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Author Topic: 16 years with Peyronie's  (Read 503 times)

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Steve W

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16 years with Peyronie's
« on: August 09, 2018, 10:50:48 PM »

Hi all! I joined ages ago, but have decided to do more than lurk. I am 16 years in, diagnosed in 2002. I did the verapamil thing, (which actually helped a little), now seriously using traction. So we'll see. Urologists are so offhand about this affliction. "Yes, it's Peyronie's, nothing we can do." And promptly shown the door. My bend is now somewhat manageable at about 60 degrees (down from 90), but I have a serious "hinging" mid penis, which makes penetration virtually impossible. The Erectile Dysfunction is worsening as well. Hoping for some improvement from traction. Great to be here!
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64, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.

TonySa

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Re: 16 years with Peyronie's
« Reply #1 on: August 09, 2018, 11:04:44 PM »

Welcome, glad to here of your improvement and hoping traction helps even more.  How many hours a day are you going for?
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PxD 2 yrs, failed all tx. 9/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS 18cm + 3rte

Steve W

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Re: 16 years with Peyronie's
« Reply #2 on: August 09, 2018, 11:34:15 PM »

Thanks! I am averaging 4 hours a day. Which is challenging.
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64, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.

Monty

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Re: 16 years with Peyronie's
« Reply #3 on: August 10, 2018, 04:46:42 AM »

Hi, 16 years a time, 60 deg in which direction? thought about VED as well as traction could be the answer, bit of manual massage works well for me.
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67 UK, Erectile Dysfunction from 2011, unable to get full erection, Peyronies Disease from  2015 acute bend to left, VED & hand traction + 50 mg Sildenafil every other day, or when i'm feeling lucky, forum member November 2017. Fav Film&Song, TheGoodTheBadThe Ugly. A Day in the Life

Steve W

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Re: 16 years with Peyronie's
« Reply #4 on: August 10, 2018, 12:20:16 PM »

Monty, The plaque mass is along the top side, the bend is to the left and was originally 90 degrees, and now about 60. The "hinge" right in the middle of my penis is the worst problem.
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64, Albuquerque, NM. First onset 18 years ago. Original bend reach 90 degrees, now 60. Verapamil helped slightly, as did pumping early on. Now using traction and waiting for Medicare & my private insurance to cover an implant next year.
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