New here, Gulf War Vet. Struggling with living this way.

[Fappy Hucker]

4 weeks after surgery (excision/graft/plication) and I am feeling desperate for healing to happen.

Hi, I'm a newb. (50 y/o) I always had a left curve but 3 years ago it started to hurt and then by 1 year ago was bent nearly 90 to the left. The pain was backing off except during orgasm. The pain during build up quite often prevented orgasm from happening at all and if it did it was weak. It was nearly impossible to maintain penetration unless I just kept it in and then without stimulation it would go limp.

While the Peyronies was in its acute phase I almost died from Constrictive Pericarditis. Had open chest (sternotomy) to remove the pericardium which had "filled with scar tissue", "hardened" and was squeezing my heart and preventing oxygen exchange from happening.

I know deep in my gut the two conditions are related but no one can tell me why either happened and no one seems to want to connect the dots diagnostically. Pericarditis causes are usually from chemotherapy, exposure to TB or radiation exposure. Door #3 applies to me.

I can connect these dots that doctors seem overly hesitant to. I was in Gulf War 1 and was in the fallout zone of some pretty heavy duty chemical and biological agents and depleted uranium which is likely the cause for my Pericarditis and is causing a multitude of symptoms in over a third of us who were there (unprecedented 36.7% casualty rate).

Since learning mammalian pericardial tissue is sometimes used in penile grafting I am now 99.99% sure the two conditions are connected. Two similar membranes in the body being attacked in very similar ways at the same time? Please!!!!

This may help my case for compensation with the VA which is now 16 months along. I paid for it and have earned it by serving my countrymen. I have also had my lower back go south, my legs turn into lead(feels like I walk through oatmeal), my hips and upper legs in pain, numbness or pins and needles in my hands and feet or non diabetic neuropathic pain in both feet, bouts of cognition fog, IBS, tinitis, 50% stenosis in both IJ's, a benign growth in my jaw, plaques on the back of an eyeball, weakness and chronic fatiguing.  To add one more kick in the ass to all this my sternum never mended after surgery, partially from me using it too vigorously(after 8 weeks, I split firewood), partially from having a "deformed" (tiny) sternum and partially because they put me back together unaligned. After a while I couldn't even be upright so I underwent sternum reconstruction surgery last summer. Looooong and excruciating ongoing recovery. Meditation has become my only pain relief for now. (Transcendental)

Due to the nature of the ass-kicking I have been receiving, I am now a scrip drug addict so can't use them unless its acute and intense pain. Pain pills are only for acute pain and will make chronic pain worse in the long run(I can testify to that) by removing your body's ability to handle pain on its own. Glad to be rid of them. I didn't ask for any of this mess but now get discriminated against by the medical community unless I make it clear to them I want no pain pills because of this addiction thing.

I went from being Superman to being super lame in march of 2011. Its been tougher than my easy time in the Navy in Gulf War 1.

Back to the Peyronies Disease. I had surgery 4 weeks ago. Extensive grafting the length of the shaft and up under the head. Stitches in 2 places on the right and it seems like some smaller grafting on the right too. The top 3 inches of my penis is still numb. The skin wont budge up there. It wont slide but for a tiny bit in a few areas. Its like it is one solid clump at the top not allowing for a full erection to happen. This I find to be the hardest to accept. This keeps my now straightened erection down to 4 inches long when I used to have 7. The part of the erection that should be sliding beneath the skin and allowing for full extension is bunching up under the solid mass of the top 3 inches. So all that old tissue that used to slide through the skin of the shaft is now stuck and kinking under this pathetic 4 in long and numb erection.  Nocturnal erections are very painful (burning in the shaft) but I understand from reading that it's encouraging that I'm even having erections and that pain should subside.

I feel like I'm stuck in a bad dream. I see the Urologist next week and am guessing I will get the "be patient" and "results nay vary" spiel. I'm very unhappy even with chronic pain management classes and Transcendental Meditation classes paid for by the David Lynch foundation. Depressed would be my state at the moment.

Sad and scared,
Dave


OK, now that I am reading some of your post opp comments, I am encouraged about regaining feeling and function. I don't care as much about the size loss but I may try the vacuum

[james1947]

Fappy

Sorry to read your story, so many things to go true.
Now as you are 4 weeks after the surgery you have just to wait.
Personally I had no surgery (yet) but from reading all the posts everyone is going true a long process until everything is OK. Some faster, some slower, but getting there.
Wish you fast recovery, keep updating us how is going.

Welcome to the forum
James