What to do next

[mark smith]

Hi, I am Mark Smith and this is my first post and I wanted to share my introduction to Peyronies. I am 52 and I have had this disease maybe two years now without really knowing it. It started with a rash on my penis; yes it is hard to get my mind around it. I got the rash after cutting up a mango which I did not know was in the poison Ive family. I also got the rash on my face and around my eyes. The rash got bad before I went to the doctor (4 maybe 6 days). I was given some prednisone and within a few days all was normal except on the penis  were the worst of the rash had been, it just seemed different but no pain and rash was not present. However, sometimes when having sex I would have a pulling rubbing pain. So, I went to the urologist that I have seen for years for prostatitis. He checked me out and said I was fine, but he gave me no explanation for the pain during sex. So, I went out on the web to research it myself after ruling out two out of the three possibilities it left only Peyronie's. Let me say after seeing the one and only picture on the web and reading that there is no cure my anxiety level went up big time. I went back to my Urologist and he said it was possible I had Peyronie's but not too bad, and yes the rash could have caused it. He also added that there was no cure and the mental anxiety would be hard to get past.
So, here I am trying to find out what to expect in the progression of the disease and how to deal with it.
Thanks for any feedback

[DO]

Dear Mark,
Find a urologist who knows more then the doc who you spoke with.
I wish I could show you pictures of my before and after treatment. My photos are on my phone and I don't know how to down them to my P.C. I See my doctor tomorrow for my last visit (hopfully).
I just wrote him a thank you note! I am 80% better over the last 7 months! It may not be perfect but there is no pain and it works .
A good physician will work will you on all levels, as mine did for me.
Please keep looking for the right doctor... it took me two, before my 3rd had expertise and confidence...  a lot of the advise here is on target... I use several therapies and supplements and just finish Verapamil injections for a extended period of time!
Never give up.... and feel free to contact me if you have the need.

[james1947]

Mark

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James