First post/newly diagnosed

[malikan77]

Hello, I am recently diagnosed with Peyronies but have had it for probably 6 months.  I put off my initial urology appointment due to Covid and generally hoping that it would go away.  Urologist was not super helpful but did refer me to Dr. Lue at UCSF who I understand is one of the top Peyronies docs in the world.  Anyone have experience with Dr. Lue?  I have seen his name mentioned on this forum.

The urologist didn't give me many solutions.  He said my right side scarring measures 1.5cm x 1cm so guess based on other forum posts that's fairly significant?  Told me Pentox doesn't work but still gave me a prescription for Pentox and 5mg Cialis per my request. He also recommended buying a RestoreX.  I have started on the Ubiquinol, Acetyl L-Carintine and L-arginine regimen with a good multi-vitamin but haven't started the Pentox just yet.  I have somewhere around a 35-40 degree upward curvature but not much/any pain unless fully erect.

So questions I have:

1) Should I also be taking additional Vitamin E beyond my daily multivitamin which only has 15mg (100% DV)?
2) Is the RestoreX worth buying?
3) Any tips for when I go see Dr. Lue?  I'm not really interested in injections or surgery unless this becomes more severe/painful/impactful.
4) Is Pentox worth taking?  Any side effects?  Again, the doc told me Pentox doesn't do anything but I feel like this forum was more informative than him!  Based on my limited research it seems I should be taking this.
5) Anything else I should be doing to prevent this from getting worse and potentially improve my symptoms?
6) Why is Peyronie's called a "disease"?  Seems to be more a condition and not a disease.

Thank you in advance!

[malikan77]

Oh and for what it's worth, I am 50 years old.

[samsung]

I basically have exactly the same parameters as you. You are correct. It is not a disease but a condition. The etiology is unknown. Everything you are doing is a good start. Look into diet as well. Read the survival guide here if you haven't already. Restorex is a good option in my opinion. Shorter overall time commitment. Look into VED as well. I have no exp. with Dr. Lue but plenty of people here have. He is a good doc. Vitamin E is largely a waste of time but it won't hurt you and might help.

[doobie3]

Hey Malikan77,

I'd say Restorex is a great option.. into week 7 here and I've already seen improvements.

Another thing I've been incorporating is light heat therapy before using Restorex. Consider adding that too.. I recall 2 studies showing its efficacy.

Good luck!

[Benjamin62]

I understand Lue is top notch.  My surgeon Dr Brian Christine trained with him...