Introduction and a question or two

[Oscarj]

Went to a doctor today who said that Pentox could no longer be prescribed. Any idea why this is so? I used potaba years ago, and it arrested the problem. Otherwise, the alternative is the new injection. Any idea on the efficacy?

[james1947]

Oscarj

I split your post and moved here to have your own topic on this board, other members may answer you directly.
Can you get the Pentox by ordering online in your country?
If yes, here is a source myself and other forum members are buying from:
https://www.riverpharmacy.ca/index.php
I am also proposing you to read what other forum members are doing to treat they Peyronies.
Read also:
Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

James

[Oscarj]

Sorry for the delayed response, but life has been hectic.

Many thanks for this. I have read the survival guide, and was wondering about a few things.

I am taking the CO-10Q, Arginine, and Carnitine, along with PABA and Potassium (to some degree trying to replicate the Potaba benefit from years before). I am unable to have the Pentox sent to my home, as I live in Japan.

Is Pentox sold only on a prescription basis?

Why was my doctor not able to prescribe it? Is there an issue with Pentox so that doctors will not prescribe it?

It has been three months since the most recent onset, and whilst the pain has diminished - and does not appear to be worsening again, is it too late to start with Pentox? I have read the various papers, and am unclear as to whether there is any reversal of symptoms.

[nemo]

He could have been making excuses because he simply doesn't want to prescribe Pentox.  I don't know the laws in Japan, but there's nothing new going on with Pentox I'm aware of that would prevent it from being prescribed for Peyronie's treatment.  

Nemo

[Oscarj]

I am a middle aged-male with a recurrence of Peyronies. I first had it in my early thirties, indicating with a bend and painful erections. I saw a specialist who prescribed Potaba, which I took for a number of years. The Potaba eliminated the bend, but there was still tapering and a bit of hourglassing. Functionally, I was OK, although somewhat diminished - as it were.

About three months ago, it started again. There is no trauma, so it appears to be unrelated to accidents. My GP declined to prescribe Pentox during a December visit, and am trying to figure out what best to do.

Also, I have seen a statement that there is a higher risk of Peyronies with blood type A Positive. Has anyone else heard of this. I am A positive, and if this is the case, there would then appear to be a genetic component/predisposition to the disease/syndrome.

[nemo]

I agree that there's probably a genetic predisposition to Peyronies Disease, but I've never heard the "Type A" theory.

I would suggest that life is too short to stick with a Uro who's either ill-informed or for some other reason unwilling to prescribe Pentox. It's the best pharmaceutical option we have at this point in history - I think you're doing yourself a disservice by not finding a more knowledgeable Uro (they are not known for their helpfulness when it comes to Peyronies Disease).  

Best,
Nemo

[james1947]

Oscarj

I merged your two topics as everyone get one topic in the introductory board.
Write a PM to NeoV. He is living in Japan and maybe he knows how to get Pentox there.

James

[NeoV]

You cannot get Pentox in Japan, and you never could. So he is not lying to you. Seeing urologists here sadly is a waste of time, even the guys at Omori / Tohoku University Hospital. They are likely to give you tranilast but I don't recommend taking that since it I causes beta-amyloid growth acceleration in the brain.

Riverpharmacy will not send  pentox here, and the Japanese goverment is likely to send any back that you send over. If you can have someone ship it and disguise it or perhaps prove that you have a prescription in the USA, then it may clear customs. I haven't done this yet but it may be possible.

I haven't heard of a blood type link.

What is this new injection? I would be very surprised if Xiaflex was here already, since in general Japan is a decade behind on new developments outside the country. Definitely find out what he is referring to. If it's verapamil most of us would agree you should avoid it.

Keep taking the supplements and try VED therapy and traction.

[Oscarj]

Many thanks. Although I live in Japan, the doctor I visited was in the US, and was a GP; having tried doctors in Japan for this the first time around, and seeing the websites this time around, there is no way that I would try anything here.

I wasn't able to get into see a Uro when I was in the US. The doctor seemed to have no issue with prescribing Pentox, but said that it was not on a list that she could prescribe, and later let me know that Potaba was not on the list as well.

As I will go back to the US in a few weeks, I will try to get in to see a Uro at that time.