new here, 32 year old with Peyronies Disease

[th1982]

I have lived with Peyronies Disease for 12-18 months now I guess, it wasn't so bad at he beginning so I ignored it, which of coure I shouldn't...... hindsight is a wonderful thing
I haven't meassured the exact degrees of the bend, but it curves to the left and I'm also experiencing some hourglass'ing. There is also this dull pain at the site of the plaque when, even when flaccid

Recently I manned up and went to my GP, who sent me to a uro. He in turn confirmed that there was some plaque, and told me as long as I was able to have sexual intercourse he wouldn't do anything. I am not sure if I am out of the acute phase yet, so I would really like a second opinion from another uro, and contemplating to make an appointment with Dr. Kuehhas. I am not sure if this is the right thing though, or if that is only for those who need surgery?

I guess, what I should be doing, is starting taking the recommended oral treatment, and perhaps VED and traction ? I really need to do mye due dilligence here, as I am skeptical of starting taking some cocktail of supplements, but any input is very much appreciated  

[NeoV]

The GP knows nothing, since even specialists can misdiagnose. The point of seeing Kuehhas would be to get an ultrasound to confirm the diagnosis, and possibly to get a prescription to pentox (I'm not familiar with him at all, so someone else might have a better opinion!). Taking all the supplements is strange! But just remember that the studies on them are solid, and supplements are often times just as powerful or more than drugs themselves. Supplements can kill you, so they are potent and will be doing all kinds of work to your body, for the good hopefully. The disease is rough at first, but I'm really hoping you find some improvement and I think you will given that you attack it starting now. Read up on these forums regularly and hope to see you around!

-V

[th1982]

Thanks for the encouragement, it's a tough disease mentally as well. Hats off for taking the time to contribute as much as you do the this forum  

Will start treatment soon hopefully, and keep following the outcome of xiaflex treatment...... hopefully it will be approved in europe soon as well.

[Jonbinspain]

Yes, I'm looking forward to European approval too.

As NeoV says, forget these people. They either know nothing of this disease, or don't take it seriously. The very worst thing you can do is wait and see. Spontaneous resolution of Peyronie's is extremely rare. In the vast majority of cards, if not treated, it will more likely get worse.