Just Diagnosed

[PPeroni]

Good day companions of misfortune,

First : apologies for my sketchy English. I will try to answer the basic questions.

Just diagnosed by a family M.D.  I have not seen a urologist yet (trying desperately to get an appointment).

44 years old,
I had pain during intercourse 3 weeks ago (sudden pain) I continued (I wanted to please my partner). Later every penetration was a bit painful but it was still OK.

I felt, 10 days ago, a small nodule. Now my unit is almost constantly painful (flaccid or erected) and it has lost some of its elasticity (not as "spongious" as before). Erections are difficult to achieve and I am much less sensitive in this area.

No treatment yet.

No problem with the insurance (treatment should be almost free here in Scandinavia, the issue is more to get hold of the specialist).

My main problems today are :

                                         - dealing with the psychological aspects of it (fear; lost of manhood, uncertainty,                                                                            
                                            perspective of lack of sex etc.)
                                         - pain : seems like it is burning inside (getting worse every day) (particularly difficult to deal
                                            with pain at work..)
                                       

I am in a serious relationship. My GF is very supportive.

Thank you for this forum. I feel less lonely and got many answers.

PP

[james1947]

PPeroni

Not all of us have English as our mother language so don't worry about your "sketchy English".
The main problem you are facing is the very good health care you have. We know that from other members from your country.
Basically, you should start as soon as you can on VED (very carefully, not to over-pump, lets say not to pump to the level you feel more pain or even the smallest discomfort), Pentox, low dose Cialis and Ubiquinol.
Try to get the Pentox and Cialis from your family MD, Ubiquinol is a supplement so don't need prescription. If you can get also VED for free is excellent, state ED problems not Peyronies.
Proposing you to read the forum to get knowledge in the subject, most of the urologists don't understand too much in Peyronies.
It is crucial to start treatment as soon as you can.
Regarding your main problems, many of us or better say almost all of us facing those problems ans fighting them. So you are not alone.

Best wishes
James

[PPeroni]

Thank you James. Will comply. I hope I will succeed to meet a urologist soon.

I understand that he might not be of much help (if he is not a specialists in this very specific field) but he might prescribe the right prescription drugs following those suggestions.

Cheers and regards from Europe.

[alwaysreading]

Just wanted to say that in the meantime, get the strongest anti-inflammatory you can get your hands on and take it as often as is healthy. This will help with the pain and also mitigate damage. Do NOT attempt sexual intercourse at all during this time. I know that's hard but believe me you will be kicking yourself later if you don't abstain.

The change in the consistency of your penis that you mentioned is exactly what happened to me. Some of it is caused by the inflammation but some of it is also probably psychological (the anxiety that comes with this condition often causes clenching of the pelvic muscles).

The good news for you is that you're getting on top of this really early, which is fantastic. Early aggressive treatment will help you a lot and minimize damage. It will also help your body heal faster by promoting good blood flow and low inflammation. Get to the urologist as soon as possible. If you can't see a sexual health specialist, make sure to print out the studies about Pentox, low-dose Cialis, and VED. Those are the three parts of the cocktail you will need a prescription for, and it's critical that you get them as soon as possible (especially the Pentox!).

EDIT: One more thing. This may seem a bit odd, but take measurements of your penis (there's info about how to do this on the main boards) in its flaccid and erect state. This will help you track the progression of the disease. This is as much about being objective as it is about piece of mind. The most devastating part for me early on was feeling like I was losing length and girth every day, but when you're checking it all the time you're bound to see all sorts of stuff that may or may not be new. Having good measurements (and even pictures IMO) will help you from getting overwhelmed.

[james1947]

PPeroni

Regarding sex, the opinions are divided:
Some will advice you not to have sex, some will tell you "Use it or lose it"
In my opinion if sex is not increasing the pain, you should not stop having sex.
Sex is healthy.

James

[Chef Chris]

I would have to agree whit James I never read in any study that you should avoid sex.
I only had this for 10 months but believe me I read and are still reading a lot on this topic.
And I would also ad traction for at least 3 hours a day to my treatment I think that helped me a lot from not getting worse.

[alwaysreading]

Sorry let me clarify my comment regarding sex. I'm not saying not to have erections---you probably should (unless you get a very sharp pain)---but rather to avoid the act of sex, because sex is rougher than careful stimulation and runs the risk of inflaming the injury further. There's simply no need to get through sex what you can get without sex (I know that sounds like the opposite of what it should be!) when sex is riskier. Obviously you should get to a doctor as soon as possible and follow their advice. However, let me just say that I had the exact same symptoms as you (pain during thrusting) and I also had sex a second time after the initial sharp pain and am certain that trying to have sex subsequently (which the doctors advised me to do after a few days rest) made my injury much worse. You're only three weeks into your injury. You should do what you can to maximize your body's ability to heal, which is why you should have erections (blood flow into the area) as long as they are not very painful. But sex this early in the acute phase, before you get some tests (ultrasound, among other things) seems unnecessarily risky to me.

I think James is definitely right that opinions are divided, although from everything I've read and from what I've heard from doctors, it seems that the "use it or lose it" seems to be the better course. I'll add only that I just spoke to someone in Dr. Werner's office (and Dr. Werner himself) about this issue. Both of them said: healthy erections will help you and are important, but sex for its own sake will not make anything better. From a healing perspective, it's healthy only to the extent that it encourages erections and blood flow in that area. They advised me, even 8 weeks in to my injury, to try and get health erections each day but to be very gentle. They advised not to have sex until gentle stimulation (either your girlfriend or just you) was not painful and the area was not painful to the touch. In the few times I've tried to have sex (again, on doctor's orders before I saw a specialist who knew what they were talking about) post-injury, it only made the inflammation worse.

[PPeroni]

Thank you guys for all your advices and shared experience. It make so much sense and it is of great help !

[james1947]

As an introductory, this topic is locked.
Please continue with specific subjects on the adequate boards for better knowledge accumulation.

James