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New app for Peyronies self assessment - Details here



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dscr17

Hey everyone I'm new and I'd like to share what got me here. About three months ago I started feeling pain while urinating and when I had erections they were bent upward and a little to the left.  It could've been because I was rough during masturbation but then I remembered that my inexperienced girlfriend came down on me hard while on top one time. I recall that my prior girlfriend commented on my penis being slightly curved but I thought nothing of it since it was always like that.

Currently I don't have much pain and for some odd reason my erections seem straighter sometimes. Overall I don't get morning wood anymore and my erections are softer. I have my first appointment with a uro on the 25th of March, I just hope he is current on the research and therapies. After reading many of the posts and googling VED and traction devices I think I'll give one of those a shot if my insurance covers it. If not I'm not sure which one to buy since some of you have gotten results from either and others from using both although I could only buy one.

I have tried to stay positive throughout but sometimes my faith in a cure falters especially for a disease that's so little understood. I do think we're all lucky to have this forum and each other to fight through this damn thing and I'm glad that we have such a great a support system of knowledgeable men.

Thanks for reading.

Jonbinspain

The first step is to get a diagnosis. Once you know what you're dealing with, you can look at the treatments most highly thought of.

I would suggest that you read all you can on the forum to acquaint yourself with the disease. IF you are diagnosed with Peyronies you must make sure you are seeing a competent Uro. Unfortunately, their are a high number of Uro's who either have very little knowledge of this disease, or don't seem to take it seriously. Don't be fobbed off with Vitamin E and "let's wait and see how it goes"  Waiting is the worst thing you can do with Peyronies.

dscr17

Jonbinspain,

You're right I should wait for a proper diagnosis.After combing through the forum I'm prepared for the worst. There seem to be enough success stories here that at the very least I can see myself slowing or stopping the progress and anything after that is a bonus.

Thanks for the advice and I'll continue looking through the forum.

james1947

dscr17

Just don't look too long before getting diagnosis and start treatment :)
Early treatment, better chance to arrest this disease.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Jonbinspain

Hey;

Hope your appointment goes well. If you are diagnosed, come back and tell us what the Uro recommended etc, and we'll do what we can to help from there.

dscr17

Hey gentlemen,

This was my first appointment with a Uro and frankly it seems I know more about Peyronies Disease than he does.   He did a checkup but could not feel any plaque and then told me there were no medications for it. I asked about the pentox but the spiel was that there is no evidence ANY medication does anything. I asked for an ultrasound yet because he couldn't feel plaque apparently that would be useless. Yep he had a wait and see attitude, basically if it gets worse he mentioned collagen shots or surgery
as treatment.

Here's the kicker, when I asked about the traction device he advised against it, telling me it would aggravate the area. Needless to say I'm deflated but  I did make an appointment with another I Uro for early April.

Well at this point my dick seems pliable while it's healing so if I can't get the medication I'm willing to try VED or traction therapy. I want to be as aggressive about this as possible but for now I can probably afford a 1 cylinder pump or a traction device, not both. I've checked the forum and both devices have their pros and cons, I guess I'm leaning towards the traction therapy.

At three months in, would traction be the better option? It just seems more of the guys here are using that. I could be wrong though. I know this is just the introductory section but Jonbinspain and James, if you could steer me on the right path I'll ask any follow up questions on the appropriate board. Thanks   :)


Jonbinspain

Yes, unfortunately, there are far too many Uros like the one you've just seen. No palpable Plaque does NOT mean that you don't have Peyronie's disease.

Until you get to see the new guy, I would start with ALC, Citrulline Malate ( both available in poder form and easily dissolvable - and far cheaper than capsules) CoQ10 and possibly low dose Cialis.

As to the medical evidence re Pentox, I suggest you download and print off the links to the evidence here in the site. Far more knowledgeable Urologists have been prescribing it for some time.

VED or traction?  Each has its advocates. I bought the Andropeyronies device ( not a good idea) it's uncomfortable and not easy to keep in place. Most traction devices will restrict what you can do and wear whilst using them - which needs to be several hours a day to obtain any results. VED you can do what's required in half an hour a day. As I say, they both have their advocates as to efficacy. I have now switched to VED.