peyronie's since we should definitley already have some calcifications after such a long time.

How is your EQ? Are you still able to get a decent erection without any supplements?

I will keep you updeted on how my MRI goes.

Concerning the therawand. I've used it some times already and in some spots (between 11-6 and 1-6) it was quite painful. I'm not sure if those were trigger points though. What about the 6 o'clock spot? Whenever I go there, I'm feeling huge pain, but I think it's just because I'm applying pressure on the urethra.
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Tychy

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Re: Peyronie's similar symptoms
« Reply #3 on: September 04, 2017, 12:58:04 PM »

My EQ is good when using extensive stimulation and cialis. But it's difficult to start and will go down soon after stopping stimulation. I'm in nearly two years and still have changes to curvature.

Eh, the clock goes like looking through your body down. Your tailbone is 6 the penis is 12 the right leg is 3. Urethra should be internally dead on 12, as it goes through the prostate. My trigger sites are right and left of the prostate (10-11 and 1-2). Those will radiate through the tailbone into my lower back (same pain I previously attributed to hemorrhoids).

Edit: pain is better every time after sleeping and will go worse until I'm tired again.
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unkownCause

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Re: Peyronie's similar symptoms
« Reply #4 on: September 04, 2017, 03:34:42 PM »

Oh thank you, seems I looked at the clock exactly the wrong way. Do you know if it's normal to feel some pain in the regions 11-6 and 1-6? Or does pain in certain spots mean that these are trigger points?
I'm not sure if the spots where I'm feeling pain are really trigger points. I thought, once I found a trigger point, I'd know for sure that I found one.
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Tychy

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Re: Peyronie's similar symptoms
« Reply #5 on: September 04, 2017, 05:52:33 PM »

Trigger points refer pain and lead to twitching of muscles. This is the major sign.
I once found one in my anus (externally). When I pressed on it, I nearly passed out on the toilet. It wasn't the pain, but more of a syncope. So they will produce strange sensations.

I don't know how much pressure you are applying, so I can't say if it should hurt. The wand is really punctual. Try to use your finger first. Apply only so much resistance as you would do to check for a well done steak first times you do this. And cut and smoothen your nails or use a glove.

Don't hit 6. You don't want tail bone pain.
Hold the pain site for 10-15 seconds while breathing deeply. Increase pressure a bit if pain is gone, breathe for 5 seconds then release.

I suppose there should be no pain at all in there. The rectum has no pain receptors directly. Only the muscles and skin of the anus and the prostate and bladder.
Ever strained a muscle? If it feels like this it's okay. Sharp stinging pain is not.
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unkownCause

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Re: Peyronie's similar symptoms
« Reply #6 on: September 05, 2017, 03:52:02 AM »

Okay thank you! I don'tthink that I found a trigger point then, because all pain I had was sharp stinging pain. And it didn't feel relieving.

Also I'm still not quite sure if my symptoms are caused by pelvic floor tension. I rather think that the main cause of my symptoms is the spot where my penis bends to the side. So I'm really hoping that the MRI will identify whatever is causing my curvature.

Btw: I posted in another forum as well and the guys there said that curvature is a common symptom of Hard flaccid/CPPS. What do you think about that?
I have trouble understanding, why pelvic floor tension should cause a curvature and pain in the spot of the curvature.
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Tychy

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Re: Peyronie's similar symptoms
« Reply #7 on: September 05, 2017, 10:49:06 AM »

Also hard flaccid sufferer, though it is a bit better now with stretching and magnesium.

If one corpus has less blood inflow due to cut off arteries in the pelvis, the penis can bend. It may be possible. Can you drop me the link to the other forum by PM?
Edit:nvm, found it ;)
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