Just diagnosed and looking for some help

[Drano]

Hello everyone, I was just diagnosed by a urologist with Peyronie's and am looking for some guidance. My urologist (first time I have seen this doc) definitely took a wait and see approach, told me I could be dealing with significant pain for another 7-8 months. I'm interested in seeing Dr. Laurence Levine in Chicago to get a second opinion and wondered if any of you have had experiences with him, would recommend him and/or have other suggested urologists in the Chicago area? Thanks so much for any help you can give!

I should add that I am 46 years old, unknown cause. I have had symptoms for about 4 months that started with sudden and intense pain in flaccid state and progressed to erectile pain about 2 months later. I have a plaque nodule near the tip of the right side of my penis. My uro said it is very spherical which means it could flatten out "like a pancake" over time and could cause more deformity. My erections are definitely "lumpy" on the right side just below the glans and I have curvature ventral and to the left from it. Honestly, I thought I was losing my mind before I saw the doc. Come to find out, I wasn't crazy, at least about that....

[Hawk]

Welcome to the forum Drano,

I hope we can help with some support and useful information.

Dr. Levine has been around in the Peyronies Disease community longer than I have, and I have been here for close to 20 years.  He is competent and experienced.  I have no personal interaction with him, but some say his bedside manner is lacking and that you will get handed off to a PA.  I am not sure that is accurate.

As a new member, It is critical that I direct you to is the Peyronies Survival Guide.  It was a group effort refined over many months of edits and re-writes.  I am confident there is no place on the planet to get more information in such a condensed form.  It tells what you need to know now and gives enough education on the basics that you can ask informed questions.

Please read it carefully and refer back to it in the weeks ahead. https://www.peyroniesforum.net/index.php/topic,3180.0.html

It is also important that you place some key information in a signature line, so it appears under the line below every post and every private message you send on the forum.  It saves member the time of asking and saves you the effort of constantly retyping.  More importantly, you will get better answers.  Here is a link.  The first post in this topic explains how to make a signature line. Please do this as soon as possible. https://www.peyroniesforum.net/index.php/topic,10819.0.html

Hawk

[Drano]

Thank you, Hawk! I was amazed to find all of the information on this forum, what a resource. Admittedly finding my way around right now. I had suspected I have Peyronies Disease, but needed a diagnosis to be sure. Boy did I stress myself out about getting that first doctor visit over with. It was way better than I thought it would be and my outlook is positive. While I know this is a marathon not a sprint, I feel much better knowing you and others who have been through it are here with information, advice and support. It means a lot - thank you for doing what you do!

I updated my signature and read the "survivors guide."  Thank you for sharing. I will keep exploring.

[Nolte94]

I got Peyronies Disease with 25, saw my curvature first time 1 week before my birthday 🥳, and had the same thoughts. After a few months, I can handle this "new" penis thanks to this forum and a urologist, who strengthen me mentally.
Dr. Levine is one of the leading experts, so you should be in good hands.

[Hawk]

I would suggest you get used to using the forums search function.  If you simply type in Levine and hit search you will find lots of quick reading to help you in making a decision.

[Drano]

Thanks for the feedback. I did some sleuthing on here on Dr. Levine and he seems to be the guru in my area for these sorts of things. I have an appointment with him on March 9 which will include ultrasound. Looking forward to getting some more answers.

Interestingly, I have had a constant dull pain since I was palpated by the uro a couple of days ago. Never had constant pain before when flaccid. It's been manageable, but sort of acts like a beacon, constantly reminding me it is there. Gonna take some ibuprofen and see if he's comfortable enough to do the deed tonight. Been touch and go on intercourse for a while. Most of the time the pain overrides my ability to get to climax/ejaculation.

[Benjamin62]

Levine's a top doc with Peyronies

[Hawk]

I think the ALC should help with the pain.  It certainly did in my case.  I stopped it just to check and the pain returned until I resumed the ALC

[LuisFernandez]

You're still generally early. I suggest you start traction and VED therapy ASAP.