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New app for Peyronies self assessment - Details here



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shiloh

I am 65 years old and first became aware I had peyronies about 20 years ago.  I don't really know how I got it but it developed a couple of years after I had some complications from a vasectomy during which I experienced extreme pain.  My balls swelled to the size of a grapefruit and I was in bed for days till the swelling  started to go down.  A few years later when I noticed things changing I thought back to this experience and put 2 and 2 together. Don't know if I'm right though.  I have a pretty significant hourglass effect and bending down and to the left.  I have lost length but not girth.  The combination of my erection bending down coupled with the natural curvature of a woman's vagina, makes it is impossible to have intercourse with my wife  because it is too painful for her.

I tried vitamin E and verapamil topical treatment but did not see any improvement. I started xiaflex injections with  Dr. Trost at the Mayo Clinic but for a variety of reasons I did not continue.  Distance to travel and cost were the two main issues. Also tried the Andropenis extender but didn't have the patience to stick with it.  I have pondered the possibility of surgery but really don't want to have the Nesbit procedure.  The alternative, incision and grafting, is probably too risky for me. The scarring I have is on the underside of my penis too close to the urethra, and could cause erectile disfunction.  Dr. Trost says there is risk but he would try it if in my shoes.

So there's a brief version of my story.  Not real happy about my situation but try to make the best of it and be as positive as I am able.  Intercourse is important and the ultimate when it comes to physical, sexual intimacy.  But there are lots of other approaches to sexual intimacy as well.  I honestly don't hold out much hope at this point to ever being back to "normal" (or even close).  Its just the way it is.  I am still open though to hearing about success stories and what I might still try.   Thanks for reading my introduction.
I am 65 years old and been "fighting with" Peyronies disease for 20 years. I have been married to my wife for almost 30 years. I have tried many remedies but nothing has made any significant difference.

TonySa

Do you still have strong erections?
PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.