News:

New app for Peyronies self assessment - Details here



New Person JMSURFER

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

jmsurfer

Hello,
Just wanted to introduce myself to the forum and say that I can commiserate with all of you in our struggles with Peyronies Disease. I contacted a few of you via PM and you've all been so nice and helpful. I wanted to get some opinions on a situation I'm having if possible. I've had Peyronies Disease for a long time and recently (2 months ago) started using a traction device. However, I think I put the strap on too tight and I've had markedly reduced sensation in the glans and possibly some loss of sensation in shaft since then(Feb 16th injury). I saw a urologist who told me that nerves may take two years to heal and that he could give me a better idea of my prognosis at 6 months post injury. But, I'm wondering if getting the priapus shot soon would be a good idea to help regenerate/heal the nerves while the injury is fresh or would that be a bad idea as in if the injections could further traumatize the nerves, especially the shot in the glans? I also don't know if using the VED after the shot would be a good idea if I had recent nerve injury. I'm not sure if the shot would be more likely to help heal this injury(I haven't seen much improvement in 2 months since the glans numbness) or if I should just wait and hope the nerves heal on their own. I'm concerned because after six months the nerve damage may become permanent(but may heal up to 2 years). Should I consider injections in the shaft but avoid glans? I have a history of vocal cord nerve injury which never healed and became permanent so this has me extremely anxious and worried. Thanks! Sorry if this was very long-winded. :)

james1947

jmsurfer

By the end you are the one that will decide to get or not the PRP injections.
What I read by the Internet is that PRP is used already for some 20 years to speed up the healing process for injuries, so I don't see why it will not help in your case.
In my opinion, the best thing to do is to get in contact with a PRP/Priapus injections provider and discuss the subject with him.
Also in my opinion waiting six months without doing nothing is a bad thing.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

nemo

jmsurfer, the best advice is to read everything you can find here and on the net regarding PRP - both articles supporting it and those saying it's not proven effective, then decide for yourself.  In my opinion, talking to a PRP provider (the one who stands to make a couple thousand dollars off your coming to him/her) is not going to provide the kind of unbiased input you or any of us need in our moment of decision making.

Best,
Nemo
53 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002; recurred again in 2013. Over the years I tried Topical Verapamil, Iontophoresis, all the supps, Cialis + Pentoxifylline. For past few years only Cialis. Still functional.

jmsurfer

Just to clarify, I've had Peyronies for probably 10 years and my only major symptom of it is some ED. The main reason I want to do the priapus shot now, 2 months after this nerve injury that left me with a pretty numb glans, would be to treat this(priapus may help heal nerves). My only concern is that the actual trauma from the insertion of the needles(one needle even goes into the glans) could retraumatize these already vulnerable nerves. I will wait if this seems like too big of a risk but after 6 months(up to 24 months), the nerve injury may become permanent.