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Author Topic: Greetings  (Read 253 times)

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rightturnclyde

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Greetings
« on: August 26, 2018, 06:20:53 PM »

Good evening!

I'm a 41 year-old male, and I think I may have Peyronies Disease.

Within the past week or so, I have noticed that my fully-developed erection is painful and there is a significant curve when erect. When flaccid, there is no pain, and there has been no effect on urination.

My wife and I did a Google search after I told her about my pain after intercourse Friday night, and Peyronies Disease came up as the leading candidate for what may be going on. I cannot remember any significant trauma, as our sex isn't rough, so it is very likely a micro-trauma or two that may have caused the situation.

The situation has had no effect on stimulation or stamina, but, again, it is painful until I become flaccid.

I do have insurance through my work, and I'm in the process of searching for a urologist that deals with this in my area.

Are there any questions I should ask a prospective urologist, and what information should I have for them when I cal them?

Thank you in advance!
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TonySa

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Re: Greetings
« Reply #1 on: August 26, 2018, 07:42:05 PM »

I’d ask their experience with treating peyronies.  Will they be doing an ultrasound to diagnose?  Consider getting started ASAP w pentox, low dose daily tadalafil and VED/traction.
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

betterbend

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Re: Greeti
« Reply #2 on: August 26, 2018, 07:55:51 PM »

  Many men present in their 50's with no know incident to tie it back to.  More common in white men from Northern Europe.  That was my story.  my wife had a hard time at first.  It was hard for her to understand I just woke up with this, but my doctor explained to her that my case was a very common presentation.  I would suggest taking your wife with you for your evaluation, it's good to keep communication with her on this, it will help both of you a lot to work through this.

If you find a good urologist that treats Peyronies, you will get a full work up which includes an ultrasound with an induced erection. It  will show blood flow, calcification,  extent of curve, location of plaque, and some other information.  It sounds like it just happened so it's likely acute phase which means it's 50% shot  at getting worse, a 40% shot that it does not change from what you see now, and a 10% chance it get better. 

Depending on location of plaque, you didn't mention how it is curving, you might be a candidate for Xiaflex, but I would wait to do that if your case is new.  You want to be close to the stable phase to start that.  You can start on supplements like co q10 400 mg per day, l-citrulline 1500 mg per day.  You can discuss daily Cialis and pentoxifylline.  Also traction or VED

YOu are going to want to rush into treating, but take your time and carefully consider your options. Learn as much as you can.  You are your own best advocate for treatment.  Good luck
 

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Cowboy James

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Re: Greetings
« Reply #3 on: August 30, 2018, 11:13:40 AM »

Try to find a Urologist who recommends traction, vacuum or pentox. Try to avoid ones with the wait and see approach. Ask if there is plaque or calcification and if so how much; how long you have probably had this; if there are positions you should avoid; if he can recommend a counselor who other patients found helpful. That’s all the questions I can think of for now. You should have photos from the side and top, and tell them if your erection previously had any curve. You should also measure it to see if you have lost any length.  You might want to be prepared that being diagnosed can be fairly hard to deal with. There is a sticky in Introduce Yourself called Peyronies Survival Guide - Information for New Members which has stuff on first doctors visit. By the way, I found vitamin E good for the pain.
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