introduction post

[hurting and nervous]

I am 51.  I first had symptoms earlier this year.  I was diagnosed a few weeks ago.  The doctor recommended Verapamil injections.  There are to be up to twelve injections, one every two weeks, with a reevaluation after the sixth injection.

I had my first injection five days ago, and my penis is still swollen and discolored and painful and tender.

Later on the day of the injection, there was a swelling on the side two inches long and one inch in diameter.  There was also a lot of leakage long after I thought it had concluded.  Perhaps it was the fluid from the swelling.  By this time the doctor's office was long closed, so I chose to wait, and call first thing next morning if it hadn't subsided.  By the next morning it had, quite substantially, so I never called.

It continued to slowly get better for the next couple of days, but it really hasn't noticeably change for the last 48 hours.  It is still unpleasant to urinate, and painful if I am not very careful.

From what I have read, this is a far-from-typical response to the treatment.  Can anyone offer any information, or tell me which forum I should post my question in?

Thank you.

[james1947]

Hi hurting and nervous

You have posted in the right place, this board is the introductory board.
First, I will say that is very strange to start Verapamil injections just 3 or 4 months after the start of the disease. Who is your urologist?
In my opinion you should be now on VED, Pentox, low dose Cialis and Ubiquinol.
I am proposing you to read:
Peyronies Survival Guide - Information for New Members - Peyronies Society Forums
Regarding:

far-from-typical response to the treatment

You can search on the bellow link until you will get a concrete answer:
Verapamil - Injections & Topical Applications including Iontophoresis - PDS - Peyronies Society Forums
And last, please let us now what your symptoms are, we can answer you better.

James

[hurting and nervous]

There was a small lump in the center of my penis, a little closer to the base than to the glans.  I first noticed it sometime in February, I think.  It might have been as early as late January.  As far as I could tell, it changed size,  some times bigger, sometimes smaller.  I didn't notice any pattern or cause for the apparent variations.

I have ED as a side effect of MS, so I only get an erection I am aware of a couple of times a year.  A few weeks ago I woke up with  the first erection I have noticed since the lump appeared.  It felt very uncomfortable.  I looked at it, and the last quarter or so was bent at about a 40 degree angle.  It wasn't curved, there was a corner.  It was quite disturbing.

I immediately made an appointment with my PCP.  He knew what it was, but left the final diagnosis to a urologist.  I didn't have a urologist at the time, so he recommended one, Doctor Richard Saint, in an office in Broken Arrow, Oklahoma.  

I went to him the first time, and he told me it was Peyronie's, and that my options were Verapamil or surgery.  I chose to try the Verapamil before resorting to surgery.  He had an assistant order the Verapamil from a compounding pharmacy, and had me make an appointment for the first treatment.  

That was last Tuesday, April 22nd.  It is now early Sunday morning, April 27th, and as I sit here typing I am in pain.  Not a lot of pain, 2 or 3 on the scale of 10, but enough that I am concerned about how much damage has occurred.  There is still swelling, and discoloration.  I am waiting until I can't wait any longer to urinate, because it is painful.  I am not drinking as much water as I am supposed to, so I don't have to urinate as often.

I can't think of anything else, please ask any specific questions you have.

[LWillisjr]

It isn't uncommon to start that early. Dr. Levine started mine on my first visit. The injections themselves weren't pleasant and did take several days each time for the bruising to subside.

Nevertheless, it would be worth a phone call first thing tomorrow to your doctor's office and to check in with them on the issues you are experiencing. That is what they are there for.

[NeoV]

Verapamil injections it surgery should be avoided for all I know. In sever cases surgery may be the only option. As another said you should start the other treatments. There is a major difference between a urologist and a peyronies specialist. Find a specialist near you if possible. I am not one to say much verapamil but I hope somone else does.

[BoatFool]

I had the Verapamil shots and only had a little pain for a about 6 hours after each shot.  Nothing like what you are describing.  Better visit with your doctor.