Peyronies scar length

[m-1]

Hi all,
I've been lurking on the site for years now never really had any questions, just hope I guess.
But I do have a question,, from what I've read most if not all peyronies is a scar that forces the penis into one direction.
Different sizes but not all that big from what I've seen and read.
I wish I had that problem,, the Dr's say it is peyronies but my scar extends the full length of the penis, about four inches long.
Starts under the head follows the length and disappears into the groin.
This totally prevents me from ever getting an erection!
Has anyone heard of this form of peyronies before.
I know there still is no cure but just wondering if I'm the freak of nature?
Thanks in advance

[MtnSurf]

Hey M-1

Sorry to hear about your condition. That must be very hard to accept. I've heard of peyronies causing more than just a curvature in one direction and have heard of some having a twist to it when stimulated. Do you have a lot of pain on the hardened side? How long has it been like that?

I'm curious how your injury occurred if you don't mind me asking? I seem to have a lot of scar tissue running the length of my shaft as well. When I'm not stimulated it's sort of stiff and never gets loose or spongy like before my injury. Mine got folded during sex. I can still get hard but not hard enough for penetration. The stiffness & pain in my shaft is worse after I have an orgasm

[LWillisjr]

The scarring is on the tissue called the Tunica. This is what fills with blood and it stretches to a point causing an erection. Where the scarring is the Tunica doesn't stretch as much. And therefore cause a curve or bend in on itself. The scarring on the Tunica itself doesn't prevent an erection. The arteries the feed blood into the Tunica are buried deep and fill something called the corpora chambers.

This alone will not prevent you from achieving an erection. You might have some other issues going on as well.

[james1947]

m-1

Regarding your scar tissue that

Starts under the head follows the length and disappears into the groin.

is exactly what I have (one of my scar tissues, I am blessed with some more). The scar itself as lwillisjr wrote will not prevent an erection but is limitting the blood flow so the erection may not be as before the plaque was there.

Do you get some treatment from the doctor or are you doing some treatment you have decided on?
Don't let your Peyronies alone, it will not disappear from itself.

James

[Luciano]

Peyronies can take any form.
But my doctor once gave me a quite good explanation:
"Imagine a normal balloon. (the long ones, hot-dog style). when it is deflated, stick a 1 inch piece of duck tape on one side of it. Then try to inflate it. On the side where the tape is, you will visually see an effect similar to peyronies, as the skin of the balloon wont stretch".
I did the test and it works. it is of course very basic but can show you what peyronies  can do to you.
It helped me a lot in understanding.

Has any doctor suggested surgery?
Did they check with ultrasound?

Luc

[LWillisjr]

Good example Luc,

The tape represents scarring on the Tunica. And the blood flow is represented by the air in the balloon. So is why a Peyronies scar alone doesn't limit blood flow or cause ED.

[james1947]

So if the scar tissue is not limiting blood flow, what is limiting it?

James

[LWillisjr]

Until you have a doppler ultrasound, you don't know if there is anything limiting blood flow. I've read too many times on the forum where someone thinks they have peyronies disease, and suddenly believes this is limiting blood flow.

We've got to be careful and avoid making assumptions. In many cases it is the early onset of ED that causes us to have weak erections and therefore susceptible to trauma and scarring resulting in Peyronies Disease.

And also loss of erection or ED isn't necessarily caused by poor blood flow. But rather can be the ability to keep blood from leaving the penis. There is actually how drugs like Viagra and Cialis work if you carefully study and understand how these drugs work.

Sorry for the long explanation. I guess my real point is that blood flow to cause an erection is due to arteries and veins deep in the corpora chambers, not along the Tunica.

[james1947]

I can't say that I really understand the subject, I will try to learn more about.
As I had no test for venous lickage I don't know if this is my case.

I was thinking that the many scars I have are the reason for my ED problems.
I will talk with my uro on my next visit to him to understand better.

James

[anonimo]

Hi to all,

This is very similar to mine problem.

I take ecodoppler (two times really) and there is nothing limiting blood flow. My "plaque" is on tunica, along the curvature and it does not allow the penis to extend completely on one side. This is the reason, for which i think that in my case pentox cant do a lot, even if with cialis (and pentox) im having good erection but no the same to the past. One side does not extend like the other! So my urologist dont want to call my problem really peyronie, but the effects are similar and he gives me this treatment...

You havent never listen to talk about Lichen Sclerosus? There are similarities with our cases and peyronies...

[LWillisjr]

One side does not extend like the other! So my urologist dont want to call my problem really peyronie, but the effects are similar and he gives me this treatment...

If you have plaque or scarring on the Tunica and it keeps your erection from fully extending on one sdie causing a curve...... then you have EXACTLY Peyronies Disease. So I don't know what your uro is referring to.

[anonimo]

One side does not extend like the other! So my urologist dont want to call my problem really peyronie, but the effects are similar and he gives me this treatment...

If you have plaque or scarring on the Tunica and it keeps your erection from fully extending on one sdie causing a curve...... then you have EXACTLY Peyronies Disease. So I don't know what your uro is referring to.

I m referring to the fact that my cavernous chamber are clean and there is no plaque there. Inside seems works all good (i ve done 2 ecodoppler test) and i dont feel really pain. My uro told that i m a "strange" case.

I refer to LSA because you told that in your opinion there is no ED without internal disfunction (it s true? My english is not very well and maybe i ve not understood). So im a strange case, because my internal situation is ok and i ve in part ED (but im young, only 25yo). Instead LSA, this is what  i ve read surfing the web, can cause in some case a degeneration to the tunica and others external tissues of penis (but just a little different) and this can switch to ED..

[LWillisjr]

I believe the more common form of Peyronies Disease is when plaque or scarring only occurs on the Tunica and the corpora chambers are clear. So I think you have a typical case and not unusual. It is when the fibrous tissue forms deeper in the corpora chambers that causes additional complications.

[m-1]

So my thinking all along was the scar stretching 4 inches  prevented me from an erection,,   now i'm to beleive maybe there is another issue,,  drs who do you trust,  i'v tried the cream and that is about it no relief, no sex,probably no wife!

[LWillisjr]

m-1,
The ED could be mental or could be another issue. You might want to talk to your DR and try Viagra or Cialis to help with the ED.

Les

[chandnitare]

Hi to all,

This is very similar to mine problem.

I take ecodoppler (two times really) and there is nothing limiting blood flow. My "plaque" is on tunica, along the curvature and it does not allow the penis to extend completely on one side. This is the reason, for which i think that in my case pentox cant do a lot, even if with cialis (and pentox) im having good erection but no the same to the past. One side does not extend like the other! So my urologist dont want to call my problem really peyronie, but the effects are similar and he gives me this treatment...

You havent never listen to talk about Lichen Sclerosus? There are similarities with our cases and peyronies...

Hi anonimo,

I am new here. It seems very interesting to me what you explained. I thought that all 'tool' have a plaque and curvature  is called peyronie. I am sorry if I am mistaken what may  known to all here. I would appreciate if you further clarify why pentox is not working in your case and what it needs to be to peyronie?

[Ben]

I have excatly the same scar. I think we should better talk about penile fibrosis. With this kind of scar, curve is not the main problem.
I've read a lot of post and testimony and men with severe curve have sometimes ED but generally it can works properly.

Traction can help with penile fibrosis - regaining some lenght and girth - but the ED would still be there. That's why I 'll be implanted soon.