GENERAL COMMENTS & Questions - that won't fit under any of our other topics

[csup]

I did not know this got so complex. The vit.E I bought says it is 100% natural as d-alpha tocopherol, plus d-beta, d-gamma, and d-delta tocopherols. It doesn't list the mg's of these ingrediants, nor does their website. Only 97 left in the bottle, then maybe I'll look for something better. LOL. Does the high gamma count do anything special?

crs

[George999]

csup,  what you've got is actually known as Vitamin E + mixed tocopherols.  It is not actually a real broad spectrum E.  The broad spectrum E like the one Tim is referring to have not only the full range of tocopherols, but also the full range of tocotrientols.  Of all of these the d-Gamma is the most important.  It seems like it is the d-Alpha and the d-Gamma working synergistically that do the job.  And the magic number for d-Gamma is around 260mg to 320mg complementing the 400IU of d-Alpha.  Not to be to discouraging, what you have is far better than synthetic E and somewhat better than natural E without the mixed tocos.  I have used all of those in the past.  In my experience the broad spectrum form like Tim is using outperforms all the other three forms.  It comes in a softgel that is about the size of a 1,000mg Vitamin C tablet, much larger than the other types which are usually softgels about the size of a big pea.  So it won't hurt you any, thats for sure, but the full spectrum form will likely work better for you.

- George

[ComeBacKid]

Thought I'd make this post on here even though it is technically off topic- looking for some good replies.  I'm looking into a pill cutter to cut my viagra pills into quarters.  I found a lot of cheap ones online but read they don't cut viagra pills well cause of the coating.  I found this link online selling a cutter made just for viagra but it is much more than I want to pay.

http://www.swisscut.com/how_it_works.html

Does anyone have any links to effective cutters you can buy online that will cut viagra pills into quarters?  Also does anyone have sites you can buy viagra at cheap prices?

ComeBackid

[Hawk]

ComeBackid,

I have tried 2 different pill cutters that sluffed off too much powdered pill while making the cut.  I finally just started scoring them with a single edge razor blade and breaking them.  From my point of view, it works better.  Even with my trazodone I put my thumb nail on the side opposite the manufacture score line and break them.  I think cutters are less precise and waste more of the med.

[Steve]

Hey ComeBackid,

I did a quick google on "viagra cutter" and came up with these:

http://www.forgettingthepill.com/cutters.html ($19)
http://www.cutviagra.com/ ($15 but looks like a generic pill cutter)
http://cgi.ebay.com/PILL-CUTTER-SPLITTER-CRUSHER-VIAGRA-LEVITRA-CIALIS_W0QQitemZ290041776547QQihZ019QQcategoryZ75041QQcmdZViewItem ($10 on the ever popular eBay)
http://www.drjoelkaplan.com/shop/customer/product.php?productid=16218 ($10).

I'm sure that there are more out there, just google it and start sorting through the results.

Good Luck,
Steve

[Liam]

I have tried several,including the one with the insert shaped like Viagra.  I use the inexpensive one I bought first at CVS.  Sometimes there is a little powder.  I just snort that (I'm  KIDDDING).  I figure if I get close It doesn't matter, 25mg or 26mg or 24mg.

I like the design of the Swiss cutter.  I just don't like the price.  It doesn't seem cost effective.  But, it is a gadget.  I love gadgets.  I might put that on my Christmas list.

[ComeBacKid]

Hey guys thanks for all the quick responses, I'm going to search around a little and just check in at CVS as well and look at some in person.  Steve, your right that viagra cutter looks like a regular old pill cutter, I swear after looking through links off google I've seen the same pill cutters for different prices.  Liam, I like the swiss gadget to, just way to exepensive,hopefully I'll get one in my stocking on christmas morning!

[ffmedic]

hello,
Been busy and haven't kept up on posts but I will. No changes in the curvature or
regression since last posting. Seems things are just sitting where they were when it first set in.

Question for PDE5 users. Has anyone tried one of the sites on line for ordering meds? My wife had spoken to several men who use the same place and since they all said the pills were effective, she ordered some. Guys after prostate surgey take larger doses than most of you say you take. They came today (3 weeks to delivery). Last year I tried one place one time. I couldn't tell the difference from any of my scripts but shipping was too expensive IMHO. Of course I was just weeks out of surgery then too. I have no idea if they would work today.

I'm going to try these. Got a Levitra 20 and Viagra 100....not by those names of course. I did have to laugh at the name of one of them...it's called Manly! If they are good it'll be a whole lot cheaper and, they are shaped better for cutting. See, this post does fall in line with the subject!  FFmedic

[Hawk]

This one is a pill cutter and magnifier all in one.  Couple a shot of Viagra and a magnifier and it should boost anyone's spirits.  

http://www.forgettingthepill.com/cgi-bin/ForgettingThePill/order.cgi?orderone++Tools+1+367+1

[ComeBacKid]

Hawk,

I saw that one, I think it only cuts into halves though and not quarters.  I also found this site that sells viagra, the real kind and generic, I was going to order a supply of generic viagra, what do you guys think, does it look legitimate?

http://www.xlpharmacy.com/online-pharmacy/buy-levitra-online/235.html

[Hawk]

I don't think you will find a pill cutter to cut in fourths.  It will require 2 cuts, 1/2, then 1/2 of that.  I suggest you try a single edge razor blade and score the pill with a cutting action (not just a straight down guillotine action like a pill cutter.  If on piece is a bit smaller, just take it first and include any crumbled pill with it.

You will have far less crumbling of the pill with this method.

As far as the online source, what does a "reliable source" look like as opposed to what an unreliable source would look like???  How would you ever know if you were taking full strength or taking impurities?

Finally, fats that are in every meal greatly interfere with the absorption of Viagra.  I think Levitra is a better choice.

[ComeBacKid]

Hawk,

That is the tough question, what is reliable and what isn't, found some cheap prices online that I thought I'd post for everyone.

100mg 60 capsules- $160

http://erectile-dysfunction.safemeds.com/

-This site really seems the least reliable to me but has the cheapest price

100mg 32 capsules- $196

-This site seems very reliable and is a canadian drug company.  

http://www.jandrugs.com/?gclid=CKafl7P_kYgCFSVtFQodxUP-Ow

It is backed by the BBB, CIPA, MIPA, and Pharmacy Checker.com, the prices are a little more expensive but may be worth the higher price to assure you are getting the real deal.

Both of these places I've listed the generic viagra, phizer's version is just way to expensive.

[Rico]

I was reading in www.umm.edu

This is a medical journal, I tried to link the article, but didn't work? Anyway I put in search ginkgo and pde5 and came to this on ED.... it said that Oxygen is the suppresser of TGF-B1 and the best thing one can do for the health of the penis is to get good circulation for the oxygen rich blood will suppress the tissue from scarring....

Ginkgo does help in this method along with circulation.....

Pentox and viagra I was reading on another study that used together are more potent for ED, the patience were give no more than 50mg of viagra twice a week and 1200 mg of pentox per day...they felt there was synergy with the two drugs.....I do believe they might have found the most effective way to get oxygen rich blood to your unit, and along with viagra.....



Ginkgo is mention also for this effective and was proven to be a pde5 inhibitor.... I have notice a warming effect in my hands and feet since being on the ginkgo and also in my unit....

Now the ved doesn't supply as much oxygen rich blood, but there is some in there and along with everything along the lines of oxygen or circulation...people can read it themselves, it is OXYGEN that suppresses TGF-B1....and in my book oxygen is oxygen.... it would be hard to argue that the pentox/arginine/viagra taken like prescribe could be beat for delivery..... if one is taking his ginkgo twice a day, arginine several times and ginseng along with opc's and other blood thinners like Vitamin E, and is in good shape and working out everyday with lots of carido for circulation, especially the legs(thighs) and core along with a perfect diet, they might be able to get enough circulation along with the VED to accomplish the same effect....

People who would use the traction devise might want to rethink, not much circulation going on there, might even hamper it.....

Rico

Rico

[George999]

So perhaps its time to start spending some time at those new fangled oxygen bars?  

[Rico]

They probally would kick you out for hooking up your unit to it....walking around with wood all day, or more like a chubby is what they think you should be doing.....how does a guy suppose to get any work done:)....

Isn't this a fancy way of saying circulation:).... I just had to say that!

Rico

[Hawk]

Maybe Angus can build a small hyperberic chamber and provide photo's and a parts list.

[PJ]

So I have a general question. Treatment with pentox, l-argine, & viagra seems like it might be helpful. Pentox is an FDA approved medication as a blood thinner but this 'new use' is not approved until a great deal more research is done.

Is it legal for a physician to prescribe it for peyronie's? Do they have that leeway to make a judgement? Should I have the expectation that my urologist will prescribe it for me if I ask? What factors might I need to be aware of to convince my doctor?

[Tim468]

Welcome Mick and PJ,

Stick around and let us know how you progress (hopefully for the better!) here. I found it *enormously* helpful just to "talk" via the boards with other men dealing with the same set of problems, and to share what has helped and what has hurt over the years. It allowed me to feel less isolated, to communicate better with my GF about my Peyronies Disease, and to take charge of my recovery from Peyronies Disease.

Tim

[Hawk]

Welcome PJ.  Thanks so much for contributing to the forum by posting comments and questions.  We depend on a wide number of members participating rather than a few monopolizing the conversation.

Physicians have latitude to prescribe a drug for a use other than the specific condition for which it was originally developed.  It is quite common and is referred to as "off label" use.  I think most physicians tend to be a bit more cautious about this practice however.

[Caring]

If anyone is interested... I few years ago i ran across this product and have used it for severval things ever since. They claim to Oxygenate the blood among many other things. I have used it  to effectively cleanse water in foreign  countries, taking it with me anytime I travel, used it on my dog for hair loss/stress (ok, so she is people too and the original reason I bought it). I use it for allergies, colds and used it to heal a dermatitis issue on my hubby. I figure  it can't hurt, and may accomplish your desires to get more oxygen to any affiliated body parts. Make up your own minds, but I like the stuff.

http://www.nzymes.com/product-ox-e-drops.htm

[Tim468]

The thrust of the article is that there are stem cells in the TA of patients with Peyronies Disease. These are cells that are "pleuripotent" - meaning the can transform into more than one kind of other cell. They do not seem to be present in the TA of people without Peyronies Disease.

The article (basicly) says that these cells in Peyronies Disease are responsible for the formation of calcifications (when that does occur), and the message is that turning off that transformation might prevent the formation of calcified lesions. How to turn off cellular machinery without hurting other cells is the trick - it is what keeps us from curing cancer easily. We can kill cancer cells, but unfortunately we kill other cells and the person dies. So the likelihood of being able to afffect this easily is not high. For now, we will have to stick to things that affect specific biochemical pathways, rather than entire cell lines.

Tim

[Power]

Thank You Tim for your explanation,

Another example of how great this forum is.

Power

[Tim468]

It's as good as any other theory. You might try to think in terms of synergy instead of linear movement.

But it is probably true that for some of us it will require elimination of lesions, restoration of normal, and maintenance of normal, as "steps" in healing.

Tim

[phil]

Does anyone have any other symptoms other than pain on erection and of course lumps, indentations, and curvature.   Does anyone have any discomfort in the pelvic region?  I seem to be having a flare up and the next day after having sex I sometimes have an ache in my penis, and pelvic,rectal,  or lower back discomfort.  It goes away after a day or two.

[DannyOcean]

This is interesting as I was about to post something of this nature tonight.  I don't have any discomfort in that region but one thing I have noticed is that the temperature of my penis tends to be cooler than I remember it being.  It's not cold really but definitely not warm either.  So here's a bit of a pet theory I'm developing...

I wonder if one of the things that might be a contributing factor to Peyronies is some sort of circulation problem.  This could be caused by a number of things including some sort of structure problems which are contributing to insufficient blood flow to this region.  If there was a structure problem this might help to explain your pelvic/lower back discomfort problems.  

It's interesting that the most promising drug for Peyronies Disease is Pentox which encourages circulation.  I wonder if there could be more to this.  Perhaps many of us who have Peyronies Disease have problems with circulation in this area.  Because of this we might be more likely to have had a traumatic injury than others.  

And here's something else to ponder.  I wonder how "well-endowed" those of us with Peyronies Disease are (or were before our injury).  Personally speaking, I'd say I'm average to slightly below average.  I wonder if there are any people here who are very well-hung with Peyronies Disease or if we're all a bit on the small side.

I'm trying to ponder all this stuff for a possible connection.  It's out there I know but my gut tells me there could be something here.

[Hawk]

Danny,

Circulation is very much an established factor.  

https://www.peyroniesforum.net/index.php/topic,130.0.html

However, you are likely paying much closer attention to your penis than ever before, and some of these "discoveries" are no doubt normal.

[howcanthisbe]

This is off topic maybe but im not sure where to  post it. I for one believe Peyronies Disease can be healed some or cured with the mind. I have been studying remote viewing and astro projection lately. I know a guy that claims he can astro project and remote view. Theres no doubt in my mind that both of these are real. First off I myself have astro projected at nighttime during dreams. I didnt know what this was until I read about it. What happens is that your soul leaves your body, many nights I have had my self leave my body and I float above my body watching myself sleep. When im floating above I have great pain, I feel as if I am going to have a heart attack. I hear loud vibrations and see flashes of blue and my body is paralyzed below. I always thought maybe I was having a heart attack but it was weird because I was watching myself and it seem as I was not dreaming so I was very scared. Anyways it wasnt until I looked this info up and found it to be astro projecting. Now lets look at remote viewing, you can see the present, past and future with remote viewing. Now it turns out I think time is a Illusion since this is possible. I know that sounds crazy but its proven people can see the future with this. Anyways to my point, I have also read the mind and body are one, one can heal itself with its mind. I found this article on another Peyronies Disease site, im not saying its real because users were saying he was lying on the forum. Here is what he posted:

About 20 years ago I was young enough to think I needed a bigger/longer penis. I like hypnosis for self help. So, over a period of several months I gave myself the post hypnotic suggestion to increase the size of my penis. After some months what occurred was nearly a 90 percent curvature when erect. I strongly believed that my brain applied to the muscles/tissues on one side of my penis and not all round.
Not painful but a bit uncomfortable.
At first It did not occur to me that the hypnosis was the cause. When it did occur to me I decided to try to give the post hypnotic suggestion to have it straighten out. I put myself under at least once a day and occasionally twice a day with the carefully worded idea that the curve would go away and my penis would return to normal. I would think about and visualize a straight penis several times a day.
FOCUS FOCUS FOCUS
It took nearly a year but my penis went back to normal. I do not suggest that mine is a typical case but for someone in pain or feels strongly about the problem should do several things. 1. Buy a book on self hypnosis and practice putting yourself under and giving yourself simple but observable suggestions for practice. 2. Find a hypnotherapist to teach you "self hypnosis" A visit or so should be enough to get you started working on your own.
If you believe strongly enough and are motivated sufficiently to solve a problem, the human brain can do most anything.
My wife was amazed at how the problem occurred and how it straightend itself out, so to speak.
Don't play with hypnosis, the brain can do some funny things, it is very literal and can interpret words and phrases differntly than our conscious reasoning. It may take a while but if you want it badly enough you can have success.

Now I know when I finally thought I  had Peyronies Disease my condition went from good to not so good literally in a week. I developed a dent that was never there for 3 years since I first got Peyronies Disease. Now I just had mild erection problems and slight bend before I thought I had Peyronies Disease for 3 years when this condition developed. Now all of a sudden I get a dent going across a quarter of my penis in 1 week when its been almost 3 years since I first would have gotton the condition? Now the dent has spread to cover half the front side across the penis. I really think my mind has made my Peyronies Disease much worse, im going to think positive and hope for results and try VED eventually. I know this sounds crazy, but the mind is more powerful then we will ever know and it can heal our body im convinced. What do you guys think?

[couldbeworse]

Phil,

I was diagnosed with nerve entrapment before another opinion said Peyronies.  I had (have) many of the same symptoms you have.

Couldbeworse

[DannyOcean]

HCTB, I've seen enough evidence of a mind/body connection to believe that you're on to something.  No doubt you'll find many naysayers but I for one think we're just scratching the surface of how powerful the mind can be on the healing process.  Do I believe all of this is just in our minds?  No, I think there's a physical approach and a mental one as well.  Combined they can be tremendously powerful.  I've been curious about the remote viewing thing myself for a while so I guess this is my official excuse to dive into it.

Also, I discovered something interesting over the last 24 hours.  I have this thing called Wild Divine (no affiliation) that is a bio-feedback tool that I use to practice deep and regular breathing.  Yesterday I started playing with it for the first time in a few months.  I did a bunch of deep breathing while reading, online, etc.  The result?  I've been hanging way better than any time in the last few weeks.  Could be coincidence but I wonder if getting lots of oxygen to that region isn't as important as getting blood to the region.  

Maybe it's placebo effect and maybe it's coincidence but since only good comes out of deep, regular, diphragmatic breathing I'm going to keep it up.  Thought I'd share it with you to see if it helps anyone else.

P.S.  I don't want this to sound like an ad for Wild Divine but there's a deeper level of breathing that I achieve when I'm using that than I ever have before.  I'd recommend this to anyone looking for a relatively cheap way to reduce stress, improve breathing, etc.

[DannyOcean]

One more thing...what's nerve entrapment?  The reason I ask is that when I move my body in certain ways (e.g., if I lie on my back with my knee to my chest and then drop it to the floor) I notice a mild popping sound in my pelvic/hip region.  It's never painful and it's been there for a while so I've never given it much thought but I wonder if there might be something there causing some restriction of blood/oxygen to my nether regions?  That might be a crazy theory but the mention of nerve entrapment caused my ears to perk up for some reason.

[Tim468]

Although you may have been astral-traveling or projecting, you may also have been having a parasomnia behavior (arousal out of REM sleep and being unable to move while having consciousness - sometimes associated with a distal view of the body).

At any rate, all this is curious to me. It is difficult to imagine either thinking ones way to Peyronies Disease, or thinking ones way out of Peyronies Disease, and especially difficult to imagine doing both! Franlkly, it is easier to imagine that you are nuts, or that your vision was skewed by something, rather than really curved! But taking it at face value, it is an odd story.

I know that stress can make anything worse, and can trigger pro-inflammatory states. It is harder to imagine it in terms of "incomplete" visualization of a bigger penis (you did not mention if your curve came from an enlargement on the long side of the curve or a shrinkage on the short side of the curve!). Heck if that was it, I would have focused on finishing the job to streightn out by enlarging both sides, not shrinking back to the original size!

Like may things, it is more likely that you had a temporary condition that improved over time and during which time you went through all sorts of machinations in your head. It is less likely that you meditated, thought, self-hypnotized or otherwise thought it away.

Tim

[howcanthisbe]

Tim it wasnt me who cured himself, it was another guy at another forum. Anyways Thanks Tim and Ocean for the positive feedback. Tim I think parasomnia behavior and astro projecting are very similiar in that one aspect. The thing is I had strong buzzing in my body, blue flashes, and extreme pain as if I was having a heart attack. I had this same "dream" as I thought it was back then like 30 days in a row. Anyways I just really think our mind can help heal our body for sure. Im going to look deeper into to it when I get the time. I will post any intewresting articles I find. Good luck to us all! We will all come out of this ok if we keep working together.

[Hawk]

Tim it wasnt me who cured himself, it was another guy at another forum.

HCTB, It also was not clear to me you were quoting another person and I was getting ready to call you on that because I distinctly remember that post in detail.  I have properly put that section of your post in a quote box so your post will be more clear.  Please go into modify and see the simple way I did this so you can use this technique.  you will see the word quote within brackets at the beginning and /quote within brackets at the end of the quote.

It has been a while, but as I recall that post was on the BTC and was attributed to RZZ who me and others on this forum know well, and it was an impostor post. In other words RZZ did not make that post but someone posing as him  told this incredible story.  If that is true, it adds even more doubt to an already unbelievable post.  While we may not have even begun to understand the power of the mind, it is equally difficult to grasp the vulnerability of many minds to ideas that are logically and factually without support.

[howcanthisbe]

Hawk sorry about not making myself clear, I will in the future. It is bad news indeed to hear this was a fake post, and yes it does make me feel bad.  Im not too worried though, because I know the mind is capable of at least helping Peyronies Disease. I will research this topic further.

[Rico]

Dear Old Timers:

Where do all the people go, the old peyronies brothers, do they get better, give up? Fall off the earth....I can see why they didn't go back to the old forum, what a zoo!! I never was on there but visit it a couple of times, terrible....this is so much more pleasant, you get blasted for telling the truth, or as you see it:), once in awhile, but that is healthy also, kind of checks and balances...

Hawk you brought up RZZ and I always read his post on dmso, very good, where is he?? Did dmso work for him, or some of the guys using the VED ect.....does anyone have a idea of where they go....

I'm just curious, I wonder if they don't get better and give up, or get better and go away, I hope this is the case....

If anyone has any news on positive results from anyone from the old forum or who they know, please post....

Rico

[howcanthisbe]

I know it may seem to alot of people that im grabbing at straws here, but I found alot of good reviews on a book at amazon talking about the mind healing the body. I dont know if I can post a link here so im not going to yet. Anyways one book talks about the author had cancer and she did her mind healing pratices for 3 months and totally elimanted the cancer. Anyways I just thought I would post that, if nothing more it gives me a little more hope that if all fails for me I can always try the mind approach.

[Tamarack]

Greetings Folks,

I'm new to a few things -- this forum, Peyronie's Disease, and my being diagnosed with Peyronies. So let me start with an introduction: I'm Tamarack Song, 58, a writer, educator, and lover of the wilder places. A few weeks ago I noticed a compressed groove on one side of my erection, near the base. "Peyronie's Disease," was my new urologist's diagnosis. "Take 800 I.U.s of vitamin E per day for two months,and 400 I.U.s thereafter, and let's see what happens." A half dozen questions later and I had the whole picture. Or so I thought.

Being the eternal questioner, I started doing some online research, and I'm still at it. What I've come up with thus far is that, because I don't have any pain,inflammation, or bending, I either have a mild case or I'm only in the acute (beginning) stage. I ought not wait to see what happens, says one practitioner on his website, because if I am in the acute stage I should begin treatment now, to lessen long-term damage.

Here's where it gets sticky. An author who's written about Peronie's Disease suggested I try Thacker's Formula, because with my economic situation I would have trouble affording some of the other natural treatments (which I would prefer over prescription medications, even though they would be covered by insurance). He said Thacker's Formula is as good or better than the other treatments anyway. What I've been able to learn about Thacker's Formula leaves me unconvinced: Is it a hoax? Would the people whose conditions improved, have improved anyway, because 30% of cases heal on their own?

And then there are the dozens of other suggestions, that range from vitamins to minerals to herbs to enzyme formulas. Not to mention the prescription options. Could anyone give this neophyte a hand with some perspective and advice?

Thanks, and I look forward to joining in, and supporting, this sharing.
Tamarack

[Hawk]

Welcome Tamarack and a special welcome for actively participating.

At this time, I will address only a few issues I feel somewhat confident about.  This is not meant to discourage you but to give you accurate information.

Instead of 30% resolution it is much closer to 10%, maybe 15% tops, and probably 8% in actuality.  I have never heard a urologist of any renown with Peyronies Disease that placed that number above 15%.

As you are developing deformity, you have inflammation regardless of pain.

If you have had Peyronie's less than 6 months, I would bet the farm you are still in the acute stage with inflammatory response.

Due to time constraints, I will end for now and let others jump in.  Good luck! You could not be in a better place than this group of members at this stage of your Peyronies

[scott]

DannyOcean,

Google "pudendal nerve entrapment", and pursue references to that type of nerve entrapment and other similar conditions.

howcanthisbe and DannyOcean,

Interesting that your posts are taking a metaphysical bent .  The lady you're referring to is probably Louise Hay, who has written a number of books and helped a multitude of AIDS sufferers.

Scott

[DannyOcean]

Thanks Scott.  I will look into that further.

By the way, perhaps it's mental but the deep breathing thing is leading to much better hanging throughout the day.  I have to think that there is probably a hanging/healing relationship and it's really interesting to me because I've never been able to figure out why I hang well at times and at other times not so well.  I'd love to hear others try this and see if it helps.  By the way, when I deep breath I really focus on the lower abdomen.  It almost feels like I'm breathing from groin.  Breathe as low as possible.  I've tested this on the Wild Divine and it produces the best results.  

Worst case scenario...by doing this you'll learn how to breathe more effectively.  Best case...perhaps it helps to heal Peyronies Disease and improve overall penile health.

[Old Man]

DannyOcean:

Have your ever thought about the fact that deep and measured breathing is one of the greatest ways of releasing tension? I have used that method of relieving pain for many years now.

Relieving tension is one's body also allows it to relax all over and therefore contributes to the better hanging of your penis. Try it sometimes when you are uptight and tense. Take at look at your testicles and penis to see where and how they hang. Then do the breathing exercise and observe them again.

You might be surprised at the results!

Best to you, Old Man

[Tim468]

Hi Tamarack,

Welcome to the forum. I would make a few suggestions - but most of all, I will challenge you to challenge your own assumptions! I say this because I believe very strongly that that which has helped us and that which has hurt us in the past can both get in the way of healing from Peyronies Disease.

A few suggestions off the bat. Read up here on brands of vitamin E to use - all are not created equal. Additionally, in the realm of "natural healing" I would strongly recommend supplements, including l-arginine, citrulline and acetyl-L-carnitine (and if you want to get fancier, propionyl L-carnitine). good and cheap supplies of these are available at bulknutrition.com (which caters to body-builders!).

A daily program of "stretching" out the potentially contracting tunica albuginea (TA) by getting daily erections, or by using the vacuum erection device (VED or "penis pump). The latter is more recommended because it promotes straigtening instead of simply getting hard (and remaining bent in shape)(although hard).

A holistic approach to health, including ramping up your anti-oxidant use (particularly via diet changes), and exercising, and sleeping well, may all help your penis, and will certainly help your mind.

However, I would not suggest for a minute that you avoid allopathic medicines. Something is amiss in your body, and your sexual health is at stake. I suggest that you consider all agents that can work for you to promote health. This can include Viagra or cialis or levitra - all of which inhibit Phosphodiesterase-5 and thus will modify (reduce) the inflammation of the penis' TA. Additionally, use of the Transforming Growth Factor beta-1 (TGF) inhibiting drug Pentoxiphylline (Pentox) is associated with reversal and prevention of disease in mouse models and also in (now) humans. It is very exciting to me that you are at a time point where you might benefit maximally from the use of this agent.

I hope that others will chime in with suggestions. We are trying right now to present a synthesis of the information we believe will most help a newcomer to the board and to the disease just like you, to save time (and to reduce our writer's cramp from typing!).

I hope that this info is helpful to you, and that you consider the potentially penis-saving role of some of the modern medicines.

Tim

[Angus]

  Hello Tamarack, and welcome to the board...

    Tim has summarized a good approach for you. I did want to jump in and mention that the Thackers Formula has been cussed and discussed for years. It was tried by many men (myself included, years ago) out of frustration and willing to try anything. How the formula actually came about and its hoax factor was discussed for the longest time and now isn't discussed much because of lack of data and other things have caused a lot of us to put Thackers on the very back burner. It did not help me at all, and I don't know of anyone in the past years who claimed it worked for them. I don't think anyone really knows the long term consequences of DMSO application, if there are any. The things to use in Tims post are much more recent than the Thackers Formula, but it's your decision on what to try. In summary, we just don't want you to burn valuable time on things that don't have a good track record. There is much information here on VED use as well... you could begin with the Highlights of VED's read-only thread in the Child Boards (under development). There is a link to these on the home page. This would give you a good foundation on the general thoughts here on VED's and their use.
   Again... welcome to the board.
 

[DannyOcean]

DannyOcean:

Have your ever thought about the fact that deep and measured breathing is one of the greatest ways of releasing tension? I have used that method of relieving pain for many years now.

I think that could definitely be the reason why I'm improving.  Whatever it is I've noticed a big difference the last few days.  I'm waking up "well-hung" and have had much less of the "turtle effect."  I'm not sure if being more relaxed or getting more oxygen to that area or what but I'm not going back to shallow breathing ever again.

[Fighter]

Can anyone explain what causes the turtle effect? I get that mostly when I workout and it is very annoying. Is there anything you can do for it?

Thanks
Fighter

[Old Man]

fighter:

The turtle effect when you work out could be caused by your body adjusting to the extra effort being exerted on it during the exercises. I have noticed the same effect when I do my cardio exercises at the Y. After several routines, when urinating afterward, I notice the drawn up effect.

I relate it to my body's extra adrenaline being added because of the extra exercise, etc. Could be wrong on this, but I do know that stress and worry causes one's libido to be reduced. So, it stands to reason that heavy workouts could cause the penis and testicles to be drawn up sort of like the "cold weather" effect.

Just my opinon and observation.

Regards, Old Man

[Fighter]

Old Man,
I guess that is a possibility? I don't know? All I do know is I have been working out for a long time and it never  happened to me before Peyronies Disease? Some people had PM me and said they think it could be blood flow? I just order Ginkgo to help improve my blood flow? Let's see what happens...

Thanks
Fighter

[DannyOcean]

I seem to get it a lot more now as well since Peyronies Disease.  I remember getting it in the past very infrequently.  Sometimes during squatting sessions although I wonder how much of that was a bio-mechanical thing.  Now I get it was I run and ride the exercise bike.  Less so during yoga.

I have no doubt that there is a circulation/blood flow/relaxation thing involved here.  My own experimentation with deep breathing exercises during the last week have confirmed that for me.  I'm not saying that figuring this out will cure Peyronies Disease but I do thing that having a "fuller experience" more often will probably help a lot in terms of providing the best possible condition for things to heal.

[Hawk]

There is no evidence of inherited memory even one generation back.  Wild cats big and small sharpen their claws only on wooden surfaces that will not dull claws.

The factual explanation is simple.  The body only has a specified quantity of blood that it constantly and sometimes instantly rerouted to where it is needed. What does happen is that when the body is called on for serious fight or flight, blood is drained from many deep organs, the skin, the penis, and anywhere it is not needed and fed to the large muscles for performance.  It is a very simple that explains why working muscles warm and pump-up when worked.  They have an increased volume of blood flow.  The body only has so much blood, it has to come from somewhere.

No doubt decreased blood flow or reduced size accent this very normal occurrence

[Hawk]

I don't care to debate wildlife or evolution.

I was not discounting nature.  I was explaining why your body draws blood from one place and routes it to another.  It is a VERY powerful process that moves blood to areas primed for specific action.  One pumping weights or running for his life does not need blood in their penis.  They need it in their muscles and their body reacts to put it there.  This is similar to what you feel when you are startled.  The blood drains from your face and your eyes dialate.

Over and out!