New Club Member

[Manasseh33]

Looks like I get to join a new club!  Not ready to put it down on my resume yet but a member and now a poster as well.  I am 45, married, one child and a few weeks ago I felt something funny/different w/my penis but didn't think much about it at that time.  About week later I decided to pay some more attention and checked it out and said (*(%)_#.  Now last time I was concerned with that area my 3rd testicle ended up being just a hernia but this one doesn't seem so easy to fix.  Started studying all the information I could locate and viewing/comparing pictures, etc. and decided, yep, must be Peyronies.  Shortly after ordering and getting setup with the recommended orals from Trental to Vitamin E I noticed another gift.  After starting w/a simple nose dive at the end of my penis (please forgive me as I don't recall the particular terms I have seen describing this form) now I have a wonderful bend right at the center.   Though we haven't had the time yet to discuss in a lengthy conversation I explained the situation to my wife as I certainly didn't want to fall into that trap of not communicating, hiding it from her and her trying to figure out why had withdrawn from the relationship.  I believe she will stand by me and support me (of course she is a woman so I really don't know) and due to this new found insecurity I did let her know I'd understand if she wanted someone else but just asked her to let me know that's how she felt before acting on it.  No.  I have not had a doctor's diagnosis though I am lucky enough to be near Dr. Milam at Vanderbilt University and should I not be able to have sex at 18-24 months I'll be calling him about an implant.  I've seen where you recommend to always get a firm diagnosis and treat aggressively and although I am treating aggressively and looking for a traction device now, I don't see much hope of improvement with or without medical supervision.  (No, I don't like going to see doctors and the time & money it takes)  I am grateful to find this forum though and for those that post herein as yep, much more of an emotional roller coaster than I thought at first.  And besides that, it really sucks.  I live in the Middle TN area.  Oh? A little heath back ground?  I've worked out 5-6 days a week for the last 20 years and have routine blood work done with all my recent blood work coming back good.  (prior to that test and due to a family history my triglycerides have always been higher than they should be) Other than the typical aches and pains I thought I was doing good but evidently not so much.

[QuackAttack]

Well brother, I would say welcome to the club but it isn't a club that anyone would choose to join.  Go to Costco and get the Magnesium Citrate in the big bottle. Take at least 1000 mg per day. That is the least expensive route for Mag. As far as traction devices, I have a Size Genetics and have been using it for two months and have seen about 5 degrees of improvement. Not the most practical thing to wear. I plan to get the phallosan forte which looks much more comfortable and you can wear it for longer periods without cutting off circulation to the gland. I would go to a doctor while you are in the active phase because if the doctor is good they will do more than a wait and see approach.  You don't want calcification to take place without trying to attack it actively.

Good luck,
John

[kuaka]

Start here.

https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html

A humorous and informative talk on penis anatomy.  This will help you understand what is happening, by understanding how it is supposed to work.

http://www.ted.com/talks/diane_kelly_what_we_didn_t_know_about_penis_anatomy

Dr's members here have experience with.

https://www.peyroniesforum.net/index.php/board,37.0.html
https://www.peyroniesforum.net/index.php/topic,4063.0.html

Dr's who have published papers in this area of expertise.

http://expertscape.com/ex/penile+induration

Another external source of expertise.

http://www.peyroniesassociation.org/

Nutritionally, the Magnesium recommendation is good.

This condition has many varieties, and what works for one may not work for you.  Don't despair if you don't have success right away.  Patience is key.

Traction and VED (Vacuum Erection Device) are both tools in this battle.  Old Man is the resident VED expert.  In either traction or VED, caution is important.  Introduction of "new" injury will only make things worse.

Good Luck,

kuaka

[Manasseh33]

Well brother, I would say welcome to the club but it isn't a club that anyone would choose to join.  

[Full quote edited by admin]

——— Think you Sir.  Not near a Costco but looking for the Magnesium Citrate now and I will have to take a look at the Size Genetics & phallosan forte as I was a little overwhelmed with all the information and different sites when searching for those devices.  (Seems I got a lot of info but not so many choices on devices)  I did go ahead and order a pump/I forget the abbreviation used on the forum but at least I'll have that in the interim while deciding on traction devices.  

[kuaka]

Please read and follow forum rules concerning full message quotes.  If you are replying to a specific part, a truncated quote is acceptable, but otherwise please use the "Reply" button at the top and bottom of the page rather than the "Quote" button.  There is a lot of traffic here, and full quotes really burden the system and those reading.

kuaka

[Manasseh33]

Thank-you for the message on posting. I investigated a little further as I didn't follow what you & the guidelines were/are referring to on the "reply" button but do now.  Seems my Mac using Safari and/or Chrome as NO "reply" "mark unread" etc. tabs/buttons while IF I log in with a Windows machine I have such an option.  
I'll remain a lurker from now on since I can't post properly with any of my Apple computers.  

[gringoviajero]

Get to a Peyronie's specialist a.s.a.p.  If you put it off, you'll have no one but yourself to blame.  The earlier it's diagnosed and treated, the greater the chances of limiting, if not reversing, the damage.  Ask on this forum for a recommendation; this is an invaluable resource.

Forget all this stuff about traction and VEDs and meds until you see a doctor, a doctor with experience and proven expertise in this area.  One way, what I did, is to call U.S. Bioservices and ask them for the names of doctors in your area who have used Xiaflex.  They can tell you how many referrals the doctors have had.  You may have to cajole them, but they have the data.  Go to a doctor with the biggest numbers, hopefully more than 50.

This is not a disease to take lightly nor about which to procrastinate.  The earlier you start treatment, the better your chances.  I was misdiagnosed and went 2 years before seeing a Peyronies Disease specialist.  Don't put it off.

[LWillisjr]

Forget all this stuff about traction and VEDs and meds until you see a doctor, a doctor with experience and proven expertise in this area.

I agree with not procrastinating. But quite the opposite view regarding treatment. Investigate VED's and traction. I encourage you to see a Peyronies specilist, but don't wait to start some type of treatment for yourself.

[walrus67]

ive just had implant surgery pal...if you want to know my story...just ask