Mild peyronies, 10 months on, the scientist

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stanford

Incident
During rough sex with a semi erect tool I made a bad bent 10 months ago. I ended up developing peyronies from it. The doctors believed it might be from "microtears" during the bend.

Age: 29
Health and fitness: Above average

Disease stage - active
I have had a constant 2-4/10 pain since the event, mostly a burning/aching feeling. Currently still in the active phase. I have a slight blue tinted color over the middle where the break happened. My curvature is 10-15%. I have a little hanging and hourglass and I feel less structural integrity at the spot where it bend, which has made subsequent attempts of sex hard as I would re-bent it. I don't really measure my tool, but I think the size reduction has been minimal, though I'm not sure. I have no big nodules, but I can feel some hardened tissue.

Sexual intercourse and dating
I have tried to have sex and dated throughout. I have found that my pain after sex depends on my usage of condoms and viagra. If I use a condom, and especially if I forget viagra and have minor bends, I will have significantly increase pain for up to a week. However, if I do not use a condom I find that my pain is significantly less, and it feels improved after sex. I just recently started trying to date a girl to experiment with sex without condom (I'm staying safe of course, don't want more diseases!).

Treatment
I have tried viagra, pentox (gave me upset stomach), vitamin E, etc. I didn't find much helped and stopped. Instead I choose to change my lifestyle about 4 months ago. I get 7-8 hours a sleep per night (11pm-7am), I consume mainly red meat, organs, complex carbs (e.g. oats), workout almost every morning, and do plenty of suntanning, breath work, and cold showers.

After visiting this website and talking with my urologist, I have recently invested in the restoreX devices and will get it later this week.

I'd be very open to trying other treatment plans if anyone from the community knows of particular elements that might reduce my recovery time, inflamation, and scarring.

Documenting
I have documented the progression with monthly pictures in flaccid and erect condition. I will also try to incorporate the BPSFL to get a more quantitative understanding. In particular as I am now starting the restoreX treatment.

Mental
The mental part has been really hard, especially not knowing when it is going to stop (ref. the active phase) and the lack of support communities. My main tool for handling the mental part has been doing breath-work and staying positive, which not only helps me mentally, but also reduces my pain significantly.

This forum
I have browsed here for about a week now, as I was looking for some stories from other men and what I could expect w.r.t. progression of my disease and what I can expect when it is all set and done (chronic phase). I can understand that many are suffering perhaps more than me, and I definitely feel for you. Reading some of the sub-channels made me a little depressed, I did like the channels on improvements and success stories. That motivated me to get the restoreX. Though I am still not sure what to expect though from my future sexual life and the progression of my illness.

About the disease
Given the extend of this disease, I am so surprised I did not know about this before getting it, and that so few people have any clue about peyronies. Even my friends who are doctors have never heard about it.

Stem cells
I happen to be a researcher in computational biology and currently conducting rotating at one of the worlds leading institutes for stem cell biologi and regenerative medicine. In particular I investigate how specific stem cells might engage, differentiate, and operate in certain tissues and microenvironments. I have noticed the topic of stem cell treatment being tossed around on this forum, both w.r.t. the usage of stem cell injections and the development of stem cell based medicines. I'd be more than happy to try and cover questions you might have.
29yrs Old
Moderate injury during sex early 2020 - Constant low-moderate pain since
10 -15 degree curve
Remain sexually active
Have tried viagra, pentox (gave me upset stomach) didn't find much helped and I stopped.
Ordered a RestoreX

Hawk

Welcome to the forum Stanford

Pentox or none of the oral supplements are quick fixes.  I would recommend you stay on the supplements.  Vitamin E is probably the least effective, if at all.

Daily Cialis would be helpful as well.  Not only does it have the potential to help the Peyronies Disease, but apparently, you can use the help it gives with erections.

Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums