Intro - considering surgery, all feedback welcome

[edgar]

Hey everyone,

I'm 35 and I've had a dorsal curvature for as long as I can remember. I was diagnosed in 2017 (I had no idea this is a treatable condition before then). The curvature is "only" 45° and probably a combination of congenital curvature and Peyronie's (2cm dorsal distal plaque, right under the glans). I can still have sex, but it's often painful for my wife, sometimes for me too. I had only one other partner before, and she didn't mind it at all, though.

I've tried intralesional Xiaflex and Verapamil, as well as RestoreX traction, no change. Now I'm still using traction and on Pentoxyfillene and daily Cialis, but running out of hope for nonsurgical treatments.

I'm having some sleepless nights pondering whether to have surgery. I've waited long enough, and this would be the best time because I'd be able to recover at home without missing work. On the other hand, I'm scared of the loss of size from plication and the high risks of incision/grafting. It also looks like I may be headed for a divorce anyway - and I have no idea if a future partner would care.

Any words of wisdom? Experience on how many % of women have issues with 45° dorsal curvature? Recommendations as to the best surgeon for this in the US?

Thank you!

[peter123]

dorsal is the best type of curvature that one can have. lateral the worst and hour glassing is the king of deformity. sad that restorex didn't work, it seems to work not nearly as good as the studies would like to indicate. probably most men dont respond to it

[edgar]

dorsal is the best type of curvature that one can have. lateral the worst and hour glassing is the king of deformity. sad that restorex didn't work, it seems to work not nearly as good as the studies would like to indicate. probably most men dont respond to it

Thanks for your response Peter! Yeah, dorsal is relatively fortunate. I also have about 10° lateral but that doesn't seem to be a big problem so far.

I've heard from multiple doctors that they aren't getting the success rates from RestoreX that the initial studies indicated :-( I think the reason they still recommend it is the high patient noncompliance rate with the other traction treatments.

[Hawk]

Do you have any degree of ED or do you have firm,reliable erections?

[edgar]

Do you have any degree of Erectile Dysfunction or do you have firm,reliable erections?

Firm - yes, reliable - not quite; I often lose hardness while having sex. I think the latter may be more psychological.
The Doppler ultrasound exams didn't show any concern about erectile function.

[TonySa]

I'd add low dose nightly generic cialis (2.5-5 mg) for stronger and longer erections and to remodel plaque to Healthy tissue.

[LuisFernandez]

You should try adding many hours of stretching with a Penimaster Pro or Phallosan Forte. The more hours the better and doing all day stretching is great.  

If the RestoreX is not able to give enough tension under 30 minutes then try longer stretching.

If you've conditioned your penis after a year of traction with PMP then you could try doing weight hanging, starting low and going higher. This is dangerous but the trick is to start low and progressively overload slowly.

You should also be doing light VED now.

[TonySa]

With restorex-don't do for hours and give it time (months) to work.  Never do weight hanging or jelquing as it can cause Peyronies Disease and Erectile Dysfunction.

[edgar]

Thanks guys!
I'm already on daily Cialis.
Traction: I've used RestoreX for more than a year, 2*30mins a day. I wonder if a device I can wear for 6+ hours (plus Pentox which I recently added) might work where the RestoreX and the injections failed?
If I can't get better with non-surgical treatments, this would be a great time to get surgery, but I need to decide soon. I'd be very grateful for all tips.

[LuisFernandez]

Well, he already has Peyronie's disease so there's little risk there in hanging. RestoreX has about 7.5 lbs of tension. I *think* that you can actually hang less weight and it's safer than using RestoreX, you can then gradually increase the weight.

It seems that RestoreX simply has not worked for Edgar.

Grafting surgery is extremely dangerous in itself, I personally would rather get an implant than get a graft. And so, if I were considering grafting surgery i'd much rather do weight hanging (slowly!) than do the surgery.

Edgar, what's the reason for the rush to surgery? What kind of surgery are you looking into? Plication is generally safe, but grafting has a high risk of causing Erectile Dysfunction and potentially causing shortening.

Weight hanging might cause Erectile Dysfunction, which you fix with an implant, but it will also make your penis longer if you do it correctly allowing for a longer implant.

Anyway, just outlining all the options.

Personally I would get the totalman all in one, in place of a penimaster pro and do weight hanging. Basically do weight hanging for about 2x30 minutes per day, then do many hours of rod extension, then do all day stretching. Basically attack the curve from all angles.

I would also end the day with a VED. Now i'm fairly "reckless" and have been doing VED with a fully erect penis after taking Cialis, this has helped tremendously in getting rid of a dent. But it's super risky of course.

[TonySa]

Yes, as you say reckless...please don't do hanging.  Sure, consider upping your traction hours...Or consult w a good surgeon.

[edgar]

Thanks guys! I won't do hanging and I'm inclined against using a VED - I feel I still have something to lose and I'm not totally desperate (yet   ).

At this point, I'm trying to decide whether to give non-surgical treatments one last chance: 8 hr/day traction for some months with Pentox, Cialis, L-arginine, possibly resuming Verapamil shots, maybe trying shockwave therapy or Potaba? Or just go for surgery? All input greatly appreciated.

[LWillisjr]

This topic is now locked as an introductory topic. Feel free to post further in the appropriate boards on the forum.