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New app for Peyronies self assessment - Details here



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SilentNight

Hello! I am new here, looking for some answers and support!

My older brother recently told us about his issue with Peyronie's Disease. He had kept it a secret since he was a child and I am worried. He was afraid and embarrassed. He had no one to turn to when he needed help. His marriage is coming to an end this year and he finally decided to tell us his ordeal. I was heart broken to know that my brother had been silently hurting with this for most of his adult life. We, his family, are looking for ways to help him. He has decided he wants surgery but because he has no insurance, at the moment, we are waiting. In the meantime, I am trying to do some research on doctors who are specialists with Peyronie related matters in Miami, FL.

Could someone let me know if I should create a new forum on that topic? Or should I ask here?

Your help and responses are very much appreciated!!
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Stabler

Hello Silent Night,

The forum is a great place. We have alot of members here to help you with questions. You might suggest to your brother that he join the forum so that he can get answers and guidance that he may be looking for.

In order for us to be able to help we need information about your brothers symptoms, treatments tried for how long and if he has seen a specialist. We do have a womens board that I will give you access to that has alot of information that may be helpful for you to go through. I will send that in a PM

Dont be afraid to ask questions everyone here is ready and willing to help


Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

samsung

If he has had a problem since childhood, do you know if he has congenital curvature or peyronie's?
45 y.o. Single. Onset of symptoms (pain-stinging like a wasp) @ 6/2018. No sudden injury. Curve developed slowly. 40 deg. dorsal. Hourglassing. Torsion to left flaccid. 4 rounds xiaflex. Restorex, DMSO+, heat, arginine, cialis, lipoic acid, vit. K2

TonySa

That's what I was wondering.
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.