Introducing myself. Need some help....

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Jose


Hello, I'm 29 years old and have been struggling with peyronies for the last few months.

It started out with a strange ache in my penis whilst having erections, I had no idea what it was at the time (10 months ago)....

Some months later I went to an urologist who told me what it was, and said something like this:

"There's nothing you can do, keep it nice and easy, it's a chronic and degenerative disease and when you're old it will worsen..."

I left the place on my knees, completely devastated. Meanwhile the situation was stable and there was no visible curvature, it only hurt me...

It wasn't until 5 months ago that I started noticing a slight curving, when it got worse and worse I panicked and decided to try a new doctor, this time a plastic surgeon, who was recommended to me. It has been 3-4 months since my first visit, the doctor cheered me up, told me we would be trying a conservative approach, and that because it was still on an early phase, I might have results with the use of an extender, massages, and occasional syringe infiltrations.

Since then (for 3 months) I have been using an extender, been doing 2 hyperthermal massage sessions a week (recently the masseuse changed to a ultrasound technique) and am up to 2 syringe infiltrations.

The first infiltration was supposed to be a new product, something with enzimes, didn't work at all... This week I was injected with another product, Verapamil I think it is... Still too soon to see any progress though.

At the moment I feel like I'm losing my hope, I know it's still too soon, but the truth is I can see some change with the extender, but not the kind of change I hoped for, my penis is bigger but peyronies is getting worse... The fibroses are getting bigger, I can already see one when my penis is in flacid state. I can see my penis deforming day by day, and the pain and mess of putting and taking the extender... I'm pretty much always at home these days just because of it.

My girlfriend who lives with me is optimistic, tells me everything will be just fine, that whatever happens we still have each other and she loves me no matter what. I feel like the luckiest man alive to have her next to me, but can't get over feeling sorry for myself and thinking I'll never have sex the same way, that maybe I won't have children and will never be able to have a healthy normal life...

Anyway, I found this forum and was amazed at the amount of people that suffer from this same condition. Also, how remarkable it is to see the care, attention and support you all seem to give each other. Whoever founded this forum deserves all the respect in the world, you are truly an example of humanity.

With all of this said, I hope for the best and am glad to have found this forum.

Would you please advise me as to what to do, and if what I am doing is right? Are there things I should take into consideration?



Best Regards


emasculated

You should see a Peyronie's specialist as soon as possible.
Have you had an ultrasound with the first urologist?
The standard pharmacological treatment often recommended here is: Pentox 400 mg 3x daily, low dose Cialis daily. And this combined with VED therapy.
Secondly, opinion might differ on the importance of visiting a specialist (afterall they are not going to do much), but I personally find it important to have this stuff checked every 3 months and my plaques measured. But not everyone can afford that in terms of time and money. But one further check-up is definitely a good idea in your case.

"Without health life is not life; it is only a state of languor and suffering - an image of death."

liber

Hi Jose,

This link will hopefully give you a lot of guidance.
https://www.peyroniesforum.net/index.php/topic,3180.0.html

By the way I love Portugal :)

Cheers......Liber

Jose


Thanks for your help and support.

At the moment I'm only taking Vitamin E capsules, one per day.

I have to say that at the moment pain is tolerable and seemed to be worst a few months ago. However, erection is not as hard as before...

Is it still good to use pentox and cialis? aren't these drugs used to treat pain?




LWillisjr

VI injections have been tried by some, and are recommended by some the experts doctors who treat this condition. And the use of traction or VED therapy is also recommended by the experts on this forum.

Cialis and Pentox are used to improve blood flow and not just for pain treatment. I would encourage you to keep these an up as we know of little results with only the use of Vitamin E.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

NeoV

Jose,

Thank you for posting... I'm sorry your going through this and I encourage you to do everything you can to hold on to the love you have with your partner.

learn about VED therapy immediately, head over the to VED forums now! And be careful not to hurt yourself.