33 y/o dealing with it.

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Bigfoot

Age? -- 33
What did your medical doctor conclude? -- Have yet to see a competent doctor.  Went to 2 separate docs at NorCal Urology, and things weren't good there.  Felt very out of place since I was not an older guy, or someone with prostate cancer.  As with lots of you I got the "well if it isn't painful you should feel lucky" situation.  "And take Vitamin E"  I am going to see Dr. Lue at UCSF soon.
How long have you had symptoms? -- less than 1 year
What are your symptoms? -- Curve to the left, about midway on shaft.  Girth affected between plaque and penis head.  Overall length also decreased.  No pain to speak of.  Plaque is obvious and noticeable.  I still probably fall into the average size category, but it's smaller than I am used to!  Also feel like it hangs smaller when flaccid.  I am a grower so it is not great to be even smaller when flaccid.
What treatments have you tried and what were the results?  -- Vit. E for a while.  Did absolutely nothing.
Do you have insurance or means to get medical treatment? -- Yes
where are you in dealing with the psychological aspects of Peyronies Disease? -- Hard to say.  Not real psyched about it, but life goes on.
Are you in a relationship? -- Married to a patient and understanding lady.  Although I am definitely losing my patience.

I should also say, and I do think it is a related issue to the formation of my peyronies, that my skin down there has been sensitive for no apparent reason since around the time I first got symptoms.  Directly before symtoms arrived, the left side of the shaft got inflamed and sensitive after sex.  The doc said it wasn't related.  I just don't know about that!  Even recently, the skin between the head and shaft (I'm circumsized) is red and puffy at times.  Definitely gets inflamed after sex or masturbation.  I have taken antibiotics and they do not seem to help.  Other than Herpes, I really have never had problems like this at all before the sensitivity and peyronies development.

I will keep you all posted of results/developments.

james1947

Bigfoot

You have to act now and not tomorrow. Sooner treatment, better results.
Find a good Peyronies specialist in the area you are living and if not, travel to one.
If you will let us know the state/area you are living, some forum members may give you an advice. In the mean time take a read to find one at the link bellow and read what other forum members are doing to treat this disease:
https://www.peyroniesforum.net/index.php/topic,4063.0.html

Welcome to the forum
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

NeoV

Hey Bigfoot,

I also have herpes but don't have any symptoms really. The puffiness could be edema or lymph related. I recently ruptured or injured the lymph there with the VED, and now its puffy between head and shaft. Classic symptoms that taking a break will alleviate. Good luck man!!

Bigfoot

Thanks for the support guys.  I am in the bay area.  I'm in the process of setting an appt. with Dr. Tom Lue, who I found out about from this forum.

Bigfoot

Hey guys, I saw Tom Lue here at UCSF about 1 1/2 months ago.  He prescribed pentox, followed by vacuum (penis pump) therapy after one month of pentox.  I am to continue with the pentox for I don't know, forever?  No big deal.

What I am here to say is that there are a lot of crappy pumps out there.  I got the Encore model.  It was terrible!  I am not huge or anything, but that sucker was pretty restrictive, and is def. for impotent or ed treatment.  So I kept looking around and found Penomet, which is similar to Bathmate.  I am super happy with the Penomet system.  It's only been a week but it's great.

I feel like I will at least gain back lost length, hopefully girth as well.  I'll check back later.. hopefully it helps the curve as well.

Hope this helps!