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Unbelievable

Very thankful I found this forum. I'm 38 years old and was diagnosed by a urologist a few months ago. I'd say I'm 6 months in from my first symptoms. I have an incredibly supportive wife so it's helping but this is just a kick in the balls! However, I'm extremely impressed with the administrators on this board and how they speak with hope and that maybe, just maybe this disease can make us better people, husbands, etc from this. Sorry for the rant, I've got a couple of questions.

1.) As a newbie and about 6 months in, my condition is changing every month or so. I have upward curvature and an hourglass shape at the base. I can get a full erection but it's not "strong" or rigid enough for intercourse. It feels like more of a rope than the "sturdiness" I used to have if that makes sense. Can Peyronies Disease change this much this fast and when can I expect it to stabilize? There is still some tightness at the tip and pain throughout.

2.) If you were me, what would you be doing RIGHT NOW? I can't possibly take all the supplements recommended on this board! My urologist knows very little as he told me to take 1200 units of Vitamin E and "wait it out." I have another appointment with him in 3 months.

That's it for now. Thanks all for such a welcoming board.

Norm

Hello Un,
Welcome. Now get busy! This is not an ailment that is merciful to those who wait and see. It does not discriminate nor does it just go away. While you are in the active phase, most Uros won't do anything,but you can. My personal advice is to start on Cialis daily or one of the other ED marketed drugs. They help with blood flow. You also need to read here on the VED/Traction topics and pick your ammunition. The Gold Standard med here is Pentox. You sometime have to fight to get it because most docs don't know about its benefits for the Peyronie's patient. That is how you get started. I am going to leave you with your reading assignment now. Read the Must Read document on the home page and then make this Forum your source for info. Good luck. You CAN make some improvements. You CAN make Peyronie's a non-issue in your life, just not overnight.
Plication Surgery Dec. 2013. Straight Again!

LWillisjr

Unbelievable,
I agree with Norm that you need to get started and be aggressive on your own. Vitamin E has limited if any documented results. And "wait and see" is the worse thing you can do.

Read the following post for some basic background information on Peyronies and how to get started.
MUST READ BEFORE YOU POST - Information for new members - Peyronies Society Forums

When it comes to VED/traction....  In your case I would lean towards getting started with a VED. And this is mainly due to the fact that you have ED and hourglassing symptoms. I think the VED would be better suited to treat this.

Welcome to the forum. You will fine many here to answer questions and help offer support.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History